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I Just Wish Someone Understood…

by | Oct 19, 2018 | Anger, Anxiety, Anxiety Disorders, Attention-Deficit Hyperactivity Disorder, Autism, Bipolar Disorder, Bullying, Child Protective Services, Childhood Bullying, Coping With Bullying, Depression, Family, Feelings, Guilt, Impulse Control Disorders, Loneliness, Major Depressive Disorder, Military Deployment And Family, Obsessive-Compulsive Disorder, Oppositional Defiant Disorder, Pediatric Caregiver, Sadness, Uncategorized | 2 comments

A wise woman told me to write up my story and tell the hell out of it.  So, here I am.

Sometimes, I feel like I have the only kid like mine. My son was diagnosed between 3 and 4. He is one of 3 I have, with special needs. For the time being, I’m focusing on my oldest.

We knew something was not right with him. He threw an 80 lb. mattress across the room at me. How does a 3 year old do that? He never slept. He would have meltdowns and throw things at me. I have gotten black eyes from everything from a book to an army boot to the back of the head.

Thankfully, I had a wonderful doctor tell me how to deal with the meltdowns and those came less and less often. However, he would wander. We had two incredibly scary events where he wandered off when he was 5, but he had angels and off duty police officers watching out for him.

When we got the Autism diagnosis, I knew nothing about Autism. Most people equate it to the movie Rain Man. I had never seen the movie so I had no clue. All I knew was Doug Flutie, an NFL football player, had a cereal that’s proceeds went to autism awareness. The only reason I knew that is because I saw the commercial once while my husband was watching a game. That’s all I knew.  Nothing else.

So, the journey was rocky and hard.  The first year my husband was stationed in Korea, so he was not around to learn what I did.

I relied on “friends” I thought that I had to help. Instead, I got investigated by CPS (child protective services) for making everything up. The only thing that was founded was that I was stressed. (Gee no idea why???)

My son’s first year in school was horrible. Open classroom and he would have meltdowns. They did not want to deal with him, so 5 out of 5 days he went to school, he was sent home early. I had no idea what I was supposed to be doing or how the school should have been handling him.

Thankfully, the school he was moved to had a wonderful Spec Ed teacher that knew what she was doing, to this day, I will still kiss the ground that she walks on.

He improved and stayed in school. Had messy moods and lack of sleeping so we had to join the medicine bus. So many doctors and specialists, “you should do this” and “don’t do that and this and that.”

The kid is a loving, sweet amazing kid. He has a hard time showing that. He has many co-morbidities along with his autism. ADHD, ODD, Anxiety, depression, hypermobility, OCD, etc.

In our journey with him, we realized he wasn’t like most kids with autism. So many can use an iPad and it’s nothing. A phone and no problem. With my son, he can not tell the difference between reality and what’s on the iPad or phone. We tried. We tried so many times, so he could be like his friends or brothers. But it ultimately turned out so, so, so, so bad.

When he was 11 a child that bullied him at school told him that triple x rated stuff on the internet was bad and if you looked at it you were super special because not everyone’s computer can look at it. Ever since that day, my son has been fixated on it. At 11 he had no idea what it was, just that it was special and not everyone could see it. As he grew into puberty it got worse and worse. I still don’t think he knows exactly what its supposed to mean to a person, because his thinking age is around 10, but he knows its bad, he’s told his therapist it’s bad. He’s tried to look at it on the internet at school.

We had everything on our cable blocked so that he could not watch it or order it and somehow he got around it and we had a $900 bill.  (I’m still drinking coffee to cope with that one)

Now he’s in a dark, dark place. He’s obsessed with death. He writes and writes and writes about death scenes. Then he tears them up. He talked to his therapist, but he sees no problem. We can not even let this child watch cop TV shows it’s that bad. Nothing to do with magic, or death.

My husband and I have been watching his behavior as of the last 2-3 months and I’m not liking what I see. Neither does my husband.

His moods are very erratic. One minute he’s happy, the next he’s angry and ready to fight. Then he’s happy. (Note: he has not touched a soul, just has gotten angry with words) These mood changes make me think he’s bipolar. We were warned that he probably was a few years ago. We knew it was coming.

Now we’re questioning the doctor, because my husband and I are so completely and mentally drained from dealing with his moods and trying to keep his brothers from upsetting him. The doctor is trying to tell us that he’s making it all up and that we just have to deal with it. My first thought, no lie, was, “The fuck you mean deal with it? I’ve BEEN living with it! We came to you for help on how to KEEP dealing with it, asshole!”  I, of course, did not say that, because I was too tired.

This kid has been in-patient 7, lost count after that, times for being bullied and being suicidal. I’m scared to death something is going to set him off. Granted all sharp instruments are kept under lock and key. We continue to try and understand what is going on, but our son can not tell us because he does not remember the mood swings.

His doctor said, because he does not feel bad for being angry and mean, he is not bipolar. DUDE, he’s autistic, he’s not going to feel bad.

I had 2 major surgeries and he bumped what I had surgery on, I started crying and he didn’t give two craps. That does not mean he’s not bipolar!

It’s hard to keep him busy. He gets bored with puzzles and crosswords and TV, because we have seriously toned down everything that he can watch. I’m just at a loss on where I should go from here. There’s probably a lot I left out of his story, I’m sorry for that.

Here’s another twist on his story. He legit thinks he’s from another dimension. He thinks he is a female from another dimension, that he will leave to find when he is 18 years old. There are artifacts all over the world that he has to collect in order to remain safe in this other dimension. He thinks that the here and now is just temporary. Because of his beliefs with this, he can not watch or read anything that involves fantasy. Because he can not and will not be able to tell the difference between what is real and what is not.

His therapist and I had a long talk today about it. I had to stop from bursting into tears, because I have never heard of another child like mine. I explained that to him and asked what do I do. He said I do what I’m doing… Be mom.

It did not help when he said that in the 13 years that he had been doing what he does, he had never met another kid like my son.

Sometimes, being a mom is rough as hell when it feels like no matter what you do, it’s out of control. You know all those books you read before you have kids?  I never read any chapters on Autism or special needs and I sure as hell never read any on how to deal with this kind of life for your child.

I guess I should add that I am dealing with my own depression and anxiety right now. My anxiety is off the charts and my shrink threw me into counseling. Didn’t even ask just threw me in. I also have a chronic illness and it flares up in the form of pain when I’m extremely stressed out, the last 3 months I’ve gotten little relief.

It’s sad to say at this point, I’ll deal with me as it comes. I just want my son to be okay. I know I need to worry about me, too. If he is okay, then I can be okay.

Basically, I’m writing this because I just need to know I’m not alone. I’m so tired. My gut instinct with this kid is never wrong. My gut says he needs help with this anger thing and his doctor is being stupid.

I Can’t Heal From This

by | Oct 17, 2018 | Abuse, Anger, Anxiety, Anxiety Disorders, Coping With Anxiety Disorders, Coping With Depression, Coping With Divorce, Coping With Domestic Abuse, Domestic Abuse, Emotional Abuse, Emotional Boundaries, Fear, Generalized Anxiety Disorder Resources, Guilt, Healing From A Rape or Sexual Asault, Helping Someone In An Abusive Relationship, How To Cope With Post-Traumatic Stress Disorder, Intimate Partner Rape, Intimate Partner Rape, Major Depressive Disorder, Marriage and Partnership, Marriage Problems, Post-Traumatic Stress Disorder, Psychological Manipulation, Psychological Manipulation, Rape/Sexual Assault, Sexual Addiction, Sexual Coercion, Stress, Trauma | 3 comments

Three years ago, my husband attempted to rape me. I didn’t really think of it that way at the time. I did shove him off me with a hand to his throat, and he was extremely angry. A few months later, he completed the rape.

He’s always been terrible with boundaries and when I would say no to sex, he would keep trying until I gave in. I didn’t like it, but didn’t recognize it as anything more than annoying.

It was a red flag I guess, but didn’t seem like “real abuse” because I wasn’t being harmed.

After he raped me, I slowly spiraled downward.

We did marriage counseling. I did individual counseling. Still, I wound up checking myself into a psych hospital with severe post-traumatic-stress-syndrome, anxiety, and depression.

We have managed to stay together, but, as you’d expect, It hasn’t been easy.

He still struggles with boundaries, which are obviously so important to our relationship. Unfortunately, he will touch me sexually even after I’ve explicitly said that I don’t want to be touched that way (when my anxiety is at a high I do not want to be touched at all; much less sexually).

He’s started having sex with me in his sleep despite me saying no – when he’s aware of what’s going on he stops, thankfully. When he is very much in the mood, he won’t come to bed with me because he’s afraid he can’t control himself. I suppose I should just be grateful that he stays away but I  don’t like hearing him say he can’t control himself. It freaks me out.

He has been (for the most part) patient and understands why I’m like this now. He’d do absolutely anything to make me happy.

I feel guilty because a large part of me hates him. He has told me that he doesn’t think about the rape unless I’m struggling, which is devastating to me. Something that changed me at my core so much. Traumatized me. Destroyed trust, my ability to enjoy intimacy, gave me massive, crippling anxiety and he…?

He doesn’t even think about.

We are in marriage counseling again; but we haven’t yet told the counselor what happened.

We’ve only had two sessions so far, and I haven’t been ready to discuss the rape.

The counselor is giving us all these tools to work on things and I just…I don’t know. I don’t know how to make it work.

I can’t afford to care for my kids alone. I’m a stay-at-home mom, no good work experience, no family to help me out. I MUST make this work.

And my husband really does try to make me happy and I feel so guilty that he can’t.

I will never be the same again.

Part of me wishes to just end it all and escape the constant anxiety and feeling like I will never get better. Don’t worry; I would never do that to my children.

I’m just struggling with so many feelings of anger, sadness, depression, stress, and frustration.

My husband used to be my best friend. We get along pretty well now, but I just can’t see him romantically again.

Can we make this work?

 

Antepartum/Antenatal Depression

by | Oct 16, 2018 | Anxiety, Anxiety Disorders, Blended Families, Coping With Anxiety Disorders, Coping With Depression, Family, Fear, Guilt, Hope, Loneliness, Love, Major Depressive Disorder, Pregnancy, Prenatal (Antenatal) Depression | 0 comments

The only thing I’d wanted was another baby.

So when, after meeting a good guy, marrying him and buying a house in the suburbs with a yard (like I was Suzie-freaking-Homemaker), I found myself knocked up once again just like I’d wanted, I couldn’t begin to understand why I was so miserable. After living through my first pregnancy — something that can only be described through a particularly bad country song — raising an autistic child, escaping my alcoholic parents and finally having another baby, this time the way I thought it was “supposed to be,” my feelings were beyond bizarre to me.

Certainly, my life was stressful. But my life has always been stressful. I’d had to quit my job and money was tight, something my new husband worried about often and loudly. When we’d moved to the ‘burbs, we’d left behind our friends so my support system of single friends was gone. We’d occasionally talk on the phone but it became more and more obvious that we were no longer on the same page. It stung more than I’d thought it would.

Day after day during this pregnancy I sat alone on the couch, or praying to the porcelain gods, while my husband worked 14-hour days. My distant son, never a source of emotional comfort anyway, was in school all day. These were the days before I’d adopted the internet as Your Aunt Becky, so I was Becky, As Herself. I had no one to confide in, no Band of Merry Pranksters to confess my feelings to, and now neatly severed from all of my support systems, I floundered.

I’d been depressed before, but the feelings I was experiencing were new. I felt like I was mired in quicksand, rooted in one spot, unable to move forward. Always a social beast, I could barely leave my house. A simple phone call became too much to handle. The isolation bred isolation and now a trip to the store exhausted me for days beforehand and afterward.

It was all I could do to get out of bed in the morning.

Sleep was an elusive mistress. Night after night, as my son churned in my belly, I tossed and turned, unable to ever fall into that deep REM sleep that the doctors insist we need to survive. I remembered that sleep deprivation was a technique that soldiers used on POW’s to drive them slowly insane, which was precisely what was happening to me. Each morning, I dragged myself out of bed, unrefreshed and sad, filled with a sense of impending doom.

Finally, untrusting of my OB, I turned to Dr. Google for advice. While I wasn’t yet Your Aunt Becky, I was a blogger and I knew that the beauty (and horror) of the internet is that there’s always one soul that no matter how depraved you’re feeling, can sympathize with you. Setting my search to “antepartum depression,” I was confident that I would find something.

Nothing came up. Well, okay, there were a couple of things, but mostly with “antepartum” and “depression” mentioned in the same article.

Not exactly helpful, Dr. Google.

Fine, I thought. I’m a freak.

Ben, my first, had been born after Andrea Yates had her bout with postpartum psychosis, so I’d had no end of pamphlets shoved at me to help me combat any urges to hurt myself or someone else after he was born. We’d studied the spectrum of postpartum mood disorders in nursing school as well. But antepartum depression was a big question mark.

So what did I do? NOTHING. I wore a groove on the couch where I sat miserable and sad until my second son, Alex, was born squalling and healthy. Almost instantly, my mood improved.

When I got pregnant with my daughter, I expected the antepartum depression to return and it did. By this time, I had become Your Aunt Becky and shared my troubles with my Pranksters. Many stepped up and said that they, too, had experienced the same types of feelings. It was wonderful to feel less alone; less like a circus freak. I went onto an SSRI in my second trimester to try to combat the antepartum depression, but even with that on board I didn’t feel much better. Pregnancy, it seems, doesn’t agree with me.

What shattered me was after I shared my experiences about antepartum depression, the usual search terms that brought people to my blog (boring things, aunt becky sucks, mommy wants a vodka) were replaced by these: “antepartum depression,” “depression during pregnancy,” and “sadness in pregnancy.” Knowing that there were other women sitting on their own couches struggling the way I had broke my tiny black heart into a billion pieces.

The isolation I experienced was devastating and while I ended up walking away from the experience with only a little darkness on my back, I hate to imagine others out there suffering the way that I did. I’m thrilled that postpartum depression has gotten so much support. It should get all that it does and more. Women supporting other women is beautiful. I want antepartum depression, which they now call antenatal depression apparently, to get some of that support, too.

I hope that for the next pregnant woman who sits on her couch, crying and feeling as desperately alone as I did, I hope that she can find the light.

Because there is light. And it is so, so good

Because It Was Grassy And Wanted Wear

by | Oct 15, 2018 | Anger, Anxiety, Compassion, Family, Feelings, Forgiveness, Grief, Help For Grief And Grieving, Loss, Murder, Parent Loss | 14 comments

I will never forget that sound.

The crunching of the packed snow beneath my feet, dissonant with the throbbing in my ears from my racing heart.

He sought me out. He wanted my forgiveness. Wanted to talk to me…to see in my eyes that forgiveness was even possible.

I sought out a safe place to meet him. Though I knew with certainty that he wouldn’t physically harm me, I feared for my emotional safety. My aunt provided that shelter.

Fourteen years prior, he shot my father twice and killed him.

I was two. And in an instant, fatherless.

As I reached to open my aunt’s door, I was stuck between two places. In that moment, with my hand clenching her doorknob, I could move forward or I could retreat. There simply was no in between.

I pushed the door open and the heat from my aunt’s house engulfed me.

He was there. Sitting at the table. I greeted my aunt, shed my coat, and sat opposite him at the table. And I waited.

It wasn’t my turn to talk.

He apologized. His words were much what I expected them to be. I knew the story…the reasons why he did what he did. They had been the best of friends.

I can still see him, rubbing one of his hands with the other, worrying his skin raw.

But his eyes? His eyes expressed his sorrow and remorse in a way that his words never could.

I’m not sure I have ever seen eyes as soft as his were in that moment as he sat there, stumbling over his words, looking to me for encouragement to continue speaking.

I let him speak until he was completely deflated…words expelled like air from a balloon overfilled to near bursting.

There was a familiarity about him. Some part of my brain remembered him.

In that moment I was left to make a choice. To forgive him or to hang onto my anger and hurt, polishing it until it gleamed with bitterness.

It was the moment to choose whether to set him free of his burden or take that opportunity to make him pay. To crush his hopes for a release from even a small part of his guilt.

I didn’t hesitate for a moment. I forgave him.

I made a choice that freed us both.

The easy, predicable choice would have been to hold my anger close, fueling it with thoughts of all that had been ripped from me.

The more difficult choice was to forgive him, to recognize that he was human and that relinquishing my anger would bring me peace unlike anything I had ever known.

His life was already broken. He would never be the person he was before he killed my father.

But my forgiveness? He sat there and asked it of me.

And offering that it to him was truly the fork in my road.

The Road Not Taken — Robert Frost

Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood
And looked down one as far as I could
To where it bent in the undergrowth.

Then took the other, as just as fair,
And having perhaps the better claim,
Because it was grassy and wanted wear;
Though as for that the passing there
Had worn them really about the same.

And both that morning equally lay
In leaves no step had trodden black.
Oh, I kept the first for another day!
Yet knowing how way leads on to way,
I doubted if I should ever come back.

I shall be telling this with a sigh
Somewhere ages and ages hence:
Two roads diverged in a wood, and I–
I took the one less traveled by,
And that has made all the difference.

*The decision to forgive this man who destroyed my family was my choice. This was the right choice for me. If I were my grandmother, grandfather, uncle, aunt, or mother, I can’t say that my choice would have been the same. That is impossible to know. I can only truly know what is best for me. I love my family beyond words and their strength astonishes me to this day.

DX

by | Oct 12, 2018 | Asperger's Syndrome, Autism, Emotional Regulation, Faith, Fear, Feelings, Happiness, Hope, Love, Medical Mystery Tour, Self Loathing, Sensory Processing Disorder, Shame, Stress | 4 comments

DX

Even
zen
ranked
by
the
most
gentle,
retro,
revisionistic
rubrics,
despite
socially/
developmentally-
delayed
features;
I am an adult.

Full
disclosure:
at best,
I am
a
youngy-
old
woman.
No
longer
on
the
oldish-
side
of
young,
travel
with
ID
unnecessary;
no
one
cards
me.

Perhaps,
it’s
more
simple
and
I
am
just
another
old
adult,
certainly
past
the
typical
season
for
continental
shifts
in
identity.

Chronology
aside
however,
‘round
about
Thanks-
giving,
2016,
it
occurred
to me,
that
I
couldn’t
pass
as
“normal,”
even
to myself.

Even
though-

I.
Tried.
Everything.
I
knew
or
read
through
systematic
trials.
I
recorded
data,
analyzed
results,
and
controlled
indicated,
variables
to
adjust
test
method
parameters.

Thread
worn
as
baba’s
mop
rag,
I
wrung
every-
possible
suppositional
drop
from
these
experiments.

Perpetually,
I
tried
to pass
as
relentlessly,
and
intensely
I
was
labeled
INTENSE
(not in
a
good way,
mind
you).

Usually,
when
I
really
want
to
create
meaning
to
pattern
change
and
route
exodus
from
conditioned
parameters,
I
produce
results,
however
modest
or
slow
to norm.

NOT
SO
THIS.

A
random,
variable,
X
unelected,
undesired,
outs me
vulnerable.

Despite
therapy,
education,
career,
marriage,
blessed
children,
forever
wanted,
I
could
not
pass.

People
noticed.

Colleagues,
my husband,
our
children,
dear
friends
networked
consensus
as
viral
tumbler
that
confirmed
me
odd.

Random
reblog
notes
something
about
me
off,
and
a
little,
shiny
bit
that
bends
light
in
chaotic
angles
that
sort
‘a
squint
their
eyes
shut.

Not
much
was
said
to
me
directly,
and
yet,
I
could
often
sense
recoil
when
they
reached
for
their
sun
glasses
or
threw
shade.

Such
relational
signals
torqued
my
analysis
into
hyper-
drive.

To
know
why
transformed
want
into
need.

Security
risks
recalibrate
my
research.

Dire
internal,
tornado
warnings
broadcast
evacuation
drills
like
gubernatorial
orders:

Develop
safety
protocols
to
protect
children
from
collateral
damage.

The
nuclear
family
that
raised
me
ran
a
mill,
union-
workers
manned
24/7
shifts.

Its
conversion
process
fed
my
faulty
chips
directly
into
the
assembly
line’s
ravenous
maw
to
produce
pulp
prose
that
proves
there
is
something
wrong
with
me.
Like
an
errant
piece
of
code
that
breaks
the
smooth
build
of
family
unity,
my
bark
rejected
as
unusable
fibres
darken
the
pulp.

Such
systematic
feed
back
loops
identified
me
as
the
system
glitch.

Pop-up-
error-
messages
in
resplendent
bold,
ALL
caps
print
included
stop
signs
to
confirm
same
on
my
laptop.

Their
attempts
to
upgrade
my
operating
system
downloaded
constant
commands:

“If
you
get
your
ass
off
your
shoulders”

“If
you
try
hard
enough,”

and

“If,
and
only
if,
YOU
GET
OVER
YOURSELF
and
LET
IT
GO
ALREADY,
R
E
A
L
L
Y,
For
God’s
Sake,”

“Only
then
will
you
be
normal,
better
company,
and
easier
to
get along
with,”

and

“Clearly,
you
aren’t
REALLY
trying,
or,
at the
very
least,
not
trying
HARD
enough
to
get
it
right.

Over
time,
it
also
became
crystal
clear
that
I never
did.

Get
it
right.

Not
EVER.

Fast
forward:
to
now
and
my
own
family
God
gave:
Our
precious
homestead
no
longer
could
bear
X’s
collateral
damage.

I
wanted
for
my
children
more
of
a
mother
than
what
I
could
tender.

Despite
my
known,
know,
knowing,
knowledge,
discord
clashed
outcomes
I had
methodically
deleted
from
my
user
profile.

So,
I
got
me
a
good
psychiatrist,
who
asked
hard
questions.

I
loathed
my
deficits
more
fiercely
than
my
capacity
to
love
my
husband
beloved,
or
our
four,
precious,
innocent,
children.

Tuesday,
January
31,
2017,
two
days
shy
of
Punxsutawney
Phil,
Seer
of Sages,
eye-
spied
his
shadow
in forecast
of
six more
weeks
of
winter

Clinical,
empirical,
objective,
reproducible
data…

(_least my
blended
parents
all
believe
I
am
making
this
all up,
again-)

…identified
me
as
an
adult,
late
in life
dx’d
on
the
autism
spectrum.

Relief
drenches
rain
upon
an
arid
oasis,
splashes
reprieve,
and
puddles
tears.

I am
NOT
a
fucked-
up,
broken,
damaged.
not-good-enough,
shameful
excuse
of a
daughter,
woman,
wife,
or
mother.

There
is
a
reason
and
name
for
why
I
cluster
cognition
like
constellations
pattern
stars
across
the
night
sky.

Abject
release
falls
Niagara
baptism
and
washes
me
clean.

I
am
undone
amid
the
rabble
pile
deconstruction,
my
identity.

A new
frame
raises
my barn.

I got
a
lot
to
hammer
out.
Likely
may
whack
an
errant
thumb
along
the way.

Yet,
tonight
Thursday
September 4, 2018,
as I
lay me
down
to sleep,
and
pray
the
Lord,
my
soul
to
keep,
I
lift
prayers
of thanksgiving.

Our
Father,
who
art
in
heaven,
may
it
be
Your will
that
this
dx
allows
me
liberty
to
live
out
and
be
who
You
made
me.

This
changes
everything
I
ever
knew
anew.

I am
more
grateful
than
anything
I can
si-
mul-
tan
e-
ous-
ly-
list
in
metacognitive,
pull-
down-
menus-
streams
list,
or
smells
shout
colors.

I
am
by
Your
design
made;
I
dwell
in
possibilities.

Hallelujah!