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The Things I Can’t Say

My mother is a hypochondriac, and so my sister and I have grown to question, by default, everything she ever says about her health.

Six years ago, I got sick with an incurable condition. My sister has always questioned the validity of my condition, even though half a dozen doctors have confirmed it. While the condition is in remission, there are side effects that linger.

I can’t talk about my health struggles around my sister. I feel as though she dismisses them or invalidates them.
I can’t discuss my anxiety or panic attacks, even as they are happening. I can’t say no to going places because of my agoraphobia because I fear her reaction. I can’t mention the pain of my chronic hives because she’ll flippantly say “just put some lotion on it,” as if that will cure it.

I love my sister, but I wish I could be open and honest with her about what is going on in my life. But our mother has poisoned that potential. Every attempt at conversation about health ends in her shutting down. I understand why she does this, but I just wish that someday it could be different. We are not our mother, and we are allowed to get sick.

A Letter I Can’t Send: Edge Of Crazy: Lesson #12

my dad was, and still is, a serious control freak. he wants everything to go his way, all the time, forever. His need to control + my rebellious streak – any display of love or affection = a seriously fucked up child.

dad,

i’d love to write this on my regular blog, but it would upset the people who know me (and we both know that i shouldn’t upset others, right?), so i’m writing it on the down-low. anyway, this is more for me than for you, because you would never admit to fucking up. mom has put up with a lot of shit to stay married to you for 44 years, but i don’t feel sorry for her because we both know she loves to play the martyr. you two are a textbook case of how not to raise a daughter, and i’ll get to mom in another blog. this one’s for you-

i know that you and mom “had” to get married. i know that you weren’t thrilled about it. i also know that you really wanted a son, but you got me instead. while i made do with the john deere tractor and matching wagon, you and i both know i really wanted the barbie corvette. so barbie and her friends went on lots of hayrides, no biggie. because i loved you.

lesson #1- be happy with whatever i get and don’t be disappointed; any affection i may receive depends on this.

we had fun when i was little. we played football with pillows in the trailer that i grew up in, you pretended to be a horse so i could ride on your back. except you always bucked me off, every time. you’d hide in the bathroom down the narrow hall and call to me and when i came to you, you’d jump out of the dark and scare me. i hated that game, and tried to refuse, but mom would insist i go every time. when mom called that dinner was ready, you’d always hold me back and say that i didn’t get to eat. even though i knew it was a game, i didn’t like it. now that i think about it, your sense of humor was somewhat sadistic. but i didn’t see it that way at the time. because i loved you.

lesson #2 – play along, even when i don’t want to.

when i was small, and did something wrong, you whipped me. you had that fucking collection of belts and always made me pick one. i took a long time choosing, hoping you would change your mind, but you never did. i always chose the red, white, and blue one, because if i had to get whipped, it should be with a pretty belt. and it wasn’t just one or two times. no, you beat my ass. and bare legs. and back. and arms.

i stole some of your coin collection to use in the gum ball machine at the trailer court. it was only a couple of wheat pennies and a dime, but you found me at the gum ball machine and my heart got stuck in my throat. you had a wire coat hanger in your right hand and it was summer and i was wearing shorts. you beat me with that wire hanger all the way to the trailer and that was a long way and i couldn’t run fast because i was only 4. and still, i loved you.

and that time you got mad ’cause mom made chili in july. i was still in a highchair, even though i was 3. i dumped my chili onto the metal tray and you swore at me for wasting food. you grabbed me by my shirt and pulled me out of the highchair. my legs got all cut up because you didn’t take the tray off first. then you threw me on the floor of the living room, and that’s how my favorite top got ripped. then you grabbed a belt from your collection and started beating me and you wouldn’t stop. mom finally pulled you away and threw you out. she let you come back, though. because she needed you more than she loved me. i asked mom to fix my top, but she threw it away instead.

lesson #3 – i am bad, and being hurt by someone i love is acceptable. in fact, i should expect it. i need to learn the art of survival, nobody else is going to protect me.

you have never told me you loved me. never. not once. you have never told me you are proud of me. not ever. not when i graduated from college, or grad school, or got straight a’s, or stuck with my crappy marriage for so long, or left said crappy marriage when it was time. i craved your approval like an addict craves that next hit off the pipe, knowing it will never be enough. and i chased after your approval the way a child chases their shadow, knowing that they will never catch it but always hoping against hope that this time might be different. and i never hated you for it. instead, i hated myself for not being enough.

lesson #4 – it’s not you. it’s me. and it will always be me, even when it’s you.

you had a girlfriend on the side, beginning when i was 5, and ending around the time i went away to college. i know this because i rode the bus with her son in high school. he told me all about how you’d come over on christmas day when he was little. i always wondered why you left after we’d opened presents. you were going to your other family. the one with two boys.

remember that time when i was a senior in high school and my friend viki and i saw your truck at your girlfriend’s house? i rang the doorbell and asked your girlfriend if you were there and i told her who i was. after viki and i drove away, we hid in a driveway and watched you speed past us in your truck, racing towards home. and we laughed because we knew you couldn’t touch me. not unless you wanted to tell mom what you were so pissed about.

mom still doesn’t know about that time i called your girlfriend at work and called her a whore and a bitch and demanded that army picture of you back. the one that mom kept asking about and you kept telling her that you’d left it in your locker at work. only it wasn’t in your locker, was it? it was on your girlfriend’s tv, because her son told me. you brought the picture home that night. that’s when you stopped looking me in the eye and started hating me. because you’d been caught by your daughter. and i began to hate you right back.

and when you suddenly decided not to pay for grad school, i became a stripper to pay for it myself. because i had learned the art of survival.

lesson #5 – i have nothing to lose and it feels good to be a bitch.

you stopped hugging me when i turned 10, and i’m pretty sure it had something to do with my going through puberty. especially when you went on a trip and brought me back that cleveland browns sweatshirt, threw it in my general direction while averting your eyes and said, “here, this will cover up your bumps.” nice way to encourage a young girl to have pride in her body. so i started covering up my bumps, all the time. when i was in my late 20’s, i got rid of my bumps altogether by developing anorexia. then i had to cover up my bones. i began to loathe myself.

lesson #6 – my body is sexual, and sexuality is bad.

the only birthday of mine that you ever came to was when i turned 5. i still remember it because that’s the birthday i got my first barbie. you took her away and wouldn’t give her back. you thought that was funny and i played along so you would stay. to this day, i occasionally find myself playing along, for fear of being abandoned or pissing someone off. when i was 17, you never came to my high school graduation. i know this because when i got home after the ceremony, the ticket i’d left for you on the kitchen table was still there. you were still pissed about me finding you at your girlfriend’s two months prior, and calling her at her job. because i’d stopped playing along.

lesson #7 – when i stop playing along, you will hate me.

in high school, you started to have me followed, instead of sitting me down and asking me about what was going on in my life, you got kids from the trailer court to tell you shit about me, a full $5 for each bit of information. that’s how you found out i smoked, drank, got high, and had a black best friend. you even sent two guys on my fucking spring break trip to daytona beach. i know this because on the last night, we all got drunk together and they told me. then they proceeded to tell me your name, my full name, where i lived and what you wanted to know. i wasn’t even safe from you 1,000 miles away.

can i just tell you how fucked up that is? that is seriously fucked up. i was the most paranoid teenager i knew, even without the pot.

you made me stop being friends with kim, you beat my ass when you found out i smoked and you grounded me for three months for drinking. fuck you. i started getting high with my dealer’s 16-year-old wife before school, i went through the bottle of vodka you had hidden in your cupboard, filling it with water instead. that’s right dad, the more you tightened the screws, the more i fucked up. i went to school drunk every day, or high, or both. i hid beers in my bedroom and drank them when you were asleep. i smoked in the bathroom after you and mom left for work. i feared getting caught, but the rush was incredible.

lesson #8 – my father is out to get me, and he will always find me.

you wouldn’t let me date the same guy twice, because you didn’t want me to get pregnant, the way mom did. you wanted me to get an education and be someone. or something. not for my sake, but so that you could say you had a college-educated child. and i was so terrified of getting pregnant that i didn’t had sex until i was 19. and then i slept with every guy i wanted to when i went away to college. because i could, and you had never taught me to respect my body. you had only taught me to get away with whatever i could. i never enjoyed the sex, but being sneaky felt awesome.

lesson #9 – sex is about power and revenge.

when i was in my final year of grad school, i met my future husband, only i didn’t know it at the time. i was smart and i knew about birth control. but when you should have taught me confidence, i learned fear. where self-esteem should have been, there was an empty well, waiting to be filled by someone else’s ideas and beliefs. fear of abandonment took the place of knowing my own worth. standing my ground was replaced by an aching need to please, at any cost. so when my future husband said “no rubbers, please” i said “ok”. because i needed to be loved, and i was afraid of losing him.

lesson #10 – do whatever i have to do make other people happy. my thoughts and feelings don’t count and should be kept to myself. they will only make others stop loving me.

and then i got pregnant. your biggest fear. and because you were my biggest fear, and because i didn’t believe in myself, and because my boyfriend didn’t want a baby and because i didn’t want to be abandoned, i had an abortion. then the self-hatred really kicked in.

lesson #11 – all decisions should be based on fear.

it has taken me 20+ years to undo what you did to me. everyday i untangle a bit more of the knot, trying to smooth out the yarn. it’s still good yarn, and everyday i knit myself.

lesson #12 – you made me stronger, smarter, tougher and braver. so fuck you.

Getting Lost is Easy, But How Do You Get Back?

I spent the last many years married to a woman with fairly severe (clinically diagnosed) Borderline Personality Disorder. I could very easily fill an entire book writing about what that experience was like, so it’s hard to know how to distill it. Here are some things I know-
-Years of being subjected to masterfully performed gaslighting has left me very unsure of all my own judgements and perceptions of reality.
-Years of being degraded and emasculated when I wanted to discuss my thoughts/feelings, being told that it is unattractive for a man to show “weakness” to his wife, has left me uncertain of when it’s ok to be vulnerable with other people.
-Years of walking on eggshells, trying so hard to do and say everything just right, but knowing that no matter how well I did, the next blow-up/emotional attack was always coming, has left me perpetually anxious, and steeped so heavily in learned helplessness that I often struggle to even feel that I have any control over what happens in my life. I never used to be that way at all.
-Years of having all my contributions and accomplishments minimized or forgotten, and all my imperfections magnified and carefully score-carded, has left me with close to zero sense of self-efficacy.
-Years of living with someone who is intimacy avoidant and uninterested in sex, but being told the whole time that her disinterest is caused by my shortcomings–because I didn’t last long enough in bed, or because I lasted too long in bed (yes, both of those), or because of the stress I was causing her by me not making us enough money (even when I was bringing in over six figures a year), or because I was paying too much attention to (suffocating) her, or because I was not paying enough attention to (neglecting) her– has left my self confidence so damaged that I almost fear being intimate with someone again.
Probably the worst part, though? During the early “idealization” phase of the relationship, she was incredibly jealous and protective of my attention (which at the time I foolishly believed was just because she loved me so much).  So, focusing all of my time and attention on her needs, I greatly distanced myself from any male friends I was close to, and completely cut off contact with all of my female friends. Once she flipped me into the devaluation phase, I was left with a partner who had zero interest in me, other than what I could fix or provide for her, and only weak remnants of friendships remained. I was effectively isolated to the point that I spent most of my free time just sitting alone in my basement, wishing things were different.
Isolation is definitely one of my biggest hurdles right now. I’d really like to make some new friends, particularly some female friends since I lost all but one or two, but no clue where to even start. I just really miss having more meaningful conversations and connections with people.
Another hurdle is figuring out how to integrate “what I know to be true” with “what I feel to be true.” For example, I can write down a list of all of my business/financial accomplishments, and objectively say I’ve been successful in that area. I know this to be true. But I do not feel that this is true. I can find endless examples of things I’ve done or experiences I’ve had that show most of the negative feelings I mentioned above are illogical or don’t line up with reality. But again, I still don’t feel that.
I would love any thoughts or advice from anyone who has gone through something similar. What worked? What DIDN’T work? How did you reconnect with yourself? How did you reconnect with other people and build some new meaningful friendships/relationships?

Left Fielder Not Taking it So Well…

So, let’s talk about my youngest.  He is one of the sweetest most loving caring kids you will ever meet.  He has autism, ADHD, anxiety, depression, asthma, and EDS. EDS Elhers Danlos Syndrome.  It’s a connective tissue disorder.  It sucks.  I have it also and right now we are both having major pain flares.

Readers Digest version: last Wednesday, I think it was, my husband and I and our youngest went to our foot doctor because my feet are horrible, my husband’s are from the army and back in December, my son fell and sprained his ankle, and we thought he was ok but he was still limping.  With EDS, you do not walk it off, and I have two surgeries on my feet to prove that.

So, the doctor gets x-rays, and comes and gets my husband and me to come look at them.  She points at a spot on his ankle and says, “I don’t know what that is, I don’t like it.  I want an MRI immediately!”

Ok, so I’m freaking out inside.  She puts my son in a walking boot and he’s fine; he’s none the wiser. He walks with a cane daily because his knees are really bad.

So, we learn it could be dead bone, dead connective tissue, the C word, malformed bone or connective tissue and I forget what else.  He will probably need surgery.  I’m not handling this well at all.  He’s my baby and I know he hurts because I gave him the blasted syndrome.

The “immediately” is not happening because apparently it’s a special kind and even though my son has 3 insurances, they have to sign off first. I’m just beside myself.  My anxiety is not happy.  Thank god for happy pills. Any suggestions on how not to obsess?

I Give Up

This shell of mine is cracking.
I try to hide it under duct tape
But that’s no longer working.
I can’t take another setback,
Another failure,
Another rejection.

I think I have suffered enough.
I deserve to be happy
To be loved
To be surrounded by people who cheer me on
Not tear me down.

Yet life does not agree with me.
It says that I don’t matter
Unless someone needs something:
A Worker
A detective/private investigator
A babysitter
A human punching bag.

Life says that I am not good enough.
That I will never be anything more than what I am.
That I am beating my head into a brick wall.
That I should wake up and see that the shitty life I live–
Is all I’m worth.

Life says that my lot in life is to be alone
To watch others have all the fun, joy peace, happiness.
To hide away from the world–ignored and unaccepted.

Sadly, I’ve grown tired of fighting life.
My head is pretty battered from the beating it has taken.
I have chosen to give up,
To silently and quickly murder my dreams
And play alone with the dark shadows of my mind.

How My PTSD Works

No one person is exactly the same as another. Mental illness affects everyone differently.

This is my experience with Post Traumatic Stress Disorder.

PTSD is defined as a condition that occurs in some people who have suffered through traumatic experiences. These feelings of anxiety, discomfort, and being scared can happen to people in their normal everyday lives, and those who have PTSD learn that these symptoms doesn’t go away. We suffer from many different symptoms on a regular basis.

Medical professionals feel PSTD is when someone has these lingering feelings for “at least a month or so.”

I can’t remember a time in my life that was “before PTSD”.

I was diagnosed with Post Traumatic Stress Disorder when I was in my early 20’s. At the time, I didn’t really think too much of it, and I didn’t research it. I was diagnosed with some other issues at the same time and I thought they were the important things I should be dealing with. Looking back on my life, I realize how much PTSD has affected me when I had no idea what it was. Clearly the PTSD is what I should have been dealing with this whole time, as the others are all by-products.

One thing I’d like to touch on is that people without PTSD tend to think that the 30+ year old trauma is what is haunting me today – however I do not normally have flashbacks or nightmares of the very old traumatic experience. It’s like my brain got programmed when I had the first trauma to overreact to all trauma so now, many years later I experience a major reaction to trauma. What may seem small to a non-PTSD sufferer, can be major to the brain of someone with PTSD  Your brain tells your entire body to react to this huge event.

Some of my friends could (and probably do) describe me as being a negative person. I’d describe myself as realistic; I try to see all sides of a situation, good and bad. When friends are being very optimistic and point out good things in a situation, I will point out everything – all sides. Pointing out the bad things is why I often get told I’m pessimistic. I try not to, but I live with a constant feeling of fear, worry, and anxiety so it can be difficult for me to feel like things are going my way and everything will be fine. While I try not to spill it, sometimes it still slips out.

Persistent instability to experience positive emotions is described as a symptom of PTSD.

I don’t watch horror movies, and yes I’ve been mocked because I was a “wuss” or a “baby.”  Honestly, I just brush it off, because they don’t know what it’s like to wake up in the middle of the night to a flashback. It’s not a dream, it’s not a nightmare, it’s everything you’re afraid of. There are always things in the back of your mind percolating.

Dark closets and corners hiding things that you forgot about or didn’t see as a problem. Today is day when it becomes a problem, and you’re going to remember it in the most traumatic way (even if it didn’t happen that way). It’s going to scare the living shit out of you, and linger with you like a cloud following you around ready to suck you up at any moment.

Every time your mind starts to wander for the following days or weeks, it will go back there and BOOM.

Sweating, anxiety, heart is racing, your body is shaking. You calm yourself down and after a while you feel back to normal again. Just when you think it might have gone away and left you alone, you walk around the corner and see something, hear something or smell something that reminds you of it and BOOM.

Back into high adrenaline mode. You take some time to calm yourself down. You go back to work, or whatever you were doing. You go on with your day. You’re cleaning up dinner, the kids are in bed and you think “I’m tried, it’s been a long day, I’ll head off to bed now too”. You crawl into bed and drift off to sleep. Then when your guard is down and it’s the middle of the night.

BOOM.

You wake up crying and shaking and sweating and scared. I did not know that these feelings were part of my disorder until recently. Flash backs and re-experiencing the trauma including “what if” scenarios through nightmares is a common characteristic of PTSD.

Most of my early life (pre-20) I don’t remember. I have relied on others to tell me what happened, even though I was there. I generally tell people that I have a bad memory and can’t remember much from my childhood or adolescence. I can sometimes be reminded and recall a memory, but I often can’t remember much.

I had no idea that repression and “lost memory” was my brain trying to protect me from my traumatic events.

It is very well known in my circle of friends that I’m easily startled. Most of them find it quite hilarious.

I often find myself at work and round a corner or open a door that has no window to find someone on the other side. I will jump out of my skin and usually let out a high pitched shriek which will usually get a reaction from the other person (either startle them or they laugh or both). This is a characteristic related to the hyper vigilance aspect of PTSD because I’m often on edge or on alert. It is also common for PTSD sufferers to have an exaggerated response when startled.

When something traumatic happens in my life, I can have flashbacks or re-experience the trauma, or sometimes my brain will play out “what if” scenarios. This usually occurs with the newest trauma but sometimes can go back to something that happened many years ago. If the trauma is very fresh, I can’t get to sleep.

Every time I try to close my eyes the event will replay itself and I’m in a state of panic.

This will continue all night and when I finally feel like I’ve fallen asleep I’ll have to get up and go to work, which leaves me feeling exhausted and unable to cope with getting through the day. This as PTSD-induced insomnia. 

Another characteristic of PTSD is self blame, feeling hopeless ,and may including having negative thoughts about yourself.

I’d like to let you know, if you’re reading this PTSD is not your fault. If you are feeling this way, I encourage you to seek medical attention and the support of your friends or family. If that is not an option, there are helplines and even chats you can speak with someone.

There are other things that are on the “common list of  PTSD symptoms” that I have not listed. Some I didn’t want to talk about and some I don’t normally experience.

I know that Post Traumatic Stress Disorder can affect people differently so I decided to write how it affects me.