There is a picture of me, somewhere out there, probably still on my dad’s phone unless they’ve turned into Christmas Card people, in which case, the picture is most definitely out there in the world for all to see.
I hope it is not.
I didn’t see the picture until I was 5 months sober, staying in the unfinished basement at my parents house, grateful that I was no longer homeless, while I hunted for a job. Before this, I’d been staying there after a stint at a ramshackle, rundown motel, the kind of place you probably could dismantle a dead body, leave the head on the pillow, and no one would think anything of it. But it was my room, and despite the lice they gifted me, I loved it. Until money dried up and suddenly I was, once again, homeless. I’d moved in there after I was discharged from the inpatient psych ward, in which I was able to successfully detox after a suicide attempt. Got some free ECT to boot.
(WINNING)
Despite what you see on the After School Special’s of our childhood, I didn’t take a single Vicodin, fall into a stupor, and become insta-addict – just add narcotics! No, my entry into addiction was a slow and steady downward spiral of which I am deeply ashamed. It’s left my brain full of wreckage and ruin, fragmented bits of my life that don’t follow a single pattern. Between the opiates, the Ketamine, and the ECT, I cannot even be certain that what I am telling you is the truth; what I’ve gathered are bits and pieces of the addict I so desperately hate from other people who are around, fuzzy recollections, and my own social media posts.
About a year and a half before I moved from my yellow house to the apartments by the river, Dave and I had separated; he’d told me that while he cared for me, he no longer loved me. While we lived in the same house, we’d had completely separate lives for years, so he moved to the basement while I stayed upstairs. I’d been miserable before his confession and after? I was nearly broken. Using the Vicodin, then Norco, I was able to numb my pain and get out of my head, which, while remarkably stupid, was effective. For awhile.
Let me stop you, Dear Reader, and ask you to keep what I am about to say in mind as you read through this massive tome. I’m simply trying to make certain that you understand several key things about my addiction and subsequent recovery. I alone was the one who chose to take the drugs. No one forced me to abuse opiates, and even later, (SPOILER ALERT) Ketamine. This isn’t a post about blaming others for my misdoings, rejecting any accountability, nor making any excuses for the stupid, awful things I’ve done. I alone fucked up. My addiction was my own fault. However, in the same vein, no one “saved” me but myself. There was no cheeky interventionist. No room full of people who loved me weeping stoically, telling me how my addiction hurt them. No letters. Nothing. It was just me. I was alone, and I chose to get – and remain – sober.
The delusions started when I moved out, sitting in my empty apartment alone, paralyzed by the thought of getting off the couch to go to the bathroom. Always a night-owl, I’d wake at some ungodly hour of the morning, shaking. It wasn’t withdrawal, no, it was pure unfettered anxiety.
It was the aftermath of using so many pills, all the fun you think you’re having comes back to bite you with crippling anxiety and depression.
Which is why I’d do more.
Yes, opiates are powerful, and yes, I abused them, but things really didn’t become dire until I added Ketamine to my life.
Ketamine, if you’re unaware, is a club drug, a horse tranquilizer, and a date rape drug. You use too much? You may wake up at some hipster coffee bar, trying to sing “You’re Having My Baby” to the dude in the front row who may or may not actually exist. In other words, it’s the best way to forget how fucked you are.
The delusions worsen as time passed. I could see into the future. I could read your mind. I was going to be famous. I was super fucking rich. In this fucked-up world, I could even forget about me, and the life that I’d so carelessly shattered. I remember sitting in Divorce Class at the courthouse, something required of all divorces in Kane County, weeping at all that I’d thrown away – using a total of three boxes of the low-quality, government tissues. I left with a shiny pink face and completely chapped nose and eyes that appeared to be making a break from their sockets. I went home, took some pills, took some Ketamine, and passed out.
I retreated ever-inward. I didn’t talk to many people. I didn’t share my struggles. I was alone, and it was my fault.
The hallucinations started soon after Divorce Class ended and my ex and I split up. He’d left my house in a rage after a fight and went to live with his sister. I got scared. His temper, magnified by the drugs, the hallucinations, and the delusions, grew increasingly frightening. Once he’d moved out, the attacks began. I’d wake up naked in my bedroom, my body sore and bruised, and my brain put the two unrelated events together as one – he was attacking me. It happened every few days, these “attacks,” until I found myself at the police station, reporting them. I was dangerously sick and I had no idea.
My friends on the Internet (those whom I had left), sent me money for surveillance cameras. I bought them, installed them – trying to capture the culprit – and when I saw what I saw, I immediately called the police and told them the culprit.
The videos in my bedroom captured an incredibly stoned, dead-eyed, version of myself, violently attacking myself, brutally tearing at my flesh. In particular, THAT me liked to beat my face with one of my prized possessions – a candlestick set from our wedding, take another pill or hit up some Ketamine, then violating myself with the candlestick. It lasted hours. I’d wake up with no memory of events, sore and tired and unsure of how I’d gotten there.
I’d never engaged in self-injury before – not once – so the very idea that I’d hurt myself was unbelievable, but right there, on my grainy old laptop, was proof of how unhinged I’d become. Charged with filing a false report, I plead guilty.
In early September of 2015, I decided to get fixed, and made arrangements with work to take a few weeks off to do an inpatient detox, and, for the first time in a long time, I woke up happily, rather than cursing the gods that I was still alive.
It was to be short-lived.
Several days later, sober, I was idly chatting with my neighbor about her upcoming vacation (funny the things your brain remembers and what it does not), standing by my screen door, when karma came calling. It sounded like the shucking noise of an ear of corn, or maybe the sound that a huge thing of broccoli makes when you rip it apart – hard. It felt like a bullet to the femur. I crumpled on top of my neighbor and began screaming wildly about calling an ambulance, yelling over and over like some perverse, yet truthful, Chicken Little: “my leg is broken, my LEG is broken!”
I don’t remember much after that. I woke up in (physical rehab) and learned that my femur (hereafter to be called my “Blasfemur,”) had broken, fairly high up on the bone, where the biggest, strongest bone in your body is at its peak of strength. Whaaaa?
The doctors and nurses shrugged it off my questions, with a flippant “It just happens” and sent me home, armed with a Norco prescription, in November, to heal. I added the Ketamine, just to make sure.
A couple of weeks later at the end of November, I was putting up the Christmas tree with the kids and my mother. It was all merry and fucking bright until I sat down on the couch and felt that familiar crunch. Screams came out of me I didn’t know were possible, but I’d lost my actual words. My mother stood over me yelling “what’s wrong? what’s wrong?” and I couldn’t find the words. I overheard her telling my babies that I was “probably just faking it” as she walked out the door, my screams fading into an ice cold silence. They left me alone in that apartment where I screamed and cried and screamed. Finally, I managed to call 911 and when they asked me questions, all I could scream was my address.
I woke up in January in a nursing home. When I woke up, I found myself sitting at a table in a vast dining room, full of old people. For weeks to come, I thought that I’d died and gone…wherever it is that you go.
This time, I learned, my (blas)femur and it’s associated hardware had become infected after the first surgery, which weakened the bone, causing it to snap like a tree. They put me all back together like the bionic woman, but the surgery had introduced the wee colony of Strep D in the bone into my bloodstream, creating an infection on meth. I’d been in a coma for weeks. Once again, I learned to walk, and once again, I was sent home in late January with another Norco prescription. The nursing home really wanted me to have someone stay with me to help out, but I insisted that I was fine alone. In truth, I had nobody to help me out, but was far too ashamed to tell them.
The picture I referenced above was taken some time in May, as far as my fuzzy memory allows me to remember, after my third femur fracture in March. This time, I’d been so high that I fell asleep on the toilet and rolled off. Glamorous, no? Just like Fat Elvis. Luckily, my eldest son was there and he called 911 and my parents to whisk him away. I remember my father on the phone, telling Ben that I was a liar and I was faking it. I was swept away in the ambulance for even more hardware, and finally? A diagnosis:
HypoPARAthyroidism.
It’s an autoimmune disease that leaches calcium from the bones, resulting in brittle bones. It is managed, not treated. There is no cure.
But, I had the answer. Finally.
After my third fracture, I once again was sent to the nursing home, and quickly discharged with even higher doses of Norco, when my insurance balked, I’d used up all my rehab days for the year. By this time, I’d lost my apartment, my stuff was in storage (except the things that we’re thrown away, which my father gloated about while I was flat on my back) and my parents let me stay with them, which was about the only option I had. They couldn’t really kick me out if my leg was only freshly attached. I feel deeper into a depression, self-loathing, and drug abuse as I realized what a mess I’d made with my life. How many bad choices I’d made. How many people I’d hurt. How much I’d hurt myself. How much I loathed myself. How I once had a life that in no way resembled sleeping in my parents dining room. How I’d been a home owner. How I’d been married. How lucky I’d been. How I threw it all away. My life turned into a series of “once did” and “used to.”
The only one who hated me more was my father.
While we were once close confidants, in the years after my marriage to Dave, his disdain had become palpable. My uncle had to intervene one Christmas, after my father mocked me incessantly for taking a temp job filling out gift cards while I was pregnant with Alex. It may seem normal to some of you, this behavior, but in THEIR house, NO ONE was EVER SAD and NOTHING was EVER WRONG. WASPs to the core, my family is.
When I moved back in, broken, dejected, and high, our fights became epic. For the first time in my life, I stood UP to one of my parents. Then, I was promptly kicked out.
Guess I’m not so WASPy after all.
I want to say that the picture was taken around May of 2016, but my estimate may be thoroughly skewed, so if you’re counting on dates being correct and cohesive, you’ve got the wrong girl.
This is a picture of me, though you probably wouldn’t recognize me. I am wearing the blue scrubs that you associate with a hospital: not exactly sky blue, not teal, not navy, just generic blue hospital scrubs. These are, I remember, the only clothes I have to my name. I was given them in both the hospital and the nursing home, a gift, I suppose, of being a frequent flier, tinged with a bit of pity – this girl has no clothes, we can help. Whomever gave them to me, know that you gave me a bit of dignity, which I will never forget. Thank you.
I am wearing scrubs, the light of the refrigerator is slowly bleaching out half of my now-enormous body, as opposed to the darkness outside. There is a tube of fat around my neck, nearly destroying any evidence of my face, but if you look closely, you can make out my glasses, my nostrils, my hair cascading down. My neck is stretched back at nearly a 90 degree angle from my body, my head listlessly resting on the back of my wheelchair. My mouth gaped wide, which, should I been engaging in fly catching, would have netted far more than the average Venus flytrap. I am clearly, unmistakably, and without a single shred of doubt, passed the fuck out.
It is both me and not me.
High as i was, I don’t remember a thing about the photo being taken. But there I was, in all my pixelated glory.
By the time I saw the photo, I was once again in my “will do” and “can do” space. I’d kicked drugs in September 2016 and had found a job that I enjoyed. I stayed with my parents while I began to sort out my medical debt and save toward a new car and an apartment of my own. My spirits were high, my depression finally abated to the background, and I was tentatively happy. I’d apologized until my throat was sore, but my fragmented memory saved me from the worst of it, but I was not forgiven. I don’t think I ever expected to be. And now, I never will.
It’s okay. I can’t expect this. I know I fucked up.
My father, who’d actually grown increasingly disdainful of me, the more sober and well I became, confronted me when I came home one day after work, preparing to do my AFTER work, work.
My mother shuffled along behind him, Ben, the caboose. All three of them were in hysterics, tears rolling down their cheeks as I sat down in my normal spot on the couch. After showing them a video of two turtles humping a couple of days before, I eagerly waited to see what they were showing me.
What it was was that picture. Of the not me, me.
They could hardly contain their laughter, my father happier than ever, braying, “Isn’t this the best picture of you?” and “You PASSED OUT, (heave, heave) IN FRONT OF THE FRIDGE!” punctuated, with “I’m going to frame this picture!” The tears welled in my eyes while my teeth clenched, they laughed even harder at my reaction.
Like I said, if they’ve become Christmas Card sending people, this will be the picture of me they show, expecting others to laugh uproariously. Before I moved out, in fact, my father made certain to show the picture to anyone who came over. “Wanna see something hilarious?” he’d ask. Expecting memes or a funny cat playing the piano, they’d agree. I could see it when they saw it, my dad chortling with laughter, nearly choking on his giggles, the looks on their faces: a mixture of confusion and pity. Even in my drug-hazed “glory,” I’d never felt so low.
Maybe that picture is splashed all over the internet, in the dark recesses I don’t explore, and maybe it’s not. Maybe it’s hung on their wall, replacing all of the other pictures. Maybe it’s not.
My name is Gen and I’ve always loved children. I love being their entertainer, their caregiver, their snuggle buddy. Having one of my own was on my bucket list but having one ON my own wasn’t.
I was 28 when I met Sam, the man who was to be my husband. In less than 4 years we were ready to give parenthood a try. I went off the pill and we were as busy as bunnies. After 8 months without results, I consulted a gynecologist. He took a history, did a pelvic exam and recommended that Sam provide a sample for analysis.
The results were mixed. I appeared healthy. Sam’s sperm count was low and had low motility. But there was a supplement that showed promise.
3 months later Sam’s sample didn’t show any improvement. We consulted a fertility specialist. This time, the same history the same pelvic exam and the same semen analysis. The only way we would get pregnant would be with IVF with ICSI, that is, in vitro with intracytoplasmic sperm injection.
No, we really didn’t know what we were getting into. And no, we hadn’t talked about adoption.
Next step was to start on birth control and then the follicle stimulating hormones. The process involves needles. Lots of needles. And did I mention the hormones? Lots of hormones.
To cut to the chase, the first cycle failed. The second failed and third and fourth cycles never made it to the transfer stage. My body did not respond well to the hormones. I suffered months of migraines and my uterine lining refused to thicken with the treatment. I took a month off. I tried acupuncture, took a few more yoga classes. I relaxed.
August came and the migraines were far enough behind me that I was willing to try another cycle. My uterine lining barely responded to the hormones but there was just enough there for the doctor to approve proceeding with the cycle.
And we were successful. We did it. Nine months later, Chloe made her appearance.
But we weren’t satisfied. Chloe was a delight. Being a mom was the most wonderful experience of my life and I couldn’t wait to try again. 10 months after her birth, we went back to our fertility doctor and asked for another. We had several embryos cryopreserved.
We had been through the process we knew what we were getting ourselves into.
I weened Chloe and started the hormones again. Fortunately my body responded. My uterine lining thickened nicely and we scheduled the transfer.
We took our first pregnancy test and wow, we were pregnant. That was easy, right?
Finally our fertility doctor suggested testing me for hydrosalpinx, a blocked and fluid filled fallopian tube. Turns out this is a pretty standard test for women having difficulty conceiving a child naturally. And I had it.
We went through a procedure to correct the situation, essentially a sterilization. Yes, it was surreal.
By now we had used all of our frozen embryos. We were going to have to go through a fresh cycle again. Great, more hormones and a LOT more needles.
We completed the cycle, the transfer, the pregnancy tests. We were pregnant, finally. And then we weren’t.
Our fertility clinic provided ultrasounds for the first 8 weeks of the pregnancy. The initial ultrasound showed one live embryo. The second ultrasound showed a slow heartbeat, but a heartbeat nonetheless. The third showed progress, not excited, not reassuring but enough to qualify as growth. I was released and sent on to my regular OB.
At 9 weeks, I went to my OB, without Sam, for my first appointment. She did an ultrasound and there was no heartbeat. She checked a few times but nothing. I left her office with an appointment for a D&C.
I was in shock when I left, I was in shock when I had the procedure and I was in shock for at least another 2 weeks. I didn’t cry, I didn’t talk about it, I felt nothing.
This effort to have another child has been harder than trying to have the first….because I know what I’m missing.
Mary sat there with her eyes rolling back into her head; her mouth foaming a bit. Her newborn baby was sleeping in her arms while she jostled him each time she would nod out and try to keep focused.
She looks up at me and says, “you just want to take my baby away from me. All of you Social Workers are the same.”
I stare blankly. I am new at this, but I can’t let Mary know that. I am just 25 years old, and she is well into her 40′s. She is not new at this, not by along shot.
Little does she know it isn’t her newborn I am after, it is her disease.
“Do you have any other kids Mary?” I ask, as I fill out her assessment.
“Yeah. 4. They all were taken away from me because people like you don’t think I care about my kids. People like you think I have no heart, and all I care about is drugs.”
I clarify for her that people like me what to see her clean, healthy, and safe.
After an hour long assessment I learned Mary has been using for more than ten years. She doesn’t even remember how old she was when she started, but she does remember the first time she sold her body for a hit of heroin. She tried rehab too many times to count, and currently she is high on the doctor-prescribed methadone mixed with a hit of heroin.
The air is thick with concerns, and I am forced to send her back out on the street with her newborn wondering if she has a warm place to stay tonight. I asked her and she laughed at me and said, “yes where else would I bring this baby?”
She still thinks I want her baby. She doesn’t know I want her disease.
I want Mary to claim war on it. I want her to fight with me. I want her to have the ability to see herself as more then just a drug addict. I want her to see herself not as a prostituting drug whore, but as a loving Mom.
It is clear she is an addict, but it is also clear to me she is a loving Mom as well (the baby is swaddled in a blanket, fed, and she is cooing at him. She bathes him in kisses, and opens her diaper bag for a pacifier). That baby deserves his Mother to fight the war. That baby deserves a better life then getting passed around the drug world, because if he stays he will never get out.
I really don’t want to take her baby.
After a few more meetings and evaluations, Mary refuses my advice to go into family residential treatment. It is the only way for her to keep her newborn son, and for them both to be safe. She isn’t ready for the fight. Her disease is telling her that it is more important then her kids. Her disease is running Mary.
Mary isn’t fighting because she hasn’t “hit bottom” or reclaimed the right to her body, her life, her choices.
By now I am sure you know the outcome, Mary lost her baby to the state. Her 5th child to the system. I was just another Social Worker that had to report it. I was, what she said I was, a baby snatcher. I wish I could explain why, but nothing I said comforted her. She refused treatment, and I, ethically, could not let her continue to take care of her 1 month old on the streets she sells herself and buys drugs on.
You may be reading this and thinking “I’ll never get this low,” “This isn’t me” “my story is different” or “it hasn’t consumed me” “I have control of it”.
Don’t fool yourself, Mary thought all of these things as well.
Addiction is all the same disease.
It will consume you if you don’t choose to consume it. It will make you give it everything. It can push you to do things you never imagined you be willing to do. It will cost you not only years of your life, but your loved ones. It will take all of who you are, and what makes you “YOU”, and give it a slow and painful death.
As a professional in the field of Addiction I can tell you this: You can not do it alone. You shouldn’t have to do it alone. If you needed surgery to remove tumor, do you take the scalpel and do it yourself? No. It is the same thing my friend, the VERY same thing.
A disease is a disease is a disease.
We (professionals) aren’t here to take your babies. We aren’t here to pass judgment and tell you how bad you are. We didn’t get a degree in this to make fun of you, or to watch you pee in a cup.
We did it to help you fight. We are here to reclaim you.
I am no longer 25 years old, and I may not be in the business of rehab anymore (instead I am a stay at home, blogging Mom). However, Mary, and all the other people I sat with in various rooms at various locations will always be in my heart.
I will always feel like I am a warrior against Addiction.
I will always want to win the war, support addicts and their families. And I am here to tell you….
you are not alone with that monster.
Don’t let the Addiction win.
Reclaim yourself, your life, and what you rightly deserve.
The following was a response I wrote on a message board about the topic of enabling, the ‘how’ and ‘why’ it happens, and how Narcissists and abusers get others to do their bidding. This was written from my personal experiences, growing up with a Narcissistic Mother and watching this scenario play out many times over.
Narcissists thrive on confrontation. They bully their way by having a tantrum anytime they don’t get what they want. They turn up the heat enough to obtain it. The heat rises until they get it. In short, they learn our boiling points, find our buttons, and study our weaknesses. They keep hammering away until they get what they want.
It’s pure ruthless persistence on a target they’ve studied for years, but they also come across tactics that generally work. When they don’t get what they’re after they commonly rage to scare you into giving in, or attempt guilt or sympathy ploys. Their purpose never wavers, and they will stop at nothing to achieve their goal.
Simply, a Narcissist or abuser will keep hammering and chiseling down until their targets are just plain WEAK. They do that by isolating the target from healthy relationships with anyone outside their control. And I mean close relationships, people that you’d bear your heart and soul to. People that would be out for YOUR good, that you’ve built a long-time trusted relationship with.
ACONs (Adult Children of Narcissists) often say they were forbidden from having friends, bringing friends to the house, and tightly controlled telephone usage. It is designed to create enough distance between you and others so such a relationship can never form.
Abusers detest anyone who may have more influence over you than they do.
If such a relationship already exists in your life, abusers will seek to drive a wedge between you and that person. Divide and conquer. The abuser creates enough stress on the relationships to create doubt in the other party. They swoop in to become the new ‘reality’ by inserting their perceptions on the weakened target.
My father is an enabler because he’s been trained by my mother to be. She hammers him by exploiting and over-blowing any little offense she can muster (creating conflict) to show how right she is, how awful she has it, etc. She hammers at him until he relents. She does the same thing to my siblings, through personal confrontation and phone calls. Wash, rinse, repeat.
I remember as a kid, we all knew it was just easier to give my mother what she wanted than deal with her rages. If an abuser does that enough, they are training us to just give them whatever they want, because we know what’s in store if we don’t. It’s cost/benefit analysis, isn’t it?
Welcome to the hammering machine. I knew that other people would take bad news better than my mother. So if I got caught in the middle of something between her and someone outside the family unit, she always won because even though I may lose greatly on something involving that person, it was easier than dealing with my mother’s rages.
There’s the birth of an enabler.
There comes a point where you just can’t deal with fighting them anymore, especially when you live under their roof. Even though we move out, that brainwashing has been reinforced for years, and continues into adulthood. Give your abuser what they want, or there’s hell to pay.
And even though we’ve moved out, Ns make sure they insert themselves in everything, don’t they? They appear to be interested in us, invade personal space, demand personal information, run amock over boundaries. The Narcissist is making it known that they have a right to everything about us, and will not stand for anything less than EVERYTHING. It’s so they can continue to insert their perception of reality into their target’s lives and retain control.
They continue forcing themselves onto the target, through phone calls or unannounced visits. If you’re never allowed to (or given the space to) think for yourself, how can you? Narcissists hinder this process as much as possible. It’s why they set themselves up as ‘always right’. If you control all the cards and all the information, it’s easier to manipulate things to your benefit. Thus how they move into the second stage of life.
It’s also important to note that everyone has a breaking point. Some much faster than others, due to the nature of the relationship (such as family friends, distant relatives). Others thrive on gossip and drama…but Narcissists know how to spot their targets and say the right things to obtain what they want.
In short, enablers are Narcissists’ servants. It’s like an abusive dog-owner. The abuser controls the entire environment. Some dogs will cower, some will fight back towards the owner. Dogs that fight back will be beaten more severely until they cower, are neglected, or are gotten rid of. But either way most will still protect the territory. They distrust everyone because of what history has taught them.
Lyme has done some awful things to me. I think the worst are the feelings of despair, anxiety, loneliness. The physical symptoms are not permanent. And although it is sometimes hard to believe, the emotional and psychiatric symptoms are not going to linger forever either. No one can understand how disabling this can be if they haven’t walked this path. If I said I had cancer or MS, I think people would relate (“oh, so and so has that”). We’ve made those illnesses a part of our vernacular. Chemotherapy is almost universally understood. As a society, we know what to expect when someone gets those diagnoses. We are compassionate, sympathetic. I know when my dad was diagnosed with cancer, people came out of nowhere with cards, meals, time.
Lyme is not yet seen the same.
Late-stage Lyme is debilitating. But it is invisible. There is a great website called “But You Don’t Look Sick” that has some great stories about perseverance through invisible illness. I’ve been called a hypochondriac by people who claim to love me. That’s heart-breaking. I sometimes don’t have enough energy to get out of bed to make dinner. I certainly don’t have the energy to convince someone that my whole body hurts and that I have fatigue that can only be temporarily overcome by several large cups of coffee. I’ve realized that putting on that front though only makes it less obvious that something is wrong.
I don’t want to be a burden to those I care about, so I try to minimize my complaints. But truly, I feel very alone. When my dad was sick, I felt there was no other choice but to move in with him, make sure he was cared for, that healthy food was on the table, that he didn’t have to worry about driving home from chemo. Where is my caregiver? I don’t mean for that to sound desperate or clingy. I guess I just don’t understand. I would do anything for friends and family. Quite frankly, I have, sometimes to a fault to where I haven’t left anything for myself and my family.
I am ready to be healthy again. I want to have non-caffeinated energy. I want to be able to work out without feeling crushingly fatigued from lifting ten pounds. And I want a social life back. I know it takes time to maintain friendships, and I feel like I have lost my ability to do that. Mostly I’m just tired of being alone.
And being sick is just one more reason for me to feel distant from others.
Being a caregiver to a loved one is one of the most gut-wrenching things a person has to do.
This is her story:
I’ve been contemplating blogging for quite sometime. I’ve been afraid to for several reasons, but to rattle off a few: anonymity, vulnerability, and pure avoidance. I have a fear that if I actually put the feelings/circumstances/questions out there, it means I actually have to deal with them. Thank you Aunt Becky for starting this blog…so I can get my toes wet.
From what I can tell of this space, many are dealing with loss, mostly stemming from the unfathomable experiences associated with childbearing/loss/postpartum/depression and the host of other issues those of us who are now “adults” face. I would like to add another sad layer to party – dealing with caring for someone whose mind and spirit are being slowly ripped away through Alzheimer’s Disease.
My mother, the beautiful, talented, smart, amazing hero of my world, is slipping away. I cannot say things like…she has had a full life, this is part of getting older etc. You see, she’s only 61 years old. We are at least 5 years into this battle (it took most of those 5 years just to get a diagnosis) and it feels like this freight train is traveling full force. Every day, for my mom, is the best it will ever be. Tomorrow, some different aspect of the person she is today will be gone. For now, she knows me, she knows my kids, she know she is my mom. She doesn’t remember where she lives, when the last time she talked to me was, whether or not she fed the dog (yes, at least 5 times now) or how old the kids are, let alone that she just told me the same story for the tenth time in a single conversation. It can be so frustrating, but I have to constantly remind myself…today is as good as it gets.
I need an outlet…and hope this can be one. Caregiving, whether its for an infant, child, spouse, sibling or parent, means giving more of ourselves than we ever thought we could give.
And that comes at a price. I look to you, fellow fighters, for insight, laughs and support. I promise to give it all back.
There is a picture of me, somewhere out there, probably still on my dad’s phone unless they’ve turned into Christmas Card people, in which case, the picture is most definitely out there in the world for all to see.
