Once upon a time, a beautiful princess lived with a king who could transform into a fearsome dragon and a queen who appeared solid by day but turned spectral by night.
As the dragon king set fire to curtains, entire rooms, and everything that dared to defy his iron will, the queen wandered her lonely halls, forever seeking the king who had arrived on a white horse to ask her father for her hand in marriage–the king with whom she had fallen in love.
Occasionally, she shielded the beautiful princess or her son, the strong prince, from the scorching heat of the dragon king’s poisonous flames. The princess and prince felt terribly guilty for leaving their mother while she begged and bargained and cajoled the dragon king, pleading for his mercy upon their children. Sometimes, he relented. Other times left the prince and the princess locked in their respective rooms, terrified and painfully alone as they covered their heads with pillows to drown out the loud crashes and deadly roars that filtered through the castle, reverberating off of the walls and amplifying the dragon king’s rage to terrible heights.
The princess could never understand the depths of the dragon king’s fury, and her mind folded in on itself to create labyrinths of fantasies, often dreams of faraway lands with handsome princes who never turned into dragon kings, because they would save her and take her to a place she would immediately know as “home” even if it wasn’t a castle. She would become a troll and live under a bridge before she would ever stay forever trapped in this gilded cage.
Oftentimes the princess wondered what had changed the king into a dragon, whether a magic spell or a bad potato or something she had yet to understand. Did all kings become dragons? Was the queen searching the castle for something that would break the spell so she could be reunited with the man she loved? The princess asked the queen why she had searched so long up and down the castle halls, and what exactly she had been searching for.
“The king,” the queen replied, looking up from her needlepoint.
A fierce bellowing voice sounded from elsewhere in the castle. The shadows stretched into steeples along the floor as the sun sank below the horizon, and it was clear that the dragon king had transformed.
“But he’s right there,” she said, her brows furrowed in confusion.
“That isn’t the king,” the queen corrected gently, for she still believed the dragon king and the king she’d fallen in love with to be two separate forms.
“Why is he always so mad?” the princess asked, for the dragon king and the king looked no different in her eyes.
“He has a castle and no mighty hoard to fill it,” the queen responded, as if this explained everything. Most of the time, the queen showed a quiet strength that rarely manifested from under the docile, pleasant demeanor that propped up the corners of her lips each day as though on stilts that were a shade too tall.
The queen dropped her meek illusion only when the dragon king’s flame curled in sharp tendrils around the princess and prince’s bare little feet when they ran across the castle as children do. When his flames contaminated their flesh so that all his children could feel were swords that sliced with white hot fire on the soles of their feet wherever they walked, he asked if they’d learned their lesson.
For her part, the princess certainly had. Playing tag with the young prince had only ended in pain–much like many interactions she’d had with the dragon king–so it seemed clear that he was to be avoided, for any attempt at connection or solidarity with him only ended miserably.
Yet the more the queen protested, the more ferociously the dragon king raged. On one cloudy day, the princess met great misfortune when she happened to be in the line of fire between the king and the queen, failing to dodge the vitriol spewing from his cavernous jaws in a torrent of fury. The princess’s beautiful face melted like she had just bobbed for apples in a vat full of acid, revealing the slick muscle and sinew beneath, and the agony she felt as she lay screaming seemed only to intensify when the dragon king banished her to her room for failing to forgive him when he told her that she was still beautiful.
Regardless of the princess’s feelings, once she was out of sight, the dragon king felt satisfied, power-drunk on the wine that he and the queen guzzled by the barrel each night, which never seemed to run empty even as the dragon king’s fields went barren and grapes died on the vine. The wine had an astonishing effect–with each glass, the queen grew more weak, complacent, and cold; she hated how it affected her, but after years of isolation she no longer felt that she had the right or the resources–nor the family or friends–to abscond from the castle with her children unscathed. She tried desperately to soothe and placate her terrified children as the dragon king grew portly and more cruel.
The princess’s face had finally started to heal and smooth over charred bits of flesh, but it seemed harder than the face she’d had before. Thinner. Thin to the point where no matter how her face moved its muscles or froze them, the muscle fibers lay practically translucent beneath, and her expression was never meek enough. No matter how much life and joy she bled from her “tone” with leeches that remained to feast on her trachea long after her swift departure from childhood, it was never flat enough.
The princess, who loved to read, met friends within the pages of her precious books; the only children she ever saw in the castle vanished in a puff of stale smoke when they caught her running after them, her throat hoarse from begging desperately to play as her brittle, raw face peeled into forgotten flakes of skin that would one day blanket her entire bedroom. If she ever caught them, she had no idea what to do with them, so as she had seen done countless times before, she used and discarded them like broken dolls.
Of course, they didn’t come back, but the princess didn’t know why. Hadn’t she been a good sport? Hadn’t she let them play with her brand-new toys?
It was around this time that her shadow detached itself to become a malicious, ghostly figure with lank hair and a permanent smirk of mischief; its owner was weak and positively reeked of self-loathing and fear, which it feasted on at every opportunity in the corner of the princess’s vision before her head whipped around to find nothing there.
The dragon king, in his wisdom (meaning, after his dukes had conspired to force his abdication), decided that it was time to leave the barren fields and broken dreams behind for greener pastures. While they packed up their belongings, the princess skirted the castle’s perimeter to avoid her malignant specter and noticed vast lines of cemetery plots along the sides of the castle that she’d never seen before. Her tired, tattered fingers traced the letters on the headstones, and there she found the names of the children she’d frantically run after in hopes of being their friend.
It wasn’t until then that she realized her new face had betrayed her to keep her safe the way the dragon king hadn’t and never could, closing her eyelids to the blazing flames that devoured her would-be friends, opening when only wisps of smoke remained, and looking past the ashes scattered across the floor. The dragon king, who left to wreak devastation elsewhere in the castle, didn’t spare a glance back as the princess sifted through the ashes and wondered if this was what it meant to have friends.
After all, she hadn’t had any that weren’t lining the shelves of her library, and from those pages spilled timeless tales of eternal friendship and true love–but none of the illustrations she found had a face like hers, cracked and scaled more each time the dragon king’s fierce flames consumed each brittle face that replaced the one before, and when they began to break too easily, the queen surreptitiously showed her the wardrobe of faces she used to hide from the dragon king–maids, crones, peasants, and her personal favorite: broken mirrors.
“But how do they survive the fire?” the princess asked the queen, reaching out to skim her fingers along the smooth glass.
“They don’t,” the queen replied simply. “That’s why he likes them the most. They’re enchanted to show him a false self, and when he tires of each one, I commission another before it’s too late.”
“Too late for what?” the princess wondered aloud, but the queen said nothing further on the matter, and the shadows in the corner grew darker and longer.
The new castle made no difference. Eager to escape the dragon king’s wrath, the princess would often blame her transgressions on the young prince, stuffing her ears to block the shrill screams and sobs that echoed down the expansive halls.
She was too afraid to find and comfort him, but her left hand said it knew the way, so she chopped it off and bit into her pillows to muffle her own shrieks. Into the roaring fireplace it went, and she trembled on the floor of her room and felt like a coward.
Her right hand told her to pick up a sword and vanquish the dragon king, so off it went to join its twin in the fire. After they’d roasted to ashes, she carefully gathered their remains with what was left of her bleeding stubs and piled them in an enchanted cabinet that restored whatever was hidden within it–but at a very steep price.
Having no allowance of her own, the princess stole one of the broken mirror faces from the queen’s wardrobe and offered it as payment. The cabinet accepted it gladly, and she now had both of her hands back, so everything was all better now. Surely the queen wouldn’t notice that one face had gone missing.
Over time, the dragon king’s powers only grew in proportion to his rage. Each time he demanded to know what was “wrong with her” when she dropped and shattered a glass or spilled milk on the floor, the sharp sting of an invisible slap met her face, even if the king was nowhere near her.
After years of reading books and faces, she pondered the question and thought perhaps it was a riddle. Maybe the pain would stop and the dragon king would vanish in a blaze of glory if she could only fit the right words into the right order, so she set to work on lists of permutations, crossing off each one when the words had no effect on the dragon king and posting it to her bedroom wall to remind her of the failure until her walls were covered in stacks of hastily scribbled-on pages.
As she wrote each word on each page, many hundreds of possibilities presenting themselves as new words joined the fray, each word sliced into the flesh over her heart and left slivers no bigger than papercuts. Why wasn’t it working? Why wasn’t she good enough yet?
“Even I don’t want to be near you,” her detached specter whispered into her dreams, carving more deeply into her heart with each word. “Who would? You’re foul, you’re evil, and you’ll never be enough. Never.”
Desperate, the princess made one last effort to save herself from complete self-destruction, knowing that her path was headed nowhere fast. The gashes on her chest oozed thickly with fresh blood, and her eyes met those of her specter’s as she defiantly ripped her still-beating heart from her chest with hardly a sound and ran to the enchanted cabinet before it could follow, stuffing it into a locked compartment in the back of the cabinet that she’d found once while attempting to find a place to hide from the dragon king. Quickly, she locked the compartment and pocketed the only key.
As beads of sweat collected across her brow, the princess sneaked from her castle window using a makeshift rope fashioned from bed sheets and sprinted to a clearing of trees that stretched their branches skyward and shuddered at her sudden arrival.
“Ohhh, look, it’s the young lady who loves trees,” one of the trees simpered sarcastically, shaking its leaves. “You can tell by all the dead ones she keeps locked away in that castle, bound like captives.”
“Please,” the princess begged frantically, “You have to help me. I don’t have much time.”
**Heads up, this post was submitted when the pandemic was just ramping up…sorry it took so long to post!**
Hey The Band,
I’ve been confined with my very sweet and very trying children for about 18 days now (but who’s counting) and we have no idea how long all of this will go on. I know many of you are in the same situation.
The first week was HARD. School was cancelled abruptly and my oldest child had a very hard time with the change in routine. Think epic screaming & crying over very benign things for several days, most of the day. They were stressed and everything was too much for them. I felt much the same way, mostly due to the constant screaming, but I refrained from laying on the floor kicking and crying (in front of the kids, anyway). I did resort to screaming (in the garage) and drinking whiskey (in the kitchen) the night the school district cancelled school for 6 weeks.
Then there came one beautiful moment in the afternoon where I was washing dishes and my children were not screaming. It was a lovely 5 minutes and I decided to peek around the kitchen corner to see what they were playing. To my dismay, it was a game called “alarm clock” invented by the 7 year old, where in the 3 year old is instructed (forced?) to say “beep beep” and the 7 year old smacks the 3 year old in the face, to press the snooze then start over again. The 3 year old did not want to say “beep beep” any longer but desperately wanted to play with the 7 year old. Now, I love that my oldest child appreciates the utility of a snooze button, but smacking the 3 year old in the face does not fall under “nice games to play” in my book. We had a talk about consent and making sure that everyone is having fun while playing and NOT SMACKING PEOPLE IN THE FACE! Did I mention that this was when they were getting along?
So anyway, things have been up and down and we are trying to get into some sort of routine with learning at home. Things are still dicey, but we are finding some moments to play and connect. I’m no longer freaking out that everything is shutting down and I’m no longer obsessively checking the news and Facebook (at least not today). I’m settling into the idea that this is going to be going on for a lot longer than I originally anticipated and our state will probably cancel school for the rest of the year. This makes me very, very sad.
We have many things to be grateful for, we are healthy and have toilet paper and bread and a house and a yard and those are not small things right now. This doesn’t change that we are all stressed, I’m worried about my grandparents, and it feels like society is falling apart. I have friends with compromised immune systems and young children, friends with mental health struggles, and my own family’s mental health struggles that we’ve been slogging through for the past year and long awaited therapy and psych appointments- that I fought tooth and nail for- that have been postponed indefinitely. I find myself cocooning into my own space and my own family to escape the stress of everything going on outside of my control. I’m an introvert. I like a lot of time alone (not that I’m getting much of that these days), but too much time in my own head and the hobgoblins come out. I’ve never been good at connecting with people, really, or maintaining friendships. Socializing is freaking stressful for me, if there is more than one other person to talk to. However, for me connecting with the larger world in some way, shape, or form keeps me grounded. It reminds me that people aren’t all bad, that I’m not all bad, that there is hope and that some things will be salvageable.
My dose of happy today came from one very small act. A mom who lives nearby posted in a Facebook group that her son was turning 2 and she was so sad that she had to cancel his birthday party. Someone suggested that we organize a happy birthday parade and all drive by their house honking and singing happy birthday at the top of our lungs. I wrote “Happy Birthday!” on some paper and the kids colored pictures to tape to the car. We tied a couple balloons to the side view mirrors and joined a parade of about 6 cars, honking and singing to one very happy looking little boy and his family smiling from their front lawn. It was small, but it was something, and my kids and I needed a reason to celebrate, no matter how small. It was fun.
I heard a quote the other day “We are all in the gutter, but some of us are looking at the stars.” I’m not looking at the stars yet, and I don’t intend to forget that I’m in the gutter, but every once in a while I’m going to try to look up.
I hope you can find a way to do that too.
P.S. Google tells me the quote is from Oscar Wilde
I don’t know how to begin to say a proper goodbye to you.
I love you. I didn’t mean to love you; it just happened. Curse of having too much heart. I can’t call you “the one who got away” because I always knew that I never stood a chance. I had no idea what I was getting into when we started this. I’d never expected to become attached to this impossibility.
There are no words to describe how I’m going to miss you.
You’d say things to me, sometimes; things that almost made me believe that what we shared was so much more. That what we had was more than the promise of sex – sex that never happened. When you almost cried after I hugged you, I understood. I know that feeling.
Wish I could take you with me, but we both know that it’s an impossibility.
In a way, I’m almost glad to leave you behind; really, I’m glad to leave this whole situation. I hope that by moving away, you can salvage your marriage. Your wife deserves better this; better than what we have been doing. So does your beautiful baby girl, whom I love without ever having met.
You’re the hardest of all the people I’ve had to say goodbye to. I hope my move is easier for you than it has been for me.
If you do ever come East, well, you’ll know where to find me and if you ever need anything I’m here. I know I’ve told you before but I’m going to tell you again: first and foremost, you are my friend and I hope that never changes. In twenty years, I hope we can look back at these past few months and laugh.
When you found out about Blake, your answer was perfect. So perfect. There was no ‘How could you do that?’ or even ‘I could never give my kid up.’ That was the day I stopped fighting my feelings for you and just gave in. I don’t know if I’ve thanked you for that reaction but now I am. Thank you.
I cried after I told you, there is no one single thing about you I’d take, each part meant nothing without the others.
Your eyes mean nothing without your smile. Your good heart means nothing without the fluffy cuteness. Your sense of humor means nothing without the real meaning behind it.
I believe you have so much more potential inside you and once you get your life together, you will go far.
Of course I want to know your story; to be part of your story, but I cannot. For that I am deeply sorry and sad. Maybe I will hate you for a few days, just for being so awesome.
Thank you for so much. You’ve taught me a lot about myself.
I believe in you. There are few memories that make me laugh like I have with you. It’s with such fondness I remember being semi-tackled just to get a hug. That means so much to me.
Ideas for Handling challenging kid behavior when you are stressed
Being isolated at home with young children isn’t easy. The increased stress from being cooped up, together (all the time!), against the backdrop of scary news and a terrifying economic climate can make emotions run high for all family memb
ers. Though some kids may jump for joy at school being cancelled, others may have a harder time and the changes in their routine may amplify challenging behaviors. Kids feel this stress too, though they may show it in different ways than adults do.
Some kids can talk with us about their feelings, but when they’re overwhelmed or don’t have the vocabulary to have a conversation about feelings, they may communicate their stress in other ways; they may show changes in behavior, changes in sleeping and eating habits, tantrums, trouble with impulse control, and whining or being clingy can be signs that your child is feeling stressed.
Much like the oxygen mask metaphor, if you are trying to help a little person with their big feelings, it helps to keep yourself calm. Use self care tools to take care of your own needs so you can be there for your child.To help your child when they are feeling stressed, be patient with them and try to view their behavior as communication rather than “being bad” or “annoying.” Make time to connect with them, play a game, do an art project, cook something, or let them choose an activity. Doing an activity together can help kids feel secure and valued. Listen to their frustrations, their fear, their anger. If they don’t have the vocabulary for their feelings yet, help them learn the words for what they are feeling.
Some kids thrive on structured routines, other kids prefer things to be more free-flow. Whatever your child prefers, your schedule does not need to be color coded and it doesn’t need to be perfect. Try to find something that works for your family and do your best. When I say do your best, I do not mean your “Type A” style best, I mean do the best you can without sacrificing your peace and while trying to balance the often conflicting needs of family members. This is messy and loud and chaotic in the best of times; In times of crisis, being gentle with yourself is part of doing your best. So be gentle with yourself and be gentle with your children and when you fuck up (because we ALL do) be gentle with yourself again.
Introduce your child to healthy ways to cope with stress. For young children, playing is a great way to counteract stress. Getting outside and doing active play can help everyone to feel more optimistic. If you must remain indoors, try heavy work activities like bear crawls, jumping, or running laps around the house. Play eye spy looking through a window. Art and sensory activities, such as modeling clay or foam soap can be calming for some kids. Distance learning resources can stimulate your child’s mind and avoid boredom, but don’t underestimate your child’s need for down time too. Kids don’t learn well when they are stressed. Some kids may seek quiet time away from parents and siblings to recharge. You are bound to need some quiet time too. Its really hard to be calm and collected with a stressed child when you don’t have any time away. If your child doesn’t nap, try setting up an activity that they might enjoy playing alone, such as play dough near you in the kitchen, reading a book, or listening to a children’s story podcast.
Talk with your child in an age-appropriate way about why their routine is changing and what types of things they can expect for the near future. Let them know they can ask questions and listen to their concerns and feelings about it. When you are parenting during a crisis, there are bound to be some bumps in the road. Reach out to your support network if you need help or a listening ear. Connecting with people facing with similar challenges can make you feel less alone and help you get through it.
Handling big tantrums:
Keep them safe. If they are in a space where they might hurt themselves or others, either move them to a safe place or remove any objects or people that might get hurt.
Let them have their feelings however loud, angry, sad, or scared they may be
While they are having their feelings, check in with your own. Use your coping skills to give yourself some brain space and stay calm during your child’s meltdown. Are you breathing? Check your mind hobgoblins. Use a mantra or repeat a calming phrase if you need to. “This is hard, but it will be ok” and “they are having a hard time, not giving me a hard time” work well for me. Give yourself some mental breathing room, even if you don’t have physical breathing room. Listen to music or a podcast on earbuds, imagine that old “Calgon take me away…” commercial. Make a cup of tea. Don’t go down with the ship.
If you find yourself at a breaking point, remove yourself from the situation. Lock yourself in the bathroom, step outside or call someone to confide in. Don’t beat yourself up for reaching your breaking point- everyone gets there from time to time. Pat yourself on the back for stepping out when you need to.
When you are both calm, come back and work on solving whatever problem arose with your child. Its ok to leave the “lesson” if you aren’t in a good enough headspace to deal with it calmly right away. You can always talk about it later, if you feel you need to. Or not if you feel you don’t.
Adjust your expectations. Survival mode is not the time to be Super Mom. Grazing on goldfish crackers and a bit of extra screen time never killed anyone.
Meet kiddos needs to help prevent problems
Connection (family & social)
when you are in good headspace, take a few moments to do an activity together with your child. You do not have to give your child constant attention. Finding a balance between encouraging independent play and “together time” is key.
Our apartment is not Hoarders level bad, but it could get there easily if I allowed it to. I don’t allow it to because clutter triggers my anxiety.
This pandemic has been hell on my hoarding-related anxiety and on my depression.
I know, on an academic level, why people hoard things. I even have a very good guess as to the reasons behind my husband’s hoarding. But knowing the why doesn’t help; it doesn’t ease my anxiety, it doesn’t make me more empathetic… I think it actually makes me even more frustrated and depressed.
This is one way that having a psychology degree can be a double-edged sword. The knowledge is helpful when you’re looking at the behavior of someone you don’t know. But when it’s someone you live with and you have emotional ties to, it feels like it makes things worse.
The hoarding is a major anxiety trigger for me. It’s limited to his “office”, but sometimes, it seeps out into the rest of the apartment. My husband has this nasty habit of setting things down “for now”, but never picking them back up. I refuse to pick it up. In my mind, my justification is that I didn’t put it there, he did. I shouldn’t have to be picking up after a grown man. So then it sits.
As I type this, I’m looking at a pile of cardboard that needs to go out of the recycling. I look at it and I am seething, both at him and at myself. I’m seething at him for just piling it up and not taking some of it down with him to the dumpster when he took out the trash. I seethe at myself for being so overwhelmed by a pile of cardboard that I freeze when I think about having to haul it out by myself.
I’m resentful. I resent being the one who has to clean. I resent having to tiptoe around his anxiety because if I don’t, then he becomes passive-aggressive and tries to emotionally manipulate me and make me out to be the bad guy because I expect him to help me keep a clean house. Then I start keeping score.
I shouldn’t be keeping score, but I can’t help it. I feel like I carry more of the weight around here and do 90% of the emotional labor in this relationship. This comes from my past; I grew up in an abusive household where I was both scapegoat and maid. I had to clean the whole house while my father sat on his ass and ordered me around. I feel a lot like this now. Except I’m an adult and I don’t live in fear of my husband if I refuse to do it.
I try to clean, but I feel like it’s a losing battle. It’s also becoming very difficult for me to keep pushing on and on. I clean up, but he brings in more crap and sets it down, never to pick it up again.
I think I might be at the end of my rope. Actually, I think I’m hanging on to a thread as far as the hoarding is concerned. I’ve contemplated going into that room and just getting rid of everything that I think is garbage. I’ve even considered ratting out my husband to the landlord as a wake-up call. I’m mortified at the thought of maintenance or the landlord coming in and seeing that room.
Again, not a picture of the author’s actual garage…
I’m not even going to get into how our rented garage looks. That does look like an episode of Hoarders. I’m angry that we pay extra a month to rent a garage to house all the crap he brought home and never used. We need to clean it out, but I’m both overwhelmed at the idea of how much stuff is in there. I’m also mortified at having to open the garage door and having everyone see how bad it is.
I could go to therapy, but the issue here is that I don’t want to tolerate this hoard anymore. I’ve lived with it too long and I feel like I’m enabling him by not saying anything. I’m hanging onto that last frayed strand of rope. I’ve lived with it long enough. I don’t have the time nor the patience to live with all the physical crap. I don’t have the luxury of waiting until he admits that he has a problem and gets help for it. If this makes me sound cold, then so be it. I have to think of myself. This is wreaking havoc on my anxiety and my depression. I don’t want to end up having another nervous breakdown and spending a week in a behavioral health facility because my anxiety and depression have reached the levels of suicidal ideation again.
Don’t laugh. The last time this happened, it was because the idea of going to work triggered panic attacks and I felt like such a failure that I began thinking about suicide.
I have few ways to escape since the pandemic started. I feel trapped, both by a virus and by someone else’s physical crap and emotional issues he refuses to deal with. I’m exhausted, too. I feel like a failure because I can’t keep my house clean. Short of staging an intervention, I don’t know what else to do.
On January 4th of 2020, I picked up my One Year Chip. How awesome that was. And in a stretch of ego, how proud I was of myself. Yes, I know I didn’t do it alone, but I was still proud of myself for not giving into the craving, especially early on.
So, I picked up my chip and all was so good in my world. February came and I was still on that pink cloud, vowing to never step off of it – hell, my sponsor said I never had to if I didn’t want to, so why would I?
Then came March, and we all know what March brought. For me, it brought a little more unknown than I was ready for. But I have a program and a higher power, and I was going to be okay. My meetings shut down, but we all found Zoom and again I knew it would be okay.
April got a little harder. I was diagnosed with Covid on April 9th. I was lucky and able to manage my symptoms at home. One thing that was becoming more and more evident, though, was that I was starting to miss my fellowship – the Zoom meetings weren’t quite filling the void anymore. Plus, I had been laid off on March 16th, so I was living in an isolation I knew would be NO good for me. But I was still okay. I leaned on my higher power hard, but He’s got broad shoulders. Then came May.
May was gonna be good. We got back to work on the 13th and although it wasn’t as busy as it needed to be, it would pick up. I just knew it would. And although Covid was ripping through the world, I could stay busy with work and feel some normalcy.
Side Note: I live in South Carolina and masks weren’t much of a thing here until quite recently. So we eventually became a “hot spot”, made the national news – the works. And as Bill would say when sharing his story… “And then it got worse.”
My mom had always lived independently. At 77 she was the neighbor who took all her neighbors to doctor appointments, the pharmacy, grocery store; whatever they needed. On May 20th mom was doing what she does – taking a neighbor to a doctor appointment. Except that after dropping off her friend, she disappeared. Just like that. We searched and searched, checked parking lots of nearby doctor offices, hospital parking lots, made all the phone calls, and yielded nothing. We checked her apartment for clues, and that’s where we found that her wallet with all her money, credit cards, and license were still there. As was her cell phone. Mom disappeared and had no money or ID or way to call or be called. That’s when I started to feel a serious WTF feeling.
In the meantime, I had filed a missing person report here with the police department. Besides walking in the rooms of A.A., that was the smartest thing I’ve done. All told my mom was missing a total of 26 hours. She was found at about 1:30 on the 21st, in Virginia. I may have forgotten to mention my mom lives here in SC too. She was pulled over by a police officer for driving with her hazards on. The officer here in SC who filed the missing persons immediately put mom on the NCIC, so her license plate dinged as soon as the officer in Virginia ran it. Maybe that’s procedure, I don’t know, but I’m grateful he did that. Beyond grateful.
**At this point I’d like to point out again that mom had no ID or money. I have no idea where she spent that 26 hours because the trip to Virginia from here is 4, maybe 5 hours. This troubled me for weeks, but she doesn’t remember any of it, so that right there is some Grace of God stuff, and I chose to let that go**
Mom had no idea where she was, how she’d gotten there, or why she’d gone there. She was belligerent with the officer and he brought her to the hospital for evaluation. That hospital was less than helpful. As a matter of fact, for a minute I thought about legal charges against them, but knew I could not afford to pursue litigation against them. So, I let it go. Mom wasn’t hurt by them; she just wasn’t helped.
That Thursday we were ready to head back to South Carolina, but it was too much to drive so we decided to get a room. I had to stay up all night long at that hotel because mom kept trying to leave the room… that was a long night. We came back home the next morning and I will spare too much of that story; let’s just say that immediately upon returning home I brought mom to the hospital here, where she was admitted and stayed for what ended up being a week. There I found out mom had developed a bad UTI which brought on an early onset of dementia. That explained her previously inexplicable trip to Virginia and her subsequent behaviors.
About the 4th day in the hospital, it became obvious that once the UTI had cleared up mom wasn’t much better. That dementia wasn’t just going to go away. What was worse though was because she wasn’t “medically” in need any longer, the hospital wanted her gone. Every day they would tell me she needed to be released. I had no idea what the hell I was supposed to do with her! She certainly couldn’t live alone anymore and if she stayed with me, I’d have to quit my job and probably never sleep again for fear she’d sneak out of my house. None of those were viable option, I was so lost. Suddenly I’m the caregiver with absolutely no clue what my next steps were. Medicare, Medicaid – I knew nothing, but I was about to get a crash course.
Again, I’ll spare you all the details, but I found a place for mom to be transferred to while I tried to figure the Medicaid/Medicare piece out. It’s a lovely assisted living that is costing me $2000 a month. I cannot sustain that for much longer before I bankrupt myself. To make matters worse, this assisted living facility (I have very recently learned) doesn’t accept Medicaid payments. As a matter of fact, there’s one place that covers most of the eastern seaboard of South Carolina for Medicaid assisted living residents. It’s an hour away and NO ONE is taking what they refer to as “community transfers” due to Covid. So, for now, mom has to stay there while I try to figure out how old is too old to become a prostitute…
Kidding, of course.
So, for now, mom is where she is and she’s safe. She’s as mean as a rattlesnake every time I see her, she even told me she wished she had killed me when she had the chance. Yes, I know she has a disease and doesn’t always know what she saying, but I can promise you that doesn’t make it hurt any less. But I’m all she’s got and I don’t get another mom, so it is what it is.
My sobriety has taken quite a hit, but it’s still intact. Year 2 of sobriety has thrown a shit ton of curve balls at me and I’m trying to learn when to swing and when to let em go by. I’m getting better at it. I got to go to an in-person meeting last night – first one since early March. It was glorious. I have been missing my “people” so much. Way more than I realized.
I’m sure there’s a lot I left out, maybe forgot, but I’m finally beginning to realize what some of our slogans mean. Living Life on Life’s Terms isn’t for pansies. One Day at A Time is something I’m having trouble with these days, but my people smack me in the back of the head with it when I need it. Also when I need it, they’re here for me. You’re here for me. That’s amazing and I hope to never take that for granted.
Once upon a time, a beautiful princess lived with a king who could transform into a fearsome dragon and a queen who appeared solid by day but turned spectral by night.
