by Band Back Together | Jul 13, 2016 | Hearing Loss and Hearing Impairment, Loneliness |
I’m the only one who deals with this. I feel like it’s holding me back.
I was born with a disability.
My right ear, first of all, looks hideous, and second, it doesn’t even work. I’ve never been able to sense exactly where a noise is coming from. It’s like living with all the noises coming through earbuds on both ears, only on half volume. It sucks to think about.
No one else I know at my school has a disability.
But there’s more.
I love being in the school drama club. I love acting in musicals and plays. I love being in our academy concerts. I really do. But I don’t enjoy songs the way other people do. I was born to remember and judge songs by the tune, not the words. I hardly remember the words of a good, catchy song. Because of this, it takes sweet time for me to remember the words to a song. Especially songs I don’t have feelings for.
Often the amount of time I have to practice my songs for my concert, or for my musical, is much more than the normal amount. By the time I’m on stage, I haven’t remembered the words. I’ve never had a real solo. I’m being held back from one of my dreams.
And Only I Feel It.
I now love to write stories, and it’s another dream to become an author. But I will never forget that other dream. It calls my name, but I can’t reach it.
And Only I Feel It.
People take advantage. I talk really loud, and it sounds normal to me. Raising my voice any higher is screaming.
Guess what?
And Only I Feel It.
I want to be normal. Why can’t I be normal?
By-WeWillBand
by Band Back Together | Jun 29, 2016 | Anger, Chronic Illness, How To Help A Friend With Chronic Illness, Invisible Illness, Loneliness, Lupus, Shame, Trauma |
I push myself everyday often beyond my better judgment. Lupus and Sjogrens are not diseases that I can beat into submission nor is the depression that comes along with the chronic widespread pain.
Yes, I want to do more, but why can’t you see I can only do so much and some days a lot less?
You need to know something else. When you don’t make the time to visit me? it breaks my spirit in ways I cannot adequately describe. I may be broken, but I still have value. I am worth the trouble it would take to make the trip to my house. I know you love me.
I wish you knew how much I need you to recognize this won’t go away by ignoring it and by default me.
by Band Back Together | Jun 17, 2016 | Adult Children of Mentally Ill Parents, Fear, Grief, Loneliness, Self Loathing, Therapy, Trauma, Trust |
Reading other’s posts has been full of horror for me. I remember, I remember. I was a teenager feeling the full despair and desperation, of loneliness and self-loathing. I feel it still sometimes, and I have patched myself together as best I can.
My parents still say things they don’t realize are so hurtful, but I am gradually learning to see it. I know I don’t have to react or justify my actions to them, because I am finally accepting that it is their sad way of getting attention. The hysterical thing is, if I can stop from responding, stop saying, “But that isn’t true!” arguing my point, it stops. I change the subject or say nothing – telling myself I know what the truth is, and that is all that is important. I feel sorry they don’t see this, but it is not my job to be their therapist. It is not my job to make them over into what I want them to be – because that is an impossible task.
I have accepted that they will never be the nurturing, trustworthy parents I wanted them to be. They have never been, and looking hard at the evidence, there appears to be zero evidence that they ever will. My expectations and dreams of what “could have been” have created such misery in my life. What a liberation to see it! And so terribly sad – I grieved a lot about that. But letting that mirage go has brought a lot of peace, too.
I can enjoy many good things about them. And, if they ever become what I dreamed of, it will be a surprise and a gift, not a constant let down that they don’t. It is only my job to set boundaries on how much I will let happen before I leave or end the conversation. And, I have more and more friends who sometimes teach me about life – like a good mother or father would, and that’s what I so need.
My inner critic will always be there, repeating awful messages. But I can add good ones, screaming them out if necessary in the bad times, and I can teach myself to recognize those evil words for what they are. My parents loved me as best they could, but their love was twisted and mixed with their own blindness. Maybe their parents’ blindness as well – as they say in Al-anon, it’s the gift that keeps on giving. I know now, the awful things they do to me, were done to them, and they likely do to themselves as well.
Lately those nights I call the screams and knives (figuratively) where I cannot see how I am worthy for anything, I am starting to ask myself if the story line isn’t a bit seductive. Is it a grand play and I am the star? Oh, the horror of my self-loathing and awfulness. In this, I see I am getting the rapt attention I so want. The drama! The tears being ripped from the bottom of my soul! But really, do I need attention in this form? When I’m in the pit, I’m learning to ask, how is today so different from yesterday, when I had hope or felt good? The answer is always outside events that have given the critic in my mind more ammunition to say, “See you did it again, you will never be able to change.” Nothing about my inner me has changed otherwise. I might feel like life is not worth living and things will never change, but reality is that everything else in the universe changes. I am still the tender soul that lived in this body yesterday, and will be tomorrow.
Though at times I might feel hopeless, I will never take my life now because I am starting to trust that I am not alone. I am not the base and evil things my mind sucks me into thinking. I can step back from the story and know that no matter how awful I feel, it isn’t real. It’s like having a bad cold. It will pass. I am a good person, I just have to rewrite the tapes – like the playlist where you’ve gotten tired of a certain song. I put in good, and when I’m ready and willing, ask for the old to be taken out, or let it go.
We are already lovable and whole as we are. Perfect if we can only let ourselves see it. I am beginning to see how that might be possible; we can change how we act, but it’s about training the self-critic, not doing things to be more worthy.
by Band Back Together | Jun 15, 2016 | Help With Relationships, Loneliness, Marriage Problems, Video Game Addiction |
Look at me, tear your eyes away from the screen. Just for a day, understand why I’m upset when you say you’re going to bed.
Weekends? They come and go, with you sitting there, asking me to play with you, sit with you, talk to you.
I don’t want to anymore.
I keep thinking how I want time with you, how I craved you when we were states apart, for so long. Now we’re here, and we don’t even spend the weekends together. Sometimes you come to me, and you leave. Desperate to play.
You don’t see this, but I do. And I feel like it’s wrong for me to feel this way. I refuse to nag any longer, or mention it.
It’s created a distance and loneliness I can’t describe.
I wish you’d understand, I wish I could also understand.
If I ignore it, it doesn’t matter or hurt, but some nights, it’s very clear that you prefer a Saturday night playing online with strangers than with your wife talking, cuddling, and maybe watching a movie.
When was the last time we watched a movie together?
I don’t pressure. I wont complain, you’re not a bad husband.
But some nights like this, it hurts to realize that we don’t spend time together unless I sit beside you while you play. That sometimes I have to pick up a game to be near you. Please, stop saying that I’m avoiding you if I am not sitting next to you.
Sometimes, I am uncomfortable with the situation. How we talk, and you game, looking at the screen instead of me. Us spending time together is basically on your terms, but you don’t realize this.
It hurts to realize that tonight we have been in the same house, but in two different rooms, only because I don’t want to sit on the couch while you play away the night.
I know we met on a game, but please, realize our relationship has moved past video games. We have a family to care for, we have each other.
Why don’t you approach me to stay, to do something else, like watching a movie? Why don’t we spend time together like the couples on the street do? Talking, walking, sitting outside to look out and cuddle. Why don’t we do something outside of watching what you want to watch, and playing video games?
But I wont mention this to you anymore, the times I’ve tried, it’s only made it worse.
I wish you’d understand how it hurts, that you don’t want to watch a movie with me, not just one night, but the next, and the next …and as the time just builds up, I just end up watching it alone.
by Band Back Together | Jun 7, 2016 | A Letter I Can't Send, Adult Survivors of Childhood Sexual Abuse, Alcohol Addiction, Anger, Child Abuse, Child Neglect, Child Sexual Abuse, Depression, Guilt, Inpatient Psychiatric Care, Loneliness, Self Loathing, Trust |
We all have letters we’d like to send, but know that we can’t. A letter to someone we no longer have a relationship with, a letter to a family member or friend who has died, a letter to reclaim our power or our voice from an abuser.
Letters where actual contact is just not possible.
Do you have a letter you can’t send?
Why not send it to The Band?
This is what I would like to tell my mom, and probably would if she weren’t in a fragile state. She’s been wheelchair bound since my second child was born and my daughter is now nearing junior high school. How she ended up in a wheelchair isn’t at issue at this point. Needless to say, she is simply too weak to hear this stuff.
Mom,
Did you ever wonder why I was so angry as a young man? Or why I only had a single friend when I was going through school? You should remember the angry tantrums that I used to pull. The anger I showed you was caused by a deep, horrid certainty that I was useless and doomed to failure. That I could never trust people or achieve anything of moment in life.
While a lot of this is standard fare for a teenager, you never informed dad about any incident as far as I can tell. He was never the kind of man to sit still for such nonsense. Did you stop to think when you told me as a very young child that I was a “surprise?” It didn’t take me long to figure out that “surprise” meant accident, and that you didn’t intend to make me. From that time on, I wondered if everyone would be happier without me, or if I even was truly wanted in the home.
What about the grades, Mom? You know, when I began failing in high school and you would hide the facts from Dad. Of course a child would accept help in such a way. I didn’t want to be in trouble at home AND school, after all. It’s a repeated pattern with you.
Consistently, you would “shelter” your little boy from Dad’s wrath, which was rather corporal, yet never over the top. Yet you failed entirely to protect me from sexual predators. Yes, mother I was molested as a child. I, your little boy, was fucked by a teenage girl belonging to a “trusted” family. My innocence was gone by fourth grade, Mother. Then, listening to your gossip, I learned that you never really even liked that family and thought their mother to be disgusting and immoral. Why, then, was I allowed to mix with them? Did you never wonder why I didn’t have any friends or why I quit playing with the other children from that family? I really believed that my molester was my girlfriend. You have no idea how confused and hurt I was when I saw her with a boy her own age. I had no one to confide in, and as children who are abused often feel that they would get into more trouble.
You were already struggling with demons of your own, of which I had known a little from the time I was in second grade when you were first hospitalized for “stress.” Junior high came around, and while I seemed to be okay, inside I was dying. I felt completely alone, as sex abuse survivors often do. I went through those three years with one friend who I met in fifth grade.
Then, you decided you were divorcing Dad. We moved out and lived for a few months in another town. You went back to father because, as I later found out, he bribed you. Yes, he cashed money from his retirement account and gave you a lump sum of cash to spend at your discretion. That caused me to lose a lot of respect for you. That was a single summer and back to the home. It was fucked up mom.
Junior high progressed. Even then I would have horrid angry outbursts of hopeless despair which should have caused some questions. Mom, why didn’t you do anything to get me help then?
High school came along and I gave up my choir aspirations. I didn’t have the confidence to try out for the high school choir, even though I had pulled straight A’s in all my choir work for junior high and earned a place on the Honor Choir. Indeed, I began to give up on everything then. I didn’t have many friends and had no visitors or invitations during summer breaks to anything. You never wondered why I never went steady with a girl, and asked only one out, and only then after repeated assurances that she would say yes? I pushed away my best friend in this time, in favor of what I thought were better friends. I’m lucky he forgave me, when I asked for his forgiveness.
I joined the Navy, only to flunk their psych evaluation and be sent home after five or so weeks. So there I was in the airport, defeated. You were so out of it, Mom. Dad was obviously exhausted. Apparently, it was getting near to another stay in the hospital for you. Not that they did you any good, except for to get you to decide to pretend everything was okay, so you could get out. Do you remember that ride home and the crazy things you talked about? In any case, Mother, you couldn’t handle your little boy leaving and broke down again. I needed some strength and real help then, Mom. But you, once again, were in trouble. I felt guilty by even thinking, “Dammit, I need my parents right now!” But Dad was dealing with your outbursts and insomnia. And so, once again, I kept my secrets and felt an utter failure. I know you’ve had difficulties Mama, but this isn’t about you right now.
You must realize that I was neglected by you in a few ways. Sure, you kept the house clean and meals on the table, but you never would inform my father of things that he had the right to know, like my failing grades. I was allowed to withdraw unhealthily into fantasy-like video games and television. You didn’t make me do the the things that I should have been doing, Mom. Dad could have helped you with that, if you would have let him. But I knew you, and I played you to keep the bad grades secret, just like any teenager would do, given the chance.
You did all that shit with my older sister, to the Nth degree, keeping her from facing the music for so long that she’s now a drug addict with no job, car, house, or self-respect. I escaped that because all along, since second grade, I have resented you. Yes. Resented that I couldn’t have a mommy that didn’t pick crazy fights with dad as we were watching a baseball game, eating dinner, or whatever. A mommy that wouldn’t freak out at tiny problems and scare the shit out of me with lies fashioned to keep me safe, that only served to inhibit my sense of trust in the world. A mommy who didn’t get so tired she wouldn’t talk to me or Dad and had to be taken to hospital on regular intervals.
I love ya, Mom, but you sure fucked up bad.
Four kids, one alcoholic, another a depressed, self-loathing mess (me) and a drug addict forever child. My oldest brother is the most well-balanced of the four of us, and I truly believe it’s because he spent the greater majority of his time with Father. Why did you “protect” us three from Dad so much? I have a good relationship with my father now, but my brother and sister haven’t spoken with him in years, in any meaningful way.
Do you know why dad was so grumpy all the time, mom? Because he slogged his ass of in a coal mine for twelve hours a day, six days a week and came home to either a batshit crazy or a sweet as pie wife–he never knew what to expect. He paid your way, Mom, and you resented him for it! He never made you stay home, you could have had your own money. Instead, you spent him into debt with secret credit cards, on more than one occasion. I remember the fights. They were the only ones that had any kind of justification. In other words, Dad was right!
You even kept him from forming decent relationships with the majority of his children.
Mom, I love you, but you have messed up three of your kids. That is a fact. I am now thirty six and struggle daily with feelings of empty, horrid loneliness and depression. These things are only bigger for me now, and I resent that you had every reasonable signal that something was very wrong with your child and you did …nothing. NOTHING!
I am now a father, and if one of my children began behaving the ways that I did, I would most certainly get them to someone for help. It’s not normal to rage the ways I did. Now I know it’s because of the injustice of abuse and the feeling that I wasn’t really wanted in the home.
I’m fixing these problems now, Mom, and without your help, just as before. It’s fucked, and I’m still kinda pissed off that all the signs were there. Sure, it was the early nineties. You watched enough talk shows to see at least one child psychiatrist telling parents signs of trouble in a kid. This fucking rock I’ve been toting for so goddamned long is a big bastard now. I’m pissed that I’ve had to do that carrying for so long. I’ve learned so much in my reading that I know that things wouldn’t be so bad NOW, if you would had done more THEN. Maybe you could have found yourself some decent help along the way, too.
I’m taking action now, Mom. I’m a big boy and have been taking care of myself. I’m getting the help I need, but my problems are compounded now by a failed marriage and the breakdown of my little family. This isn’t easier. Time didn’t make this shit go away. Indeed its only become worse.
I will overcome.
I love you mom. I hate you too. I don’t like it, and certainly this is going to be something that I address in therapy. But I’m doing it, finally, and that’s the point.
by Band Back Together | May 6, 2016 | Abandonment, Abuse, Adult Children of Mentally Ill Parents, Anger, Child Abuse, Child Neglect, Grief, Loneliness, Mental Health, Parent Loss, Parenting, Sadness |
Mental Illnesses are prevalent in our world. They greatly affect not only the individual involved, but the people around them. In the month of April, we focus our spotlight on Mental Health, in order to heal together and break down stigmas.
We want your stories. How has your own, or someone else’s mental illness affected your life? How are you rising above stigmas?
Please share your stories with us during the month of April.
Mum,
I am supposed to be heartbroken.
…and I am, but not for the reasons other people think.
When you go – I will mourn the life that could have been – the life you could have had, the life WE could have had; not the car crash it was – leaving nothing but broken people and devastation in its wake.
I will be sad for the “what if” and the “what could have been,” not the actuality. I’m not sad for the reality.
The reality is that your passing will set me free – to a certain extent – from my ‘you’ prison. I’ll still have to continue contending with the prison I built for myself, I know that, but, the direct pain of you will be no more.
People try to share with me, which is sweet and kind but, it makes me squirm and knocks my very thin rope of sanity a little. They tell me about their own experiences of losing a parent or grandparent and how sad they were and how they are there for me. They share things with me which they think will make me feel better – and it would – in an alternate universe, where you weren’t so horrible, and I wasn’t so messed up.
I kind of lie, and say ’“Thank you,” and pretend that I’m cut up about it, like they are about their own relatives passing, and I lie, and I lie, and I lie. Once again, I’m the weird outsider watching the world be normal while I’m in my own little weirdness bubble. What else can I say to them?
“Thanks so much for your kind words and your thoughts and wishes but, please – don’t waste them. She never loved me, and in turn, I’ve built a wall 7 feet tall. I spent my whole life trying to make her love me and it never worked, no matter what I did. This is not a normal ‘daughter losing her mother’ thing, so please – don’t hurt yourself remembering something painful to you in order to help me. Please, please don’t. ”
Sometimes I think I should cry, to look normal.
I nearly did cry the other day. I couldn’t bear to touch your skin with mine so I held your hand through the blanket, and you squeezed it. You squeezed my hand.
It was like throwing a starving person one sugar-free mint. Something wonderful and warm and meaningful but, at the same time empty – and too little – and far too late.
You hang on. Wasting away. I can almost identify every bone in your body. You rarely speak. You rarely wake now. Your body is breaking down, and even the nurses are praying you pass before the really ugly stuff starts happening.
But, you hang on …and on …and on…
I’m sorry you never got the life you wanted mum. I’m sorry it was so hard. I’m sorry you struggled with your own mind from childhood, and I’m sorry you made such awful, terrible, harmful choices. I’m sorry you experienced horrific things, and I’m sorry no one was ever there to protect you.
But, I’m angry you left me. You abandoned me whilst still being in front of me. I’m angry, sad, lost and hurt that you ignored me and chose others so much more favorably over me. The things you did to me, and said to me, and put me through were unforgivable. Some of the things still make me gasp a bit when I remember them because they were so cold and hard and callous; designed to hurt me and humiliate me and separate me. How could a mother treat their child like that?
I guess I don’t want other people’s sympathy because it’s not right. I’m not grieving over the prospective loss of you because, I’ve already been grieving your loss.
…since forever.
Safe journey, Mum.
