by Band Back Together | Jul 18, 2013 | Brain Injury, Coma, Grief, Guilt, Help For Grief And Grieving, Loss |
During even the smallest moments of our lives, our actions can mean the world to someone. We must hold onto those moments with all we are.
This is their story:
We met at the bus stop.
You see, I was working at this place seven years back, and buses had to be taken to reach the institution. I was in a teaching position. She was in the library.
We got talking after bumping into each other at the same bus stop, boarding the same bus and getting off at the same stop every day. We were the same age. She was single and I was not.
Her long hair she carefully tied into a bun and soon we became friendly enough for me to intentionally pull out her hair clip and release her hair. She’d beg me to not do it; tying the hair down was “such a chore,” she’d exclaim, but I could not escape the fun of it. We’d chat all the way to the office, then chat all the way back.
She held her umbrella for me when it rained, because I hated carrying umbrellas, and she wouldn’t let me get wet. She claim to be fake-upset with me, but she always shared her umbrella.
Six months later, I changed jobs and I no longer needed the bus. I no longer stood at the stop. I no longer waited for her to arrive, so that we could catch up on our day (she lived at a hostel nearby the bus stop).
I recall catching a glimpse of her standing at the bus stop, while I was driving towards my new office one morning. The bus stop was no longer on my usual route, but I had broken my daily route that day. She was looking away; our eyes did not meet.
Then one evening, we bumped into each other while running errands. You wouldn’t have noticed that we hadn’t been seeing each other. While we were both in a hurry, the warmth was overwhelming. She invited me over to her hostel, but I refused, saying that I’d come by some other day.
Then I did not run into her at all. She crossed my mind now and again – I considered visiting her “one of these days,” but it just never happened.
Several months later, I ran into another ex-colleague. We’d worked in the same department, and rode the same bus to and from work. When the conversation veered toward M, the librarian, my ex-colleague suddenly got very serious.
M had been diagnosed with some brain-related issue and was undergoing treatment. I never got full details of what had happened. She’d had to get her long hair chopped off. She was still working but as she became progressively weaker, she eventually stopped working.
One day, she collapsed after a brain hemorrhage and never came out of it.
“Do you know what M used to say about you?” my ex-colleague asked.
“What?”
“Now I have neither the hair, nor the hair-puller.”
I cannot believe that M thought of me in her last few months.
What I put aside with procrastination and life-getting-in-my-way, has now become unachievable.
She is no longer there.
I instinctively look out for her every time I pass the bus stop.
She will never be found there. But that should not stop me for silently acknowledging the place that brought two strangers together.
Right?
by Band Back Together | Jul 8, 2013 | Adult Children of Addicts, Adult Children of Mentally Ill Parents, Alcohol Addiction, Compulsive Eating Disorders, Guilt, Sadness, Shame |
Addiction is a beast that spins yarns of lies that we often believe.
These are the struggles an addict faces:
Encased in a swishing bell jar of beer, my brain screams at me. Hungover. Again.
I am a professional. It would astonish my co-workers to know that I am holding back vomit while they talk to me, that I was awake mere hours ago, drinking, drinking, drinking.
My body is almost used to this dull feeling of the next day. I used to take a day off when I felt this shitty, but now it’s more often than not, so I am accustomed to this silver fish headache razoring my head.
Addiction is the root of my family tree, and I tell myself, I am no where near as bad as most everyone else in my family. I justify the excess even though I know this is not healthy.
Healthy should be my goal… But, I poison myself.
When it’s not alcohol, it’s food. Consumption is key for me, it seems.
My beautiful friend has been working on her dissertation for years. She explained to me once that her inner voice tells her only smart people deserve a Ph.D., so she doesn’t deserve this distinction. She is brilliant, but her mind lies to her.
I feel like I don’t deserve to be healthy. To be sober. To be thin.
If I wanted those things, wouldn’t I just achieve them? I have always achieved everything I have set my sights on.
Instead, it seems, I’m content to wallow in the murky bottle, to deny myself nutrients and instead eat processed garbage.
I have worked so hard on so many areas of my life that I feel like I just need a break. My breaks include booze and fried food. Why?
Comfort food makes me feel very uncomfortable. And yet, I choose to eat this way every day.
I want to be my best self, and yet, maybe this is it.
Maybe this is who I always will be.
by Band Back Together | Jun 24, 2011 | Anger, Breast Cancer, Cancer and Neoplasia, Caregiver, Coping With Cancer, Family, Feelings, Guilt, Stress, Trauma, Trust |
i’ve written before about my love hate relationship with the pump… well, mostly about the hate portion. its rhythmic sucking makes me sing little songs to its always irritating tempo. then they mix around with the gymboree songs already stuck in my head. then i realize how badly i really do need the prozac and ativan.
i don’t know for sure how long it’s going to last. i’m trying to be realistic about the prospect of having cancer, undergoing chemo and pumping for (hopefully only) six months. it’s kind of like starting out nursing. i tried to limit my expectations of myself. i said i’d aim for six months and then see if i could go for a year. that seemed ridiculously long to me at the time, much like pumping for six months does now. but a year came and went and well, here we are.
my husband, nugget daddy, stayed down at my parents’ last night so nugget and i have been left to fend for ourselves for the majority of the past two days, save for a playdate and lasagna drop off yesterday afternoon.
i didn’t get to pump at all yesterday. i can’t pump in front of my daughter, nugget. that would be like asking your pregnant best friend to take you to happy hour. i meant to pump last night once she went to sleep, but i fell asleep, too. my boobs had been angry ever since.
nugget likes to have her naps with me, but this limits my options for the duration of naptime as to what i can actually accomplish with twenty pounds of sleeping toddler strapped to my chest, lovely though as she feels snuggled against me. her grandmamie puts her to sleep in the stroller and i bribed her into it with chocolate chips this afternoon so i could pump, finally, and subsequently blog about it. lucky you!
i was so angry the first few times i pumped after starting chemo. it was like rubbing salt in the wounds. i couldn’t nurse nugget and i had to stand uncomfortably in the bathroom watching my milk fill up plastic bottles instead of a happy baby. and then as i would dump the ounces of heartache down the sink a new wound would appear like a gaping mouth to catch my salty tears and sting my aching soul. what a waste.
you won’t find much if you google “cancer” and “breastfeeding” except for articles about nursing after breast cancer. “chemo” and “breastfeeding” yields the same contraindication tagline over and over, and “cancer” and “breastmilk” mostly just points you to article after article about this guy who drank breastmilk to fight his prostate cancer. those, mostly sensational and local news, articles mention milk banks selling milk to cancer patients when they have excess available to sell. it costs $3 an ounce.
i’ve had plenty of time to think about that guy and those $3 ounces while making up songs to the pump’s rhythm and calculating how much i’d just poured down the drain. warning! here comes the crunchy freaky part. squee! maybe you want to stop reading, uptight next door neighbor guy or old school grandpa, maybe there’s a golf game you’d rather be watching. okay, so seriously, why the fuck would i want to keep dumping my milk down the drain when other cancer patients are paying good money to get their hands on it? i don’t know what exactly it might do for me, but it sure won’t be doing anything at the bottom of the sink that’s for sure. so i sucked it up and sucked it down.
it was sort of gross at first, though why exactly i’m not sure. i think it was the temperature. i can’t think of any beverage i regularly consume at body temperature. but now i’m used to it and pleased by thought that i might actually be doing something to help save my own life.
so, now i have a new goal. i want to pump twice a day for the whole six months, or however long it might be. i know i might get sick. i know i might have to stop if i do. but if i approach it the way i did breastfeeding, then maybe i can make it through. maybe if i tell all of you about my plan then i’ll be hell-bent on reaching my goal. maybe some mother out there trolling the interwebs for a glimmer of hope will find my blog now, instead of all the other useless crap i found.
by Band Back Together | Dec 4, 2010 | Anger, Anxiety, Baby Loss, Coping With Baby Loss, Grief, Guilt, Help For Grief And Grieving, How To Cope With Post-Traumatic Stress Disorder, Livng Through A Miscarriage, Loss, Love, Miscarriage, Post-Traumatic Stress Disorder, Sadness |
I have never spoken to anyone about this but my husband, my mother, and, of course, my doctors. This may be one of the hardest things I will ever write. It may not all make sense. I don’t remember it all. But yet I remember it like it was yesterday. I will never forget it. This is my PTSD talking. I am in a very bad place right now. And I know what happened to me isn’t as bad as some but to me it’s worse because she was mine.
Anyway, Oh God here goes…
You were due December 25th. I was so excited that both of your sisters were Christmas babies. I love Christmas. And I still do. Your due date was so amazing I couldn’t believe it – three children born on or around Christmas.
The beginning of my pregnancy didn’t seem out of the ordinary. Normal morning all day sickness for me. Around 6 weeks something felt off I called my Doctor who is AMAZING, and she got me right in for an ultrasound. There you were – perfect. And fine. Little heart beating to beat the band with a due date of Dec. 25th. I felt better. Things resumed. We got to our 12th week and we told everyone and even started buying things. Come on – you were my fourth baby. What could go wrong? How could I even think that?? Everything was fine .
Then it happened. July 27th I felt yucky and my back hurt SO bad. I should have called the doctor. You might be here today. I should have known. But I just thought I worked hard that day. It was hotter than hell. And it was just a back ache. I never ever had back labor. At 2:12 on July 28th, I woke up and thought, “shit, I wet the bed.” I hit my husband and said, “I wet the bed. Go get new sheets.” And then I went to turn the lights on. And it felt really off. It was sticky. I turned the light on and there was blood everywhere. I heard a sound like I had never heard before – it was my screams. I told my husband call the doctor and tell her we’re going to the hospital. Something was very very wrong.
My mom came running in and tried to calm me, but it didn’t help. I remember telling her keep the kids out. I didn’t want them to see the blood. And my back – OMG the pain. All the sudden I felt a pop between my legs and there was a “doll” between my legs – it didn’t seem real. I thought WTF is that about my own baby. I saw your little chest heaving up and down. You were breathing!!!!!!!
I screamed for my husband to stop calling the doctor. We had to leave NOW. She’s here. She’s ALIVE. She’s breathing.
You were 18 weeks and 5 days. You were perfect – tiny and waxy, but perfect. You breathed for 5 minutes. I held you in my hand as you took you first and last breaths. I will never forget them. I loved you so much in those 5 minutes. You were my daughter, Ariel Grace.
But the horror didn’t come until we got to the hospital. You WEREN’T a baby. You were nothing. You were – I choke on the words now. You were a miscarriage. But I saw you and I held you. You WERE breathing for 5 minutes. I have a cell video of it. But you were going to be discarded as if it was a miscarriage. I flipped out like my husband has never seen me flip out. I screamed and I wailed. I hit a doctor, I think. Not my doctor. She was AMAZING. She held me while I rocked the baby. She stroked my hair. She couldn’t change the policy.
You would never exist to the world. You would get no birth certificate and no death certificate. But to me and your father, siblings and grandparents you were EVERYTHING!
I made my uncle call his friend at a funeral home. He kind of laughed – not in a mean way but he told my uncle, “She’s not even as big as a cat. I can’t charge. I won’t. It’s a freebie.” I have her ashes. Although that was a HELL of a fight. But I think they knew I was a mad woman and I would not leave that hospital without MY baby.
I have her ashes hidden in my room. I left the hospital the next day with nothing. No baby, no belly, no nothing. I was empty and blank and a Zombie for a LONG time. Hell, I still am. I never mentioned it to anyone. Some people asked questions. I think I probably stared at them blankly. But I never answered. My husband or mother would later. I couldn’t talk about it. It’s over a year later and the pain is still unreal. I have nightmares of waking up to the blood every five minutes. I don’t know that they will ever go away. But what is the worst for me is I can’t talk about her to anyone but my husband, mother and therapists.
Am I forgetting her, am I not remembering her, am I cold? I just it hurts so bad. And no one that I personally know can understand that pain. No one I know in real life understands my anger and bitterness of her not being a baby because she was 18 weeks and 5 days and not a viable birth. Isn’t breathing for 5 minutes viable? Had we been at the hospital could we have made it farther my AMAZING doctor thinks that those 5 minutes were pretty darn special. And so do I for a baby with such under developed lungs.
Obviously now everyone knows she was never born and just went away. People have stopped asking questions. And I just can’t talk about it. I feel cold. And I miss her even more now. I don’t know that it will get better. She wasn’t a “real” living baby. But she was mine. I held her. I named her. I talked to her. And on her birthday I buy her a gift. I guess that really does make me crazy. Maybe I’ll stop someday. I don’t know. But I guess tonight on one of my darkest of nights, this needed to come out. Thank you for listening. No one else knows. And it hurt to talk about. A LOT so this was BRAVE. So thank you for reading.
by Band Back Together | Dec 3, 2010 | Abuse, Anger, Child Abuse, Coping With Domestic Abuse, Domestic Abuse, Guilt, Loneliness, Sadness |
I picked up the key – my key – to the apartment my son and I would soon call home.
I tried to figure out just what I could take. If I took too much – or the wrong things – I feared the price we’d pay.
I made the reservation for a U-Haul, knowing that I didn’t have the money to pay for it, but that it was the only option.
I learned that my son had been suspended from school, on moving day – inappropriate language. I was hoping to protect him from the process of moving but now he would have to help.
I had $74.87 in my checking account that had to cover the U-Haul, gas, food, laundry and basic needs for the two of us for six days.
I was terrified.
I grieved the life I thought we’d have. The family I so desperately wanted.
I was convinced that he would see his abuse was the problem. That he’d seek help. That he would change. That we would be the family I knew we could be.
364 days ago …
The emotional damage I allowed him to inflict on my son became vividly clear within days of the move.The realization of just how damaged I had become would materialize much later.
It hasn’t been easy. Not a single day. I’ve tried to make the impact on my son minimal, but he has often had to do without.
I’ve had to apply for financial assistance to help offset the cost for him to attend church camp and youth fall retreat, sharing very personal information with complete strangers so that they could judge if we were worthy of their money.
I’ve had to file for bankruptcy, facing the public embarrassment of admitting I could not meet my financial obligations.
I’ve had to get food from a food bank, more than once – waiting in line for hours with those people – hoping I wouldn’t see anyone I knew, but never being quite that lucky. Feeling waves of humiliation and shame each time and never telling my son.
Many days I’ve felt like a charity case – a project for someone – not quite human.
Although we remain married, I suspect he will eventually find someone else who is prettier – smarter – more concerned with the image and the things so important to him. When that day comes, I’ll be faced with the reality I’ve been avoiding – even denying. The reality that confirms I wasn’t enough for him, and will never be enough for anyone – just like he told me years ago.
364 days ago …
It was the right thing to do. It was the only thing to do. But I’m ashamed to admit I didn’t do it for myself. If it weren’t for my son I’d have never left. I still believe that I don’t deserve any better. That settling is my only option to combat a life of loneliness. But my son? My son? He deserves better.
I wish I could have done it for me.
by Band Back Together | Nov 15, 2010 | Anger, Depression, Guilt, Jealousy, Poverty, Economic Struggles and Hardship, Stress |
My friends would say that I have a great sense of humor, and I like to think that I do. I’m one of those “ease the tension with a funny line” kind of people. But lately I’m just so jealous and angry and ugly inside – I feel like even my blood and organs have rotted to black.
I am deeply blessed to have a wonderful husband and healthy child. After long bouts of unemployment, my husband and I both have jobs. That should be all I ever want. But dammit if life isn’t harder than I can take sometimes! We have piles of debt, and I hold my breath and pray when I check our bank account balance online. Last week, we were $500 in the hole until payday on Friday. We are under-employed and under-paid, and every purchase, even necessities, requires deliberation.
Yet we’re surrounded by friends who can afford things like vacations, Christmas gifts, babysitters and second children – all things we would love to have, but we can’t. Our friends have successful careers and gym memberships and freaking disposable income – things that we thought we would have too, being smart, college-educated, hard working people.
So I’m jealous. Deep, ugly-cry, Wicked Witch of the West jealous. I find out about one person’s TV appearance or another’s forthcoming baby, and my first reaction is to wince and roll my eyes. I hate myself so much for that. Nobody wants to be around that person, not even me.
I hate that when I count my blessings, I feel like I got shafted. I think I’m pissing off God, setting myself up for something awful to happen because I’m ungrateful, even though logically I know better. I’m just so tired of economic struggles. People say that money doesn’t solve all your problems, but it damn sure solves the problem of not having any f-ing money!
I feel hopeless and furious and also guilty as hell. It’s an awful cycle that I can’t figure out how to end. Is praying for a pot of gold at the end of the rainbow worse than any other idea?
