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Danceband On The Titanic

There is a picture of me, somewhere out there, probably still on my dad’s phone unless they’ve turned into Christmas Card people, in which case, the picture is most definitely out there in the world for all to see.

I hope it is not.

I didn’t see the picture until I was 5 months sober, staying in the unfinished basement at my parents house, grateful that I was no longer homeless, while I hunted for a job. Before this, I’d been staying there after a stint at a ramshackle, rundown motel, the kind of place you probably could dismantle a dead body, leave the head on the pillow, and no one would think anything of it. But it was my room, and despite the lice they gifted me, I loved it. Until money dried up and suddenly I was, once again, homeless. I’d moved in there after I was discharged from the inpatient psych ward, in which I was able to successfully detox after a suicide attempt. Got some free ECT to boot.

(WINNING)

Despite what you see on the After School Special’s of our childhood, I didn’t take a single Vicodin, fall into a stupor, and become insta-addict – just add narcotics! No, my entry into addiction was a slow and steady downward spiral of which I am deeply ashamed. It’s left my brain full of wreckage and ruin, fragmented bits of my life that don’t follow a single pattern. Between the opiates, the Ketamine, and the ECT, I cannot even be certain that what I am telling you is the truth; what I’ve gathered are bits and pieces of the addict I so desperately hate from other people who are around, fuzzy recollections, and my own social media posts.

About a year and a half before I moved from my yellow house to the apartments by the river, Dave and I had separated; he’d told me that while he cared for me, he no longer loved me. While we lived in the same house, we’d had completely separate lives for years, so he moved to the basement while I stayed upstairs. I’d been miserable before his confession and after? I was nearly broken. Using the Vicodin, then Norco, I was able to numb my pain and get out of my head, which, while remarkably stupid, was effective. For awhile.

Let me stop you, Dear Reader, and ask you to keep what I am about to say in mind as you read through this massive tome. I’m simply trying to make certain that you understand several key things about my addiction and subsequent recovery. I alone was the one who chose to take the drugs. No one forced me to abuse opiates, and even later, (SPOILER ALERT) Ketamine. This isn’t a post about blaming others for my misdoings, rejecting any accountability, nor making any excuses for the stupid, awful things I’ve done. I alone fucked up. My addiction was my own fault. However, in the same vein, no one “saved” me but myself. There was no cheeky interventionist. No room full of people who loved me weeping stoically, telling me how my addiction hurt them. No letters. Nothing. It was just me. I was alone, and I chose to get – and remain – sober.

The delusions started when I moved out, sitting in my empty apartment alone, paralyzed by the thought of getting off the couch to go to the bathroom. Always a night-owl, I’d wake at some ungodly hour of the morning, shaking. It wasn’t withdrawal, no, it was pure unfettered anxiety.

It was the aftermath of using so many pills, all the fun you think you’re having comes back to bite you with crippling anxiety and depression.

Which is why I’d do more.

Yes, opiates are powerful, and yes, I abused them, but things really didn’t become dire until I added Ketamine to my life.

Ketamine, if you’re unaware, is a club drug, a horse tranquilizer, and a date rape drug. You use too much? You may wake up at some hipster coffee bar, trying to sing “You’re Having My Baby” to the dude in the front row who may or may not actually exist. In other words, it’s the best way to forget how fucked you are.

The delusions worsen as time passed. I could see into the future. I could read your mind. I was going to be famous. I was super fucking rich. In this fucked-up world, I could even forget about me, and the life that I’d so carelessly shattered. I remember sitting in Divorce Class at the courthouse, something required of all divorces in Kane County, weeping at all that I’d thrown away – using a total of three boxes of the low-quality, government tissues. I left with a shiny pink face and completely chapped nose and eyes that appeared to be making a break from their sockets. I went home, took some pills, took some Ketamine, and passed out.

I retreated ever-inward. I didn’t talk to many people. I didn’t share my struggles. I was alone, and it was my fault.

The hallucinations started soon after Divorce Class ended and my ex and I split up. He’d left my house in a rage after a fight and went to live with his sister. I got scared. His temper, magnified by the drugs, the hallucinations, and the delusions, grew increasingly frightening. Once he’d moved out, the attacks began. I’d wake up naked in my bedroom, my body sore and bruised, and my brain put the two unrelated events together as one – he was attacking me. It happened every few days, these “attacks,” until I found myself at the police station, reporting them. I was dangerously sick and I had no idea.

My friends on the Internet (those whom I had left), sent me money for surveillance cameras. I bought them, installed them – trying to capture the culprit – and when I saw what I saw, I immediately called the police and told them the culprit.

The videos in my bedroom captured an incredibly stoned, dead-eyed, version of myself, violently attacking myself, brutally tearing at my flesh. In particular, THAT me liked to beat my face with one of my prized possessions – a candlestick set from our wedding, take another pill or hit up some Ketamine, then violating myself with the candlestick. It lasted hours. I’d wake up with no memory of events, sore and tired and unsure of how I’d gotten there.

I’d never engaged in self-injury before – not once – so the very idea that I’d hurt myself was unbelievable, but right there, on my grainy old laptop, was proof of how unhinged I’d become. Charged with filing a false report, I plead guilty.

In early September of 2015, I decided to get fixed, and made arrangements with work to take a few weeks off to do an inpatient detox, and, for the first time in a long time, I woke up happily, rather than cursing the gods that I was still alive.

It was to be short-lived.

Several days later, sober, I was idly chatting with my neighbor about her upcoming vacation (funny the things your brain remembers and what it does not), standing by my screen door, when karma came calling. It sounded like the shucking noise of an ear of corn, or maybe the sound that a huge thing of broccoli makes when you rip it apart – hard. It felt like a bullet to the femur. I crumpled on top of my neighbor and began screaming wildly about calling an ambulance, yelling over and over like some perverse, yet truthful, Chicken Little:  “my leg is broken, my LEG is broken!”

I don’t remember much after that. I woke up in (physical rehab) and learned that my femur (hereafter to be called my “Blasfemur,”) had broken, fairly high up on the bone, where the biggest, strongest bone in your body is at its peak of strength. Whaaaa?

The doctors and nurses shrugged it off my questions, with a flippant “It just happens” and sent me home, armed with a Norco prescription, in November, to heal. I added the Ketamine, just to make sure.

A couple of weeks later at the end of November, I was putting up the Christmas tree with the kids and my mother. It was all merry and fucking bright until I sat down on the couch and felt that familiar crunch. Screams came out of me I didn’t know were possible, but I’d lost my actual words. My mother stood over me yelling “what’s wrong? what’s wrong?” and I couldn’t find the words. I overheard her telling my babies that I was “probably just faking it” as she walked out the door, my screams fading into an ice cold silence. They left me alone in that apartment where I screamed and cried and screamed. Finally, I managed to call 911 and when they asked me questions, all I could scream was my address.

I woke up in January in a nursing home. When I woke up, I found myself sitting at a table in a vast dining room, full of old people. For weeks to come, I thought that I’d died and gone…wherever it is that you go.

This time, I learned, my (blas)femur and it’s associated hardware had become infected after the first surgery, which weakened the bone, causing it to snap like a tree. They put me all back together like the bionic woman, but the surgery had introduced the wee colony of Strep D in the bone into my bloodstream, creating an infection on meth. I’d been in a coma for weeks. Once again, I learned to walk, and once again, I was sent home in late January with another Norco prescription. The nursing home really wanted me to have someone stay with me to help out, but I insisted that I was fine alone. In truth, I had nobody to help me out, but was far too ashamed to tell them.

The picture I referenced above was taken some time in May, as far as my fuzzy memory allows me to remember, after my third femur fracture in March. This time, I’d been so high that I fell asleep on the toilet and rolled off. Glamorous, no? Just like Fat Elvis. Luckily, my eldest son was there and he called 911 and my parents to whisk him away. I remember my father on the phone, telling Ben that I was a liar and I was faking it. I was swept away in the ambulance for even more hardware, and finally? A diagnosis:

HypoPARAthyroidism.

It’s an autoimmune disease that leaches calcium from the bones, resulting in brittle bones. It is managed, not treated. There is no cure.

But, I had the answer. Finally.

After my third fracture, I once again was sent to the nursing home, and quickly discharged with even higher doses of Norco, when my insurance balked, I’d used up all my rehab days for the year. By this time, I’d lost my apartment, my stuff was in storage (except the things that we’re thrown away, which my father gloated about while I was flat on my back) and my parents let me stay with them, which was about the only option I had. They couldn’t really kick me out if my leg was only freshly attached. I feel deeper into a depression, self-loathing, and drug abuse as I realized what a mess I’d made with my life. How many bad choices I’d made. How many people I’d hurt. How much I’d hurt myself. How much I loathed myself. How I once had a life that in no way resembled sleeping in my parents dining room. How I’d been a home owner. How I’d been married. How lucky I’d been. How I threw it all away. My life turned into a series of “once did” and “used to.”

The only one who hated me more was my father.

While we were once close confidants, in the years after my marriage to Dave, his disdain had become palpable. My uncle had to intervene one Christmas, after my father mocked me incessantly for taking a temp job filling out gift cards while I was pregnant with Alex. It may seem normal to some of you, this behavior, but in THEIR house, NO ONE was EVER SAD and NOTHING was EVER WRONG. WASPs to the core, my family is.

When I moved back in, broken, dejected, and high, our fights became epic. For the first time in my life, I stood UP to one of my parents. Then, I was promptly kicked out.

Guess I’m not so WASPy after all.

I want to say that the picture was taken around May of 2016, but my estimate may be thoroughly skewed, so if you’re counting on dates being correct and cohesive, you’ve got the wrong girl.

This is a picture of me, though you probably wouldn’t recognize me. I am wearing the blue scrubs that you associate with a hospital: not exactly sky blue, not teal, not navy, just generic blue hospital scrubs. These are, I remember, the only clothes I have to my name. I was given them in both the hospital and the nursing home, a gift, I suppose, of being a frequent flier, tinged with a bit of pity – this girl has no clothes, we can help. Whomever gave them to me, know that you gave me a bit of dignity, which I will never forget. Thank you.

I am wearing scrubs, the light of the refrigerator is slowly bleaching out half of my now-enormous body, as opposed to the darkness outside. There is a tube of fat around my neck, nearly destroying any evidence of my face, but if you look closely, you can make out my glasses, my nostrils, my hair cascading down. My neck is stretched back at nearly a 90 degree angle from my body, my head listlessly resting on the back of my wheelchair. My mouth gaped wide, which, should I been engaging in fly catching, would have netted far more than the average Venus flytrap. I am clearly, unmistakably, and without a single shred of doubt, passed the fuck out.

It is both me and not me.

High as i was, I don’t remember a thing about the photo being taken. But there I was, in all my pixelated glory.

By the time I saw the photo, I was once again in my “will do” and “can do” space. I’d kicked drugs in September 2016 and had found a job that I enjoyed. I stayed with my parents while I began to sort out my medical debt and save toward a new car and an apartment of my own. My spirits were high, my depression finally abated to the background, and I was tentatively happy. I’d apologized until my throat was sore, but my fragmented memory saved me from the worst of it, but I was not forgiven. I don’t think I ever expected to be. And now, I never will.

It’s okay. I can’t expect this. I know I fucked up.

My father, who’d actually grown increasingly disdainful of me, the more sober and well I became, confronted me when I came home one day after work, preparing to do my AFTER work, work.

My mother shuffled along behind him, Ben, the caboose. All three of them were in hysterics, tears rolling down their cheeks as I sat down in my normal spot on the couch. After showing them a video of two turtles humping a couple of days before, I eagerly waited to see what they were showing me.

What it was was that picture. Of the not me, me.

They could hardly contain their laughter, my father happier than ever, braying, “Isn’t this the best picture of you?” and “You PASSED OUT, (heave, heave) IN FRONT OF THE FRIDGE!” punctuated, with “I’m going to frame this picture!” The tears welled in my eyes while my teeth clenched, they laughed even harder at my reaction.

Like I said, if they’ve become Christmas Card sending people, this will be the picture of me they show, expecting others to laugh uproariously. Before I moved out, in fact, my father made certain to show the picture to anyone who came over. “Wanna see something hilarious?” he’d ask. Expecting memes or a funny cat playing the piano, they’d agree. I could see it when they saw it, my dad chortling with laughter, nearly choking on his giggles, the looks on their faces: a mixture of confusion and pity. Even in my drug-hazed “glory,” I’d never felt so low.

Maybe that picture is splashed all over the internet, in the dark recesses I don’t explore, and maybe it’s not. Maybe it’s hung on their wall, replacing all of the other pictures. Maybe it’s not.

Maybe we’ll meet again.

Maybe not.

It Scares The Hell Out Of Me

What is an addictive/dependent personality?

I don’t mean someone who really grows on you, I’m talking about someone who is easily influenced and can become readily addicted to or dependent on mind-altering substances. It can be drugs like cocaine, meth, and heroin. It can be prescription drugs like Oxycontin, Xanax, or a plethora of pain killers and muscle relaxers.  Maybe it’s alcohol that interferes with or has to be part of everyday life. Now take that person and throw in the occasional, and now more frequent, anxiety and panic attack.  What do you get?

You get the hell scared out of you!

Let me tell you first hand because dependency has been in my family for as far back as most of us can trace, and we are now finding out that the anxiety and panic issues have been in the family for quite awhile as well.

Have you ever been there?

I have and it scares me.

Have you ever felt your temperature begin to slowly rise for no apparent reason?

I have and it freaks me out.

Have you felt your breathing begin to get a bit shallower, each breath becoming more of a gasp than a serious breath?

I have and I just want it to go away.

Have you felt your throat dry and then begin to close, slowly sending you into panic mode?

I have and will hate it when it happens again.

Have you had to wonder what the hell this was all about when life really is not to bad?

I always wonder.  And really, what the hell is this all about?

The medication prescribed to combat such issues to me are often very addictive.

Now you have me.

I freak out for no apparent reason, then think about the little pill I am about to take.  If I continue to have to take them, it’s very likely I will be dependent on them.  Not taking them wreaks havoc.

I don’t mind the occasional sleepless night.  But when it happens, I pace around the house, then into the yard and then in the car with no where to go because it is 2 in the morning. Then I go back in the house. I don’t want to wake others up because I feel it’s wrong.  I don’t want the medication, but without it sleep, and a productive day, will be out of the question.

Shouldn’t I feel positive about the fact that there is a medication to help me through such time?  I don’t want to become dependent on the medication, but I really do want to sleep and enjoy my sanity.

One is just feeding off the other and it is just wrong.

Have you ever been there?

Are you there now?

Where do we go from here?

The Scar On My Soul

Four years. Four years later. And still I struggle. Not every day. But enough.

The reminders that won’t let me forget.

Seeing my daughter doing the things my son should have been doing four years ago. Climbing, running, not needing to hold the walls to walk down the hallway as he did at the end.

The surgical scar on the back of my son’s neck echoed in the scar on my soul.

The checkups, though now yearly, renew my fears… what if

When does this end? When do I get closure?

When it’s been five years since the tumor was successfully removed? When my son gets to go to prom like the diagnosing neurologist essentially promised us? Or goes to college? Gets his first job? Gets married? Has kids of his own?

Do I get closure? Or is closure bullshit?

Yes, it does get easier. Yes, I’ve gone on with my life. But some days (most days?) I’m not convinced it’ll ever really be over, that the door on this chapter of my life will ever really close. Rather I feel that this chapter is just beginning and it’s a long one.

I try to console myself, thinking it’s okay to feel this way, that it never ends. I can be okay with that. Right?

And yet… And so… this is where I am left… my son is alive and well. Why can’t I let go of the past?

Why won’t it let go of me?

Hi, I Used To Cut Myself

Clench my teeth
brief sensation of pain
Wait for it to come
it takes a second
Bringing with it relief
here it comes
Pain flows out
trickling down my arm
In little red rivulets
so warm and wet
I have no problems

That cheery little poem is mine. Oh, it’s from many years ago. Back when I was still living with my parents, in fact. That last line? Is total crap. Yes, the blood brought relief of some feelings, but the guilt and anxiety that was left every time I looked at the scars….yeah, sometimes even THAT was enough of a trigger.

I’ve been pretty up-front about dealing with Postpartum Depression, Generalized Anxiety Disorder and major depressive disorder.

But, to add to the list of things that I don’t talk about, I’m also a cutter.

I probably ought to say “was”…..because I haven’t actually cut myself in years. But you know how some people say that they will always be a recovering alcoholic, and never recovered. It’s like that.

The urge to give in is there. It’s not my first reaction to bad news, anymore, but when I’m at my lowest, or most anxious, I still want to.

There are certain movies that I couldn’t watch all the way through for a long time, like Thirteen or Girl, Interrupted because they make me want to cut myself.

This is a big step for me. Other than my parents, one or two friends from way back then, and my husband and now half-the-freaking-internet, no one knows this. Come to think of it, I don’t know if I bother to tell my therapists. Yes, I know. I’m a horrible patient.

After I decided to stop, which wasn’t until I was pregnant with my first, AND it was totally selfish at first; too many doctor’s exams that required getting naked. I kept waiting to outgrow the feelings. You know, the way I outgrew angsty poetry, and emo-ish music? But I’m still waiting.

Still fighting.

Still coping.

Kinda.

Diagnosis Carousel

“Teenage hormones”

Depression

“Chemical imbalance”

“Post Traumatic Stress Disorder”

“Postpartum Depression”

“Seasonal Affective Disorder”

Bipolar

“Generalized Anxiety Disorder”

Since I was 15 years old, I’ve been diagnosed with one thing after another.

It’s like a revolving door. Or a carousel of diagnoses. Like a really bad carnival ride, where you just want off, but it seems like it won’t end. Ever.

Usually I get a new label because we’ve run through the gamut of medication that is supposed to “solve” one problem, only to find that none of them work.

Or I have changed providers.

So I fill out another 500 question sheet of paper, which of course has answers that are completely dependent on what day of the week it is, what time of the day it is and whether or not I got any sleep the night before.

Then after this highly scientific deduction process, I’m given a new prescription to go with my new label and sent on my merry way.

Only to fall flat on my ass at some point (and I do mean fall, like rock-bottom), and have to start all over again.

This is why I’m a big fan of saying that medicine alone is not enough. I fully believe medicine is a hugely helpful tool. But I also think that it needs to be in conjunction with some form of therapy.

Of course, that doesn’t explain why I haven’t managed to make it to my appointments with my therapist in the last couple months…

A Night Of Turmoil

Anxiety and panic can strike us out of nowhere.

This is his story:

As my work day began to wind down on Friday, I got antsy as I looked forward to Saturday’s big duck hunt with my son, Bryan. My excitement level was high as it’s always a great time getting my boy into the woods and watching him learn the ways of the wild. We also have the opportunity to put some tasty treats in the freezer.

I called Bryan into school on Friday and took him to work with me as we were hunting just a few miles from work. I work fifty miles from home and it’s senseless to make the the long drive home just to come right back Saturday. We decided to stay with my in-laws -the best a man could ask for- instead, which is only twenty miles away.

Around 10 PM, after a bit of good conversation and some TV at my in-laws, my father in-law hit the sack. My son and I figured it was probably a good idea too, as our 3:30 am wake up call would be upon us shortly. Bryan was out in no time, but no sooner had my head hit the pillow, my mind started reeling. I have no idea why, but it was going into overdrive at an alarming rate, even as I did my best to fight it.

I thought it was just the excitement of the next day’s events and would wear off soon, but wow, was I wrong.

In a matter of minutes I was up pacing through the house, my mouth dry, my breaths rapid. My mind could not concentrate on any one thing.

I was having a panic attack and my medications were 75 miles away. That’s right, I forgot them at home. I had been doing great lately, and it never really crossed my mind to bring them along just in case.

Well here I was in the midst of a full-blown panic and had no idea what to do. I picked up the phone and called my wife, knowing full well that she would be asleep because it was now approaching 11:30 and she never stays up that late.

She was so wonderful and gave me time to chat and tried to relieve my tensions a bit. I didn’t keep her on the phone long but was so appreciative of her willingness to even allow me to call that late without getting pissed off. Her talk and encouragement was a bit helpful, but I was still contemplating making the hour-plus drive home in the middle of the night just to get my medication.

Then it dawned on me. My friend Luke was probably going out somewhere for the evening since his wife was out of town, so maybe I could get in touch with him.

I called Luke’s cell phone but there was no answer. I left a brief message explaining my dilemma and asked him to call me back. About ten minutes later the phone rang. I figured it was my wife just checking up on me, but it was Luke.

He was almost back in town from a night out and would be more than happy to have me over for awhile, even though it was midnight and he had to work the next day. I was in such panicked state that it took me two tries to get into the car and drive the three miles to his house.

Every time I’d get into the car, I’d think: I will never make it over there and I couldn’t breathe. The world felt like it was going to collapse around me if I sat in that drivers seat too long, so I’d pull back into the in-law’s driveway. I would get out, walk back into the house, then turn right back around and get into the car.

Finally, I made it to Luke’s house, but he wasn’t there. I tried to get out of the car and wait for him but my head wouldn’t leave me alone. My throat was tightening and it seemed like my airway was going to close any minute if I didn’t do something drastic. I knew this was all in my mind at the time and yet I had no control.

That thought alone made it worse. I jumped back in my car to head back to the in-laws. Just as I got to the first stop at the end of Luke’s road, he pulled into the road and waved me back.

I followed him to his house and we sat outside for awhile before I worked up the nerve to go inside without feeling caged in. A few minutes was all I could handle indoors…the heat, the lack of oxygen, the walls…I had to get out.

Luke was more than willing to follow. I’m not much of a drinker, but a 22oz hard lemonade seemed like it might help slow me down a bit. I slammed that while Luke sipped on one himself. Usually one of those is enough to put me on the couch for the evening! But this was no ordinary evening and no ordinary panic attack.

I have only had an attack this severe a couple of times and I hated it. Before I knew it, I had Luke out waking down the dirt drive at 2:00 am, and he did it with no complaints. We wandered back to the house and went inside for a little more chit-chat.

It was now close to 3:00 am and I could see that Luke was fading fast. The good thing was that it would soon be time to wake my son for his duck hunt, and my mind was starting to shift into a lower gear in preparation for the day of hunting. I needed to keep myself in check for the safety of my son.

The fog in my head slowly began to lift as I pulled into my in-laws driveway at 3:10 am. I was actually able to chill long enough to take a shower. When I came out of the shower, I felt as if the world had been lifted from my shoulders. My wonderful son was sleeping peacefully on a futon mattress on Grandma’s floor, oblivious to the hell I’d been through over the past 4 hours. I was tired but rejuvenated with a clear mind.

I took my son on the hunt. It was a wonderful morning. Warm, calm, and the mosquitoes didn’t even bother me. Ducks were flying and my son was doing pretty good hitting them. I had a wonderful day, and I must say that it was due to the patience and understanding of my wonderful wife and my friend Luke.

Luke is the true definition of a friend. I have known Luke for the better part of thirty years and I would do anything for him. He is more like a brother to me than a friend. I would be hard pressed to find another person on this planet that would be willing to sacrifice a night of sleep just to help a guy through a hard time.

Luke is a true friend, and true friends are hard to come by. He helped me through a night of turmoil that could have led to tragedy if I had not had him to talk to and keep my mind off the senseless ramblings. He was there for me and I am eternally grateful.

I am always here for you if you need me, brother!