by Band Back Together | Sep 23, 2010 | Baby Loss, Coping With Baby Loss, Grief, Help For Grief And Grieving, Livng Through A Miscarriage, Loss, Miscarriage, Pregnancy |
I wrote the following Monday, July 12, 2010 just hours before I had a D&C procedure.
I can’t sleep. Too much on my mind. I write this with a lump in my throat.
The day before my son Lucas’ first birthday, got a positive pregnancy test. We had only been “trying” for two weeks! Can you say fertile? Stranger things have happened.
Learning I was pregnant for the first time was one of the most exciting days of my life. Not only is it a major milestone on the path of adulthood, it is one of the most joyous experiences you will ever have. I will never forget the day I found out I was pregnant with Lucas. I cried tears of happiness, excitement, and fear.
Learning I was pregnant a second time was a little more shocking for me. I had just gotten back to my pre-pregnancy weight and into my favorite jeans. The hair around my face was starting to grow back and I was FINALLY starting to get the hang of this “mommy thing.” The tears this time came from pure disbelief. I was excited but also troubled by how our perfect little family of three was going to change. I was mostly concerned with how this new addition would affect Lucas and how I might handle two under two. Doing the quick calculations, Lucas and his sibling would be almost 21 months apart.
I thought I was nine weeks along at my first OB/GYN visit when an ultrasound revealed that I was only measuring at six weeks. We were told we could have our dates off.
I’m pretty good (obsessive) with dates and knew deep down inside that something was terribly wrong.
My doctor ordered blood work to check my hCG (the pregnancy hormone) levels and more ultrasounds a week later. Unfortunately, my hCG levels dropped and we learned last Thursday that there had been no growth to the embryo since week six. I had a terrific pregnancy with my son, so why would I think anything would or could go wrong with this one? I certainly felt pregnant.
But, in the end, my gut was right. There was something wrong and this pregnancy wasn’t meant to be.
Of course, we’ll never know exactly what went wrong. Why did this happen to us? What went wrong? Did I do something different this time around? Will it happen again?
I know that miscarriage is far more common than we like to think and often times there are no answers. I’ll have to accept that. Eventually.
All I know right now is that this hurts. I’m sad and because I don’t want to wait around for my body to have a natural miscarriage, I have a D & C (a procedure to scrape and collect the tissue from inside the uterus) scheduled for this afternoon.
Please keep those of us who have been through this terrible ordeal in your thoughts. Thank you.
by Band Back Together | Sep 21, 2010 | A Letter I Can't Send, Cancer and Neoplasia, Coping With Cancer, Grief, Help For Grief And Grieving, Loss, Parent Loss |
Dear Mama & Daddy,
Well, here it is…September again. It seems like it should get easier. And some years it even does. But, for some reason, this year is hard. Mama, September 3 is now and forever will be the day you went away. And Daddy, September 21 will always be the day you left.
I miss you both so much. Daddy, you never got to meet Tabitha, but you would have been crazy about her. You would have called her “Sport Model”. You would have goosed her in the ribs with your finger stub just like you did me, and she would have hated it and loved it at the same time just like I did. I wish you could have known her. And I hope that you can see her from where you are.
Mama…oh God, where do I start? I hate, hate, hate the cancer that took you away. I’m glad you’re not hurting anymore, but my God. You always said that you wouldn’t want Grandma to come back because it would mean she would have to suffer again. I can’t say that. I’d take you back in a heartbeat and give you medicine to help you not suffer. I’m so sorry that I didn’t wake up that morning when you called me. That morning when your pelvis was broken and you tried to get up to use the bathroom. The doctor said that you falling back on the bed didn’t break your pelvis. That your pelvis was broken before you ever tried to get up because the cancer was in your bones. But still. If I could have a do-over, I sure would take it.
And Daddy, don’t think that all my guilt is reserved for Mama. I haven’t forgotten that time I ran off for a week and worried you so much and left you alone. You remember that song by Travis Tritt? Tell Me You Didn’t Say Goodbye? Well, I still can’t hear that song without losing it. Even after all this time.
Mama…Daddy…I’m sorry. I wasn’t the daughter I should have been. And I didn’t realize it until it was too late. I hope there really is a Heaven. And I hope that the two of you are together there. And I hope that you both can see all the way into my heart and know that even though I failed you both miserably, I always loved you and thought you were the very best parents anyone ever had. And I hope to see you both again someday.
Charles Franklin Brunson
March 1941 ~ September 1995
Virginia Faye Brunson
January 1943 ~ September 2008
by Band Back Together | Sep 20, 2010 | NICU, Post-Traumatic Stress Disorder, Special Needs Parenting |
The first time I saw a brain, a real brain, suspended in some greenish liquid at the front of my gross anatomy lab, I stood there, staring at it for a good long while. I was long past being disgusted by the organs of the human body, and seeing the folds of the creamy white tissue struck me only with a sense of wonder. This was it, right there: all that you were, all that you thought, all that made you you was right there in that innocuous looking organ.
Really, it could have been a football for as glamorous as it looked.
But to know how it worked, studying the nuances of neurology, that is poetry. All of the mysteries that we still do not know about how the synapses fire to make one person want to maim and dismember and one person want to paint the Sistine Chapel, that is beauty. The smooth folds folding seamlessly into each other made up separate and distinct parts of the brain and instinctively I rattled them off in my head as I examined the brain in the jar: the cerebral cortex, responsible for how we are feeling, our emotions. Those that make someone laugh or weep, smile or scream, right there.
The parietal lobe, which is how we use all of our senses at once to make decisions, the back of the head responsible for sight, the very sense I was using to examine the brain I was so enthralled by. Without it, I wouldn’t be able to drive a car, see the deep brown of my son’s eyes, the bright red of the fall leaves outside of the classroom. One by one, I observed all of these structures on that brain, carefully preserved in formalin in a jar labeled ABBY NORMAL.
How could something that looked like a Nerf ball be so mystifying and so shockingly resplendent in it’s simplicity at the same time? Something that made each of us who we are should have looked unique, special, like a jewel and somehow, the more brains I saw, the more I realized that they all looked pretty much the same.
Maybe it’s what we do with those hunks of white matter that contains the beauty, because with the exception of the cerebellum (which is surprisingly beautiful), it’s a highly understated organ, especially when compared to something flashy like the kidneys.
When my daughter was born with part of her brain hanging jauntily out of the back of her head, the doctors pretty much shrugged their shoulders when we asked what that meant about her future. While she showed no signs of neurological damage, she could be profoundly normal or profoundly retarded, it simply wasn’t something that could be determined by a blood test or an MRI.
Up until she was a year old, Amelia was followed by Early Intervention, who came every couple of months, tested her, declared her normal and left. When she turned a year, I figured it was probably time to let them close the case on her for now and promise to make a call back if something changed. I know the drill with special needs kids well enough, and her medical diagnosis is an immediate qualifier for assistance.
It’s taken me until now to realize that there is actually something wrong with her beautiful brain.
Amelia has no words.
She has no words.
No glorious words, the very thing that I make my (pathetic) living from, she has none. I’ve always derived so much happiness in putting together combination of words to titillate, horrify, or move people, and she has not one word.
She’s had words before, they’ve slipped out of her mouth for a couple of days until it appears that she forgets them and goes back to shrieking and grunting to get her point across. In many ways, this terrifies me more than seeing my mute autistic son did, because it seems as though she has words, then loses them again.
It’s time to call the specialists back in and help my daughter find her words.
For good, this time.
I have a lot of delicious combinations to teach her.
by Band Back Together | Sep 18, 2010 | Abuse, Addiction, Adult Children of Addicts, Blended Families, Bone Cancer, Child Abuse, Emotional Abuse, Homelessness, Hospice, How To Cope With Post-Traumatic Stress Disorder, How To Help A Loved One Who Self-Injures, Post-Traumatic Stress Disorder, Psychological Manipulation, Self Injury, Self-Destructive Behavior, Suicide |
every time i try to start a post for this new community, i erase it and start over. i literally do not know where to begin.
i am an addict. i am a cutter. i am clinically depressed. i have ptsd. i have anxiety disorders. i am the child of an alcoholic. i was physically and emotionally abused. i couldn’t stop my friend from being raped. i went to my first funeral at the age of 5. my parents are divorced. i have had 16 suicide attempts. i have a younger brother and he is my best friend. i have an awesome husband, and he is my other best friend. i have sold drugs. i have had sex for payment. i was on welfare. i have had sex in a church parking lot. i have done cocaine off the back of a public toilet. i have cheated, lied, stolen, broken, taken, left a path of destruction around me.
but i am here. i don’t know what to make of that most days. am i a survivor? a survivor of what? of life?
life should be lived, not survived. you survive a disease. you survive in battle. you survive an accident. you don’t ‘survive’ life.
i guess this is as good of a place as any to start: i’m fucking crazy. batshit crazy. yes, you read that right. i own my craziness. but i don’t know what to do about it. i take my pills, i blog (which is my new free therapy), i exercise, i try to be a productive adult. and i fool most people. the pills help, they do. but it’s like lying under the surface, there’s always this blackness waiting to grab me and pull me under again.
i’m always treading water: surviving.
i don’t know why i’m crazy. i know that outside factors have not always helped. my dad was a highly functioning, non-abusive alcoholic. we left when i was 6. i got a new step mom when i was 7. and my mom found a new boyfriend when i was 9. we moved in with him when i was 10.
that first summer, he was home sometimes during the day. mom was at work, brother was at daycamp or some shit. i don’t remember why it happened, but i do remember the first time he hit me. it was kind of like a spanking. i was a bit old for that at ten, and had something to say about it. he told me that my mother had said he could discipline us, and she knew that he was hitting me.
so i didn’t say anything.
when i was 11, he flung a heavy piece of thick plexiglass at me while i was sitting on the stairs. i jumped down, and the plexiglass broke the banister. he would call me names – tell me i was fat, i was a whore, i was stupid, i was ugly. he would hit me. my mother finally noticed something was wrong, that i was acting out. she did the right thing and called a child psychologist.
i went to the psychologist three times. back then, i didn’t know what she told my mom or why i stopped going. now i know: she told my mom that i was a pathological liar. i was not being hit or abused by my stepfather – i was making it all up for attention. my mother was told to continue disciplining me, but not to give me that attention that i supposed was acting out for. i had no idea.
then he started getting me high. he first offered me pot when i was 12. he supplied me until i was 18. i was high for six years. and it didn’t help.
he was a functioning alcoholic. he almost never seemed drunk, and i didn’t even always register it. we’d smoke a joint in the basement, then each grab a beer while he cooked dinner. we’d be friends for that time. but it never lasted. i stopped respecting him because of the way he treated me. so i started mouthing off to him. he threw a pot of cooked rice at me at the dinner table one night. my mom saw it, but what she saw was me goading him into doing it. in reality, i just didn’t care anymore. i ran away about once a week. he would follow me outside to the gate, tell me he loved me like i was his own daughter, please come back inside.
i would.
one time, i walked out to clear my head after a confrontation. i must have been 14 or 15. when i came back in, he said, ‘i thought you were running away’. i told him i just went for a walk, but i’d leave if he wanted me to. he got mouthy with me, i got mouthy with him, and he threw a butcher knife at me. in front of my mother. i left then, and stayed at a friend’s that night. i called home five times, hanging up every time he answered. finally, my mom picked up and i told her where i was.
his defense to my mom was that if he wanted to hit me with the knife, he wouldn’t have missed.
one time, i told him i’d call the cops on him. he got in my face, and told me he’d already been in jail, it didn’t scare him. they’d never believe me anyway – i was crazy. i told him if he ever touched my mother or my brother, i would kill him or die trying.
he never did lay a hand on them. only me.
one night at dinner, he shoved our wrought iron table into my ribs multiple times, bruising two of them. we just kept eating. he told me he wanted to get some mushrooms (not the cooking kind). i could get them, but my source wanted my stepdad to roll blunts for him. he agreed, and my source gave me cigars to be rolled. my step dad showed them to my mom, said he’d found them in my room (he had – in my underwear drawer. he routinely went through my things) and that i needed to be punished. he made me eat the cigar. and when i wasn’t eating it fast enough, he lit it and exhaled the smoke into a plastic bag. he then made me hold the bag over my nose and mouth for what seemed like three or four minutes.
i spent the night vomiting in my room. i never got him the ‘shrooms.
i tried to put the iced tea back in the fridge one night. he got within arms length of me. by this time, i was 16 and had a panic attack when he got that close to me. i started yelling at him to get away from me. he trapped me behind the fridge door and shouted at me. i started screaming obscenities at him. he hocked a loogie in my eye. when i ran screaming to the bathroom to take out my contacts, he followed me and threw me across the bathroom. i bruised my lower and mid back on the side of the tub when i fell in.
he threw me out when i stole $1000 from him. i thought it was his, but it was actually the rent money for our house. he took everything i owned – all my artwork, paintings, sculptures, and threw them out. he got rid of my bed. he dumped all my clothes into plastic garbage bags, and emptied an ash tray into each bag. i ended up with two laundry baskets full of clothing, my senior year english notebook, two sketchbooks, and some cd’s. i lived in my car for a few weeks, sleeping over friend’s houses when i could – but most were away at college. my boyfriend’s mom took pity on me, and let me move in. until his grandma found out a few weeks later why i was thrown out of my home – then she threw me out too.
i was 17 and going to be put in a girl’s home. when they called my mom to tell her, HE insisted that i could not go to a place like that and let me come home. my room had my old dresser and desk, a lamp, and my bookcase in it. my boyfriend took a mattress off a cot his family had so i didn’t have to sleep on the hard floor in my own home. i lived like this from october 1997 until august 1998.
i’m focusing on my step dad here, so there are lots of things missing – me doing drugs, me stealing, me raising a bit of hell. but i’ve never laid this all out before. i’ve never actually gone through it all like this.
i was kicked out again in 1998. i lived out of my car for weeks this time. i slept on the road near my boyfriend’s house. i’d call friends to sleep over and shower at their house. i wasn’t allowed in his home at all – not even to pee. his grandmother wouldn’t allow it. we’d drive to a local taco bell so i could use the bathroom. every night, his mom would send him out with two dinner plates, and we’d eat dinner in my car. i finally went on welfare for housing in september 1998 and was in the system until june 1999. i was hospitalized for a suicide attempt. the only person who came to visit me in the hospital was my boyfriend. i didn’t see my stepdad much during this time.
in 1999, i moved within a few miles of my mom’s new home. i was invited over occasionally for dinner or something like that. i’d pick up my brother to hang out with me and my boyfriend. little by little, i was allowed in the house more. i would come over to do laundry. my step father would make passes at me, comments about us being alone together. i made sure that wouldn’t happen.
i was telling my mom one day that it had been so long since i cut, i was feeling better. we were having a dialogue, and that hadn’t happened in so long. my step dad put a knife on the table in front of me, and walked away. he’d come up behind me when i was in the family room alone, using the computer, and put his hands on my shoulders and whisper nasty things in my ear. we’d go to a family dinner for thanksgiving at my aunt’s house, and he’d hand me $100. it was a confusing relationship.
after the last time i was kicked out of my house, he never struck me again. but he was as emotionally and verbally abusive as he could be. my mother never really saw it again when i was an adult, but he was inappropriate with me up until he was diagnosed with bone cancer in june of 2003. he died december 28, 2003. i was at the house helping my mom that day. things did not look good, our hospice nurse was concerned. i usually did not go into their bedroom, ever. i hadn’t since i was 10. i went up to say good bye to him before i left. when i poked my head in the door, he waved me to the bed. i walked in, and he reached his hand out to me. i held it for a moment, and he said, ‘good bye’.
i said ‘good bye’. i drove home. he died about five hours later. my boyfriend – the same one all this time – drove me over there at 2am. (i ended up marrying him.) for my mom and my brother, it was a release – he’d been so sick. it was sad, but it was good. it was over.
i was the one who broke down.
i will never know why he chose me.
by Band Back Together | Sep 15, 2010 | A Letter To My Younger Self, Grief, Help For Grief And Grieving, Livng Through A Miscarriage, Loss, Miscarriage, Pregnancy |
Hindsight is 20/20 – that is what they say right? Do you ever wish you could go back in time – back to the future style – and share some words of wisdom to yourself? At times I find myself wishing I had that super power – or technology caught up because I could have some interesting/heartbreaking conversations with myself:
A Letter My Younger Self About: Miscarriage:
Dear Devan,
I think that you should sit down because what I have to tell you is not going to be easy to hear. It will seem near impossible but I am so sorry to tell you it is true. In 5 short years, you will experience one of the hardest journeys you will have been on in your 28 years of life and experience: 10 heartbreaking & painful miscarriages. Yes, 10.
You will bounce from worrying about ever getting pregnant because of your previous surgeries for ovarian cysts to worrying about never carrying a pregnancy to term. However, after your first 3 miscarriages you will become obsessed with basal body temping and you will be diagnosed with a short luteal phase and progesterone deficiency. Although this is part of the answer after you have your healthy boy and start trying to conceive again, you will be punched in the heart with 2 more miscarriages.
You will be strong and try to pretend this is not affecting you as much as it really is. You will not share your feelings with anyone, not your husband, your family, or friends. You will battle through it and you will be blessed with your second full-term child – a beautiful girl.
I wish I could tell you this was the end of your heartache. You will, in fact, endure 4 more and then you will become pregnant again and you will pass your 8th week and think you will be welcoming your third child in a handful of months. A phone call that literally brings you to your knees will have you broken in ways you could not imagine. Your amazing husband will be there to catch you. He will guide you through the surgery and he will be your rock. Triton will be with you forever and you will think about him a lot. After some new medical plans and medication you will welcome your third healthy child and she will bring you back from some of that darkness and sadness.
I wish I could tell you that all this wouldn’t happen. I wish I could stop it from happening. The reality is this experience, this wordless journey will define so much of who you are – not negatively. Good things will come from it – you will see just how strong your marriage is and just how incredible your husband is to help hold you up when you thought you were sinking. Your children will bring so much joy to your life because you know how much you fought and ached for them.
You will realize how strong you are and that this – motherhood – was without a doubt what you were put on this earth to do.