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Growing Old Gracefully Is Optional

Growing old is optional, growing old gracefully even more so.

My mom did not have it easy in the last 5 years of her life.  Her first problem was with her sciatic nerve, which first caused pain then weakness in her legs and eventually left her dependence on a wheelchair. I tried to keep in mind that she was in pain, scared and unsure during the times when she seemed to be going the extra mile to be as difficult as possible, but I wasn’t always successful.

After my father passed (Mom went just 4 yrs later), my mother became a shut-in.  This was pretty much by choice.  We lived 4.5 hrs apart, I’m an only child and we have no relatives who still speak to us living nearby. She refused to consider moving and her house looked liked something you’d see on “Hoarders,” but that’s yet another story. She wanted to live completely independent of help, especially mine, because this was the first time in her life that she was on her own, so I think she wanted to prove to herself that she could.

Did I mention “shut-in?”

She was defiant, she was determined to be independent and she was lying…I had a 74-year old teenager on my hands.

She ordered food through Amway. She bought her clothes via catalogs. She banked via the mail. She had a few friends who would come over and check on her most days, but the situation was far from ideal. Her mind was not the best, but she was sharp enough to lie to me about anything that didn’t show her situation in the best of lights.

For instance, she never told me about the time she fell and had to call the neighbors to help her up.  She never told me about the time, in a very confused state, she called 911 in the middle of the night because -best I can piece together- she had a dirty diaper and was having trouble changing it herself.  The cops busted the front door open and were not at all pleased to find her in no actual danger.

She did tell me about the time she called 911 for a ride to her doctor’s appointment, only because she felt a grave injustice was being done. Something had happened with her scheduled special needs ride, and she reasoned that if the doctor needed to see her then she needed to take an ambulance. She had received a bill for $700 for that non-emergency ride and didn’t think she should have to pay it. I did talk her into paying the bill, hoping she’d learn her lesson.

I tried mentioning the idea of assisted living, but she wouldn’t hear it.

They beat you and lock you in your room!” she screamed. Eventually, I convinced her to get some in-home elder care and a woman would come by three times a week for three hours at a time to cook, clean, and run errands for her. Finally, I could get the low-down on her condition from someone who would be honest with me.

This started out well, as Mom enjoyed having someone to talk to and she was now getting fresh, home-cooked meals instead of the packaged crap she ordered via the mail.  But, it didn’t last.  I got a call from the coordinator to tell me my mom was hitting the workers.  She was also being verbally abusive.  At one point, Mom chased a worker out of the house, screaming at her from the front door.

I got emails from a friend of Mom’s who had visited her, only to find her crying hysterically, saying “I hate my life!” and hitting herself in the head. When asked about it the next day, Mom acted surprised and said nothing like that had happened.

Then, Mom came down with a bad cold that required someone to stay with her while she was ill.  The elder care folks were great and worked out schedules so that she was tended 24/7 until she got better. Problem was, despite appearing to hate these helpers, once Mom got better, she didn’t want the 24/7 visitation to end.  In fact, now she was refusing to let them leave. I’d have been fine with the additional help, but we could not afford the $10,000 per month for very long.

I had to talk with Mom and tell her it had to stop. This did not go well, and there were tears, but in the end, she cut back to 1 visitation, 5 days per week.

The pain and weakness in her leg was getting worse, and it was spreading to the other leg.  We talked to a number of doctors, but she didn’t like most of them and liked even less what they had to say.  Finally, after yet another fall that she still would not admit to, she was in the hospital again.  Her doctor convinced her to have back surgery, and at last she agreed.  She was hell on wheels both pre- and post-surgery.  She had a fear of falling that was off the charts.

When the nurses tried to move her in the bed, or, heaven forbid, try to get her to stand up, she’d scream. I’m talking hear-her-down-the-hallway screaming.  I’d leave the room and stand outside biting back tears whenever anyone tried to work with her.

When she was well enough to leave the hospital, she went to a rehab facility to help her get back on her feet as much as possible. It was there that some medical genius, who I’d kiss on the lips today, put her on anti-depressants (yeah, I know, “what took so freakin’ long?!” – she refused them before because she didn’t want to “take dope”).  Mom became a bit more reasonable and a little easier to deal with.  More like heck-on-wheels.  When I asked her why they put her on the happy pills, she said “so I’d stop screaming.”

Hallelujah!

During rehab, her doctor spoke with me, informing me that she could not live on her own. Preaching to the choir, sir. So, through hook, crook and threats of Adult Protective services, I got her to agree to move “temporarily” to an Assisted Living facility near me.  I found a really nice place a mile from my home and they assured me that the beatings would be kept to a minimum. (Joke!)

We moved some of her favorite things up and set up her two-room apartment to look really nice and homey. When she got out of the hospital we drove her straight to her new home.  Despite hearing how horrible it was, we watched her start to enjoy life again.  She was making friends and playing Bingo every day.  God forbid you came by during Bingo hours, only did THAT once.

Mom *loved* the call buzzer and actually wore the one by her bed out, because she used it so much.  She still managed to keep things lively.  I got a call from her one Easter morning, telling me she couldn’t move her leg and perhaps she had had a stroke. “Should I go to the hospital?”  Well, the normal answer would be “Hell YES!” but I had learned to ask.  “Why didn’t the nurse call the ambulance for you?” I ask. Mom said that they wanted her to check with me first.  None of this was adding up, so I told her I’d be right over.  When I got there she was wheeling around her room, fully dressed and looking fine.  I asked which leg it was that she could not move.  “This one!” she said, bouncing the leg up and down.

Her behavior continued to become more erratic, and I got a call that I never thought I’d get.  Mom was flashing her boobs at the male help and at some poor, unsuspecting wheelchair repairman.  Oy.  A doctor was brought in and a diagnosis of dementia was made.  This only pissed her off.  She accused the facility and the doctor of telling horrible lies about her. “I’d never do that!” she yelled.

In the end it really was a stroke that took her.  The weekend of Thanksgiving she had a massive stroke affecting half of her brain.  She had her 78th birthday in the hospital, but was not aware enough to know it and she passed just a few days before Christmas.

I’m still working on cleaning out the house, but it is getting close to being done.  I avoid driving by the assisted living place, still too many bad memories. I can laugh about Mom flashing the help. It’s two years later and I’m finally getting to the point that I don’t jump when the phone rings.

Growing old gracefully is optional, for sure.

Parent Loss Resources

What is Parent Loss?

Your mother or father has died. Whether you had a good, bad or indifferent relationship with the parent who died, your feelings for him or her were probably quite strong. At bottom, most of us love our parents deeply. And they love us with the most unconditional love that imperfect human beings can summons.

You are now faced with the difficult, but necessary, need to mourn the loss of this significant person in your life. Mourning is the open expression of your thoughts and feelings about the death. It is an essential part of healing.

While the death of a parent is a rite of passage; no adult child should expect a parent’s death to leave them unaltered. It is quite normal for a parental death to have a profound affect on even the most stable of people.

The death of a parent imposes an unexpected crisis for healthy, well-functioning adults. This crisis may lead to psychological distress, depression, alcohol use and abuse, and impaired physical health.

These effects are generally unnoticed as the adult child mourning the loss of their parent assumes that they are unusual for their strong response.

Society gives few messages that seem mixed about how to “appropriately” grieve for parents. Loss of a parent is the single most common form of bereavement in this country. However, the unstated message is that when a parent is middle-aged or elderly, the death is somehow less of a loss than other losses. The message is that grief for a dead parent isn’t entirely appropriate.

After all, the death of a parent is the natural order of things.

When a parent dies, we are supposed to be prepared for this normal life passage, or at least be more ready to accept it when it happens. We are expected to pick ourselves up, close the wound quickly, and move on. We should not require much time to get over it.

Again, the death of a parent is the natural order of things.

However, just because the death of a parent is common place and is the natural order of things, this does not mean a person can or should be expected to simply and quickly bounce back.

On the contrary, the death of one’s parent(s) is extremely difficult for most if you have had a good relationship with your parent(s) and even if you haven’t. In fact, sometimes the latter makes it even more difficult due to unresolved issues or conflicts.

When a parent dies, it can be unexpectedly devastating and cause considerable upheaval in even an adult son or daughter’s life. The magnitude of this loss can take you by surprise and helpful resources are not that plentiful.

Here are a few suggestions for coping with the natural order of things, or when a parent dies:

1. Don’t expect to be ready for the natural order of things; you won’t be.

2. Never let anyone belittle this loss, make you feel guilty for grieving deeply, or hurry you through your grief. You are entitled to feel all of grief’s intricacies and all of grief’s intensity.

3. Grieving for a parent, like all grief, can be exhausting emotionally, physically and spiritually. Be kind to yourself.

4. This work of grief takes time; the process must not be hurried. And it is never entirely over.

5. Even as an adult, don’t be surprised by feelings of abandonment and uncertainty that you experience.

6. After they are gone your parents will continue to be a part of your life, just in a different sense. You will always be their son or daughter.

7. Grief does not end. Rather grief comes and goes. And then it comes again.

8. If you feel the need, seek out support from others who’ve been there, a friend who cares, or a professional who can help guide you through the work of grief.

When a parent dies, yes, it is the natural order of things.

But taking time to grieve for them should be as well.

When a parent dies, we lose the chance to show them the people we become as we get older. We lose the ability to learn the wisdom their age and experience brings.

There is an added component when you find yourself suddenly the oldest generation in the family. A new set of pressures lies with you on top of the grief you are going through.

We may no longer be small children, but even as adults, we were our parent’s child. When a parent is gone, we lose the title of “someone’s child” forever.

What is Loss?

Loss is the involuntary separation from something we have possessed and perhaps even treasured, or someone we love and care about.

Everyone experiences a loss at some point in their lives – whether it is major or minor. Loss is universal.

Loss involves emotional pain. Significant losses produce emotional upheaval. Loss requires change and uncertainty and adjustments to situations that are new, unchosen, and uncertain.

There is no right or wrong way to feel after you experience a loss. Minor losses, such as the loss of an opportunity, may bring feelings of frustration, disappointment, or anger. Major losses can lead to similar feelings, overwhelming feelings, sadness, pain, or numbness.

You do not have to be “strong” after a loss to protect others around you. Expressing emotion is how the body and mind process and relieve the pressure of intense or overwhelming emotions. Crying or expressing other emotions does not make you less of a person. It is also not uncommon for people to feel numb. People who don’t cry may still be feeling the effects of a loss. Everyone expresses their pain differently.

No one can tell you how you should feel about something. Anyone who tries to tell you that how you are feeling is wrong is wrong.

Visit here to learn more loss and coping with loss

Sudden Losses are losses that happen due to accidents, crimes, or suicides and that do not give us any time to prepare. These type of losses often shake us to the core, making us question the stability of life. The loss can feel immediate, severe, and agonizing. It can be difficult to sort through many emotions and feelings at the same time, and it may take time and space to adjust to the loss.

Predictable Losses, like those due to terminal illness, allow for us to prepare for the loss. This type of loss also creates two layers of grief: anticipatory grief (the grief related to the anticipation of the loss) and the grief related to the loss itself.

One reason loss is so difficult is that it can be permanent. As humans, our lives are so fluid that the idea of permanence can be difficult to grasp. Further, if your life is structured around the person, object, or concept lost, it can be difficult to adjust to new patterns and routines.

How to Cope With Loss:

 Grief is one of the most common reactions to a loss. There are typically five stages of grief:

  1. Denial
  2. Anger
  3. Bargaining
  4. Depression
  5. Acceptance

These stages may happen in any order, at any time, or not at all. Some people feel some but not all of the stages of grief. Because there is not a typical loss and each situation is different, it is hard to figure out what a “typical reaction” is. Some people feel:

  • Shock and disbelief – difficulty accepting what happened, numbness.
  • Sadness – one of the more common feelings experienced. This may also be emptiness, despair, loneliness, and crying.
  • Guilt – things you said, shouldn’t have said, or wanted to say, not preventing the death.
  • Anger – feelings of anger and resentment.
  • Physical symptoms – aches, pains, headaches, nausea, changes in sleep or weight.

However you are feeling, it can be overwhelming and out of control. One way to manage intense emotions is to observe, describe, and label your emotions. Sometimes putting a name to your emotion can help you express it. Also remember that we experience emotions like a wave – the emotion will build, crest, and recede.

Talk to friends and family who love you and make you feel good about yourself. Lean on people who love you and care about you.

Don’t expect that you’re going to “get over it.” The only way to “get over” a loss is to go through the stages of grieving. There’s no reason to try to be the strong one – just let yourself feel however you feel.

Write about it. Sometimes the act of writing down how you’re feeling can help solidify those feelings and help you to grieve your loss.

Let yourself feel the loss. The only way to get through a loss is to go through the stages of grief. You can’t bypass it, no matter how much you’d like to. Sit with your feelings and acknowledge them.

Talk to a therapist or grief counselor – someone who is trained to help you get through your grief.

Exercise – exercise releases endorphins, which are the “feel-good” hormones.

Don’t minimize your own loss. If it was a loss, it was a loss. Losses are meant to be grieved.

Don’t compare your loss to others’ loss. It’s apples and oranges. You feel a loss how you feel it, not how someone else feels it.

Be sure to take care of yourself. Go through your daily hygiene routines, get up, and do something.

IT’S OKAY TO BE SAD!

Tips for Coping With the Loss of a Parent:

Remind yourself that you have every right to grieve the loss of your parent. An adult child may be the forgotten mourner as other family members assume that the adult child has moved on with their life and is not as affected by the illness or death of a parent. It’s not true. The loss of a parent is painful at any age.

Release your feelings:

Find ways to grieve and share the memories of your parent.

At Band Back Together, we welcome posts about your loved one. Please share your treasured loved one with us.

Reach Out For Support

Consider getting support from a grief counselor These professionals are trained to help you understand your feelings and find additional ways to cope. Look into support groups, which allow you to connect with other people who are coping with the loss of a parent.

Lean on family and friends. They can be a great source of comfort during the loss of a parent, even if they’ve not experienced the loss of a parent themselves.

Perhaps the most compassionate thing you can do for yourself at this difficult time is to reach out for help from others. Think of it this way: grieving the loss of a parent may be the hardest work you have ever done. And hard work is less burdensome when others lend a hand.

If your parent was old, you may find that others don’t fully acknowledge your loss. As a culture, we tend not to value the elderly. We see them as having outlived their usefulness instead of as a source of great wisdom, experience, and love. And so when an elderly parent dies, we say, “Be glad she lived a long, full life” or “It was his time to go” instead of “Your mother was a special person and your relationship with her must have meant a lot to you. I’m sorry for your loss.”

Blended or nontraditional families can also be the source of disenfranchised grief. If you have lost someone who wasn’t your biological parent but who was, in the ways that count, a mother or father to you, know that your grief for this person is normal and necessary. You have the right to fully mourn the death of a parent-figure.

Seek out people who acknowledge your loss and will listen to you as you openly express your grief. Avoid people who try to judge your feelings or worse yet, try to take them away from you. Sharing your pain with others won’t make it disappear, but it will, over time, make it more bearable. Reaching out for help also connects you to other people and strengthens the bonds of love that make life seem worth living again.

Be Tolerant of Your Physical and Emotional Limits

Your feelings of loss and sadness will probably leave you fatigued. Your ability to think clearly and make decisions may be impaired. And your low energy level may naturally slow you down. Respect what your body and mind are telling you. Nurture yourself. Get enough rest. Eat balanced meals. Lighten your schedule as much as possible.

Allow yourself to “dose” your grief; do not force yourself to think about and respond to the death every moment of every day. Yes, you must mourn if you are to heal, but you must also live.

Embrace Your Spirituality

If faith is part of your life, express it in ways that seem appropriate to you. Allow yourself to be around people who understand and support your religious beliefs. If you are angry at God because of your parent’s death, realize this feeling as a normal part of your grief work. Find someone to talk with who won’t be critical of whatever thoughts and feelings you need to explore.

You may hear someone say, “With faith, you don’t need to grieve.” Don’t believe it. Having your personal faith does not insulate you from needing to talk out and explore your thoughts and feelings. To deny your grief is to invite problems to build up inside you. Express your faith, but express your grief as well.

Search for Meaning

Use the tragedy of losing a parent to grow as a person. Use it to change how you approach your own aging process. Use it to become a better friend and partner and to learn how to express the love you have for others.

You may find yourself asking “Why did Mom have to die now?” or “What happens after death?” This search for the meaning of life and living is a normal response to the death of a parent. In fact, to heal in grief you must explore such important questions. It’s OK if you don’t find definitive answers, though. What’s more important is that you allow yourself the opportunity to think (and feel) things through.

Treasure Your Memories

Though your parent is no longer physically with you, he or she lives on in spirit through your memories. Treasure those memories. Share them with your family and friends. Recognize that your memories may make you laugh or cry, but in either case, they are a lasting and important part of the relationship you had with your mother or father.

You may also want to create lasting tributes to your parent-child relationship. Consider planting a tree or putting together a special memory box with snapshots and other keepsakes.

Move Toward Your Grief and Heal

Grieve in measured doses. Life does, indeed, go on. Don’t force yourself to think all day every day about your parent’s death. Of course you must mourn to heal, but you must also go on with your life.

Forgive yourself for being human. Some of us have remarkably troubled relationships with our parents, and the loss of a parent may cause us immeasurable guilt, as there’s no amending any past troubles.

To live and love wholly again, you must mourn. You will not heal unless you allow yourself to openly express your grief. Denying your grief will only make it more confusing and overwhelming. Embrace your grief and heal.

Reconciling your grief will not happen quickly. Remember, grief is a process, not an event. Be patient and tolerant with yourself. And never forget that the death of a parent changes your life forever.

Pay Attention to Your Health.

Grief often leaves people feeling physically and emotionally exhausted. It makes sense to eat regularly and rest when you need to. A visit to your family doctor is also a good idea. Your doctor can assist you in understanding the symptoms of grief. When you’re not feeling like yourself, reassurance from a doctor you trust can be very comforting.

Watch Out For Grief That Turns to Depression:

What Are The Symptoms of Major Depressive Disorder?

The main symptom of Major Depressive Disorder is a pervasive feeling of sadness, loss, anger, or frustration that interferes with daily life for more than two weeks, however there are often additional symptoms a person experiences. Please call your doctor if these symptoms appear for longer than two weeks;

Other symptoms of MDD may include:
  • Agitation, restlessness, and irritability
  • Change in appetite and weight
  • Difficulty concentrating
  • Fatigue
  • Feelings of hopelessness, worthlessness, self-hate, and guilt
  • Loss of interest in activities that were once enjoyable
  • Thoughts of death or suicide
  • Social isolation – ignoring social requests, preferring to stay in alone
  • Changes in sleeping patterns
Symptoms in Older Adults

In older adults, MDD may look a bit differently than it does to those younger which unfortunately means that older adults may be under-diagnosed with MDD. Here are some specific symptoms of major depressive disorder in the elderly:

  • Memory difficulties or personality changes
  • Physical aches or pain
  • Fatigue, loss of appetite, sleep problems or loss of interest in sex — not caused by a medical condition or medication
  • Often wanting to stay at home, rather than going out to socialize or doing new things
  • Suicidal thinking or feelings, especially in older men
Symptoms in Children and Teens:

Common signs and symptoms of depression in children and teenagers are similar to those of adults, but there can be some differences.

  • In younger children, symptoms of depression may include sadness, irritability, clinginess, worry, aches and pains, refusing to go to school, or being underweight.
  • In teens, symptoms may include sadness, irritability, feeling negative and worthless, anger, poor performance or poor attendance at school, feeling misunderstood and extremely sensitive, using recreational drugs or alcohol, eating or sleeping too much, self-harm, loss of interest in normal activities, and avoidance of social interaction.

The Emotions You May Feel After A Parent Dies:

Your grief is unique. No one grieves in exactly the same way. Your particular experience will be influenced by the type of relationship you had with your parent, the circumstances surrounding the death, your emotional support system and your cultural and religious background.

As a result, you will grieve in your own way and in your own time. Don’t try to compare your experience with that of other people, or adopt assumptions about just how long your grief should last. Consider taking a “one-day-at-a-time” approach that allows you to grieve at your own pace.

Expect to Feel a Multitude of Emotions

The parent-child bond is perhaps the most fundamental of all human ties. When your mother or father dies, that bond is torn. In response to this loss you may feel a multitude of strong emotions.

Numbness, confusion, fear, guilt, relief and anger are just a few of the feelings you may have. Sometimes these emotions will follow each other within a short period of time. Or they may occur simultaneously.

Sadness – it’s expected to feel sad after a parent dies, but the overwhelming grief may catch you off guard. Especially if it’s the second parent to die, leaving you an adult orphan.

Anger – if you came from an abusive or dysfunctional family, it may bring those feelings of unresolved anger back out to the surface. If you came from a loving family, you may be angry that you’ve now lost it forever.

Relief – if your parent was ill before they passed away, you may feel relief when they do die. The relief may be especially evident if you were the caregiver for your sick parent. Feelings of relief do not imply you are a “bad person” or “bad child”; it’s a natural response.

Guilt – should you have had a difficult relationship with your parent, you may experience guilt over what was said (or what was not said). Maybe you feel guilt because you didn’t spend enough time with your parent. Guilt is very normal.

Abandonment – even as an adult, you may feel deeply abandoned when your parent dies. You are no longer their child and you no longer have those ties to your past. Abandonment is especially common when both parents are deceased.

How The Death of a Parent Impacts the Family:

Grief is as unique as the person who experiences it.

If you have siblings, the death of a parent will affect them differently than they affect you. The death of a parent may bring up old (and new) rivalries between siblings, and this is natural following a parent’s death. You and your brothers and sisters may disagree about the funeral, for example, or argue about family finances. Recognize that such conflicts are natural, if unpleasant. Do your best to encourage open communication during these times.

When the death of one parent leaves the other a widower, try to understand how difficult the death of their spouse was. Dealing with the loss of a spouse is very different than losing a parent. Try to be as caring and compassionate as you can toward your surviving parent. Here is a resource for partner loss.

The death of a parent may be very challenging for your children to handle. Just as your relationship with your parent was unique, their relationship with their grandparent was also unique.

Seek extra support.

Additional Resources For Parent Loss:

Journey of Hearts – a wonderful site with ways to remember your loved one and ways to deal with the stages of grief.

Page last updated 8/2018

Angry And Frustrated

For the last five years, I’ve been lying to everyone; my parents, my children, social services, but most of all, myself.

My “courtship” with my husband lasted just three months before we became engaged. A year and a month after we met, I married him. I blindly ignored the warnings from my parents, my loved ones, and my own eyes. I thought I could change him. He would be better after the wedding, when all the stress was gone.

How wrong was I?

Within months of our marriage, what I saw scared me, but I decided to stay, thinking, “I can still change him. I can make him better!” I was so arrogant!

We had just conceived our first child when he sprained my arm. I told myself that it was an accident and justified it to everyone else.

His sister assaulted me when I was pregnant. He put me down in front of his parents.  His mother assaulted me many times. They told me it was my fault. It was all my fault. Everything was always my fault.

What’s worse is that I genuinely believed them!

They threatened to take my baby away from me if I left. I was so scared of them, I stayed.

Now that WAS my fault! I should have left, but I didn’t!

He raped me the first time when our daughter was just five days old. I can still remember the searing agony that tore through my whole body as he did it! The tears and cuts burning with fire, my screams mingling with those of our daughter who was in the same room as us! That was my fault too apparently. After that, I had to have treatment for an erosion in the womb. That was also entirely my fault.

He was diagnosed with Borderline Personality Disorder. Now he had something else to justify his treatment of me. He “needed” round the clock care, an excuse to stop me from working.

He moved me away from my parents to an isolated town and wouldn’t let me visit them. My parents still blame me for that, as if I had a choice!

After our second child was born, the abuse got worse and worse. I confided in my midwife about him raping me when our daughter was five days old. She and all the other midwives we saw made a point of reminding him that sex wasn’t allowed before my six week check. Normally a woman is signed off by the midwife within days of giving birth. They visited me for over a month to protect me. As soon as my six week check was over, the rape began again. This time almost every night and sometimes while I was asleep.

I haven’t slept for almost two years! I began to crave the oblivion of deep sleep, but I couldn’t because of the fear of what he would do to me while I slept. Twice he raped me anally because I had a period. If he wasn’t doing that, he would say things like, “I was hoping to have sex with you, but I can’t because you’re bleeding,” as if it were somehow my fault for being a woman.

That wasn’t the end of the emotional abuse. There was always shouting and yelling. The police were called. Social services were called twice. He isolated me more and more from our friends and would only let me go out with one of the children at a time.

He’d lock me in the house and “forget” to leave my key behind. Sometimes, he would move my keys, and when I wasn’t looking, would put them somewhere I’d already looked. I thought I was going mad!

When our son was five months old, we went on holiday with his family. While we were there, he dragged me out of the room by my legs in front of our daughter and threw me out into the rain with no shoes and no coat. When he finally let me in half an hour later, I had to sit in my wet clothes feeding our son, while his mother lectured me on how the whole thing was my fault.

A week later, I was rushed into hospital with chest pains. Everyone noticed the bruises and three people made separate calls to social services on my behalf. They sent two police officers out that night to check on the children and me. It was so humiliating! He would never let me speak to men because as far as he was concerned, I was cheating on him with every single man I spoke to.

While I was visiting my parents, he kissed another woman. I wish I’d left him then! But I listened to his sob story about how he was really going to change this time! He did change …for the worse.

In November 2012, his brother assaulted me. I had to go to hospital and was on crutches for six weeks because my sciatic nerve had gone into spasm. I lied in the hospital and said that I’d fallen in the kitchen. I was so scared that my children would be taken from me this time.Do you know how much sex hurts when you have sciatica? Especially when it’s rape.

In May 2013, I was diagnosed with Fibromyalgia. The doctor believes there is a link between Fibromyalgia and Post Traumatic Stress Disorder. That was another excuse to isolate me further from everyone. I wasn’t allowed to do housework because I was “too ill.” I’d given up fighting him. I was so far into my shell, I couldn’t even care for our children.

He slowly crushed me to the point that I didn’t know any different.

We had a visit from our new health visitor. He told her that he was afraid of bathing our daughter because he was afraid of having sexual feelings for her. I was shocked and scared, but I didn’t know what to do! I should have left him there and then, but I couldn’t! I was paralyzed by five years of emotional, financial, and sexual abuse. He’d groomed me for this very eventuality so that I wouldn’t leave him!

The next day a social worker turned up with two police officers who seized all of our computer equipment. They told me that I needed to get the children out of the house. I replied that if they were going, I would be going too. They agreed.

My children have been protected by social services for three months now. I’ve ended the relationship and am seeking help for the abuse. Social services are being as helpful as they can be, but the health visitor thinks I should have left and should not have my children back. She thinks I’m a failure as a mother.

Maybe I am. I should have left. I should have sought help sooner. I have to live with that for the rest of my life. I obviously don’t deserve my children. Obviously love isn’t enough!

Old Reliable

Note: some of you may recognize parts of this story. I ask that you please respect the thin veneer of anonymity I’ve created by posting this here and only reply in the comments here, on this post. Thank you.

Why am I always the reliable one? I’m tired of people depending on me.

When my ex and I first got together, I announced that I was going to be teacher as a means to support my novel-writing. She thought that sounded swell, so she was going to be a nurse to support her art. That lasted a year or so. She finally had a little mental “snap” and quit school, just two classes short of a degree in English and art.

“If it’s what you want,” I said, “then do it.”

A friend later claimed that my now-ex had “supported” me as I went through grad school. Wrong. I worked full-time through grad school just as I had through college. I brought in at least half of our income. I paid my bills. On time, no less.

My ex’s little “snap” got worse. There were times she was catatonic on the couch. I pleaded. I begged. As a last resort, I yelled and that seemed to be what she wanted at that moment. Not something I could do ongoing – so I pleaded and begged her to get counseling. “Sure,” was the response, but it never happened. She met someone else. He convinced her to get help. So she did. For him.

She showed me a journal entry not long after she started therapy. The first blow was when she said that I was her financial stability while the other guy met her emotional needs. I thought this was her way of announcing she wanted a divorce. Apparently, however, she didn’t see anything wrong with this and pointed to the most disturbing part of the entry – “This, THIS is what I wanted you to really see!” This was the part about how she was so full of love that she loved everyone, and more than that, that she could bed anyone. Including her mother and grandmother.

Ummmmmmmm.

We went back to her counselor to answer the question that had been posed the previous week: why are you married? My answer was: I want a divorce. There was just no coming back from that journal entry. Not when she couldn’t see how screwed up it was. Not when she only thought of me as her financial stability.

My next wife couldn’t believe I’d put up with so much from the ex, much less for ten years. But I don’t believe you leave just because someone is ill. I stick to the commitments I make and I take that responsibility seriously.

My current wife moved in with me because, well, because she was falling apart and because I keep things together. It’s what I do, what I’ve done since I was very small. We fell in love. And then we got catastrophic news – I had cancer. No health insurance, not even breaking $20,000 a year, despite having a coveted professional job at a very prestigious place. My new wife worked, but didn’t have a career and was not sure what she wanted to do next. We were dead broke.

But just as I fought my way through childhood sexual abuse, I beat the shit out of the cancer as well. About then, I was offered full-time employ at another prestigious organization. I thought I had a career. I began to relax into my life.

We fussed over the hours I kept. We fussed because I have difficulties taking breaks and tend to work myself into a state of exhaustion. We fussed over keeping the house picked up. We fussed over what to do on vacations.

We never really fought or had an outright argument, not really. We were good at dialoguing and compromising. I’m not saying sometimes there weren’t sometimes emphatic words, but we worked hard at being reasonable and at not actually yelling.

Until I woke up one day and realized that I felt like I’d made all the compromises.

Please note that I said I felt like I’d made all the compromises. I don’t think that’s strictly true; I’m sure she has her list.

I lost my beloved career. Part of me thinks it’s because she complained about the hours I kept. But I have the feeling that’s not true – there were political reasons for getting rid of someone like me, many of them. But I can’t help that feeling ….

I found a new job eventually. It was dull and boring and I said I was only doing it until she was done with school and ready to head to graduate school. Then I could – perhaps – afford to be more picky with my choice of employ. So I waited. And I grew to love my job. The longer I worked there, the more they fitted tasks to me instead of trying to fit me into a particular little round hole when I’m so obviously a triangle. She asked me to quit talking about it because she hated her job.

She had one class left. The one class I was most fit to help her with. But she put it off. Dropped out. Took it by correspondence class, but then didn’t keep up with the work. And somehow, still got her diploma in the mail.

But she didn’t apply to grad school.

She continued at the job she hated. Insisted that there were no jobs in her field. Her workplace is making her sick constantly, but rather than look for any job just to get out of there – even a temporary job instead of something in her career field – she continues with this one. Fusses about it.

The job I’d started out hating but had grown to enjoy and was launching a new career for me, abruptly and unexpectedly closed just before the economy really tanked. I eventually found a new job at the most dysfunctional company I can imagine and have spend the last three and a half years trying to find something else locally.

And now she has completely folded in on herself. It’s been painful to watch in every single way. Neither of us are outgoing people but she used to go out with friends. I realized the other day not only do I not have any friends (long-standing issue having to do with my shyness and social confusion, not with her), but she no longer has friends either. It’s like pulling teeth to get her to agree to go out without me, even just to the grocery store to pick up something that she needs. (Don’t assume I don’t go to the grocery store – I do. I’m talking about a run for the one vital ingredient she forgot or the one medicine she ran out of two days ago and keeps forgetting she needs until it’s time to take it again.)

Like my ex-wife, she, too, has ground to a halt. Stopped functioning in any meaningful way. She wants praise when she remembers to do a load of laundry. (Again, please don’t think I don’t have chores – I take care of the dishes and kitchen, she does the laundry. We have split all of the household chores.) I appreciate having chores done – but I don’t see the need to congratulate her every time she does the things she is supposed to do. I don’t want to be thanked for doing the dishes or scooping out the cat box. Those are my chores; I am supposed to do them.

Now, if we’ve been really busy and she makes an extra effort to do 18 loads of laundry in an evening (I exaggerate!), then I do tell her thank you. That genuine, kind of surprised, wow, honey, that was a lot, thank you!

But I’ve felt like she’s disappearing. I’ve pointed it out, cautiously, gingerly. I’ve talked around asking her about counseling, but she has always insisted that talk therapy does nothing for her. She finally announced six or so months ago that she decided she needs counseling. But she never followed through.

And now? Since the middle of August she has been to work twice. TWICE.

She went a week and a half before telling me. Turns out work called and left a message on the machine telling her that she needed to contact them and get put on short-term disability. Or -the implied threat- lose her job. She finally did contact her doctor. She was put on short-term disability. Had a slew of doctor appointments. The “stress specialist” said given her symptoms and her general twitchy demeanor, she is genetically predisposed to panic attacks. He’s giving her exercises to do. She’s also been prescribed medicines to take to help when it gets bad. The stress doctor would rather she stay off work for a total of four weeks since he started seeing her, but for some reason, she was to go back last week, after just two weeks. She made it two days (I think. I fear it was only one day, but I don’t remember and I’m afraid to ask.)

She sits at home and honestly, it’s become a cliche. She reads romance novels and pets the cats. I have to ask her if she will please do the smallest amount of one of her chores. She is home all day, doing nothing. She doesn’t do whatever small chore until after I get home from work. (Except for the day in which her chore was to make a phone call.) I have had to do several of her chores just to make sure they get done – on top of my chores, on top of my work week, on top of my work-from-home extra job. I have cringed when she makes a commitment at the church, fearful that she will fall down and I will have to keep that commitment for her (or put up with the fallout) – and been amazed when she keeps a commitment made to others … but not the ones she makes to me.

I am wracking my brain to figure out what I’ve done wrong. Did I just fall in love with women who happened to have similar issues? Did I do something wrong to trigger such behaviors? Am I so toxic that I poison them somehow?

I fear that she will lose her job soon. There are a lot of plans we made together which were time-sensitive which will die completely if this happens, including one that I have wanted with all my heart and soul since I was a very small child, but if it doesn’t get put into motion within the next year, the window of opportunity will slam permanently shut. She’s the one who told me we could do that, not to give up hope.

And I can’t help but feeling that this breakdown is tied to the timing of that plan. That her heart is not in it, but she can’t tell me and so the breakdown. The problem is, I had given up on that plan. I had put it aside completely and given up on it. And she brought that plan back to life two months ago. Dragged it out of its moth balls, dusted it off and set wheels in motion so that I believed with all my heart that it would happen after all.

And now I fear it will not. And I fear that we will not survive as a couple if her breakdown kills that plan.

I don’t understand inactivity. And so I have a difficult time understanding how she can just not walk into work every day. I am trying to be supportive. But for God’s sake, people are relying on you to go to work every day. I am relying on her to go to work every day. I do it. I hate my current job, but I go every day. I don’t understand how she can not only not go to work, but then not accomplish anything at home either. There are so many projects that need to be done. And she reads trash fiction all day.

I am trying to be supportive. She needs me to be supportive so she can get through this. And as long as she is working to get better….

But I am so very tired and this scenario just feels so very, very familiar.

And I am so tired of being the responsible one upon whom everyone relies.

I don’t know when it is time to say enough.

Fields of Purple Flowers

Her first memory became her second memory once they started coming back, a piece at a time.

The old first memory, in her words:

“My stepfather has brought me into the back part of the house that we used as a living room.  I am maybe four years old, maybe younger.  I am very happy, as the Monster is being nice to me.  I have a dress on, black patent-leather shoes with buckles and white ankle socks with ruffles. The couch is plaid – brown, yellow, green.  His hand is on my knee and he is rubbing my leg, smiling at me. I don’t remember him taking off my panties, but they are gone.  I am not concerned, I am just happy he is not hitting me, he is not yelling at me, he is smiling at me and I feel safe for the first time in a long time.  His hand is under my dress and he is rubbing me and I have this strange feeling in my belly.

Out of nowhere, the most tremendous blinding pain I have ever felt.  I try to scream, I try to move.  He has his hand over my mouth and is holding down.  The pain is unbearable.  He is smiling.  I can’t breathe.  The pain is excruciating.  Am I dying?  Is he finally killing me?  What is he doing?  Why is he hurting me like this?  As suddenly as it started, it is over.  He gets up and leaves the room and I curl up in a ball sobbing.  He returns with a washrag and rolls me over on my back spreading my legs again.  The rag is moist and cold, he wipes me.  I lay there terrified the pain will start again.  When I see the rag, it is covered in blood and still he is smiling.”

She ran away then, into the fields of purple flowers. She ran and ran, finally falling down into the tall grass.  The sun went down, it got dark, and though she was afraid of the dark, she was more afraid of him.  Later she hears voices calling her name.  Her mother, her aunt, her brother.  Her mother crying for her, she stands up and hollers “Mama!”  Her mother runs to her, crying, saying “My baby is OK!  My baby is OK!”

Back at the house, her mother asks her why she ran away. She tells her.

“She slapped me so hard across the face that I was knocked several feet backwards and fell to the floor.  She screamed at me, that I was a liar and sent me to my room. I sobbed, hurting from the pain in my bottom and the pain in my heart, knowing that I was going to die.  He was going to kill me.  There was no one to stop him.  So I did what all good Christian girls did:  I prayed to God that I would die in my sleep before morning.

That was the longest night of my life. Somewhere in the night I fell asleep.  When I woke up, the Monster was smiling down at me once more.  My heart was racing and I knew I was about to die and he just kept smiling.  He puts one hand on either side of my head holding me down by my long brown hair, and smiling the whole time, he said, ‘She didn’t believe you, she never will and if you ever try to tell again I will kill you.’  Then, like nothing ever happened, he walks to the door, opens it, and calmly says, ‘Breakfast is ready when you are.’”

She later remembered a time in the car, when she was much smaller.  Three, maybe, almost four.  Her mother was asleep in the back.  She was on his lap, “driving”, a policeman is yelling at her Daddy.  “Where are your shoes?  Why are your pants unzipped?  What is going on here?”  She had a little dress on.  He hadn’t hurt her yet.

How did her mother sleep through the policeman, through the yelling?  Or was she asleep at all?

Her words:

“After the first night when I was raped by my stepfather and ran away, two things happened.  Because I had run away, a lock was placed on the outside of my door.  Every night when I went to bed I was locked into my room.  From then on, when mother passed out at night from her ‘nerve pills’ and alcohol, Monster was guaranteed easy access to me.”

The abuse came from her mother as well.  She wasn’t “Vicki” anymore, she was “bitch, slut, liar, whore.”  Any infraction of any kind was met with blunt force, blows to the head, back, ribs, whatever was closest.  Her fingers were held over an open flame until the skin bubbled and blistered.

In a few years, it was not just Vicki who was being sexually tortured, it was her two brothers.  And then the brother and sister that her mother had with the Monster.

When did it end?

You want to know how long it went on?

Vicki was fourteen years old when her stepfather finally went to prison for his crimes.  A caring neighbor finally heard her, believed her, and confronted her mother.  Her mother had the option to help provide evidence against him or be charged as an accomplice.

Perhaps worst of all, her mother did not leave the Monster.  When the Monster got out of prison?  He left HER.

Vicki is my sister.

Vicki is my hero.

Vicki has spent most of her life overcoming the most horrific kind of abuse imaginable and despite it, despite every bit of it – the foster care, the beatings, the years of alcohol and drug abuse to blur and erase the memories – she has not only survived, she has overcome.  She has raised a son who is now in college.  She was married to the love of her life until she lost him to a sudden heart attack.  She is the strongest, most self sufficient woman I have ever had the privilege to meet in my life.

I thank God for many things, but most often I thank Him for two things:

That Vicki is my sister.  And that I?  Was relinquished by her mother at birth to adoption.

My sister thanks God that I was given up for adoption.  Which makes me weep.

My sister is a survivor.