6:15 AM – My boy wakes up. Deep inhale. What will the day be like today for him; for us?
8:00 AM – Exhale. The noise deadline our downstairs neighbor has imposed (“Can’t you find some way to keep him quiet?”) has passed. Now he can play in his room.
8:15 AM – Inhale. He is on the bus for school.
Most of this past month I have gotten multiple calls or emails during the morning hours- “He kicked a student,” “He climbed on the desk,” “Other parents are complaining,” “He hit a teacher,” “I’m trying to understand his disorder,” “We really love your son and want to help him, but we may need to discuss a more restrictive environment.”
If those calls do not come by 12:55, when he is in his afternoon small-group special ed. classroom, I can exhale.
4:30 PM – Inhale. Hoping for a smooth homework, dinner, and bath routine.
If all goes well and no one is screaming by 7:00 PM I’ll exhale.
7:30 PM – Inhale. Just a bit longer now – PJs, brush teeth, read story. Melatonin has made this routine so much easier at night, but does extend the stretch of time between wakeup and noise deadline in the morning.
8:30 PM – He sleeps. Deep exhale. He has probably been corrected many more times than he has been praised. He has told me detailed stories about school, Thomas the Train, the solar system, insects. He has gone to therapy yet has not been able to keep his body still for more than five minutes all day. He has called me “cute little Mommy,” but called a teacher’s aide “a moron.” He has gotten along better with his little sister and lost his first tooth. He has heard and spoken the words, “I love you.”
So, I got my medicine adjusted like I said I was going to.
After a hilarious rigmarole of being referred to a doctor who only saw seniors, then one who only saw children, then one who didn’t take my insurance, I finally ended up with a really sweet doctor (who is the tiniest woman I’ve ever met).
She added another antidepressant to the one I was already taking, and it seems to have helped the symptoms in question – I’m still sleeping odd hours, but it’s only for 8-9 hours at a stretch, not 12-14, and my default state is “bored” instead of “bored and sad and mopey and lonely.”
And yet…
(There’s always an “and yet” with mental illness isn’t there?)
(ed note: Yes. – AB)
And yet I’ve not managed to quite nail things down. I’ll stay up late without realizing how late it is, then sleep until 4 or 5 the next afternoon. The new medicine causes insomnia, so I was warned to only take it in the morning. But if I don’t take it when I wake up at 4 PM, then I’ll just sleep even more. If I do take it, I’ll be up all night and sleep late the next day. If I do manage to wake up early and take my medicine, I’m so tired that even the medicine can’t keep me up and I pass out around noon and wake up at 7 PM (which is what happened today).
I just want to wake up in the morning feeling at least somewhat rested and get tired at night being able to fall asleep. Since when is that such a massive thing to ask? If I could just do that AND have my medicine killing off the sadness and apathy, then all I’d have to do is muster up the motivation to do laundry and clean my room and make it look like a human being lives here!
To top it all off, I’m moving to North Carolina within the month. My best friend is moving back into her childhood home, which she inherited when her dad died, and she’s offered to let me live there rent-free if I cover half the bills. Her area has a much better economy than mine, so I could find a job more easily. And there are nearby schools where I could get either an associate’s or a second bachelor’s degree in the field I want to move into.
It’s too good an offer to refuse, so I’m cashing out my savings and heading up there as soon as she gets moved in and ready.
And yet…
What if it all falls apart?
What if I can’t find a good psychiatrist nearby? I don’t even know what my insurance situation would be before I got a job.
What if I get on this same fucked up sleep schedule again and my room stays this messy and I’m awful to live with and she hates me?
What if I still don’t find a job and I burn through all my savings?
What if I get the degree, and take out a bunch of loans to do it, and still can’t find a job even then?
I don’t know. I was so sure for awhile this medicine had made things a lot better, but I sure don’t feel any less afraid.
Until…. that deep dark place got worse. Now we’re fighting every day to keep him out of inpatient hospital stays.
I walk on eggshells when we talk because I don’t know what is going to upset him. I’ve had a continuous migraine for the past five days because just thinking about him makes my own anxiety sky high.
He’s a good kid and has such a good heart – I just don’t know how to help him.
Does anyone have any ideas? I am all out of ideas myself and I’m mentally worn out..
I know I have a better life than a lot of people, and I try to be grateful for it.
I feel guilty when I dwell on my problems: other people have it so much worse: how can I complain? How can I mope around or be depressed?!
Oh how I wish I could talk to someone, to sit in a group and swap stories about burning the inside of our mouths, or panic attacks, or how much it sucks to have to lug all your belongings around in a garbage bag.
But I just can’t.
I have walked past the building where NA meetings are held probably a hundred times, looked at their website again and again, memorizing their schedule, but I can’t bring myself to go.
I’m afraid that people won’t like me because I’ve been clean now for four years, that because now I have a car and an apartment in a slightly decent area of the city, I’ll be told to get over it, to stop whining.
On the other hand, I think, what if I go to a regular counselor and I scare them? What if, when I admit to the time I smoked crack with my pregnant best friend, it’s too much and they kick me out?
What if I get the cops called on me when I admit to all the illegal things I’ve done?
Now I’m surrounded by people that, if they knew what I used to be and what I still am, would go running in the other direction.
I even tried to become an alcoholic for a few months; I drank myself into a stupor everyday, forced it into me until my brain chemistry was so out of whack and my kidneys hurt right through my back.
I still drink – get drunk – by myself, but I have to be careful because it makes my panic disorder worse. I drink just until I feel myself going crazy, stop for a few days, then back at it.
It’s funny, when my brother hanged himself, I was kind of mad that he took that option away from me: you can’t have two kids from the same family both kill themselves!
I’m okay with his suicide, though. I understand it was a planned out thing, so things were obviously pretty bad to get to that point. My brother didn’t speak, though; I was the only one he spoke to until he was about 17, and then he even shut me out.
After a while, I started getting paranoid that he was going to kill me, so I distanced myself from him even further.
I’m pretty alone now.
I lost most of my friends when I got clean, and I’ve moved to a different city since. I hate it here a lot, and most people here are way out of my league education and status wise. I have a few friends from work that I go for drinks with on the weekends, but I can’t really connect or open up with anyone.
I’m afraid to date again; my ex is still too fresh in my mind, and the thought of having to have sex again makes me uncomfortable. I don’t like being touched sexually.
It’s a shame because I would love to have children – they would give me something to focus on, to love and be loved back, without having to be in a relationship.
But I guess as of right now, it’s me, alcohol, and my two darling cats.
I’ve been with my husband for eight years – married for five of them. We have a beautiful four-year old son, three dogs, and a cat. For the most part, we are a happy family.
As long as I’ve known my husband, he’s had these episodes.He loses control, and snaps on everyone and everything in his path. He’s broken windows, phones, end tables, lamps – the list is never ending.
When these episodes happen, the man I married isn’t there.
He’s gone, and something else takes over. He’s told me on numerous occasions that he doesn’t remember what occurs during these episodes.
He can remember the episode, but he doesn’t remember his words or actions. He told his psychiatrist that he almost blacks out when he gets to that point in his rage.
She gave him some more medication, and basically said, “See you in a month.”
He feels worthless, and that makes him angry. He isn’t a talker, but when he does talk I can hear the anguish in his voice.
He says nothing happened to make him the way he is. Nothing terrible – nothing worthy of the rage inside him.
He doesn’t want to be this way, he doesn’t want to be anxious and hopeless and angry and sad.
But he doesn’t know how to stop.
It used to happen when he couldn’t find any weed. Then someone would come through with some, he’d smoke it, and the world would right itself.
That ended with a police escort to the local hospital.
He spent three days there, changing his medication and talking to someone for ten minutes a day. He attended group sessions, and when he came home, he was ready to be better.
It was a week before he had another episode.
And since then these episodes have been happening every 3-5 days. Some are more serious than others. The last time, he threatened to kill himself.
Unfortunately, that isn’t anything new, except that, this time, he also threatened his mother and I.
We’re going to try therapy, but right now, it feels like he’s a ticking time-bomb, set to go off at any second. From the outside, I know it doesn’t look like he’s trying but he is, he really is.
So this is where I need help, The Band:
Do I stay, or do I go?
Do I walk away from my husband because he’s sick? Or do I stay, even if it’s to the detriment of my sanity, and my child’s well-being?
I don’t know what to do and I have no support network.
My son’s father was never in the picture, and my mother is a recovering addict – currently incarcerated. My godmother, the woman who raised me, is dead. I have a brother, but he has no job, and no home.
My best friend was witness to the gun incident, and has mostly given up on me. She told me that I’m codependent, and making terrible choices for my child. She thinks I should leave my husband, like she did. But her husband was an alcoholic – mine isn’t.
My in-laws have been terrific. Any time we need somewhere safe, their home is always open. But they are elderly – one of them is in a wheelchair. I feel I can’t burden them with this. I feel I am making them choose between their son, or their grandson and I.
Where can I go? What should I do? Please, The Band, help me. I feel so alone. I’ve prayed to every god I can think of, and I still feel so lost.
There is no handbook for when you marry someone with mental illness.
We are enjoying a day off. It’s Easter weekend. Reflecting Christ’s sacrifice on the cross. He is cutting up vegetables. He cuts himself and is bleeding everywhere.
Why does he think his needs are more important than mine?
Now, I need to help him feel more comfortable.
Constantly complying. I am not a part of the equation. I have been SPEAKING for years, repeating myself constantly. I don’t ask anymore. I don’t ask for things. I don’t ask for affection. I am living in limbo. Boundless. Floating.
I am invisible.
I need to be released from this responsibility that I’ve been carrying for too long.
For the last eight years we’ve drifted apart, each of our roles were extremely different from the others.
I was primary care taker of the baby, he just worked to not be in pain. He was in and out of doctor’s offices, and in bed most of the time he was home.
He was cold to me. He couldn’t help it. I know.
To me, he had it easy: just relax, lay in bed, watch TV, take medicine, have another useless steroid injection.
Umm… when do I get the debilitating disease so I can sit on my ass all fucking day? I feel trapped, imprisoned.
I had grand expectations that he would complete me, complete my life and it would be this grand ball with dances and tea parties. Our roles are still tragically different, neither supporting one another, neither of us need each other. We are in different places, both have different goals.
We are in the same room, breathe the same air but we’re worlds apart.
The lack of trust and respect – it’s killing us. I cannot trust that he’ll be there. That he’s ALL IN. We’ve been having some good months lately… but soon, that chronic pain will take him and paralyze him again.
And… so here’s the state of our union. I’ve become accustomed to not including him in my day. He’s had so many limitations, so many special needs. He’s never been able to engage, so I forget that he’s there sometimes.
Somewhere between the chronic pain, taking days off for doctor appointments, disappointments, missed opportunities, we disappeared. I stopped trying to make the structure we live in a home. He was too busy or too sick to care. He didn’t want me. I got used to that.
I became hard, and cold. I worked so hard to leave my father’s house only to end up exactly where I started. I try. He tries. We both feel the unbecoming of us though. It was a slow fade to black.
I’ve veered on a divergent path and, if I’m being honest, I don’t care if he follows or goes in the opposite direction.
These days, the only real way I can relate to men is if they are anonymous, objectified, and made common.
Maybe if (they or) I become more anonymous, objectified, common, I don’t have to engage. I can pay to play. I can pay to heal in a way. I can acquit myself of the emotional debt.
