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Shine a Light

I guess I met Stef when I was thirteen or so, which would have made her twelve, but really, I felt like I’d known her forever. She was one of those people that the moment we met, it’s like we bonded instantly on some molecular level; like we were made of the very same stuff at the core. It’s rare that it happens, two people who simply know each other like that, two magnets pulling toward each other, instantly attached, but when it does, you can’t forget it.

And I didn’t.

Everyone loved Stef. She had this shine about her, something rare in a teenager, that made you want to be near her; like if you stood close enough, some of that sparkle, that inherent goodness that radiated from her would rub off on you, and for awhile you would be better for knowing her.

I am better for knowing her.

Stef was one of the first people I knew that loved me for who I was, warts and all, and even now, seventeen years later, I think she may be one of the only people who genuinely will ever love me. Maybe it’s because she understood me in a way that most people don’t. Maybe it’s because she was my first real friend. Maybe it’s because that was her gift; her shine. I don’t know.

She walked tall, confident in her shoes, while the rest of us awkward teenagers struggled to figure out who we were, Stef always knew who she was. I learned that from her.

When my boyfriend slept with my friend, she was the only one who chewed him a new asshole. In a world where I had never had a soul on my side before, Stef was always firmly there, Team Becky all the way. She would have cut a bitch for me, no questions asked, because she was my friend and she loved me. Maybe other people had families that would do that for them, but I never had that. It had always been me against the world. I learned how to be a friend from Stef, too.

She was there when I’d gotten pregnant with my first son, holding my hand when his father, too, cheated on me. Again, she was the only one who stood up for me. I never told her how much that meant to me.

Shortly after my son was born, she got pregnant, too. Excited, we planned for this baby, a boy. When her son was born, the sparkle she’d had went out and was replaced by a sadness I couldn’t touch. Always a party girl, she took it to new levels, trying to drink away her pain.

No one knew what to do.

We tried to reach her, but nothing seemed to get through. She tried rehab, three times. She was hospitalized. Tried medication. In the end, she kept returning to the bottle, drowning her sorrows in a fifth of vodka. The only friends she had left were the late-night sort, the ones who didn’t care about the Stef I loved so dearly, the ones who didn’t know my friend as she had been.

She left me a message at the end of December from a pay phone, having no phone of her own, just out rehab again. Stef sounded good, optimistic, even, offering to get together for some coffee and a playdate with her two boys and mine, sometime in the near future.

That message came too late.

I got that message two days after I buried my first real friend. One of the only people who may ever really love me.

February 10, 2008, I got a call from Stef’s mom, telling me that Stef had died the night before, in her sleep. Liver failure, cirrhosis.

Stef was 26 years old and left behind two young sons.

I’ve never been able to write about her, although I’ve tried hundreds of times. I’ve deleted thousands of words because they were simply not enough. There are no words eloquent enough, true enough, real enough to express the kind of person she was. And getting her wrong is not an option.

I loved her. I love her.

I miss her so much that my heart hurts some days. I’ll probably always feel like there’s a part of myself missing now that she’s gone. That magnet, the part of me that was connected to her, that’s still looking for that other half and it’s gone forever. I’m lucky to have found someone like that in the first place.

Sometimes, in pictures captured when I am truly happy, I can see a certain expression on my own face that is pure Stef, and it makes me smile and laugh a little, because it reminds me of the e.e. cummings poem: i carry your heart(i carry it in my heart)

This site is dedicated to you, Steffie. When we meet again, and I know we will, I can’t wait to tell you all the things I never told you when I should have. For knowing you, I am better.

May your shine always be warm, like Stef; like the evening sun.

My Infertility Story (Part II)

Infertility is a bitch.

This is her story:

Hi, Gen here, again. In my last post, I gave you all the details about the cycles I’ve been through, the HUGE number of procedures I’ve had done to my body and my quest to have both my first and my next child. I wrote that post as I was looking down the barrel of another Frozen Embryo Transfer (FET).

We had miscarried with my last try.  It had been a fresh cycle which meant tons of shots taken both in my belly, (self-administered) and then in my backside (given to me by Sam, my husband.).

What my last post didn’t describe to you was the emotional roller coaster the past 3 1/2 years have been.

The hormones are a bitch. I didn’t react well to the estrogen but I had no choice but to continue to self-administer this excruciating medication. It killed me. Every swallow, every suppository, every injection ate away at me. And broke me down.

With my first child, I had to take a break after several unsuccessful cycles.

I sought out massage and acupuncture. I increased my cardio work-outs. I did more yoga. And I found my sanity.

The next cycle we got pregnant and stayed pregnant.  It was a dream come true.

When Chloe was 10 months old, we started again.

We blew through our frozen embryos. My doctor recommended that I be sterilized in order to protect future embryos from the caustic fluid in my fallopian tubes.

We then did another fresh cycle. And we were pregnant! But I wasn’t in a good place. Sam and I had been arguing. The money we had been shelling out to build our family was taking a toll on us.  My emotional instability was wearing us both down.

When we went for our first ultrasound the doctor didn’t see a heart beat. He assured us it wasn’t unusual at this point, only 5weeks, 4days.

We went for another ultrasound. Heartbeat!  But the baby wasn’t as large as it should be. And the damn nurse practitioner had NO bedside manner and did NOTHING to assure us of anything, did not tell us be prepared for this pregnancy to be rough. Nothing. She didn’t offer to answer questions, her face stern and uninviting.

I hated her.

A third ultrasound showed that the baby was growing well, so that was a positive. At 8 weeks, my doctor released me to my OBGYN.

Sigh of relief.

Surprisingly, I was able to get into to see my OB the next week. We joked, it was good to see each other again. I made my usual inappropriate jokes about a dildo cam.

We were both still laughing when the image of our baby came on the screen.

And there was no heartbeat.

I was in shock.

The D&C was scheduled four days later.

I didn’t cry for three weeks.

Three months later it was time to try again. I had started working out again. Sam and I had been working on the house together and had found a new sitter who relieved a TON of stress we’d been suffering.

Life was good.

As I started meds, a friend recommended that I write a post for Band Back Together.

It scared me. I was afraid to feel this all over again. I was afraid it would wreck the fragile self I was holding on to so tightly.

But I did it. I was careful, I didn’t fall apart and I didn’t write from my heart.

We did the implant, we tested ten days later and had good numbers, we were pregnant.

And the real waiting game began. The mental challenge was laid before me, “hold it together for another two weeks.” Two days ago I asked Aunt Becky if I could write this post because I was a neurotic mess.

I took a home pregnancy test and was such a nervous wreck I did it wrong and invalidated it. I took another.  It was positive but took SO long and how could I trust it?

I was wigging out!

Sam kept telling me to calm down. He asked, “What is it going to take for you to relax? One good ultrasound?  Two? Another trimester?”

I said I didn’t know. The last pregnancy ruined me.

Today we had our first ultrasound.

And there was a heartbeat.

And I am relieved.

No, I’m Not Pregnant, Just Having A Fat Day

Infertility affects us all differently with the exception of one thing: the pain.

This is her story:

FULL DISCLOSURE: I am not a Mommy Blogger. That is because I am not a Mommy. I would like to be a Mommy mind you, but alas, I am not.

Apparently, my female parts don’t get along with sperm as well as they should and they reject those little buggers every time my husband busts a nut. And yes, trust me, we’ve tried everything from WD-40 to Grandma’s old tyme Hold Yer Legs Up Over Your Head technique. My husband actually refers to this as “Mauding it” a term he coined after watching The Big Lebowski one too many times. For those of you who haven’t watched the film 70+ times, that’s Maude Lebowski’s (Julianne Moore) technique of rolling around on her back to let the semen deposit brew.

So anyway, it’s been two years of nut-busting and Mauding it and quite frankly, I’m starting to get a little bit depressed. Sure, we joke about it and try to make light of the issue, but the last time I got my period, my husband cried. As you can imagine, in my hormone-enhanced state, it turned into a dueling cryfest. It was worse than when we watched Sophie’s Choice last winter.

I should probably also mention that aside from our down-home techniques, we have gone through all the proper medical tests. According to my doctor and all the lab technicians we’ve met along the way, everything is working properly on both sides. My doctor eventually pronounced our situation as “unexplained infertility.” I sort of stared at her when she delivered that prognosis until I was finally able to locate my smart assedness and retorted “so is that like the proper medical way of saying you don’t have a clue?” My OB-GYN doesn’t have an ounce of humor in her and she said “it’s what we call it.” Thanks. She sent me back out into the streets knowing less than I did before I came to see her.

While we’re technically not in any rush, we are both 34, and well, time is a-ticking. I swear that all the comments my mom and in-laws make don’t bother me, but I would sort of like to get pregnant so I can just tell them to shut the hell up. My mom, especially. She totally blames me. Everybody does. Even my husband.

Carrying this burden is annoying and unfair. While I realize that there are people out there with problems far worse, it doesn’t change the fact that getting pregnant is theoretically a fairly simple thing to do. I frankly just don’t understand. I see crack whores in Hell’s Kitchen who are able to reproduce. Repeatedly. I only smoke crack when I drink. It’s just not fair. (note the sarcasm)

Seriously though, I take pre-natal vitamins and do yoga and do acupuncture for fertility. I eat healthy, I exercise. I’ve even given up lots of stuff like running and drinking wine and eating sugar. I guess I haven’t given up on hope though. But you know what, it’s a daily battle.

Poison Extraction AKA Leukemia Part III

Poison Extraction aka Leukemia Part 1

Poison Extraction aka Leukemia Part 2

Twenty years ago today, I was a little girl who had just been on her first major road trip.

My uncles, some family friends, my sister, and I had driven the 20+ hours from Phoenix to Houston. I had no idea what to expect. I was so conflicted because in my mind, Houston, Texas looked like a city from an old western movie. Yet I knew Mom was there at MD Anderson Cancer Center, which is the best cancer treatment center in the world. I had such a hard time picturing this big fancy hospital in the middle of a town made of wood buildings and dirt roads with horses.

Turns out Houston was a lot like Phoenix only GREEN. I’d never seen so many green plants and rainstorms in my young life. And MD Anderson was mind-numbingly huge and complex.

And my mother, well she was a pumpkin.

That was my first thought anyway. When she had left Phoenix she’d had SOME hair left. Now she was completely bald and the medicines they’d given her had made her swell up a fair bit and turn orange. Clearly, my mother was a pumpkin.

She was in an isolation room. I could see her through double-paned glass and talk to her via intercom. I couldn’t hug her or touch her. No one could. The doctors administered drugs to her through long plastic gloves built into the opposite wall and once a week a person in a bubble suit could come through the air lock to clean her room. Everything that came in had to be sterilized.

After 3 days of radiation treatments, where she received the same amount of radiation that you would have at Hiroshima when the bomb went off, Mom had no immune system left. The littlest bug could kill her in a few hours.

I remember watching the day of the transplant. We were all gathered around the window. Momma was SO so excited. She held the catheter line up for us to see as they pushed in 3 BIG fat syringes of bone marrow in through the tubes that came through the wall. She gave us a big cheesy grin and a thumbs up!

Afterwards, we went to check on my Uncle Mike (one of my mother’s younger brothers) who was her bone marrow donor. He had 6 little round needle holes in his butt. 3 of them on each cheek. He told Mom that now he can really say that she was a pain in the ass. (In fact until Mikey passed away 2 years ago, Momma would call him every year and thank him for saving her life. And every year he would say “I love ya sis. You’re welcome but you’re still a pain in the ass” )

That was 20 years ago.

I still bawl like a baby every time I really think about it. I have no words to express how amazingly grateful I am to God, to science, to the doctors and nurses and to my Mother for being a fighter and going to hell and back so that I could grow up with my Mommy. I would not be a live today if it wasn’t for her.

In so many ways, I owe who I am to my amazing mother. You couldn’t ask for a more loving, accepting, caring and compassionate person. Don’t get me wrong – she’ll kick your butt up between your ears if you really need it, but only because she loves you. I think she has done a SUPERB job of balancing being a mother and being a friend, and that’s not an easy line to walk.

For better or for worse, hers is the voice in my head. I found that out when I went to college. She’s the one I hear encouraging me, chastising me, reminding me and helping me.

She hasn’t always been perfect but I can say this: Whenever it has been pointed out to her that something she has said or done was not right or hurtful, she never, EVER did it again.

As a kid, shortly after the transplant, I presented a picture to her transplant physician, Dr. Anderson (who just happens to share a last name with the hospital). It said in big crayon letters “Thank you for saving my Mommy’s life”.

I want to say it again. Preferably through a mega phone from the top of a tall building, on the 6 o’clock news and on the front page of every paper in the world, but I’ll do it here:

Thank you to every one involved in making it happen. Thank so much for saving my Mommy.

Twenty years, baby. Here’s to 20 more and many, many more after that!

A Letter To My Younger Self: It Will Be Okay

I wish I could write like our favorite Aunt Becky, but I can’t. My words will be misspelled, my commas will be out of place, and there will definitely be run on sentences, but I swear like a trucker so somehow I think I will fit right in.

So back story: BAD shit happened to me when I was a kid.

You know, my dad was an alcoholic, show me on the doll where the bad man touched you, which I never told my parents. My sister got pregnant when she was 14 and eventually my Mom could no longer deal with it all so I had to pick up the slack. That kind of bad shit.

There were days when I didn’t know if I would make it. Days that I wasn’t able to deal. I would burn myself or punch a wall just to feel… something. I made it through bruised but not broken.

I just wish I could tell the young girl that dealt with all of that what I know now.

I’ve been talking to a young friend who is going through so much in her life right now. She reminds me so much of my younger self. She, like me, puts up a strong front, but just beneath the surface you can see the hurt and self-doubt. When asked we will both say we are “fine.”

Every time she says it to me, my heart cracks just a little. See I know that when she says, “I’m fine” what she really means is “This hurts like hell! My heart is breaking. Somebody please just take away the pain.” I just want to give her hug and tell her it will all be okay. I won’t, mind you, because that would make me seem weak or soft or whatever my fucked-up mind thinks.

Still, through talking to her, I’ve been thinking, what would I tell my younger self?

So I wrote myself a letter today. Maybe it will help her or some other young girl who needs to know it WILL BE OK.

Dear Tonya,

I know it’s hard right now, but experience brings knowledge, adversity brings strength. None of that makes a damn bit of difference when you’re hurting but faith, faith gives you hope. The hope that there is something greater out there brings a small amount of peace even in the darkest times.

When you find love, it calms. Love doesn’t hurt; it heals, it comforts, it expands. Love gives. It should not take away.

If life seems to be spiraling out of control, find solace in the small things. Family, friends, music, words. These are your armor against all that will stand against you.

Remember that the lessons learned from the mistakes we make and the paths we choose make us who we are. Never regret them. To do so would mean you doubt yourself. Nothing and no one should make you doubt your worth.

Though it’s sometimes easier to forgive others than yourself, YOU ARE ONLY HUMAN.

Be as kind and love yourself as much as you do those others.

Stand tall without being cocky and be proud of who you become.

I know I am.

Tonya

PS. If none of that shit works there is always vodka.

Like Fathers – Like Sons

Adult Children of Addicts are at a far greater risk to develop addiction to substance abuse.

This is the story of three brave men:

My father was the son of an alcoholic.  He had a brother and 3 sisters who all would partake in the ocassional alcoholic beverage but never let it interfere with the normal every day functions of their lives.  My father, on the other hand carried on the family tradition/trait/ illness, or whatever you wish to call it.  He was not an abusive drunk, although I do remember he and his best friend trashing our house fighting each other when I was a pre-teen. He was very much involved in my life and that of my brother and sister, but he was still an alcoholic.

As years passed, his drinking became more and more severe.  It wasn’t until my teen years that I really started paying attention and noticing that he was consuming a case or so of beer by himself, everyday, along with as much as a pint of liquor.  He became more pissed off at the world and everything about it.  The world was out to get him and so was everyone on the planet.  It was getting to the point where nothing we did was right.

After graduating high school, it was time to marry my high school sweetheart.  A day I had dreamt of for a long time.  I was never one for dating and the whole girlfriend issue, but this girl was for me and I was so looking forward to that special night and our first dance as husband and wife.  In the middle of the most special dance of my life, my father interrupted and said, “why don’t you play something we all like?”  Our wedding song was “All Of My Love” by Led Zeppelin.

I was stunned, flabbergasted, ashamed, and yet I let it slide.

I vowed my entire life that I would not be like him, and to that I stayed pretty true.  Sure, I had the occasional drink as a teenager.  Yes, I got drunk from time to time but never really cared enough for it to become a regular thing.  Never would I be like him.  I would not put my children through that, even if he was not mean, it was not a childhood I would not want any kid to have to live.   Little did I realize at the time that I was just like him.

Although I was not a drinker, I had no problem smoking pot, tripping on acid and mescaline, doing ‘shrooms, or just about any mind-altering substance that I could get my hands on.  But hey, I was not a drunk.

It wasn’t until my mid twenties, deep into a cocaine free basing addiction that my wonderful wife, the high school sweetheart, told me  ”I don’t know what you are doing, but you either quit or I leave.”

Wow, a brick in the face that one was.

I finally looked at myself in the mirror, literally, and saw a pasty grey skinned man, skinny and sick looking he was just one step away from death or an institution.

I quit.  I vowed to myself and my wife that I would never touch the stuff again.  I spent several years going to narcotics anonymous, sometimes 2 or 3 times a day and I am proud to say I am free, clean, and sober.  I am a fairly healthy 45 year old man still married to my high school sweet heart, and I have 3 wonderful sons and 2 grandsons.

I have felt their joys and sorrows.  I have seen their smiles and frowns.  I have been there for them.  And I was there to help my oldest son through his addiction.

He chose to follow me and go the drug route.  I have always been open with my children about drugs hoping that it would steer them away since I was speaking from personal experience; not quoting something I read in a book.  He saw it like, hey you’re still alive, it couldn’t have been THAT bad.

On his 17th birthday, I did something that even I could not believe.

On the way home from picking him up at school one evening, he was so wasted that he was actually hallucinating in my car, asking me questions about how we were going to get the car through all those trees, and what were we going to do when we got to the end of the road where it turns red. I was so scared for him; it was time for another search of his room.  I found pot growing in his closet, for the second time, so I figured I had no choice. I turned in my own son and he spent his 17th birthday in the county jail, and several others months following.  It opened his eyes a bit.  He stumbled a few times since but is now a wonderful 21 year old man with 2 sons.

One night, not to long ago, he finally told me that he hated me for quite a while for turning him in, but he then said he could not thank me enough for what he did and that he loved me.

I am constantly worried about him.  Will the stress of the children lead him back to the drugs?  Will he make it through as I have?  Will any of his children follow the familiar path?

One good thing that has come of my sons addiction is that his younger brothers want absolutely nothing to do with any of it.  So for now I just let him, and his brothers know, that I will always be there for them, and that life might not always be wonderful but it could always be worse.

And of course, I must thank my wonderful wife.

She stayed with me.

She saw the problems and instead of bailing out she stuck by my side.

She spent several weeks with very little sleep as my mind and body fought each other she was there to calm me.

She saved my life.