On April 23, 2010 at 4:10 pm, I learned that my Daddy had a brain tumor. He had been having some trouble with the right side of his body and that had led him to the doctor. Many tests later, the doctors discovered the tumor. At that time we were very optimistic that the tumor was benign and that it could be removed surgically. The next week, on Wednesday, April 28, 2010 he went into surgery.
And our whole world changed.
After his brain surgery there were words thrown around like “oncologist,” “chemotherapy” and “radiation.” Phase III-IV Glioblastoma. Ugly words. He was in the ICU for a few days but after he weaned off the vent from surgery he was ready to “Get ‘R Done.”
And get ‘r done he did. He moved from the ICU, to the Neuro Acute floor to the rehab floor. He was told by his physical and occupational therapists that he was the hardest worker they had ever seen. Medically, he shouldn’t have gained his ability to walk and use his right arm again after his surgery. We were told with a glioblastoma tumor that the longest he had was 5 years.
Everyone grabbed on to the *5 years* part. 5 years? That’s plenty of time to get bucket list things done. Plenty of time to play with the grandkids, time to finish up projects and plenty of time to say goodbye.
Little did we know how fast things would go.
July 4, 2010 – my Mama called me and told me to “get to the hospital.”
“Are you for real? Like this is a for-real get to the hospital thing?” I asked.
“Yes,” she replied.
He had been admitted a week before with odd swelling in his head. Staph infection. Brain surgery on June 29th AND June 30th. TWO DAYS IN A ROW. Of brain surgery. On July 2nd they talked about him going home and how his infusion antibiotics would work. On July 4th he was no longer going home but Home with a capital H. Wait…what?
His heart rate was high and his blood pressure was very very low. His kidneys were no longer functioning.
And then? We waited. And we prayed. We prayed for no more pain. But no more pain? Meant no more Daddy.
He held on until the early morning hours of July 13th. I received a phone call at 1:45 am and was at the hospital by 1:55. My sister looked at me simply and said, “he’s gone.”
He’s GONE. My rock. My strong Daddy. Gone.
It’s been not even three months since that day. Most days I would say I’m okay. Some days I’m simply not. The physical pain of grief sneaks up on me and overtakes my body. The anti-depressants and anti-anxiety meds don’t seem to work at all.
I miss him terribly. I have no motivation. I rearranged my bedroom yesterday and had to sit down and sob. I’m 32-years old with a daughter of my own and a house. But moving furniture in a house that my Daddy was so entrenched in crushes me. He is NOT HERE. He is not going to complete my “Daddy Do” list. He will not see my little girl grow up. He will not see *me* grow up.
You see…my wonderful Mama and Daddy saved me from a bad marriage. They let us live with them for four years. I got to live with my parents as an adult – I got to know them as my friends. My Daddy was my rock through my divorce, through losing my job in early 2010 AND through his illness. He was our family rock when my nephew was diagnosed with leukemia at the age of 7. He gave me advice on everything from what to wear to an interview to how to paint my kitchen. And now? He’s just gone.
The first day of this deployment. Familiar in a sort of comforting way, but also strange and surreal.
You see, this deployment is my husband’s choice. It is a civilian deployment for his everyday job- an electrical engineer at a company that makes military radios. He is installing them in vehicles in Afghanistan. He didn’t have to go.
He chose to go so that we have a chance to get ahead financially. A choice that he felt he couldn’t say no to. I feel awful that soldiers who are putting their lives in more danger are making so much less money. It just doesn’t seem right. My husband says, “hey I served, I don’t feel bad that I am taking this opportunity.” But still somehow it bothers me.
He is not responsible for the lives of 100 people this time, only his own. Later in the day I realized that I feel like this is cheating. Last time I felt guilty that he spent most of his time on base and rarely had to go outside the line. When meeting other wives, whose husbands were in further outposts and doing more dangerous jobs, I never told them how lucky I felt that most of the time, I was pretty sure my husband was sitting at a desk, a desk in Afghanistan, but still a desk and not kicking down doors or looking for IED’s.
If I felt guilty last time when he was serving as a soldier, its no wonder I feel so strongly like we are cheating now. I will be surprised if I don’t get into some sort of fight with my mother-in-law this year. She loves to get on her podium and proclaim to the world how hard she has it because her son is gone. Sorry, not my style. even more so this time. She was just posting some crap on Facebook (a picture of my kid wearing an Army hat) and commenting that my husband was leaving Sunday; to remember the sacrifices soldiers make.
Sorry lady (and I use that term loosely), I don’t even know where to start. I’m not usually a freak about letting people know he is out of town, but I haven’t put it all over Facebook yet. Its really my business to share that my husband is leaving for a year. Thanks for putting that out there. If they are our friends/family that matter, they already know. After reading that, I sent her a brochure about Operational Security (OPSEC) and the things that are appropriate to post online. I think she was pissed, but I don’t care.
And that reminder about the sacrifices that soldiers make?
Again, he is not going as a soldier.
I feel it is disrespectful to those service members over there to put them in the same sentence.
Last time I had ways to show I was proud of him – blue star flag, wearing his unit pin, etc. this time I feel as if I have none of that. Luckily, I have my battle buddies, the wives who banded together with me the last time when our husbands were all deployed. But still, it’s weird because people realize that he must be getting paid a lot. It makes me feel greedy and ungrateful for all that we do have. It makes me feel guilty that I am excited we will be able to pay off the house.
I have been trying to hold it together for a few months now. When I do this, I give the impression to people that I am a cold-hearted bitch. Because I usually am very practical and pragmatic about deployments. What good does crying all the time do? Do they just expect me to fall apart because he is leaving or gone?
The first time, I said to myself and them “Someone has to go. When some guys have to go 3-4 times, who am I to think my husband deserves not to go at all?” and we were both okay with that deployment.
We were tired of waiting for the Army to pick a time to send him. And at least he was going with his own unit. This time, we are both okay with the sacrifice because we are hoping to pay off the house. Both times, it feels like people didn’t understand how we could be okay with this. Sure, we will miss each other, sure it will be hard. (I think it is hardest on the kids) but I am proud to be an independent wife and I want to teach my girls self reliance too. We never have been the type of couple that has to go everywhere together.
Since the Army has been a part of our relationship since I met him, we are pretty used to the short-term separations. Cell phones and email has made it easier. When I first met him, he didn’t have a cell phone and had to wait in line to use a pay phone. So I got pretty used to not hearing from him. Also, as an only child, sometimes I relish my time that I get to myself. My new job is great for that as it allows me to help other military families, yet get some alone time in the car traveling.
i don’t usually get upset about deployment in public, and I don’t usually get upset about it at home, because you see, with two kids, two dogs and a house to take care of, I have more things to do than wallow in self pity. So usually the magnitude of it all doesn’t really hit me until the night before he leaves.
Yesterday, I had to drive him to the airport in the late afternoon and it was my day that I allowed myself to be sad. I let the girls have cookies for dinner, eat in the living room and watch a movie while I laid in bed and watched my own TV shows.
This morning I had to move past that and get my daughter on the bus. Somehow I was reminded of the song “This Too Shall Pass” by Ok Go. I couldn’t stop listening to it today.
We have been trying to have a baby for years to no avail. I will spare you the details, but I was approached by a potential birth mother who is a friend. She is pregnant, doesn’t want the baby, was going to have an abortion and decided she didn’t know if she could go through with it. She asked if we might be interested in private adoption. YES, oh YES, it would be a dream come true.
I did it. I got my hopes up against all logic and warning from everyone.
I was the first girl in my family. Six older brothers, one younger sister from my mother’s second marriage.
The man who became my stepfather was an alcoholic. He was abusive. He would beat everyone except my sister. After all “she was his” but we weren’t angry about her being spared. We were thankful. She was safe.
He would think of ways to inflict more pain during our beatings. He would gloat about his “latest idea”. He was so excited when he created a board for our beatings that had circles and lightning bolts cut out of it. Thrilled when he saw that his plan worked. The cut-outs left circular and lightning bolt blisters on us where he had hit us with it. Our butts, our legs, our back. Wherever his newest invention connected with our flesh.
We couldn’t control our stepfather. We couldn’t control his drinking. We couldn’t control his beatings. And by God, you had better cry when he beat you. One of my brothers tried to control the only thing he could. He decided not to give him the satisfaction of seeing the pain he was causing. When he didn’t cry, he was beaten harder. Then harder still. Then harder, until the rest of us were screaming that he was going to kill my brother. He finally gave up in disgust and went to the bar. My brother was home from school for a long time after that beating.
There were days that he felt “fatherly.” He would take me, at three or four years old, to the bar with him to show off his “little girl.” There I would sit, hours on end, surrounded all the other drunks who weren’t home with their families. Even at that age, I knew this wasn’t the right place for me. I didn’t like the way the men looked at me. Asked me to sit on their laps.
I was scared.
When I was seven, my stepfather upped the ante and found a way to scar my soul. He began sexually abusing me. He didn’t start out with other things to gain my trust, or tell me how special I was, or try to make me believe this was because he loved me, like so many other abusers do. No, he did what he wanted with no preamble. He took what he wanted violently. HE was angry with ME afterward. HE was disgusted by ME afterward. He had found a much more efficient way to destroy me than a beating.
This abuse went on for years. I started walking to a little country church every Sunday. It began as a way to get out of the house. It became my only source of hope.
He tortured my brothers and I. He waved guns in his drunken stupors. He humiliated us by bursting into our grade school classrooms drunk and demanding we leave with him. (This was in the 70′s. The school let him take us when he could barely stand. I would hope that wouldn’t happen to children these days.) He would be gone for days or weeks at a time. We would learn not to relax when he was gone, as soon as we did he would return. It was as if he knew we were suddenly feeling safer in our home and he couldn’t have that.
When I was in sixth grade, my mother divorced him. I felt guilty for the internal relief I had over him leaving our lives. After all, the Bible says to honor your mother and father. I struggled with that for such a long time. Now I know that I couldn’t be expected to honoring a man who was so unhonorable. No loving God would ever expect that.
I haven’t seen him in the 30 something years since the divorce. Thank God I haven’t seen him again.
I followed the Family Rules for a very long time. I didn’t tell anyone outside the family. I took on the shame. I took the responsibility. I took the burden. I took the pain.
But eventually I grew up. I married. I told my husband some of what happened after we had been married a little over a year. I regret that, I should have told him sooner. But I couldn’t. I wasn’t ready. Thankfully, he is a wonderful, gentle soul and understood why I didn’t tell him sooner. And he didn’t run from my pain. He didn’t run from my past. He didn’t see me as the damaged goods. He was supportive. He was awesome. We have been married 30 years now.
We had children. A boy and a girl. As my daughter grew, the childhood I tried to forget started pushing itself forward in my mind. First a whisper, then a speaking voice, and eventually screaming YOU CANNOT IGNORE ME! I was a mess. So emotional, so raw, so frightened to face it – to speak the truth.
Eventually, I had to seek counseling. I could not get through a day without the memories forcing themselves front and center, in my dreams at night, in my day with flashbacks. Horrible, painful, frightening memories.
I was blessed. I found a wonderful counselor on my first try. She guided me. She gave me a place to speak. She encouraged me when I felt overwhelmed (most of the first year). She HEARD me. She didn’t judge me. She showed me that the shame and disgust didn’t belong to me. They belonged to HIM. It took a while for me to believe her. That pain, shame and disgust had been mine for so long.
Eventually, the shame and pain was transformed into anger. No, that isn’t quite right…it turned into ANGER! Anger that frightened me with it’s intensity. But finally I was feeling the anger at what he had done to the little girl I once was. Once I found the anger it was a very good thing that I didn’t run into him (he lives in another state). I would have ripped his manhood from his body and shoved it down the throat that used to tell me it was my fault.
I went to therapy for a year and a half. I won’t sugar coat it, it was a very tough year and a half. There was a lot of hard emotional work to be done. But oh, what a gift that therapy was for me.
I KNOW it wasn’t my fault. I KNOW I didn’t deserve what he did. I KNOW it wasn’t the clothes I wore, the way I acted, the choices I made. It was HIM. He is a sick perverted person.
Therapy made me a stronger person. My hard work transformed a victim into a survivor. It helped me become a better mother, a better wife, a better human being. It helped my soul to be set free from my past.
My younger sister? The one that was “really his”? The one he spared the abuse? She grew up to feel horribly guilty for what her birth father did to us. (We are all still thankful she didn’t suffer along with us.) She couldn’t escape the pain of her guilt. She began abusing drugs as a teen. She is forty three now. She has spent the last 27 years in a deep pit of drugs and alcohol trying to escape the past. She lost custody of her son when he was five, due to her addictions. My husband and I adopted him. We couldn’t stand to let him go to strangers and lose everyone he had ever known. We couldn’t stand to lose him in our lives either. We continue to help him battle the demons his past have created. Spared her? I don’t think so.
I am no longer angry. Don’t misunderstand me, I don’t want to ever be anywhere near my stepfather. But I don’t want to harm him anymore either. Growth. Now, if I think of him, I feel pity for the twisted, dark, hurtful person he is. But I don’t feel sorry for him either. He made his choices. If what he did haunts him when he least expects it, that is his consequence. Somewhere deep inside of him he knows what he did, who he is.
I don’t want to give him one more minute of my life. A minute I spend hating him, is one more minute he owns. He took enough. He took too much. He can’t have any more.
When you say things like this, I want you to remember a face.
This is my daughter. In this picture, she’s playing soccer. With a Special Olympics team.
You see, she was born with a metabolic disorder that caused brain damage when she was only a week old. She may never read over a third grade level. She still has a speech impairment despite 12 years of therapy. She’s socially inept at times.
Yeah, she’s what some people would call “a retard.”
Only that word is complete and utter bullshit.
Hearing that word cuts both her and me worse than any knife could. There is absolutely no reason to use that word. EVER. Don’t give me the bullshit that it’s a medical term. If you do, I’m liable to scream “shut the fuck up” in your face. Well, maybe not, but I will be screaming it in my head.
If you’re going to use the word retard, you might as well use words like nig****, fag****, dyke, cunt… Oh, but you won’t use those words. Those are bad words.
But retard? Well, that’s not so bad. After all, the only people that’s only insulting the mentally impaired. And they don’t know what is going on, do they?
I have news for you though. They do know what’s going on. Mentally impaired people have feelings, hopes, and dreams just like the rest of us. If you take a few minutes and actually get to know someone who is mentally impaired, you’ll discover that.
This isn’t about being politically correct. It’s about showing some RESPECT.
The first night after my breast cancer chemo treatment was awful. Nugget sobbed hysterically in my arms, giving way to heavy sighs between her defeated attempts for true comfort until she finally fell asleep. I cried, and cried, and cried. Between the tears i apologized over and over to my sweet baby girl for being sick.
Last night was thankfully less painful. She fell asleep with my mother and only had to be quietly lulled back down once. Thank god for small miracles.
As for me, I felt pretty nauseated yesterday and today, and the meds to combat that make me tired. Today, I really started to feel exhausted. We went out for some quick errands this morning, but I’ve since spent the remainder of the day in bed.
