by Band Back Together | Nov 29, 2018 | Anger, Anxiety, Denial, Fear, Feelings, Hope, Loneliness, Love, Military Deployment And Family, Sadness, Stress, Trauma |
I read a book the other day about a soldier’s account of his time in Iraq. It told of his missions and what he saw and what went through his mind while he was overseas. It was interesting, it was scary, it was so sad. It gave me an inside look, a first-hand account of what my husband went through in the year he was gone. It made me wonder. How would my book read, my first hand account of being a mom on the homefront, holding down the fort? Maybe it would be an interesting read, maybe it would flop. I really couldn’t tell you, but I figured I would try.
I believe Dan got word that he was on alert in February of 2004. That was a scary day, we spent the day at families houses telling them the news. I held it together, mostly, I was really okay until his sister asked me “How are you holding up?” I lost it! I cried because I was mad, I was hurt, I couldn’t believe it. But we still didn’t know when he could leave, it could be tomorrow, next week or next month, we just did not know and that was probably the scariest part. Would I have time to tell him goodbye. Would the kids understand what was happening? What was I going to do? I spent a lot of time crying, always in private, sometimes to friends, but mostly into my pillow. I had to stay strong, I had to make everyone think I was going to be OK, when really I wasn’t sure. I mean, how could I be?
We never really talked about him not coming home, but it was always on my mind. I didn’t think I could handle that, being a widow at 24!
I tried not to think about it, but it was always there… just under the surface.
Finally word came.
The official orders, I am sure I still have them saved on my computer somewhere, along with every email and IM conversation we had while he was gone. He was going to leave on Veteran’s Day 2004. Kinda fitting right? We prepared as best as we could. And bright and early on November 11th we headed out to the unit to tell our soldier, my husband, my kids father, goodbye – perhaps for the last time. All of our best friends and our families were there. It was a tense atmosphere, so much crying from everyone around, talking, laughing, and just a lot of quiet thinking.
Finally the time came for the soldiers to line up and get on the buses that would take them to the airport. There were hugs, and kisses and more tears. Then we all got into our cars and headed to the airport to watch them board the plane.
It was so very cold out. But I don’t remember being cold. We all gathered at the fence at the air strip. Dan was on every single news station. One of my favorite moments, I have on tape somewhere, Dan leans through the fence and kissed Nick goodbye. The whole QC got to see that. That was right after Nick proclaimed that Daddy had to take Blankie with him so he would not be scared, which brought tears to everyone around. Instead we tore a piece of Blankie off and Dan put it in his breast pocket, where it stayed until he came home. We said some more goodbyes and tried to hug through a fence, which was incredibly awkward by the way. Then they had to board the plane. We stood and waved, all of us until the door closed. I was still not ready to say goodbye so I didn’t get back in the car, I stood on a small hill and just watched, soon I was flanked on either side by my mother and my mother in law. That too was caught on video and aired on local television. And we waved, somewhere there’s pictures of us waving until the plane looks like just a speck of dust that is on a photograph. I don’t remember much after that. I don’t remember driving home. I don’t remember going to sleep that night. I probably cried. I don’t remember but that’s probably a good thing.
I remember waiting, a lot of waiting.
Waiting for mail, waiting for phone calls, waiting for the computer to beep that he was online and of course waiting for the call saying he was coming home.
But those are all stories for another day.
by Band Back Together | Nov 28, 2018 | Anxiety, Anxiety Disorders, Fear, Grief, How To Help A Loved One Who Self-Injures, Mental Health, Self Injury |
It was with a loud crash that she hit the floor, her knees gone weak with fear. “Help,” she cried, to no one in particular, a sort of mangled prayer to a god she never once believed in.
“Help me,” she whispered, hoping to see someone there, yet there was nothing but vast darkness, her hands clenched tightly.
There was a hollowness in her soul, an icy chill that ran through her veins when she hit this point. The bottom, again, a place she promised to stay away from, spun so quickly up to greet her. “Help me,” again she whispered, desperate.
The cold steel seemed to awaken in her hand. It was so strong, so faithful, and so delicate. She closed her eyes, tears falling hot and fast, such opposition to the cold running through her heart. One line, then another, cutting across her flesh.
“Help,” she whispered, partially to her ever trusty blade, partially to the blood now trickling down. It was warm like her tears, and safe, a reminder that she was real.
Exhausted, she weeps.
This was never how it was supposed to be.
by Band Back Together | Nov 20, 2018 | Anger, Anxiety, Anxiety Disorders, Attention-Deficit Hyperactivity Disorder, Bipolar Disorder, Child Protective Services, Emotional Boundaries, Family, Fear, Help with Parenting, Loving Someone With Bipolar Disorder, Mental Health, Mental Illness Stigma, Teen Bipolar Disorder |
I don’t remember when reporting of suspected abuse and threat assessments (e.g., suicide risk identifications) became mandatory for educators and counselors. It was before I became a parent, I know that much, and it dawned on me a long time ago that there were probably plenty of reports that resulted from misunderstandings.
About a month ago, while we were in the middle of Princess’ most troubling days, while we struggled to identify and treat her emerging bipolar tendencies, our son, Hoss, ran away from his school and was brought back by the county police. It’s been a long time since he ran away like that, but it brought back memories of the tough times before he was diagnosed with his mood disorder.
One of these elopement incidents was the final thing that sent him to the psychiatric hospital back in the day, and that he’d gone all of last school year without ever feeling the need to escape like that made me feel like we’d made serious progress. Last month’s bolting was not as serious as what we used to see, but he did leave the property.
When the police officer brought him back to the school, they said he’d expressed that he’d wanted to die. As a result, despite the assurances of the school staff with whom Hoss has a history (principal, counselor, psychologist) that he was not actually a danger to himself or others, the police informed us that they would be taking him to the ER for a psychiatric consult. I was told that I would not be allowed to go along until I had spoken with the Mobile Crisis Team.
I spent time with the MCT explaining all of the steps I go through to care for my children and myself (outpatient therapies for the children, family therapy with a social worker with whom all of the family members are comfortable, open lines of communication with the schools, medication monitoring all around) with a response that roughly translated to:
“Okay. That’s exactly what we were going to recommend, so keep on keeping on.”
My husband went to the ER to stay with Hoss, and the evaluation indicated that Hoss’ “I wish someone would just kill me,” was not actually a cry for help, but rather a misstated outburst that is not all that unusual for a nine-year-old boy with ADHD. During the next therapy session, Hoss got an opportunity to talk about how upset he was that he’d been forced to go to the ER when he’d wanted to stay with his sister and I.
While Princess was in the day hospital program a few weeks ago in preparation for the transition back to school (now that we’ve gotten her medication properly titrated), she spoke of her brother’s boundary issues, and how he’s gotten in trouble the weekend before for not keeping his hands to himself.
Part of that boundary crossing included trying to tickle her all over, and missing her stomach by hitting a bit further south. Because we are working with Hoss on respecting personal space as well as just plain leaving his sister alone sometimes, he had to process what he’d done and he had consequences for not acting as he was supposed to.
Princess accepted his apology, since he’d properly identified what he’d done wrong and what he should have done instead. I didn’t hear about the incident until days later, since it happened while I was out of the house and it was no longer on everyone’s mind by the time I got home that evening.
However, the hospital reported the incident to the county, who interviewed all three of my children.
The end result of the interviews (from the point of view of the police and social worker) was that there was no criminal activity or additional cause for concern.
The end result from the point of view of my children was slightly different- Princess feels bad that she got her brother in trouble, Hoss is irritated and slightly grossed out that he “…had to look at pictures of private parts! Even girl ones!” and Little Joe doesn’t understand why he had to answer a whole bunch of questions about body parts and our family and stuff.
I know that mandatory reporting has resulted in abuse being caught before more damage can be done. I know that conducting threat assessments in elementary school may mean that we have fewer young children reacting to their stress by harming or killing themselves.
I understand this, and of course I want those bad things prevented.
I’m just struggling with how this has put me under a microscope when, according to the mental health and educational professionals who know me and my family, I’m one of the good guys
by Band Back Together | Nov 15, 2018 | Abuse, Addiction Recovery, Adult Children of Addicts, Adult Children of Mentally Ill Parents, Adult Survivors of Childhood Sexual Abuse, Alcohol Addiction, Anger, Anxiety Disorders, Bipolar Disorder, Body Image, Bullying, Child Abuse, Child Grooming, Child Neglect, Child Sexual Abuse, Coping With Anxiety Disorders, Coping With Domestic Abuse, Date/Acquaintance Rape, Domestic Abuse, Emotional Abuse, Estrangement, Family, Fear, Foster Care, Healing From A Rape or Sexual Asault, How To Cope With Post-Traumatic Stress Disorder, How To Help With Low Self-Esteem, Incest, Loneliness, Major Depressive Disorder, Mental Health, Mental Illness Stigma, Mood Disorder, Parental Alienation, Parentification, Post-Traumatic Stress Disorder, Preventing Child Abuse, Psychological Manipulation, Psychological Manipulation, Rape/Sexual Assault, Sadness, Schizophrenia, Self Loathing, Self-Esteem, Stalking, Stress, Trauma, Trust |
At the age of 3, my father began sexually molesting me.
At the age of 5, the sexual abuse was replaced by physical abuse from my father and my mother.
At the age of 9, both my mother and father went to rehab for alcoholism.
At the age of 10, I finally knew what it was like to have a home after living in over 200 houses, more than 100 cities, fifteen states, and two countries.
At the age of 14, I was raped by a classmate my freshman year of high school.
At the age of 15, I started working two full-time jobs and single-handedly supporting my family because my parents flat-out refused to work.
At the age of 16, my parents decided to start drinking again. I took on a third job to support their alcoholism.
At the age of 18 I graduated high school at nearly the top of my class.
After my first year of college, I was told that I was not allowed to continue even though I had scholarships because “I wasn’t raised to think I was better than anyone else.”
At the age of 21, I was raped again … by the man who had betrayed me seven years before. My parents told me I deserved it, and was lucky that a man had paid that much attention to me since I was worth nothing. I was diagnosed with Post-Traumatic Stress Disorder.
My birth certificate says that I was born on April 2nd, 1987 at 1:25 p.m.
I was born on March 30th, 2009 at roughly 9:45 p.m. when, at nearly 22 years old, I decided I had been through enough.
I am the adult daughter of two alcoholics who have been diagnosed by multiple mental health professionals as suffering from a variety of mental disorders.
My father suffers from Bipolar Disorder and severe Anxiety. My mother is a Paranoid Schizophrenic. Neither one has any sense of reality beyond their immediate perception of the world, and both are Compulsive Liars.
The man who raped me intimidated and frightened me into a silence I would not break for almost ten years. When I ran into him again, he introduced me to his wife and child as if we were old high school friends.
He contacted me after getting my information through old mutual friends and asked if we could meet to reconcile and so that he could apologize for what he had done. He never had any intention of doing so and in my own foolishness, I met with him and he forced me into the back of a car and raped me … again.
My parents told me I had to be lying, and that if I had been raped then I should consider myself lucky because that was more than I deserved from anyone. When I insisted that I was not lying and needed their help, my father smacked me across the face and broke a chair over my back.
I was almost twenty-two years old at the time and the only thing I remember after that was my youngest sister’s face. She was staring in horror and fear trying to figure out what to do.
I was the only one who stood up to the two of them. I defended everyone. I fought everyone’s battles and kept everyone safe. The thoughts in her mind were clear on her face: Who was supposed to protect me? How could they help me?
I had stayed for years thinking that I was protecting them. In that moment, I realized that if I showed them that all you could do was take the abuse and not actually do anything about it … then one day my little sister was going to be in my position … and no one would be around to help her either.
I didn’t have anywhere to go. I had nowhere to stay that night. I called up a friend and grabbed a ride, and crashed on a couch while struggling to find somewhere to live.
I went through months of endless torture and doubt while going through the trail that put my rapist in jail for what will be a very long time. I changed my address, my phone number, and all of my information so that I could cut ties with the life I didn’t deserve and start living a life that was not filled with fear, or doubt, or regret, or abuse.
Today, I am 23 years old.
I have a home of my own for the very first time.
I have sought counseling for the traumas I have been through in my life.
I have struggled with body image, self-esteem, guilt, and an intense lack of trust in people I care about.
I have cut all ties with my family, stopped supporting them financially, and moved on to start a life of my own.
I have found love in a man who is the best thing to ever happen to me. A man who would never raise a hand to me, who loves me in spite of my demons, and who has already supported and seen me at my absolute worst.
I have found peace.
I am not sharing my story to shock, horrify, or scare people. I am not sharing my story seeking sympathy although it is graciously received.
I am sharing my story because somewhere out there is a man, woman, or child who has faced demons that linger in shadows all around them. They may not feel that they are able to overcome them and they are utterly alone.
I am telling you my story to tell you this:
You are not alone. Ever.
No one is ever alone. There were moments when I wanted to give up and give in. Just tune out and wait for the worst to come so that nothing else as bad could happen. I figured there was nothing that could help or save me. I have been there.
I made it out and I am waiting for you with open arms on the other side. There’s plenty of room here.
by Band Back Together | Nov 14, 2018 | Anger, Anxiety, Child Abuse, Depression, Emotional Abuse, Fear, How To Heal From Being Bullied, How To Help With Low Self-Esteem, Psychological Manipulation, Sadness, Self Loathing, Self-Esteem, Shame, Stress, Trauma |
I have had so much on my mind lately.
So many things make me question my worthiness. I don’t even know. I don’t even know what I want to say. Usually I pull out my journal and just write until my hand cramps. Everything that comes from my head through my fingers. Usually it doesn’t make sense. But I need to get it out.
So that is where I am today.
First. I have missed the Band so much. I am so grateful it is back together again!
I was fired last year from a job I HATED! but loved at the same time. I was a teacher in a 2-year old classroom. I loved my kids. Even on the worst days they made me smile.
People left, got new jobs. People were hired that didn’t like the way my classroom ran. They didn’t have the heart for 2-year olds. They accused me of some shady shit and state got involved. It was bad. I cried every day for a few months. I was terrified!
I mean, this is what I know I was put on this planet to do!
And it was taken away from me and ruined by some 18-year old snot nosed little bitch who didn’t want to work where she was told. I could go into a rant about entitlement here but that would be another post for another day. Ultimately she made up things that just weren’t true.
And to deal with it, I was fired. I was HEARTBROKEN! I was losing my kids. I couldn’t tell them why. I couldn’t tell the parents why. It was absolute bullshit! I was so hurt and angry. These people I worked with I thought were some of my best friends!
Guess what? I’ve talked to them maybe 5 times in the last year. They don’t care; I didn’t matter.
That is when I get into my head. See, I have heard my whole life that I don’t matter. That I am not good enough. That I am ugly and clumsy and not proportioned right – and too skinny, and too fat.
I was told I was stupid.
I believe all of these things to be true.
If the people in my life who are supposed to love me the most say these things to me as a child, they have to be true.
I don’t have relationships. I have people around me who I know I am not good enough for. I was just starting to actually build some self-confidence, believing that I was worthy of a friend.
BAM!
Once again, I was told I am a terrible human; I don’t deserve friends, don’t deserve to do what I love.
I really thought my ‘friends’ wouldn’t disappear. I thought I might actually matter enough. And reality, once again, slapped me in the face.
It made me realize that I don’t have a single true friend. Someone I know I can call any time of the day and talk or cry or not talk or laugh.
I constantly feel like a burden. I don’t have a relationship with my own sister. Sure, I love her, I want to be her friend, but I am not even worthy of that. I feel so incredibly alone….. Even surrounded by people.
I know if I weren’t there, no one would notice. Or they’d be talking crap about me.
I have a new job now that I absolutely love and I work with some great people. But my walls are even higher than ever now: I can’t let anyone in. I can’t be devastated like that any more. It’s crushed me.
It’s happened more times in my life than I can count.
And here I am, rambling again.
I even suck at writing. I just wish I had a person. Someone who really cared. Someone I could give all my secrets too. Even the ones I am not so proud of. The ones that make me terrified.
I just want to feel worthy of someone.
To know that I matter.
by Band Back Together | Nov 1, 2018 | Anxiety, Cesarean Section, Family, Fear, Feelings, How To Help A Friend Whose Child Is Seriously Ill, Infectious Diseases, Intrauterine Growth Restriction, Medical Mystery Tour, NICU, Pediatric Caregiver, PICU, Pregnancy, Prematurity, Preterm Labor, Pulmonary Hypertension |
Since 2003, the March of Dimes has led Prematurity Awareness Month activities in November as part of its Prematurity Campaign.
The goals of the campaign are to reduce rates of premature birth in the United States and raise awareness of this very serious problem.
Please, we encourage you to to submit your own stories of prematurity with The Band.
Four years ago I would not have paid attention to an event like Prematurity Awareness Month and I likely would not have even known about the work of the March of Dimes. Today I am proud to be a supporter of the March of Dimes and their important work.
On March 8, 2007, my niece, Lucy Clare entered this world after my brother, Jonathan and sister-in-law, Mary, made the difficult decision to have an emergency c-section at 25 weeks gestation. In the weeks leading up to Lucy’s arrival, Jonathan and Mary knew that there was a chance Lucy would have to arrive early. She wasn’t growing and the doctors said that if she didn’t reach 500 grams (1.1 pounds) there would be very little they could do.
We all held our breath as Mary went to each ultra-sound appointment, hoping that this baby (gender unknown to all but them) would grow – just a little bit more, just a few more grams. They were briefed by the ob-gyn on what outcomes to expect if she was born at 32, 30 or 28 weeks.
A few weeks prior to Lucy’s birth, they were given a tour of the NICU so that they would be prepared for what they may encounter. At their last appointment, on March 8, they were told they had to make the difficult decision – wait another week and risk that she wouldn’t survive in utero or deliver that day knowing that the hospital had never had a baby that small survive.
Wanting to just give Lucy a chance, they opted for the c-section.
Lucy was a micro-preemie in every sense of the word. She weighed only 400 grams (14 ounces) and was just 10 inches in length. At her lowest, she dropped down to 290 grams. She was given surfactant therapy – its research was funded by the March of Dimes – for her lungs.
She breathed with the help of a ventilator for five weeks before being switched to CPAP for two months and then on nasal cannula until she was discharged. Lucy’s time in the hospital was filled with ups and downs – it often seemed like one step forward and two steps back. She faced many of the challenges that preemies in the NICU face: infection, retinopathy, the struggle to breathe on her own, a heart condition and feeding challenges.
Lucy spent 182 days in the hospital – six long months – before she joined her family at home.
Today Lucy is a happy, funny, easy-going 3 ½ year old who adores her big sister Stella and is starting to enjoy her baby sister Mallory. She loves books, colouring, watching Yo Gabba Gabba and dancing. But she still faces many challenges: she takes medication for pulmonary hypertension, she relies on a feeding tube for 100% of her nutrition and she has deteriorating eyesight. She has therapy appointments with a feeding specialist, physiotherapist, and attends weekly sensory motor sessions.
The work that the March of Dimes does through education, Prematurity Awareness Month, March for Babies and so much more, is crucial to helping all babies have a healthy start. Our family considers itself lucky that Lucy is here today and we want to do everything we can do to raise awareness for prematurity-related issues. It’s our chance to give back just a little bit.
Visit www.marchofdimes.com to find out how you can help!
