Since March 2019, my loving friends, you’ve prayed, danced, fallen to your knees, helped us, looked for help, cooked meals, picked up meds or groceries, bought shirts, made bracelets, hugged, cried. Laughed. Sent positive vibes. Kept us your thoughts & hearts. We are so grateful,
You’ve sorted shirts, made posters, given rides, offered beds. You’ve arranged cow, horse, and dog petting.
You’ve helped my son by being there, taking him places, or letting him hang out. I am forever grateful.
You’ve answered the late night calls.
Deciphered my illegible texts.
You’ve heard the screams, sobs, panic, and silence. You’ve hit every emoji Facebook has to offer. You’ve followed along, shared posts, sent links, looked for help, given directions, suggestions.
You’ve donated your hard earned money, time, friendship and love.
THANK YOU is not big enough.
GRATEFUL is am understatement.
We simply could not do this without support of EACH any EVERY ONE of you.
Through the multiple hospitalizations, close calls, bad news, car accidents, weekly travel to and from Houston Texas so my beautiful daughter could participate in a trial to save everyone after her diagnosed with TNBC.
Last week when we arrived for our weekly chemo on Wednesday, they told us we had to stay. A lot of tests everyday, all day.
Today we “OFFICIALLY” received the news: Dr Twong informed us that Samantha has had a reduction in the tumor they have been tracking. The tumor that grew on A&C chemo [ the red devil]. The invasive, aggressive, metaplastic cancer invading her body has reduced in size.
There could not be better news or better timing.
Yes we still have a very long road ahead, but now there is a a clearly defined road. A brightly lit road that she is paving for everyone after her.
We have three new types of doctors to meet and consult with: Surgical, Radiation, and Plastics. We are so grateful.
This Wednesday she will receive her chemo in Texas and by Thursday we’ll be making our way back to Mississippi. Next Tuesday we’ll return to Texas.
Then we won’t return until a couple days before surgery – probably the first part of October to complete pre-op testing and surgery.
That’s IF all goes well.
In mid to late November, she will start daily radiation at home, on the Mississippi gulf coast.
So my loving friends, you wonderful people. No matter what. Every single second was worth it and we could not have done it without you.
Stay with us.
There’s a lot of, “if this goes this way” type tests and procedures. Please keep doing exactly what you’ve been doing; we still desperately need you. I wanted you to know that you’ve made a major difference in our lives and the lives of every family who hears the diagnosis of Triple Negative Metastatic Breast Cancer.
Addiction isn’t called a “family disease for nothing.” The family of an addict is just as impacted as the addict.
This is her story of her son’s addiction:
My child has become an addict and loving my child is so very hard. I’m trying to find my happy as I learn to deal with his addiction.
With the overload of health issues around here, along with the common “life stuff,” I willing took a break from blogging after the last attacks from trolls; trolls who don’t know me, know my child, know my life, know my situation, and will never understand my life or my thoughts.
Simply: I took a break because I wasn’t strong enough to keep going,
Three blogs, five days a week, and two little freelance writing gigs with groups have kept me tied to the computer dumping out my odd take on humor, insane fake advice, and occasional a vaguely serious topic.
I have decided I will blog, on my blog, and the trolls will not, cannot affect me. I won’t allow them that kind of power. I have to share this story because as odd or awful as this is, I can’t believe I am the only one. Sometimes knowing you aren’t alone, can make a differences on your life. It has in mine, just like everyone here at Band Back Together.
I call it “living” but it’s really just existing – when I can muster the strength to push the elephant in the room to the back of my mind. This horrible addiction elephant.
When someone you love makes horrible choices, you can still love your addict child, but you also have to make a choice.
I made a choice to love from a distance to allow my son to deal with his addiction on his own time, allow that person to do things at their will, wherever they wanted. The condition was: I would not support that person, their activities: not emotionally and definitely not financially.
Of course that comes with a higher emotional consequence for me, a soul-eating, mind -boggling, hellish existence.
Torn when the phone doesn’t ring, furious, emotional and torn when it does. There is no happy medium, is no mutual enjoyment of life, it’s an inner ring of hell.
It’s odd how the human brain learns to process things so completely outrageous and unacceptable if they happen often enough; the brain removes logic to save the heart. The brain knows if one more little piece of your soul falls to the floor, you will collapse and finally fade away.
Things you never thought you would hear, become expected. Disappointing? Of course. Scary? Almost every time. Seeing red with anger? A lot. Somehow, your brain allows it to roll off your back.
loving an addict through childhood
You can’t fix it, they don’t want to be fixed, no matter how absolutely insane and ludicrous the situation, you cannot even point out how completely illogical the situation is, let alone offer solutions. There are no less than 683 million reasons why all of your ideas are completely stupid.
You learn to focus not on the highs, not on the lows. Not the shocking news, but only that you love that person, your child, who just happens to be an addict.
You make sure whatever you say won’t offend them, or their choices, and you make double damn sure that person knows you love them, you love them deeply, you love them completely, you love them from your soul. You only want the best for them, safety for them, happiness for them.
No one really has the same idea of happiness.
it took me 43 years to realize that.
Another thing I learned; just because it’s ” the normal” thing that you’d make anyone happy, happy and delighted and feeling so very lucky, this can seem like hell on earth to someone with a different view of happy. So who am I to attempt to enforce my idea of happy on anyone? Simply put, I am no one. I am just a daughter, a wife, a sister, a mother, an aunt, a friend.
I am made up as we all our of a unique cocktail of our childhoods, our teachers, our elders, our peers, our life lessons, co-workers, books, and shows we have seen. Just a big casserole of a human being trying to find “happy.” When I achieved happiness, I assumed it would be wonderful – more than wonderful – and that, in turn, everyone else would become happy. Everyone would see how hard work brings happy, how loving each other brings happy, how walking the right road, singing your own song, and smiling would obviously land you in happiness.
The past 20 years, I tried to shove people into the happy, I tried to drag them into happy, push them in, beg them, lure them, slide shows of happy, handmade cards, long emails, song dedications, heartfelt talks, and hugs, I could surely get them to happy. Once they saw happy they would be like “duh, I want to be happy too!”
I was wrong. Their happy was so different than mine so I had to accept they would not be in my happy with me. Maybe they were taking a different route, and we would meet up in happy. Maybe their happy just meant more pit stops, more experiences, different criteria, maybe their happy would never lead to the same location as my happy. What would I do then?
Their happy could be really good for them, so I will work on being happy for their happy.
Little crumbles of your heart fall as your soul tears.
In the end, all you really want is for them to be happy. You convince yourself not to be such as narrow-minded selfish ass who demands everyone’s happiness is within arms reach of your happiness. We are not all alike, and really, what a boring world that would be. Keep telling yourself this as it makes it easier to persevere your heart, mind, and soul. Besides, it makes them happy that you are happy for them. It’s painful but it’s good for them and for the relationship.
Then the call comes, not a happy call, you are prepared because you know when this disease spins ’round, the calls come in two forms and two forms ONLY.
One, the world’s best thing ever, everything is amazing.
The next call, though, could be in a week, a month, a day, or within several minutes: the world is ending, there is no hope, no escape.
There’s not a single thing you can do to make it better. So you listen, try not to cry, remembering to love, offer helpful solutions, offer to make arrangements or calls, you do what you can and it’s usually for nothing. It rarely works out, but you make damn sure they know you love them so much you can’t breathe when they are in pain.
The calls – you see the caller ID – it’s a number from a state that you don’t know, but you do know who is on the other end, you never know the type of call, only that it’s from them. So you take deep breaths and you prepare to play the roulette game of their life. What kind of call you don’t know it could be: an incredibly fantastic words of grandeur.
Or the call can be gut-wrenching, heart-breaking, sobbing pleads for help.
You don’t know, because you can’t know but you answer the phone, inviting the roller-coaster of love and hate and pain into your world.
Nothing surprises you now.
As long as it’s their voice on the end, you are prepared, it’s now become common practice. You’ve learned to stop yelling, begging, urging, and learned to focus on conveying the fact that you love the elephant in the room. You love that elephant when your eyes open in the morning, and you love that elephant when your eyes close at night without a tear running down your cheek. No one sees your tear.
No one hears your cry and no one, no one can understand why this elephant is needed, deeply; it has become comforting.
Then as you are in your happiness on the back porch wind blowing you sit with your little family, cross-legged looking at your happiness, eating sandwiches, and thinking how peaceful and loving and happy this all is.
The phone rings.
The addiction elephant steps outside. The elephant sits on your chest, takes your breath, and overcomes you. Sometimes, when that elephant climbs on you, you compartmentalize you soul, your heart, and your brain as this allows you to attempt to speak in a sane, calm, tone, using gentle words, no blame, just love.
The call ends, with mutual ” I love you’s.”
The happiness is now gone for them as they are faced with a very adult matter that can’t be “worked away.”
You don’t remember the rest of the happy picnic: the people in your happiness with you do not have a conversation about it. You move on as you do after every call. But something is wrong, very wrong
You can’t tell anyone, yet you don’t cry, you don’t sob, you don’t fall to the floor, you don’t steal a car to get to the addiction elephant to hold them.
What the hell is wrong with you?
Why are you not responding like a human?
Why aren’t you happy?
Why not like the other times?
You haven’t fallen apart yet.
Will you fall apart?
Will this change your ability to move forward?
You know that If this person comes back, can you handle it?
Can the happy team handle it? What will be the cost of the elephant if you don’t?
What will be the cost of happy if you do?
I know the other shoe will fall, there’s just no way to process this without dying more inside. Maybe I am out of a soul, a heart, tears. Maybe I have been cried out, maybe I am stronger, maybe my brain is trying to protect me.
I am very much not okay, mostly because I feel okay, there is no way that I should feel okay.
Why am I not shaking, sitting in the shower crying, sobbing, and vomiting like I’ve done before when the bad news comes?
I’m not even shaking.
The shoe will drop, I hope, I beg, I have the strength, the knowledge, the wisdom, the compassion, the ability, the life experience, balanced with the brain, the heart and soul, to take this journey.
To share my happy, to understand their happy, to make a new happy, but most of all, to convey they undying, deepest of love and the basic humanity to make their happy the best happy I can.
Please find your happy; let everyone you know how much you love them – no matter what what makes them happy.
Today is a tough day. All the terror and hatred in the news is weighing me down. I must remember…
There are those who choose to define themselves with hate, so I will choose to define myself with compassion and understanding. I will not “hate” someone because of what or who they believe in, even if I disagree. I will try to understand their ideals and offer them a chance to understand mine. I will continue to teach my children that who someone loves, how they define themselves, where they are from, or how they worship does not negate their humanity.
I may not have the ability to change the world, but I have the ability to change me.
Aunt Becky challenged me to write an “I Will” post… Here’s my crack at it:
This is a year of major changes for me. The title is paraphrased from a book by one of my favorite authors, Maeve Binchy, who died a few years ago. One of the lessons I’ve taken from her books is that kindness matters and change is sometimes incremental, but the opportunities to change abound.
First the Goals:
Meet Baby (due end of June)
Complete Probation (October, possibly sooner)
Complete the 12 steps (currently on Step 4, which sucks, but I am finding valuable)
Start School (Sign Language Interpreting Program)
Graduate Treatment (possibly this month?)
Move into my own apartment (hopefully by March)
Resolutions:
Stay sober (110 days and counting)
Eat regularly
Practice healthy boundaries – especially removing unhealthy and negative people from my life and saying “no” to things that jeopardize my values/goals/self
Re-engage with Church
Practice gratitude
Learn to manage anger without becoming self-destructive
Stay Present and Enjoy the Journey
Practice Forgiveness – especially of myself
Give back
Never Stop Learning
Make good choices (especially financial ones)
Daily Maintenance (this is a concept from NA – aka The Four Simple Things: 1. pray honesty, out loud; 2. talk to another addict, preferably one sponsor or someone else with more clean time, honestly; 3. read literature daily; and 4. do something nice for someone else).
This time of year where people getting engaged is hard for someone like me who wishes for it to be my turn. So here is my heartbreaking letter to my once future husband that I cannot send.
Dear Future Husband,
I am going to be honest; I don’t think you exist.
Once a upon a time, I used to dream of the day I’d meet you; we’d have a lovely courtship, an amazing proposal on top of a Ferris Wheel (because you know how much I love them), then a wedding of my dreams (which, I’ll admit, has changed throughout my life but still involves these great pair of heels that have been sitting quietly in my closet, sadly collecting dust) and the rest of our lives together.
You know, the whole white picket fence bit.
But now? I am no longer wearing white, I’m wearing black.
I’m no longer walking down the aisle to you, I don’t see your face light up with the biggest, cheesiest smile as I walk to you.
No.
I’m very sad, standing in dark forest, all alone. So lonely. My heart has been broken too many times to count. A piece of you, of our life, fades with each piece of my heartbreak, and now you’re gone. Disappeared. No longer are you parts my hopes and dreams, now you’re nothing but an afterthought.
Maybe you’re really out there, but I am not so convinced of – even though my friends have told me otherwise. They’ve told me to to be patient, God has a plan for you, the list goes on.
They don’t know how I fear that I’m that I’ll never find yo; that we’ll never have our own happily ever after.
In fact (this is really horrible of me) but I stopped praying for God to keep you safe, to watch over you, that your heart is pure, that you have undying faith.
I began to feel that I was wasting God’s time by praying for someone who doesn’t exist; someone I’m never going to find.
I used to believe that love conquered al; that it was stronger than anything. That I could love you despite never meeting you. Recently, it sounds silly and downright depressing. I am desperately afraid that it’s going to be too late for me – I’m not getting any younger and my clock is ticking.
I sort of feel that I have given up on us. I used to fight so hard to find you, but now I am exhausted and I can’t wait anymore for you.
I wish I didn’t feel this way. I’ve tried to fight it.
I hope you understand and will forgive me someday and that you find another woman to love just as much you would have loved me.
Even
zen
ranked
by
the
most
gentle,
retro,
revisionistic
rubrics,
despite
socially/
developmentally-
delayed
features;
I am an adult.
Full
disclosure:
at best,
I am
a
youngy-
old
woman.
No
longer
on
the
oldish-
side
of
young,
travel
with
ID
unnecessary;
no
one
cards
me.
Perhaps,
it’s
more
simple
and
I
am
just
another
old
adult,
certainly
past
the
typical
season
for
continental
shifts
in
identity.
Chronology
aside
however,
‘round
about
Thanks-
giving,
2016,
it
occurred
to me,
that
I
couldn’t
pass
as
“normal,”
even
to myself.
Even
though-
I.
Tried.
Everything.
I
knew
or
read
through
systematic
trials.
I
recorded
data,
analyzed
results,
and
controlled
indicated,
variables
to
adjust
test
method
parameters.
Thread
worn
as
baba’s
mop
rag,
I
wrung
every-
possible
suppositional
drop
from
these
experiments.
Perpetually,
I
tried
to pass
as
relentlessly,
and
intensely
I
was
labeled
INTENSE
(not in
a
good way,
mind
you).
Usually,
when
I
really
want
to
create
meaning
to
pattern
change
and
route
exodus
from
conditioned
parameters,
I
produce
results,
however
modest
or
slow
to norm.
NOT
SO
THIS.
A
random,
variable,
X
unelected,
undesired,
outs me
vulnerable.
Despite
therapy,
education,
career,
marriage,
blessed
children,
forever
wanted,
I
could
not
pass.
People
noticed.
Colleagues,
my husband,
our
children,
dear
friends
networked
consensus
as
viral
tumbler
that
confirmed
me
odd.
Random
reblog
notes
something
about
me
off,
and
a
little,
shiny
bit
that
bends
light
in
chaotic
angles
that
sort
‘a
squint
their
eyes
shut.
Not
much
was
said
to
me
directly,
and
yet,
I
could
often
sense
recoil
when
they
reached
for
their
sun
glasses
or
threw
shade.
Such
relational
signals
torqued
my
analysis
into
hyper-
drive.
To
know
why
transformed
want
into
need.
Security
risks
recalibrate
my
research.
Dire
internal,
tornado
warnings
broadcast
evacuation
drills
like
gubernatorial
orders:
Develop
safety
protocols
to
protect
children
from
collateral
damage.
The
nuclear
family
that
raised
me
ran
a
mill,
union-
workers
manned
24/7
shifts.
Its
conversion
process
fed
my
faulty
chips
directly
into
the
assembly
line’s
ravenous
maw
to
produce
pulp
prose
that
proves
there
is
something
wrong
with
me.
Like
an
errant
piece
of
code
that
breaks
the
smooth
build
of
family
unity,
my
bark
rejected
as
unusable
fibres
darken
the
pulp.
Such
systematic
feed
back
loops
identified
me
as
the
system
glitch.
Pop-up-
error-
messages
in
resplendent bold,
ALL
caps
print
included
stop
signs
to
confirm
same
on
my
laptop.
Their
attempts
to
upgrade
my
operating
system
downloaded
constant
commands:
“If
you
get
your
ass
off
your
shoulders”
“If
you
try
hard
enough,”
and
“If,
and
only
if,
YOU
GET
OVER
YOURSELF
and
LET
IT
GO
ALREADY,
R
E
A
L
L
Y,
For
God’s
Sake,”
“Only
then
will
you
be
normal,
better
company,
and
easier
to
get along
with,”
and
“Clearly,
you
aren’t
REALLY
trying,
or,
at the
very
least,
not
trying
HARD
enough
to
get
it
right.
Over
time,
it
also
became
crystal
clear
that
I never
did.
Get
it
right.
Not
EVER.
Fast
forward:
to
now
and
my
own
family
God
gave:
Our
precious
homestead
no
longer
could
bear
X’s
collateral
damage.
I
wanted
for
my
children
more
of
a
mother
than
what
I
could
tender.
Despite
my
known,
know,
knowing,
knowledge,
discord
clashed
outcomes
I had
methodically
deleted
from
my
user
profile.
So,
I
got
me
a
good
psychiatrist,
who
asked
hard
questions.
I
loathed
my
deficits
more
fiercely
than
my
capacity
to
love
my
husband
beloved,
or
our
four,
precious,
innocent,
children.
Tuesday,
January
31,
2017,
two
days
shy
of
Punxsutawney
Phil,
Seer
of Sages,
eye-
spied
his
shadow
in forecast
of
six more
weeks
of
winter
