by Band Back Together | Sep 27, 2010 | Breast Cancer, Cancer and Neoplasia, Coping With Cancer, Grief, Help For Grief And Grieving, Loss |
I think my title sums up how I feel. My heart has been aching for the past year for a person that has been there since I was two, for twenty-eight years of my life, and now she was gone. She was my cousin. She was there before my sister. I don’t remember life before her.
I feel guilty that I didn’t take the time to get to know my cousin. Sure, I did the family obligations, the birthdays, holidays, and weddings. But it wasn’t until I was at her funeral that I realized how much I had missed out on. I felt awful because she used to drive me crazy. I found her very annoying at times. While everyone talked about the saint she was, I felt so guilty about I used to feel about her.
Denean was different, she always was. She was an old soul before she was in high school. I think she knew even then. In 1998 we got the call, my mom, best friend and I, while we were working at my mom’s practice: Denean had Non-Hodgkins Lymphoma. It’s treatable, she will beat it.
But, still I think to myself, it’s cancer and she’s only 17. Through treatment and chemo and losing her hair she remained positive. It was as if she was God’s own army, it was amazing.
Remission with follow-ups came next for five years and then there was a lump.
Breast Cancer. Denean had a biopsy and yes, at the age of twenty-three she was diagnosed with breast cancer. A double masectomy and a hysterectomy followed, plus lots of chemo and radiation. Then remission again. She had won, we had won! It was a good day.
Then two days before her brother’s wedding, another lump. This one was bruised and ugly. Breast cancer again. With no breasts. It had spread. Lymph nodes, bones, tissue. Her mother, my aunt and a nurse, asked a doctor how long we would have with her. 5 years, he told her, 5 years at best.
My cousin was twenty-five at the time. She wouldn’t live to see thirty.
But we were all selfish. We expected her to win, to beat it. She always did.
Looking back, we missed it. She knew she was dying and she planned for it. My only regret in life is that I didn’t plan for it, too. My best friend told me to spend time with her while I could and I didn’t. I did once I realized what was happening, but I regret that I didn’t before. Three weeks before she died, I rushed home with my two-month old baby to be by my cousin’s side. Until the day that I die, I will be grateful that I had that one week with her. I got to make jokes with her about her ICU nurses, see her sarcastic sense of humor one last time.
I will carry that week with me always.
Denean left the hospital September 17, 2009 and three weeks later she died on Sunday, October 4th, 2009; her father’s birthday. Her funeral was standing room only. The women and the real men wore pink to honor her.
Denean was that person that you read about in People Magazine. She fought cancer three times, she put herself through school and she taught to special needs kids–it was her passion. But her most important job of all was that she lead so many people to Christ. She helped start a prayer group in her high school that started out with 10-20 people. Today, it is well over 200 people.
To say it is an honor to have known her for her entire life would be an understatement. I feel blessed by the hand of God to be related to Denean.
Thank you for this forum. It feels amazing to talk about her.
Denean, if by the Grace of God you are reading this, I love you and I miss and I will forever feel blessed to have the honor of being your cousin. I think about you every day and will miss you until the day I die.
by Band Back Together | Sep 21, 2010 | A Letter I Can't Send, Cancer and Neoplasia, Coping With Cancer, Grief, Help For Grief And Grieving, Loss, Parent Loss |
Dear Mama & Daddy,
Well, here it is…September again. It seems like it should get easier. And some years it even does. But, for some reason, this year is hard. Mama, September 3 is now and forever will be the day you went away. And Daddy, September 21 will always be the day you left.
I miss you both so much. Daddy, you never got to meet Tabitha, but you would have been crazy about her. You would have called her “Sport Model”. You would have goosed her in the ribs with your finger stub just like you did me, and she would have hated it and loved it at the same time just like I did. I wish you could have known her. And I hope that you can see her from where you are.
Mama…oh God, where do I start? I hate, hate, hate the cancer that took you away. I’m glad you’re not hurting anymore, but my God. You always said that you wouldn’t want Grandma to come back because it would mean she would have to suffer again. I can’t say that. I’d take you back in a heartbeat and give you medicine to help you not suffer. I’m so sorry that I didn’t wake up that morning when you called me. That morning when your pelvis was broken and you tried to get up to use the bathroom. The doctor said that you falling back on the bed didn’t break your pelvis. That your pelvis was broken before you ever tried to get up because the cancer was in your bones. But still. If I could have a do-over, I sure would take it.
And Daddy, don’t think that all my guilt is reserved for Mama. I haven’t forgotten that time I ran off for a week and worried you so much and left you alone. You remember that song by Travis Tritt? Tell Me You Didn’t Say Goodbye? Well, I still can’t hear that song without losing it. Even after all this time.
Mama…Daddy…I’m sorry. I wasn’t the daughter I should have been. And I didn’t realize it until it was too late. I hope there really is a Heaven. And I hope that the two of you are together there. And I hope that you both can see all the way into my heart and know that even though I failed you both miserably, I always loved you and thought you were the very best parents anyone ever had. And I hope to see you both again someday.
Charles Franklin Brunson
March 1941 ~ September 1995
Virginia Faye Brunson
January 1943 ~ September 2008
by Band Back Together | Sep 18, 2010 | Abuse, Addiction, Adult Children of Addicts, Blended Families, Bone Cancer, Child Abuse, Emotional Abuse, Homelessness, Hospice, How To Cope With Post-Traumatic Stress Disorder, How To Help A Loved One Who Self-Injures, Post-Traumatic Stress Disorder, Psychological Manipulation, Self Injury, Self-Destructive Behavior, Suicide |
every time i try to start a post for this new community, i erase it and start over. i literally do not know where to begin.
i am an addict. i am a cutter. i am clinically depressed. i have ptsd. i have anxiety disorders. i am the child of an alcoholic. i was physically and emotionally abused. i couldn’t stop my friend from being raped. i went to my first funeral at the age of 5. my parents are divorced. i have had 16 suicide attempts. i have a younger brother and he is my best friend. i have an awesome husband, and he is my other best friend. i have sold drugs. i have had sex for payment. i was on welfare. i have had sex in a church parking lot. i have done cocaine off the back of a public toilet. i have cheated, lied, stolen, broken, taken, left a path of destruction around me.
but i am here. i don’t know what to make of that most days. am i a survivor? a survivor of what? of life?
life should be lived, not survived. you survive a disease. you survive in battle. you survive an accident. you don’t ‘survive’ life.
i guess this is as good of a place as any to start: i’m fucking crazy. batshit crazy. yes, you read that right. i own my craziness. but i don’t know what to do about it. i take my pills, i blog (which is my new free therapy), i exercise, i try to be a productive adult. and i fool most people. the pills help, they do. but it’s like lying under the surface, there’s always this blackness waiting to grab me and pull me under again.
i’m always treading water: surviving.
i don’t know why i’m crazy. i know that outside factors have not always helped. my dad was a highly functioning, non-abusive alcoholic. we left when i was 6. i got a new step mom when i was 7. and my mom found a new boyfriend when i was 9. we moved in with him when i was 10.
that first summer, he was home sometimes during the day. mom was at work, brother was at daycamp or some shit. i don’t remember why it happened, but i do remember the first time he hit me. it was kind of like a spanking. i was a bit old for that at ten, and had something to say about it. he told me that my mother had said he could discipline us, and she knew that he was hitting me.
so i didn’t say anything.
when i was 11, he flung a heavy piece of thick plexiglass at me while i was sitting on the stairs. i jumped down, and the plexiglass broke the banister. he would call me names – tell me i was fat, i was a whore, i was stupid, i was ugly. he would hit me. my mother finally noticed something was wrong, that i was acting out. she did the right thing and called a child psychologist.
i went to the psychologist three times. back then, i didn’t know what she told my mom or why i stopped going. now i know: she told my mom that i was a pathological liar. i was not being hit or abused by my stepfather – i was making it all up for attention. my mother was told to continue disciplining me, but not to give me that attention that i supposed was acting out for. i had no idea.
then he started getting me high. he first offered me pot when i was 12. he supplied me until i was 18. i was high for six years. and it didn’t help.
he was a functioning alcoholic. he almost never seemed drunk, and i didn’t even always register it. we’d smoke a joint in the basement, then each grab a beer while he cooked dinner. we’d be friends for that time. but it never lasted. i stopped respecting him because of the way he treated me. so i started mouthing off to him. he threw a pot of cooked rice at me at the dinner table one night. my mom saw it, but what she saw was me goading him into doing it. in reality, i just didn’t care anymore. i ran away about once a week. he would follow me outside to the gate, tell me he loved me like i was his own daughter, please come back inside.
i would.
one time, i walked out to clear my head after a confrontation. i must have been 14 or 15. when i came back in, he said, ‘i thought you were running away’. i told him i just went for a walk, but i’d leave if he wanted me to. he got mouthy with me, i got mouthy with him, and he threw a butcher knife at me. in front of my mother. i left then, and stayed at a friend’s that night. i called home five times, hanging up every time he answered. finally, my mom picked up and i told her where i was.
his defense to my mom was that if he wanted to hit me with the knife, he wouldn’t have missed.
one time, i told him i’d call the cops on him. he got in my face, and told me he’d already been in jail, it didn’t scare him. they’d never believe me anyway – i was crazy. i told him if he ever touched my mother or my brother, i would kill him or die trying.
he never did lay a hand on them. only me.
one night at dinner, he shoved our wrought iron table into my ribs multiple times, bruising two of them. we just kept eating. he told me he wanted to get some mushrooms (not the cooking kind). i could get them, but my source wanted my stepdad to roll blunts for him. he agreed, and my source gave me cigars to be rolled. my step dad showed them to my mom, said he’d found them in my room (he had – in my underwear drawer. he routinely went through my things) and that i needed to be punished. he made me eat the cigar. and when i wasn’t eating it fast enough, he lit it and exhaled the smoke into a plastic bag. he then made me hold the bag over my nose and mouth for what seemed like three or four minutes.
i spent the night vomiting in my room. i never got him the ‘shrooms.
i tried to put the iced tea back in the fridge one night. he got within arms length of me. by this time, i was 16 and had a panic attack when he got that close to me. i started yelling at him to get away from me. he trapped me behind the fridge door and shouted at me. i started screaming obscenities at him. he hocked a loogie in my eye. when i ran screaming to the bathroom to take out my contacts, he followed me and threw me across the bathroom. i bruised my lower and mid back on the side of the tub when i fell in.
he threw me out when i stole $1000 from him. i thought it was his, but it was actually the rent money for our house. he took everything i owned – all my artwork, paintings, sculptures, and threw them out. he got rid of my bed. he dumped all my clothes into plastic garbage bags, and emptied an ash tray into each bag. i ended up with two laundry baskets full of clothing, my senior year english notebook, two sketchbooks, and some cd’s. i lived in my car for a few weeks, sleeping over friend’s houses when i could – but most were away at college. my boyfriend’s mom took pity on me, and let me move in. until his grandma found out a few weeks later why i was thrown out of my home – then she threw me out too.
i was 17 and going to be put in a girl’s home. when they called my mom to tell her, HE insisted that i could not go to a place like that and let me come home. my room had my old dresser and desk, a lamp, and my bookcase in it. my boyfriend took a mattress off a cot his family had so i didn’t have to sleep on the hard floor in my own home. i lived like this from october 1997 until august 1998.
i’m focusing on my step dad here, so there are lots of things missing – me doing drugs, me stealing, me raising a bit of hell. but i’ve never laid this all out before. i’ve never actually gone through it all like this.
i was kicked out again in 1998. i lived out of my car for weeks this time. i slept on the road near my boyfriend’s house. i’d call friends to sleep over and shower at their house. i wasn’t allowed in his home at all – not even to pee. his grandmother wouldn’t allow it. we’d drive to a local taco bell so i could use the bathroom. every night, his mom would send him out with two dinner plates, and we’d eat dinner in my car. i finally went on welfare for housing in september 1998 and was in the system until june 1999. i was hospitalized for a suicide attempt. the only person who came to visit me in the hospital was my boyfriend. i didn’t see my stepdad much during this time.
in 1999, i moved within a few miles of my mom’s new home. i was invited over occasionally for dinner or something like that. i’d pick up my brother to hang out with me and my boyfriend. little by little, i was allowed in the house more. i would come over to do laundry. my step father would make passes at me, comments about us being alone together. i made sure that wouldn’t happen.
i was telling my mom one day that it had been so long since i cut, i was feeling better. we were having a dialogue, and that hadn’t happened in so long. my step dad put a knife on the table in front of me, and walked away. he’d come up behind me when i was in the family room alone, using the computer, and put his hands on my shoulders and whisper nasty things in my ear. we’d go to a family dinner for thanksgiving at my aunt’s house, and he’d hand me $100. it was a confusing relationship.
after the last time i was kicked out of my house, he never struck me again. but he was as emotionally and verbally abusive as he could be. my mother never really saw it again when i was an adult, but he was inappropriate with me up until he was diagnosed with bone cancer in june of 2003. he died december 28, 2003. i was at the house helping my mom that day. things did not look good, our hospice nurse was concerned. i usually did not go into their bedroom, ever. i hadn’t since i was 10. i went up to say good bye to him before i left. when i poked my head in the door, he waved me to the bed. i walked in, and he reached his hand out to me. i held it for a moment, and he said, ‘good bye’.
i said ‘good bye’. i drove home. he died about five hours later. my boyfriend – the same one all this time – drove me over there at 2am. (i ended up marrying him.) for my mom and my brother, it was a release – he’d been so sick. it was sad, but it was good. it was over.
i was the one who broke down.
i will never know why he chose me.
by Band Back Together | Sep 10, 2010 | Cancer and Neoplasia, Cancer Survivor, Coping With Cancer, Testicular Cancer |
I’m on an airplane, heading home from my recent vacation with my wife and most of her side of the family and writing this entry on the notepad on my iPhone. That is the dedication I have for BAND BACK TOGETHER!
How did this entry come to happen? Well, I blame Aunt Becky. Why didn’t I have a link for Aunt Becky?! Umm, if you are reading this chances are that you know her. If not, well…I got nothing. I follow that crazy (crazy AWESOME) lady on Twitter and love reading her blogs. Mostly cause she says fuck a lot and you don’t hear women talk that way. Come to think of it, she might be a dude. Eh, I would still follow her…or him.
She tweeted how she wanted to make a shirt that said “CANCER IS BULLSHIT” and I told her I would help with the design. This led to a stream of DM’s of why I wanted to help and what it meant to me. So I thought, what else is there to do on an airplane ride? Well, besides watching “Breaking Bad” that is. Here it goes. This entry is going to be a bit different from how I normally write so please don’t judge! This is serious, we’re talking about my nuts here!
I was a month away from turning 31 and 2 weeks away from my first anniversary with my wife. It was Halloween and we were at a party at our friend Nick and Lauren’s house. I had probably 4 beers and we were home in bed by midnight. Everything was fine. That was Halloween.
November 1st was a different story.
I woke feeling like crap. Well, I actually felt like I had to take a big crap. Gross, but that’s the closest thing I can equate it too. As the day went on, I started to feel worse. I decided to take a shower because for some reason that always helps me feel better. I like to sit down in the shower, that’s just how I roll. Well, when I did that I felt a sharp pain…in my nuts. Actually it was just my left nut if we want to get technical about this. I decided to give myself a self-examination. Right nut, smooth and pliable just the way it should be. It seemed to be normal size, from what I remembered. Okay, left nut…fuck. The thing was 4 times the size of the other and hurt like hell to even squeeze ever so slightly. I called my wife to look at them. She saw them and how there was a noticeable size difference and we were off to the hospital.
After waiting for 2 hours in terrible pain due to all the assholes that ran to the ER, convinced they had H1N1, I finally got see the doctor. He poked, prodded and jostled my testes. Then, he ordered an ultrasound.
You know what’s awkward? Having your nuts scanned by a female nurse while your wife is in the room. Yup, not cool. When I returned to my room in the ER, I was met by my doctor who had already scheduled me an 8 AM appointment with another doctor who would be talking about the surgery and my cancer.
Wait…WHAT THE FUCK!?
Yeah, it was laid that smoothly on me. My wife and I walked to the car (it was 10 o’clock by now) and I made a phone call to my mom. I told her I was okay, but that I there was something that I needed to talk to her about but I needed to go home and sleep and that I would talk to her when I knew more. She cried a bit, but respected my space.
Next day, we met with my Urologist. He had red hair and was kinda weird. That’s all that I can tell you about him. He is just kinda weird. Whatever, he showed me my scans and told me my options. I knew surgery was necessary so we were all for that.
They would be removing my left nut the next morning at 8AM. My tumor was directly in the middle which was good because the doctor feels like that stopped any spreading of any kind. He was very sure of this.
However, I was still going to go through Chemo or Radiation therapy.
I had my nut removed and then had two weeks off. It was nice to have the time off but at the recovery sucked. They had to give me a hernia, take the nut out and then seal me back up. I couldn’t lift, sit up or get out of bed for about two weeks without being in pain or uncomfortable.
I was lucky that I didn’t have to go through massive sessions of chemotherapy. I chose chemo because one doctor said for the type of cancer I had and where it was that it was the best treatment and he stood by that. Also, I chose it because I thought the radiation oncologist was kind of a douche.
Chemo wasn’t so bad. Yeah, I did have to sit in a chair and people gave me the look of death when I walked in for treatment. Old people seem to think that no one young should have cancer and when they saw me they thought the worst, so they would give me this look. I hated that part of being in the clinic.
I finished my treatments and now I do blood tests every three months and scans and blood every 6 months for 3 years.
What I hate most about the scans is that every time I have one done, for about a week I am on pins and needles waiting to hear the news. That time is the worst.
It happened during this economic struggle that everyone is going through. We were hit hard and our savings was completely destroyed. We are a young couple that is trying to save for a house and get started, but life decided that we would have to grow up really quickly. You can always earn more money, right?
We want to have kids and now it seems my number of fellas down there has been cut in half. We were taken from being this happy couple that is young and didn’t have a care in the world, to a couple that is now having to think about freezing sperm just in case! My wife was my rock during this whole thing. She was there by my side and never left it. I even had a medal made for her that says “Best Wife Ever” so that title is now officially taken and no one else can have it. My wife has that shit LOCKED DOWN!
Cancer is BULLSHIT! I definitely agree with that.
However, I have learned a few things since it happened. I now know that I am not invincible and that things can happen. I knew that when I broke an arm or something but that’s different. When you are told you have something life-threatening, it really makes you stop and look at life. I may be a “single jingle” (I want a shirt that says that) down there now but I am still alive and that’s what matters.
There are times that I lose it and cry. Shit, it happens to us all. I could be fine one day and think about it and how if I hadn’t caught it I could have died and how I would leave my wife all alone and it makes me sad. But, I am still here. I am alive and kicking and not going to let my cancer run my life.
Cancer IS BULLSHIT!