by Band Back Together | May 26, 2014 | Anger, Depression, Help With Relationships, Jealousy, Love, Romantic Relationships, Shame |
We all have letters we’d like to send, but know that we can’t. A letter to someone we no longer have a relationship with, a letter to a family member or friend who has died, a letter to reclaim our power or our voice from an abuser.
Letters where actual contact is just not possible.
Do you have a letter you can’t send?
Why not send it to The Band?
Dear Bryan,
I know that our relationship is long over. I have moved on and so have you.
I’m confused though.
The way you spoke to me those last few days, made me think that you wouldn’t find someone else. You told me that I didn’t meet your religious standards, but how does she? I would have converted for you. Hell, I would have done anything for you.
You let me go and said I wasn’t good enough, so how is she? Do I not deserve answers? I want to forget the pain that I went through for you, but your words repeat in my head on the nights that he works late. He knows some of what I went through for you, but never the words you said.
Why was I not good enough? Why was your only explanation “I didn’t plan on dating her?” Just why?
by Band Back Together | Mar 12, 2014 | Bipolar Disorder, Caregiver, Compassion, Hope, Love, Loving Someone With Bipolar Disorder, Marriage Problems, Single Parenting, Special Needs Parenting, Teen Bipolar Disorder, Therapy |
I admitted my 10 year old son to a psychiatric hospital Wednesday night.
My son is mentally ill.
For years, I have apologized to people for who my son is. His behaviors or quirks were something that were spoken about quietly, like they were something to be embarrassed of – Like WE were embarrassed of him.
For years, I have defended myself, made excuses for a multitude of things – his medications, the therapies he receives, the fight for Special Education services, the way I choose to parent and discipline him.
Today, all of this stops. My son D is who he is. My job as his mom is to provide the best care for him that I can, to the best of my knowledge. I am not a sheep – being blindly led by psychiatrists and therapists. I do my research, and I am well educated about his associated Alphabet Soup diagnoses. He HAS to have medicine to function. I don’t let the staff at his school run over me at his Individualized Education Program (IEP) meetings. I am on staff at his school, plus I know the laws regarding special education.
D got the shitty end of the deal when it came to genetics. See, I understand the raging in his mind, and the lows where all you want to do is hide from the world in a closet. I have Bipolar Disorder, Type 1. So does his birth father. I am compliant on my medications. It took me 8 years to finally get it right. There were times I almost lost everything – my family, my job, my mind. I am grateful for those who stuck with me through the good times and the really dark, ugly times.
Everyone knows at least one person who suffers from mental illness. One in FOUR people in America suffer from some sort of mental illness. Yet, there still is a stigma.
Today, for my D and me – this WILL STOP. No longer will I apologize for his behavior to strangers in public because he is on overload or having a meltdown. I will no longer listen to people tell me that my child is on too much medicine. I will not let people tell me I baby him when I choose to talk him down from a rage rather than “spank that ass.” I will keep fighting for his equal treatment at school. He has a mental illness, but he is a bright, smart boy. I will love my child for who he is, not for what others think he should be. I will not listen to negative ex-husbands telling me that I am doing it wrong, when he is only with D four days a month and only is “Dad” when he wants to be.
Today the stigma will stop. Follow me on my and my family’s journey.
Peace.
by Band Back Together | Jan 8, 2014 | Addiction, Addiction Recovery, Adult Child Loss, Anger, Denial, Enabling, Fear, Grief, Guilt, Help For Grief And Grieving, How To Help With Low Self-Esteem, Loss, Love, Loving An Addict, Self-Esteem, Substance Abuse, Substance Abuse Relapse |
Losing an adult child to Dextromethorphan addiction is a nightmare no parent should ever have to experience.
This is Ethan’s story:
Yesterday, the phone rang with the call some part of me has been expecting for a year or two now. It was the Galax Police Department calling to notify me they had found my 23-year-old son dead in his apartment after they were asked to do a welfare check.
It’s the call no mother wants to get, but after living with his addiction for so long, it was one I expected at the back of my mind. I thought I was prepared, but really, until the phone rang I clung to hope that he would turn his life around. I’m still struggling to wrap my head and heart around the idea that he really is gone. Our communication has been spotty for years, so full of anger at times, I’m used to not hearing from him for days or weeks. Just a week ago, he called wanting a PlayStation 4 for Christmas.
I told him no.
He’d skipped Thanksgiving, I think at least partly because he was angry with me over a Facebook post in which I was thankful for him, despite the fact that he hadn’t always been the son I imagined. I was uncertain over what Christmas would bring. Maybe that was the cloud that’s been hanging over my holiday. I hadn’t even bought him any gifts.
Now I won’t have the chance. Ever again.
There’s a picture of him on the living room wall, holding my dog last Christmas, sporting a goofy toboggan and a grin. When he was straight, he had a lethal sense of humor and was always worried about me.
In my memories, he is the golden haired little boy who trooped behind his older sister and worried her to death as she played; the elementary schooler who liked being smart and didn’t care for basketball or karate; the middle schooler who put on weight and had braces and didn’t like himself as much as he should have. I still loved his smile. He’s also the sullen teen who stretched out, became tall and lean, who gave up band and skateboarding, who put his fist through the wall and refused chores. Yet on good days, he still gave awesome hugs and when he managed a smile, the room lit up.
The good days, however, seemed fewer and farther between the older he got. Instead of correcting his path, he intentionally chose it, repeatedly. We argued, by text, at great length last month about all the wonderful things he thought his drug of choice did for him and whether or not he was happy. When he was high, he thought he was Death incarnate, or maybe god. He was immortal, capable of anything he set his mind to. He hated everything around him except the video games in which he could further escape from reality.
I know he had dreams – of being a video game designer, of having a family, of being a dad. He told me he wanted to be a good dad, which was so sad because his dad was such a deadbeat. My son was great with children. His nieces adored him. But he poisoned his chances at that when he started using drugs, when he chose to keep using them. In many ways, I lost my son when he and his best friend started getting high. He was never the same after that; moody, angry, scary and demanding.
He always thought that since it wasn’t an illegal drug, or even one he had to obtain illegally, that it was safe. Dextromethorphan is a cough suppressant and central nervous system depressant. It’s sold over-the-counter and safe in recommended dosages. Taken a whole pack or more at a time, however, it mimics the effects of PCP. It causes psychosis, seizures, organ damage, and potentially death.
He left home for nearly a year when he was 16, loading his belongings in a rage on the day my grandfather died. Even when he didn’t live with me, I gave him a phone to keep in touch, came to his rescue when he needed me, took afternoons off work to deal with a broken heart. He came home the next summer because they didn’t have room for him any more and I wanted him to finish school, which he did. But frankly, I was afraid of him and his angry outbursts. He turned 18 and graduated, still with no purpose or desire to have one, and I made him move out.
He had a few jobs, wrecked a few cars, and was living in his car when one last accident ended its usefulness. By then he was having seizures. He was unable to work, so I rented him an apartment and took him regularly to Winston-Salem to see a doctor and psychologist. We didn’t know that, even then, he continued to use. Then he found a roommate and they got high together, he went into a psychosis and pulled a Japanese sword on the roommate, and we found out the truth. He was in jail when we cleaned out his apartment and found bag after bag of empty blister packs of drugs he stole, by the way.
I should have known by the illogical rages, I guess. But even though I knew the drugs had caused the neurological damage that brought on the seizures, I didn’t know their effects as well as I would have some widely-discussed street drug.
(ed note: Will be creating a dextromethorphan abuse resource page in memory of Ethan. Love, love, love to you – Aunt Becky)
When he got out of jail, I refused to enable him any more. He moved to Virginia with my parents. He never worked again, except odd jobs at the church and for my family. When my dad’s illness meant mom couldn’t take care of him too, he first rented a house, then lost his job at the church, and wound up in the homeless shelter. During that time he been in a horrific wreck in which he should have been killed. He was high, in a blackout, hit a parked car and went over an embankment. He was ejected and broke multiple bones, including his back, but was not paralyzed.
We were all convinced he’d hit bottom.
For months, back at the shelter, he stayed on the straight and narrow due to random drug testing. He was a house monitor, had friends and was fun to be around again. When he moved into an apartment, the first thing he did was get high. This summer police called me and asked if I was his mom. I expected the next words to be a death notification. No, he was on the streets acting strange.
He spent two nights in jail for public intoxication.
I hate to admit how seldom I’ve seen him since his birthday in April. He was in a downward spiral that I knew I was powerless to stop. I talked to him on the phone fairly regularly and tried to make sure he knew I loved him. Often, his voice was unintelligible and I would strain to have a conversation, never knowing if he was high or if was an aftereffect of the drugs. Sometimes he called in tears from emotional pain. Lately there had been physical pain as well, but he would not see a doctor.
For years I’ve prayed for God to heal him, to help him choose sobriety, and more recently to take away the pain that seemed to drive him.
At last, Ethan hurts no more.
At one level, my prayers have been answered.
There’s a hole in my heart and an ache in my stomach. I’m not sure if writing about it makes it more real, or less. I know now I’ve had almost a day to process and I’m still not sure I’m ready to do anything else. I hate that, right now, so many of my memories are not good, but maybe that’s what I need to get through the next few days. I refuse to take a photo album down and bring happier ones to the surface.
I’ve been touched by how many people have reached out to me; wept again when I realized how many of my friends have already, in some form, walked this path. I don’t know what to tell people I need beyond time. I’m trying to go on with life, to do the things I enjoy instead of trembling in a corner in sackcloth and ashes. I know that may raise a few eyebrows, but my grief won’t change his death, just as it never changed the way he chose to live.
I know I’m fragile right now and I’m trying to take care of myself. I wish I could hug him one more time and remind him again that I love him – no matter what. That not being possible, I want to hold my daughter and granddaughters and feel the breath in their lungs and the beat of their hearts.
I want to somehow know that he’s finally at peace and that I won’t ever have to feel this way again.
by Band Back Together | Jul 20, 2013 | Abuse, Anger, Emotional Abuse, Estrangement, Loneliness, Love, Psychological Manipulation |
Emotional abuse is not limited to romantic relationships. The scars of emotional abuse last long after the hateful words are spewed.
This is her story:
Every couple months, she contacts me again.
My best friend, the closest person in my life for over a decade the hardest breakup I’ve ever been through.
I’m writing this because I can see those attempts for what they are, and I want to solidify it so I don’t forget. Perhaps my words may even help someone else who’s suffering from a verbally abusive relationship.
My best friend and I split up – rather, I cut her off – almost three years ago now. For a solid year before that, we couldn’t interact without her verbally abusing me.
I’m so very grateful to have friends who understand what verbal abuse is and why it’s so damaging, because I didn’t. Without their help, encouragement, and constant resources and strength, I might not have left. Or, I may not have stayed away, which would have been equally difficult – abusers don’t tend to give up easily, as many of you (unfortunately) may know.
There are many wonderful resources about emotional abuse, but what’s helped me most is this statement: A verbal abuser is someone who claims to love you, but who uses their love to consistently make you feel awful. The love of an abuser revolves around what you owe them, how you’re letting them down, and what you need to change in order to be worthy of that love.
Guess what?
Love shouldn’t feel like that.
The first time I realized that something was seriously wrong with our friendship was the day I caught myself thinking, “How is it okay to deliberately, consciously, repeatedly, hurt someone as badly as you can? How is okay for friends to do that to each other?”
Because no matter how much we disagreed, how angry we got, I never, not once, pulled out my worst words and aimed them to hurt her as badly as I could…yet I could clearly see that she did this to me.
That behavior got me looking more closely, and I realized (I believe “dawning horror” is a good phrase for how it felt) that almost every single thing she said to me was manipulative…every word chosen to get me to do what she wanted. And like some sick psy-ops torturer, every time I wasn’t going in the “right” direction, she pulled out the ones that hurt and started swinging.
Having not heard from her in months makes it obvious that’s what’s going on. It doesn’t make it hurt less – someone who knows you well, who you loved a long time can master causing emotional pain.
Seeing it clearly makes it easier to do what I know has to be done – it isn’t easy, even though it’s been so long and so bad. Once you love somebody deeply, it’s hard to choose to not have a relationship with them, but I recognize that to do otherwise would be stupid, self-destructive and gain me nothing. So I’m working on learning my lessons and moving on.
Yesterday we “talked” via text-message – all told, the conversation wouldn’t be half as long as this story. During the conversation, she informed me that I’d betrayed everything about myself, thrown away my ethics; and she’d have a happy future without me.. but I’d get what I deserved” for “abandoning everyone who’d ever voluntarily loved” me (she and my also verbally-abusive ex. They now live together).
She said that the words she’d said hurt me was proof she was right and I felt guilty; she’d be willing to give me a second chance, but only if I would do the work to stop “disappointing her with all my actions and decisions.”
When I stopped replying, she pulled out the really big guns; she’d love my daughter forever, she’d always be her family. She threatened that she’d see my daughter eventually whether I liked it or not; my daughter would rather be with her anyway. She told me that I wasn’t acting in my girl’s best interests – “look at everything you’ve cost her already with your bad decisions” – and that I only cared about myself.
All told, this tiny conversation probably contained twenty hidden knives, and as many less-deadly clever little needles, designed to prod me in the “right” direction. Hints that her life is so awesome now that it’s a “shame we can’t share it,” using her father’s cancer to lay guilt that I’m not being supportive.
Participating in that short conversation brought me to my knees, quite literally at times.
But fortunately, no one I love (or even mildly care about) has made me feel so awful in many months, and the contrast really helped me see this for what it was: ABUSE.
Say it with me now, The Band: People who love you do not deliberately hurt you.
We all hurt each other sometimes, but there’s a difference between “my actions hurt you” or “I was angry and said something awful and I apologize,” and “I will systematically make you feel as awful as I possibly can in order to control you.”
The latter verbal interaction is abuse, it’s a method of control; it beats at you, bends your spine and, over time, it wears away your resolve. Eventually no matter what you’d decided or how good an idea you have, you desperately want to change your mind and do what your abuser wants, just to make the pain stop.
It’s not okay to control people like that – we must have free will, and respect the right to make our own decisions – but it’s especially not okay to exert that kind of forcible control over those you love.
Verbal abuse is an emotional cattle prod. It’s bad enough to use pain-motivation and torture on strangers, but using them on your beloveds is just vile. And I don’t care how much abusers like to throw around the word “love” – that’s not love.
Love is what I have for my daughter.
Love makes me say things like, “Sweetie, I may not always agree with your decisions, I may get angry at you sometimes, but I will always love you.”
Never, EVER would I say to her, overtly or as an insinuation, that my love obligates her to do what I want; never would I make her feel like a terrible person who betrayed me by making a choice I didn’t agree with.
I know what that feels like – it’s torture. Even if it caused her to do what I wanted, it would never be worth it.
Love is something you give. It is not a transaction that leaves the loved person in perpetual debt to you. And it sure as hell doesn’t give you the right to hurt them.
Deliberately hurting someone is betraying them and their love, and I have sworn to never allow myself to stay in a relationship with someone who hurts me deliberately again.
I don’t have friends as close as we were now – I’m working back up to that – but as I said to her before blocking her number, the best part about my life now is that I know that if anyone else I love ever deliberately tortures me the way she does, I have the strength to end that relationship.
For awhile, it was terrifying and terribly lonely. But I wanted to write this so I could say that ending my abusive relationship was the best thing I ever did, and it’s a decision I’m standing by no matter how hard it is.
The less I let her in, the less control she can exert, and the less she can hurt me. I’ve resolved to keep abusive people far away from me and surround myself with people whose love is supportive and strengthening. I’m be better off, happier and healthier, than I would eating the poisoned apples of verbal abusers.
Thanks, The Band.
Glitter for everyone!!
——
What have YOU, The Band, learned from an abusive relationship?
by Band Back Together | Dec 12, 2010 | Anger, Anxiety, Breast Cancer, Cancer and Neoplasia, Caregiver, Compassion, Coping With Cancer, Fear, Feelings, Loneliness, Love, Sadness, Stress, Trauma |
I’m sorry. Right now, I cannot be a good friend. I am not a good wife or daughter, sister, neighbor, niece or cousin. I love you. I appreciate everything you do for me and for my family. But for now, everything I have, every smile I can eke out, every happy moment, belongs to my daughter. I can’t give you what you want, not today and maybe not tomorrow either. I don’t have enough for you.
My fear is all-consuming. I am endlessly treading its dark waters. Your well-intended positivity crashes into me, knocking me down before washing back out to sea. Your genuine, heartfelt words of hope leave me salty-eyed, gasping for air, bracing for the next wave of “You’re so strong!” or “Kids are so resilient!”
Your generous offers to help are not falling on deaf ears, but I’m afraid my desperate cries for it are. I can hear you happily proposing your casseroles, a walk in the park, an eager ”whatever you need!” I’m sure one day I will very much need those things. Today I just need simple kindness, compassion, companionship. I need you to hug me and hold my hand. I need you to stop worrying about the tasks on your list and just be with me, sit here and keep my head above water.
I realize nothing about this is convenient for you. I know the closer you are to me, the deeper the water, the stronger current. I’m sorry that you’re being pulled in, challenged, diverted from your regularly scheduled life. But this is my nightmare and sadly, you’re in it.
so bite your tongue,
you’re not the only one
who’s been let down.
by Band Back Together | Dec 4, 2010 | Anger, Anxiety, Baby Loss, Coping With Baby Loss, Grief, Guilt, Help For Grief And Grieving, How To Cope With Post-Traumatic Stress Disorder, Livng Through A Miscarriage, Loss, Love, Miscarriage, Post-Traumatic Stress Disorder, Sadness |
I have never spoken to anyone about this but my husband, my mother, and, of course, my doctors. This may be one of the hardest things I will ever write. It may not all make sense. I don’t remember it all. But yet I remember it like it was yesterday. I will never forget it. This is my PTSD talking. I am in a very bad place right now. And I know what happened to me isn’t as bad as some but to me it’s worse because she was mine.
Anyway, Oh God here goes…
You were due December 25th. I was so excited that both of your sisters were Christmas babies. I love Christmas. And I still do. Your due date was so amazing I couldn’t believe it – three children born on or around Christmas.
The beginning of my pregnancy didn’t seem out of the ordinary. Normal morning all day sickness for me. Around 6 weeks something felt off I called my Doctor who is AMAZING, and she got me right in for an ultrasound. There you were – perfect. And fine. Little heart beating to beat the band with a due date of Dec. 25th. I felt better. Things resumed. We got to our 12th week and we told everyone and even started buying things. Come on – you were my fourth baby. What could go wrong? How could I even think that?? Everything was fine .
Then it happened. July 27th I felt yucky and my back hurt SO bad. I should have called the doctor. You might be here today. I should have known. But I just thought I worked hard that day. It was hotter than hell. And it was just a back ache. I never ever had back labor. At 2:12 on July 28th, I woke up and thought, “shit, I wet the bed.” I hit my husband and said, “I wet the bed. Go get new sheets.” And then I went to turn the lights on. And it felt really off. It was sticky. I turned the light on and there was blood everywhere. I heard a sound like I had never heard before – it was my screams. I told my husband call the doctor and tell her we’re going to the hospital. Something was very very wrong.
My mom came running in and tried to calm me, but it didn’t help. I remember telling her keep the kids out. I didn’t want them to see the blood. And my back – OMG the pain. All the sudden I felt a pop between my legs and there was a “doll” between my legs – it didn’t seem real. I thought WTF is that about my own baby. I saw your little chest heaving up and down. You were breathing!!!!!!!
I screamed for my husband to stop calling the doctor. We had to leave NOW. She’s here. She’s ALIVE. She’s breathing.
You were 18 weeks and 5 days. You were perfect – tiny and waxy, but perfect. You breathed for 5 minutes. I held you in my hand as you took you first and last breaths. I will never forget them. I loved you so much in those 5 minutes. You were my daughter, Ariel Grace.
But the horror didn’t come until we got to the hospital. You WEREN’T a baby. You were nothing. You were – I choke on the words now. You were a miscarriage. But I saw you and I held you. You WERE breathing for 5 minutes. I have a cell video of it. But you were going to be discarded as if it was a miscarriage. I flipped out like my husband has never seen me flip out. I screamed and I wailed. I hit a doctor, I think. Not my doctor. She was AMAZING. She held me while I rocked the baby. She stroked my hair. She couldn’t change the policy.
You would never exist to the world. You would get no birth certificate and no death certificate. But to me and your father, siblings and grandparents you were EVERYTHING!
I made my uncle call his friend at a funeral home. He kind of laughed – not in a mean way but he told my uncle, “She’s not even as big as a cat. I can’t charge. I won’t. It’s a freebie.” I have her ashes. Although that was a HELL of a fight. But I think they knew I was a mad woman and I would not leave that hospital without MY baby.
I have her ashes hidden in my room. I left the hospital the next day with nothing. No baby, no belly, no nothing. I was empty and blank and a Zombie for a LONG time. Hell, I still am. I never mentioned it to anyone. Some people asked questions. I think I probably stared at them blankly. But I never answered. My husband or mother would later. I couldn’t talk about it. It’s over a year later and the pain is still unreal. I have nightmares of waking up to the blood every five minutes. I don’t know that they will ever go away. But what is the worst for me is I can’t talk about her to anyone but my husband, mother and therapists.
Am I forgetting her, am I not remembering her, am I cold? I just it hurts so bad. And no one that I personally know can understand that pain. No one I know in real life understands my anger and bitterness of her not being a baby because she was 18 weeks and 5 days and not a viable birth. Isn’t breathing for 5 minutes viable? Had we been at the hospital could we have made it farther my AMAZING doctor thinks that those 5 minutes were pretty darn special. And so do I for a baby with such under developed lungs.
Obviously now everyone knows she was never born and just went away. People have stopped asking questions. And I just can’t talk about it. I feel cold. And I miss her even more now. I don’t know that it will get better. She wasn’t a “real” living baby. But she was mine. I held her. I named her. I talked to her. And on her birthday I buy her a gift. I guess that really does make me crazy. Maybe I’ll stop someday. I don’t know. But I guess tonight on one of my darkest of nights, this needed to come out. Thank you for listening. No one else knows. And it hurt to talk about. A LOT so this was BRAVE. So thank you for reading.
