by Band Back Together | Jan 23, 2019 | Bipolar Disorder, Emotional Regulation, Loving Someone With Bipolar Disorder, Mental Health, Shame, Stress, Trauma |
How can you explain the unexplainable?
The intangible that lives within and is expressed without but not with words…thoughts, deeds, drinks, and pills. Words seldom give justice to the turmoil within. And even when blurted out in a moment of weakness or vulnerability…if expressed to the wrong person they are still and float on the air like flotsam…better left wherever the journey began.
One might say “get a therapist” or “join a group.” Some psychobabble will surely help things along. Turn lemons into lemonade, bump inertia into movement. But, what to do without that ever-expensive, mostly elusive thing called health insurance?
Out of pocket expenses for mental health care are damaging.
So the cycle continues. The mood swings, the doubting, the bursts of mania. The decision to do one thing and suddenly another road is taken. All the while keeping things together. Feeling very little, looking very ill and fooling no one. Or maybe, just maybe, fooling everyone and that is the very problem that needs to be addressed.
The adjectives used to describe this current state are self-actualized and negative. But what is the alternative?
“Take these broken wings and learn to fly…”
No, these wings aren’t broken, my cape is not torn, I can handle everything that is happening. In the midst of accolades for “making it,” the pieces of my heart slowly tumble and quietly hit the ground while barely making a whisper.
And yet the pain is still devastating, immobilizing and nobody knows.
Admittedly this is my fault. Perhaps wiping away the facade will release magical healing powers, somehow I find that doubtful. So what if the alternative means holding it all in, weight creeping up and face looking as if I’m aging in reverse – teen years I’m back! Acne and all.
Sadly I don’t know how to remedy this. And so I sit. Waiting for the next thing in the pipeline and inevitably it comes and keeps me focused.
For a moment.
But in the quiet times (which are rare) my truth must be faced. I’m inert. Immobile. Dysfunctional and pray that someone will swoop in and take it all away. The likelihood of that happening? Nil.
And so I wake to face another day, I wear the mask and hope that no one notices.
by Band Back Together | Jan 15, 2019 | Anxiety Disorders, Bipolar Disorder, Coping With Anxiety Disorders, Generalized Anxiety Disorder Resources, Loving Someone With Bipolar Disorder, Mental Health |
I’m a girl – check that – a lady. I married a fantastic man. I have a crappy job, but it’s okay. I hobby (yeah, hobby as a verb, got a problem with that?) – I read, embroider, write to pen pals, and water my dead plants.
I get panic attacks. I have Bipolar II Disorder. But it’s okay. I mean, I can’t cure it…so, I live with it, right?
Don’t get me wrong, it blows serious monkey balls most of the time. I’m currently untreated and once my insurance kicks in, I’ll still have to wait another six months to have it covered, “pre-existing condition” and all. (Wait, wait, I’m getting to something.) I’ve got a few problems – so what, right? I’m with the Band and “problems” is one tune we all sing.
So why do I feel like I’m the first person to bring up bed-wetting? I’m no expert. I don’t have any kids. I don’t know anyone who’s ever done it…sober. I never did it as a kid. I mean, well, since I got potty trained. I’m good at being potty trained.
Recently, though, I peed the bed. Not even in a drunken haze. Just while sleeping, like a normal person. That’s what you do, right, sleep? And then, a few weeks later, I did it again!
What. The. Hell.
Add that to the migraines when I’m around blinking lights, a nervous twitch when my sister visits, panic attacks when I, well, whenever – it just happens on the roller coaster of being untreated Bipolar. That’s not enough? Now this?
For fuck’s sake, I’m an adult. I’m married. I share a bed with a man and two dogs. I yell at my little dog for peeing on the kitchen floor, but at least she’s not doing it in the bed. (You should see the looks she gives me, by the way.)
The only two times it has happened – hopefully the only two times it will ever happen – the only commonality I can see is that I had nightmares. I get nightmares pretty frequently, especially when I’m shifting between ups and downs, so it’s not like I can say, “Oh, it was the nightmares which caused them!”
The first incident was in the early morning hours. I awoke to myself peeing and ran to the bathroom. I finished, showered, and continued on with my day. No sheets were wet, just my pj’s. I told the Hub and we passed it off as maybe I drank too much water before going to bed, and was in too deep a sleep to fully wake up. Or maybe I was getting an UTI.
But whatever, accidents happen. We never mentioned it again.
The second incident, a few weeks later, I happened to be sleeping on the couch. (So, maybe I lied. Maybe I peed the bed once and the couch once. Hah! So, I’ve only peed the bed once!) I woke up in a virtual puddle. Thank goodness we have dogs and my couch is stain-guarded so nothing really soaked in. I ran to the bathroom, but I had already drained everything; and it was a LOT.
There I was, soaked in pee, in my living room. I cleaned up myself and the couch, and change into something dry. This was 2:00 in the am. I hate being up at that time – we don’t have cable and nothing’s on. I just stood and stared at my couch, willing it to dry faster. The husband woke up and stumbled to the living room “Are you coming to bed?”
I had fallen asleep watching television (I heart The Nanny reruns).
I had to tell him what happened.
We talked about it.
Did I remember the nightmare? No.
Did I drink a lot of anything before I went to bed? No.
Is there pain? Could I be pregnant? Is that even a symptom?
Have I been feeling all right in the brain lately? Any issues maybe that are bothering me that weren’t before? No.
Nothing seems different. Panic attacks seem more frequent lately, and the migraines last longer. That could be because I’m shifting schedules – downs to ups, you know.
Nothing seems to be triggering this new symptom.
Maybe all my other symptoms increasing in number and intensity are just putting my body through hell. Maybe it’s a new thing. Maybe I’ll do it again. Maybe I won’t do it again until I can see a proper doctor (November 2nd). Maybe. Maybe. Maybe. I just don’t know enough about bed-wetting to be sure about anything. (I’m not even sure it’s hyphenated.)
I do know something, though. I know I have someone special in my husband. I know that even after I had cleaned it all up, my husband cleaned the couch. He still waited a day or two to sit down on it. He was so nice about the whole situation, though. He worried about me, and what this new activity means for me. He said he was sorry my broken brain was making my body do crazy things.
To relieve the new anxiety I had facing bedtime, he even cracked a joke and offered to put me out with the dogs for a potty break before bed. No, really, I laughed. It’s all I could do. But I threatened I might pee on the couch again if he made me laugh too hard. And we laughed at that.
And then we went to bed, nervous about what the night might bring.
by Band Back Together | Dec 18, 2018 | Bipolar Disorder, Grief, Help For Grief And Grieving, Loss, Loving Someone With Bipolar Disorder, Mental Health, Murder, Partner/Spouse Loss |
I proposed in 1996.
He’d always said, “If you get the ring, I’ll say yes. ”
I did, he did.
We did in September 1997. We’d been together for 3 years already. We were a good couple, we were happy. I knew his bipolar disorder was manageable, I knew we could conquer anything.
Years passed, new home, new jobs, a lot of loneliness. He worked swing-shift which is not good for a relationship or anyone with mental health disorders.
This is where it is no longer my story…I had an affair, I left him, albeit amicably. We remained friends, he kept it, “in the family” in a round about sort of way.
They had a kid, So did me and my new husband. We spoke on occasion, kept in touch via family.
We each moved forward.
2018, a lot of suicide, celebrities, local people, friends of friends. I thought I should check-in with him but I didn’t.
Time and time again, I didn’t.
I awoke one morning to my husband asking if I knew anyone in a certain neighborhood there’d been a major tragedy.
I did.
I waited until I got to work.
I texted my ex, “What’s your mom’s address?” No response. “Hello?” No response. Messenger dings, My ex sister-in-law. “Can you talk?” I told her that I was at work.
The words:
“His mental illness got the best of him, he did the unthinkable, he killed A, he killed B, he killed C, and A, he took his own life.”
My past destroyed in one night.
He left a child parentless
I have spoken to the child. We connected. I have nothing bad to say about the child’s father.
I loved him, always. We were good together. We grew apart.
I feel I could have helped had he just reached out to me.
He didn’t.
Today 11/15 is his Birthday, I wish him peace on the other side. I know he fought his demons, I know they over ran him in the end.
I still love him, he’s my past, I will, as always, hold him close to my heart.
There were 4 victims that night.
All of them fell victim to Bipolar Disorder, a failing system, and a lack of understanding from those around the one suffering the most.
Today, I will light a candle for your Birthday,
You are missed. You will always be missed.
I will always remember you.
Happy Birthday, RIP, DLP.
by Band Back Together | Nov 27, 2018 | Anxiety Disorders, Bipolar Disorder, Coping With Anxiety Disorders, Coping With Depression, Depressive Disorder, Loving Someone With Bipolar Disorder, Mental Health, Parenting, Parenting Teens, Pediatric Bipolar Disorder, Pediatric Depression, Teen Bipolar Disorder |
How’s Gabriel?
I hear that all the time. There is no simple answer. But answering it is the focus of my daily life. Every day. The real answer is Gabriel’s not OK. Gabriel is Bipolar. His moods shift. Daily. Weekly. Yearly. He is never OK. I spend my days like a detective trying to sniff out any small clue of a mood change, charting, taking notes, observing him. Worrying about him.
He spent 10 months of the last 12 (literally, not figuratively) suicidal, dangerous, aggressive, and explosive. His meds are controlling that a little, but he is manic right now. Which is dangerous in other ways. And his meds aren’t holding that in. They aren’t ‘stabilizing’ him like they are supposed to. And without going into a tirade about doctors, I don’t have a ‘handle’ on this the way I PROMISED myself I would last October. And last May. And last July. You get the point.
The fact that mania seeps out now means that Gabriel is hyper (he isn’t normally at all), he is giddy, inappropriate (laughing, jokes, rude comments, butt jokes, pulling his pants down in front of a friend during a play date, etc), and more likely to jump off the roof (or trick his brothers into doing it) than anything else. Which is, in some ways, better than the dangerous depressive side. However, as October comes to a close, so will the mania, and the bipolar depression will replace my giddy-inappropriate child with one who hates the world. Who hates me. Who hates his brothers. One who is so negative and dangerous that he threatens to take knives to school and kill people. That kid is hard to live with. That kid is hard to keep safe. That kid threatens my sanity and the safety of my other two children.
We have to put him on another medication. A stronger medication. And although our ‘nurse practitioner’ is willing to give him a new medicine now, (they want to put him on Lamictal), my next appointment with his actual doctor, a real psychiatrist, isn’t until November 24.
Yes, the day before Thanksgiving.
Why wait? Because Lamictal has a 1 in 1000 chance of a deadly side effect. A deadly rash that may just start itself in the depth of my son’s mouth where I am less likely to see it. Less likely to be able to get him the immediate medical attention required. That scares me.
And scares my husband. So much so, that he refuses to give our son this drug until we see our psychiatrist. Who we can see the day before Thanksgiving.
So, I will bake pies early this year. And spend the that glorious Wednesday afternoon admiring the artwork on the walls of Children’s Hospital, nervously wondering if I will be rushing Gabriel to the ER with a rash on Thanksgiving day, and trying to hold down all those bites of pie I shoved in my throat in the anticipation of this moment where we are forced to make, yet another, hard decision about our son’s care.
But I have no choice. So we wait.
But the cycling won’t wait.
Depression is nipping at his heels and I am not sure we can out run it.
by Band Back Together | Nov 20, 2018 | Anger, Anxiety, Anxiety Disorders, Attention-Deficit Hyperactivity Disorder, Bipolar Disorder, Child Protective Services, Emotional Boundaries, Family, Fear, Help with Parenting, Loving Someone With Bipolar Disorder, Mental Health, Mental Illness Stigma, Teen Bipolar Disorder |
I don’t remember when reporting of suspected abuse and threat assessments (e.g., suicide risk identifications) became mandatory for educators and counselors. It was before I became a parent, I know that much, and it dawned on me a long time ago that there were probably plenty of reports that resulted from misunderstandings.
About a month ago, while we were in the middle of Princess’ most troubling days, while we struggled to identify and treat her emerging bipolar tendencies, our son, Hoss, ran away from his school and was brought back by the county police. It’s been a long time since he ran away like that, but it brought back memories of the tough times before he was diagnosed with his mood disorder.
One of these elopement incidents was the final thing that sent him to the psychiatric hospital back in the day, and that he’d gone all of last school year without ever feeling the need to escape like that made me feel like we’d made serious progress. Last month’s bolting was not as serious as what we used to see, but he did leave the property.
When the police officer brought him back to the school, they said he’d expressed that he’d wanted to die. As a result, despite the assurances of the school staff with whom Hoss has a history (principal, counselor, psychologist) that he was not actually a danger to himself or others, the police informed us that they would be taking him to the ER for a psychiatric consult. I was told that I would not be allowed to go along until I had spoken with the Mobile Crisis Team.
I spent time with the MCT explaining all of the steps I go through to care for my children and myself (outpatient therapies for the children, family therapy with a social worker with whom all of the family members are comfortable, open lines of communication with the schools, medication monitoring all around) with a response that roughly translated to:
“Okay. That’s exactly what we were going to recommend, so keep on keeping on.”
My husband went to the ER to stay with Hoss, and the evaluation indicated that Hoss’ “I wish someone would just kill me,” was not actually a cry for help, but rather a misstated outburst that is not all that unusual for a nine-year-old boy with ADHD. During the next therapy session, Hoss got an opportunity to talk about how upset he was that he’d been forced to go to the ER when he’d wanted to stay with his sister and I.
While Princess was in the day hospital program a few weeks ago in preparation for the transition back to school (now that we’ve gotten her medication properly titrated), she spoke of her brother’s boundary issues, and how he’s gotten in trouble the weekend before for not keeping his hands to himself.
Part of that boundary crossing included trying to tickle her all over, and missing her stomach by hitting a bit further south. Because we are working with Hoss on respecting personal space as well as just plain leaving his sister alone sometimes, he had to process what he’d done and he had consequences for not acting as he was supposed to.
Princess accepted his apology, since he’d properly identified what he’d done wrong and what he should have done instead. I didn’t hear about the incident until days later, since it happened while I was out of the house and it was no longer on everyone’s mind by the time I got home that evening.
However, the hospital reported the incident to the county, who interviewed all three of my children.
The end result of the interviews (from the point of view of the police and social worker) was that there was no criminal activity or additional cause for concern.
The end result from the point of view of my children was slightly different- Princess feels bad that she got her brother in trouble, Hoss is irritated and slightly grossed out that he “…had to look at pictures of private parts! Even girl ones!” and Little Joe doesn’t understand why he had to answer a whole bunch of questions about body parts and our family and stuff.
I know that mandatory reporting has resulted in abuse being caught before more damage can be done. I know that conducting threat assessments in elementary school may mean that we have fewer young children reacting to their stress by harming or killing themselves.
I understand this, and of course I want those bad things prevented.
I’m just struggling with how this has put me under a microscope when, according to the mental health and educational professionals who know me and my family, I’m one of the good guys
by Band Back Together | Nov 15, 2018 | Abuse, Addiction Recovery, Adult Children of Addicts, Adult Children of Mentally Ill Parents, Adult Survivors of Childhood Sexual Abuse, Alcohol Addiction, Anger, Anxiety Disorders, Bipolar Disorder, Body Image, Bullying, Child Abuse, Child Grooming, Child Neglect, Child Sexual Abuse, Coping With Anxiety Disorders, Coping With Domestic Abuse, Date/Acquaintance Rape, Domestic Abuse, Emotional Abuse, Estrangement, Family, Fear, Foster Care, Healing From A Rape or Sexual Asault, How To Cope With Post-Traumatic Stress Disorder, How To Help With Low Self-Esteem, Incest, Loneliness, Major Depressive Disorder, Mental Health, Mental Illness Stigma, Mood Disorder, Parental Alienation, Parentification, Post-Traumatic Stress Disorder, Preventing Child Abuse, Psychological Manipulation, Psychological Manipulation, Rape/Sexual Assault, Sadness, Schizophrenia, Self Loathing, Self-Esteem, Stalking, Stress, Trauma, Trust |
At the age of 3, my father began sexually molesting me.
At the age of 5, the sexual abuse was replaced by physical abuse from my father and my mother.
At the age of 9, both my mother and father went to rehab for alcoholism.
At the age of 10, I finally knew what it was like to have a home after living in over 200 houses, more than 100 cities, fifteen states, and two countries.
At the age of 14, I was raped by a classmate my freshman year of high school.
At the age of 15, I started working two full-time jobs and single-handedly supporting my family because my parents flat-out refused to work.
At the age of 16, my parents decided to start drinking again. I took on a third job to support their alcoholism.
At the age of 18 I graduated high school at nearly the top of my class.
After my first year of college, I was told that I was not allowed to continue even though I had scholarships because “I wasn’t raised to think I was better than anyone else.”
At the age of 21, I was raped again … by the man who had betrayed me seven years before. My parents told me I deserved it, and was lucky that a man had paid that much attention to me since I was worth nothing. I was diagnosed with Post-Traumatic Stress Disorder.
My birth certificate says that I was born on April 2nd, 1987 at 1:25 p.m.
I was born on March 30th, 2009 at roughly 9:45 p.m. when, at nearly 22 years old, I decided I had been through enough.
I am the adult daughter of two alcoholics who have been diagnosed by multiple mental health professionals as suffering from a variety of mental disorders.
My father suffers from Bipolar Disorder and severe Anxiety. My mother is a Paranoid Schizophrenic. Neither one has any sense of reality beyond their immediate perception of the world, and both are Compulsive Liars.
The man who raped me intimidated and frightened me into a silence I would not break for almost ten years. When I ran into him again, he introduced me to his wife and child as if we were old high school friends.
He contacted me after getting my information through old mutual friends and asked if we could meet to reconcile and so that he could apologize for what he had done. He never had any intention of doing so and in my own foolishness, I met with him and he forced me into the back of a car and raped me … again.
My parents told me I had to be lying, and that if I had been raped then I should consider myself lucky because that was more than I deserved from anyone. When I insisted that I was not lying and needed their help, my father smacked me across the face and broke a chair over my back.
I was almost twenty-two years old at the time and the only thing I remember after that was my youngest sister’s face. She was staring in horror and fear trying to figure out what to do.
I was the only one who stood up to the two of them. I defended everyone. I fought everyone’s battles and kept everyone safe. The thoughts in her mind were clear on her face: Who was supposed to protect me? How could they help me?
I had stayed for years thinking that I was protecting them. In that moment, I realized that if I showed them that all you could do was take the abuse and not actually do anything about it … then one day my little sister was going to be in my position … and no one would be around to help her either.
I didn’t have anywhere to go. I had nowhere to stay that night. I called up a friend and grabbed a ride, and crashed on a couch while struggling to find somewhere to live.
I went through months of endless torture and doubt while going through the trail that put my rapist in jail for what will be a very long time. I changed my address, my phone number, and all of my information so that I could cut ties with the life I didn’t deserve and start living a life that was not filled with fear, or doubt, or regret, or abuse.
Today, I am 23 years old.
I have a home of my own for the very first time.
I have sought counseling for the traumas I have been through in my life.
I have struggled with body image, self-esteem, guilt, and an intense lack of trust in people I care about.
I have cut all ties with my family, stopped supporting them financially, and moved on to start a life of my own.
I have found love in a man who is the best thing to ever happen to me. A man who would never raise a hand to me, who loves me in spite of my demons, and who has already supported and seen me at my absolute worst.
I have found peace.
I am not sharing my story to shock, horrify, or scare people. I am not sharing my story seeking sympathy although it is graciously received.
I am sharing my story because somewhere out there is a man, woman, or child who has faced demons that linger in shadows all around them. They may not feel that they are able to overcome them and they are utterly alone.
I am telling you my story to tell you this:
You are not alone. Ever.
No one is ever alone. There were moments when I wanted to give up and give in. Just tune out and wait for the worst to come so that nothing else as bad could happen. I figured there was nothing that could help or save me. I have been there.
I made it out and I am waiting for you with open arms on the other side. There’s plenty of room here.