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The Last Fight

During the month of August, Band Back Together is going to be publishing posts about loss and grief. These losses can be perceived or real as we know that loss is universal. We welcome you to share the stories of what and who you’ve lost – parents, children, animals, sisters, brothers. Please share your posts with us by clicking here.

This morning on the way into town, I had a flashback of a phone call. A phone call I’d had with hospice, seven months ago.

I remember it well. I was in the back room at my parents house where I’d been staying for the last week or so to help take care of my mom. She was sick. She had taken a turn for the worse. She’d had Stage 4 Colon Cancer for four years. It had been four years of fighting: first chemo and surgeries, and then natural medicine and a special diet.

She’d lived far longer than the doctors thought possible. She’d outlived the projections of every website and message board I’d visited in my obsessive need to understand what we were up against. Her CEA (tumor marker) numbers stayed low and nothing showed up in her monthly exams for a long time.

Then, the numbers started to creep up. After three years of nothing, they’d found a new spot on her liver.

It only took four months to go from finding that small spot to being in that back room on the phone with a lady from hospice.

Mom had been getting intravenous fluids the week before. As weak as she was, we would help her get dressed, get her to the car, one of us on each side to keep her from falling, drive her to the hospital and wait the two to three hours to get the fluids and then repeat the process to get her home.

We’d done this every day for a week, but the benefits of the fluids were starting to be countered by the difficulty of the journey. She was getting too sick to make the trip anymore. We’d talked to her doctor, the hospital, to anyone we could think of to figure out how to get the fluids to come to her. We felt certain there had to be a traveling nurse, or someone else who could administer the fluids. If the problem was that insurance or Medicare wouldn’t cover the cost, we were all more than willing to pay for it.

We just needed someone willing to do it.

When I asked the lady from hospice if that was something she could help us with, instead of answering my question, she asked some of her own: What did I think was really going on? What did I think the fluids were going to do for my mom? Would it be better to keep her going as long as we could, as she got sicker and sicker? Were we doing this for her, or were we doing this for ourselves?

We discussed that Mom’s body wasn’t benefiting from the fluids as well as we’d hoped. Her liver and kidneys had already begun to shut down, and we knew she was experiencing fluid retention. In fact, the fluids we were fighting so desperately for may have been doing more harm than good.

I had one of those moments when the blood thunders through your ears, the air is sucked from your lungs, and time slows down.

She was so sick. Every day she was getting sicker. Of course we knew she was going to die. But until that moment, I’d been in fight mode.

This was the first moment I realized the fight was really over.

The lady on the other end of the phone waited until I stopped crying, and we made arrangements for her to come over to talk to the rest of the family. We’d been fighting this disease aggressively for over four years. It was going to take some professional help to transition from that all-consuming fight to helping our Mom let go and…die.

She came over and we all gathered around the couch where Mom was laying, and we talked about the fact that she really was dying.

It was singularly the saddest discussion I’ve ever been a participant in. Everyone left my sister and I alone with Mom. We talked about how this was really it. We told her how much we loved her, how we would be there with her through it all, and how we would be there to see her on the other side.

I wonder how she felt at that moment.

I think about that moment a lot. I regret that moment sometimes. I wish we’d stayed in denial about her death so we’d never have had that discussion. Once it was out there, it seemed like any fight she had went away. She was ready for it to be over.

My sister, my grown niece and nephew, my aunt and I all took shifts staying with her and Dad.  At first we gently tried to get her to eat and drink, but in retrospect that may have been a lingering need to fight for her life. Eventually, even that stopped.

I’d stay for two days, then leave for one or two. I would go to work on the days I was away. Work became a sanctuary where my mind was otherwise occupied. As I drove the hour and a half back to my parents, I felt the heaviness increase until I had to drag myself up the steps and into their house.

We’d brought a hospital bed into their living room so I’d see her the minute I opened the door. Every time I opened that door, I wanted to recoil in horror. Our mom was laying in that bed dying! It couldn’t have felt more surreal.

By then, she was drugged and asleep, and unable to talk much even while awake. It was a living nightmare.

A strange numb detachment descended upon me. I’ve never been like that my whole life. It was like my brain just shut parts of itself off. I felt made of stone.

We held her hand. We brushed the hair out of her face. We put chapstick on her lips and swabs of water in her mouth. We told her how much we loved her over and over and told her we were going to be okay. We promised that we would never stop talking about her to our kids so they would always remember her. We talked about our hope for the future when we would all be together again and she would be healthy.

I hope that she felt some comfort from us being there with her. I know she was scared; her brow and face would be scrunched up with anxiety and pain, even though she couldn’t voice it. The best we could do was give her the shots of pain and anxiety medication that hospice had left for her.

The last time I saw her alive, the truth is, I knew it would be the last time.

I should have stayed. I should have stayed. I should have stayed.

But when my niece came over for her shift, I left. To escape the horror, the impending doom, and the despair, I went back to my house. The next morning, I talked to my niece and she told me that Mom’s hands were getting colder, and I knew I should go back. I knew the signs of impending death by heart; I’d read them over and over in hopes of preparing myself.

But I didn’t go back. I went to work instead. My sister called me at work to let me know she was at Mom’s. She held the phone to Mom’s ear so I could tell her that I love her. She couldn’t talk, but I could hear her breathing loud in an attempt (I choose to believe this) to communicate with me. My sister then called my brother and they had a similar interaction.

My sister was on one side of Mom holding her hand, and my Mom’s baby sister was on her other side holding her hand when it started. They told her it was okay to let go.

And she did.

I am so sad I wasn’t there when it happened.

I am also grateful.

Three Years Later

Three years ago I started dating my now ex-boyfriend. He was my entire world. I thought that no one would ever be anything close to the level of amazing that I saw in him. He was perfect. I made him perfect in my mind.

He wasn’t.

When we started dating, it wasn’t under the best circumstances. We had been friends for fifteen years. I had just moved out of my parents’ house to get away from their physical, emotional, and mental abuse, as well as their out of control drinking habits. I was dealing with the aftermath of being sexually assaulted and my parents refuting my rape claim – claiming I was just vying for attention. Heh, if only they had any idea that all the times I acted out as a teenager were linked to that one instance.

Of course, I didn’t know that back then.

We ended up moving in together after six months. It was out of necessity, really, since we didn’t have another option.

I loved everything about him. He was tall and strong and handsome and had beautiful blue eyes. He was the only man I’d ever fully given myself to, and he was the first person I ever had an intimate relationship with.

Everyone always teased me about staying a virgin for so long, but I wanted to wait until I felt I was ready. Looking back, maybe I was and maybe I wasn’t. More likely than not, I wasn’t. But in the turmoil of sexual assault, I wanted so desperately to be loved and wanted that I convinced both of us I was ready.

I took us having sex as us being “serious.” I didn’t know any better. Forget that I was 21 and not exactly naïve… I thought I knew it all. I forgave him for messing around with his ex-girlfriend behind my back. I ignored him trying to hook up with his friend’s sister at a party at my house (when he didn’t live there) right in front of me. I looked past how horribly cruel he was to me the moment he threatened to take his own life. He was perfect. More importantly, I was broken, and the only way I thought I could be put back together was the way he was telling me to.

The controlling started small. He would break things off, leave me devastated for a day or two, then come back and apologize, and swear never to leave me again. He felt insecure when he couldn’t perform when we were intimate, but he would blame it on me. Yep, the sexual assault survivor is to blame for everything that went wrong when we had sex. Even when I thought things went well, he had some problem with it. He never even turned off the TV. Christ, he never stopped WATCHING the TV when we were intimate. He would wake me up in the middle of the night to perform oral sex on him… then tell me to go to bed – I was slutty if I wanted something in return.

I learned to stop asking for sex. He would humiliate me and make me feel bad for asking, so we only had sex on his terms.

Eventually the controlling moved out of the bedroom. If I went out, he wanted to know every detail of where I was. It was casual; I barely noticed it at first. I went to a coworker’s birthday party and failed to mention until the next morning that I had stopped with friends to grab a bite to eat at a Denny’s on the way home. He was livid. Why was I hiding things from him? Was I being unfaithful?

Silly me: that was as much protective nature and affection as I got from him. So I chalked it up to him being romantic. Someone anonymously left me a flower at work one day and when he found out, he threatened to sit in the lobby of my workplace and beat the shit out of whomever it was. I laughed it off, but was never entirely sure he was kidding.

Eventually, I wasn’t supposed to dress-up or put makeup on. If I so much as brushed my hair out, he would make fun of me, ask who the hell I was getting all fancy for. We never went out anywhere. I wasn’t supposed to go out much any more, either, or I’d get lectures: “I was gone all the time” or “neglecting my responsibilities around the house.” Even though we lived with three other roommates, it was my job and my job alone to clean the house.

I was supposed to do his laundry. I was supposed to make sure everything was perfect. I wasn’t allowed to go anywhere or do anything. If I checked my mail, I had to give him every detail.

When we went out to group gatherings, he’d purposely act like a jackass so we would leave early. He would go out of his way to embarrass me in public so he didn’t have to stay. Work functions, my family get-togethers (he was a golden child at his family’s functions), even hanging out with my friends. He had to talk down to everyone around him.

I was only allowed to go to the bar on the nights he was working security. He had to be introduced right away as my boyfriend to anyone who talked to me, otherwise he would punish me by refusing to touch me in bed. Any affection was off the table: he wouldn’t touch me. He never held my hand in public. He never kissed me in front of anyone. He never once introduced me as his girlfriend.

He’d tell me I wasn’t an equal part of our relationship – I caused all of our fights. And I did. Mostly because if we were arguing, at least he was paying attention to only me. I’d try to stand up for myself, but it always ended with me in tears. He would say anything to make me cry, then tell me I was always crying and he didn’t sign up for my emotions.

This went on for three years. I slipped into one of the worst depressions I’ve experienced. I couldn’t get out of bed, I couldn’t shower, I could barely even get myself dressed for work. He hated when I went to work. Forget that I was the only one with anything close to a full-time job (he got paid forty bucks a weekend to bounce at the bar and went to school full-time), and I had to pay all of our bills. He hated my coworkers. They were all scum – I shouldn’t hang out with them.

On the other hand, his parents paid for everything – his rent, his car, his insurance, his cell phone, and handed him gas money every week. They paid for his groceries. I worked my ass off and was expected to pay our rent, utilities, my own cell phone, my own insurance, and for our groceries. What did he do with his money? Bought knives and guns.

When I was raped, my attacker used a gun in places I won’t go into detail about. My boyfriend kept all the guns in our closet, with the door open, on my side of the bed, so I had to stare at them. He complained that I’d never go to the shooting range with him. I can’t be near guns without shaking uncontrollably and losing it, but I went anyway. I fired guns, broke into tears, tried to improve because he was angry that I was a bad shot. But every time I cried, he comforted me, told me how well I was doing. That made him an amazing and caring man.

I was in and out of major depressive cycles. At the beginning of September, I was hospitalized after a suicide attempt. I didn’t know why I wanted to die, I just did. I tried to take a knife to my own throat. He stopped me. He talked me down. I checked into the hospital. I was transferred under a 5150 to another hospital. When he visited me, I tried to show him how well I was doing, because he was threatening to leave me.

I was discharged from the mental hospital, but he couldn’t come get me. If there was no other way, he’d get to it “when he had time.” So my best friend picked me up. That first night back at home, he was so glad to see me. He recreated our first dates, we were intimate on a regular basis, he was affectionate, and doing everything for me – just because. Our lives were finally on track now that I was finally medicated. Right?

A week later, he came home and told me he wanted to leave me – he didn’t love me and never had. He didn’t want to live with me anymore. We agreed I’d get my own place, and we’d work on us from there.

The next day, he told me he had been having an affair with some random girl from at the bar, so I had to move out of the house that day. I told him he couldn’t legally evict me, and I wasn’t going anywhere. He beat the ever loving shit out of me. I told him if he didn’t leave, I’d call the cops. Paranoid as he is, he finally left.

That night, I had been planning to tell him that I’d found out I was pregnant while I was in the hospital.
Where were my roommates? They’d taken his new plaything out to the casino while he dumped me, so, you know, she’d have a nice time and it wouldn’t be awkward for her. Excuse me?

I was angry, hurt, upset. I’d been sick to my stomach and couldn’t keep my medications down, which threw me into withdrawal. I thought I’d never feel again. I had no family, I’d been out of work, so I had no money, and nowhere to go.

I took every single piece of clothing he owned and threw it off the deck. I threw it up in the trees. I dumped it in the dirt. I emptied the entire contents of the fridge onto them and left them to rot in the sun. I packed up all of what had been ours – the bed, all the furniture, the dog, everything and moved into a girlfriend’s house.

I threw away everything that reminded me of him. It wasn’t much – in three years, he’d never bought me a birthday card or Christmas present. He always had the nicest I could afford, but I never even got flowers or a card.

Eventually, I told him that I was pregnant. He wanted proof; I gave it to him. Then I miscarried.

I called him, not sure what else to do. I figured it affected him, too. His response? “Deal with it by yourself, you’re not my problem anymore.”

I had bruises for weeks. The cops did nothing. When I went to collect the last of my belongings from the house, the new girlfriend was in his bed, and she bitched me out. We live in a small community; he runs his mouth every chance he gets: it’s my fault my roommate’s kids hate him; I tried to stab him to death (completely false); I stole the dog (I paid six hundred dollars for that dog and had him before we got together); I left him unexpectedly for someone else. There are a billion lies circulating that I have to deal with. He attacks anyone who knows me out of nowhere.

In that moment, I seriously thought my life was over.

Now it’s been almost three months. I don’t think about him much anymore, and I can appreciate the good memories we had. The more I look back on it, though, the more I realize how many signs I ignored.

So now I’m single. I am spending time with my friends and the people who matter in my life. I’m not dating yet – but it’s by choice. I want to spend some time letting myself heal and figuring out who I am and what I want not only from my life, but also from a life with a partner. I’m learning to define what values are important to me in a significant other. There are guys in my life, but I don’t feel the need to validate myself through them. I stick with my medications. I still go to counseling. I have started attending Al-Anon meetings in my area. I’m working on saving up to move to wherever I decide I want to be. I’m living. I’m surviving.

At the end of the day, I’m only 24 years old. The last three years do not define who I am. They will always be a part of me, and I am so thankful that I was able to learn these lessons before things got any worse. Are there still days when it’s hard? Of course. But sometimes shit just happens.

I can’t take the blame for his bad behavior. My responsibility is not to apologize for him. It’s not to make excuses for him. My responsibility is to better myself and learn from this so I don’t repeat these mistakes.

I ignored the signs for far too long and thought I could love us enough for the both of us. It still ended in heartbreak. I won’t do that again.

But LORD, did it feel good pouring all the disgusting stuff from the fridge all over his favorite outfits!

I Couldn’t Save Her

When I was 15, my childhood best friend tried to kill herself.

My family had moved away two years before, so I wasn’t there. I wasn’t the one in school who she told that she’d swallowed all the Tylenol. I wasn’t there to watch her life fall apart and hold her hand through it all. I wasn’t there to see her slow descent into that darkness.

But the truth is, I knew.

I knew from her letters, from the sporadic phone calls. I knew from other people’s letters. I had been waiting for that phone call telling me she’d done it. Honestly, I’d been afraid no one would call me. I was afraid to send her a Christmas card in case something had already happened.

But when it finally happened, she was okay.

She had her stomach pumped and was admitted to an in-patient adolescent psych facility. She came out with dyed black hair, a teen bipolar diagnosis, and a cigarette habit.

She came out unrecognizable.

The next summer, I went to stay with her for a week, as I had the summer before. It was different. It was scary. Everything was just a little bit off. I sat in the waiting room of her psychiatrist’s office while she went for a check-in.

At the end of the week, her mother took me aside and asked if she’d been acting weird. I kind of shrugged and half laughed, but her mother asked again, telling me she was serious. That was when I realized something I hadn’t quite gotten before.

I was supposed to be watching her.

She stayed with me for a week after that. We went to the boardwalk. She flirted with the 20-year old ride attendant, and skipped down the boardwalk singing American Pie at the top of her lungs. She listened to the Beatles constantly, flipping the cassette of Abby Road over in the player whenever it ended, the music running all night long.

I was afraid. I was sad. I wasn’t strong enough to keep her from slipping out of control.

After that summer, there weren’t any more letters. I got a Christmas card from her a few years later, but I didn’t answer it. I didn’t call on her birthday anymore.

I’ve never really forgiven myself for that. If I could see her again, I would tell her I’m sorry, that I wish I could have been there for her, that I wish I had known how to be present and accepting of everything she was going through.

But I was 15.

I taught high school for 5 years, and if 15 year old me had been in one of my classes? I would have hugged her. I would tell her that it was a lot to handle. I would tell her that it wasn’t her responsibility to keep someone else from slipping.

I would tell her that it wasn’t her fault.

I guess I’m just not ready to tell myself that yet.

The Choice

I was in kindergarten and kissed a pudgy little boy beside me on the playground. My little friends pointed and laughed. I wanted to die. I did not, because I made a choice.

I was in the fifth grade and my classmates noticed I had boobs. My friends pointed and laughed. I wanted to die. I did not, because I made a choice.

I was in high school and suffered through the angst of a breakup. His friends pointed and laughed. I wanted to die. I did not, because I made a choice.

I had a huge fight with my parents and disappointed them. I wanted to die. I did not, because I made a choice.
The choice? Tomorrow would be a better day if I lived.

My husband of twelve years stuck a gun in his mouth and made a different choice. He left behind three daughters under five years of age. He died because, to him, there was no other choice.

We were finally ending a long divorce – a divorce spawned from years of domestic abuse due to his mental illness. For almost 12 years – 365 days and nights of tears, I woke up and thought tomorrow would be a better day if I lived.

Often times, I felt it was his “grace” that allowed me to live. Every now and then, in the grips of pain from a fist or a kick, I wanted to die. Still, I always made a choice to live.

For weeks after he left this earth, I asked, “Why?”

I needed an explanation – a resolution – for his choice.

Most of us have had those moments in which we think we don’t want to live through the day. We think for a split-second, “What would it matter if I was gone?”

We think we don’t matter. We wonder if we’d be missed. I wish that, before he ended his life, I could’ve answered these questions for him.

Since I cannot, I will do it here:

“What would it matter if I was gone?”

Regardless of our marital state, you helped me create three daughters.

Before the first one goes to school, I will have to explain that her father is dead. Before she learns to write her name, she will understand what a grave is.

The two youngest daughters will not have a decent memory of their father to carry through their adult lives. They will look back and only know your face because there is a picture. They will only know stories – not through their own recollection – but because I will fill in the blanks.

They will never be able to take their father to a “Daddy/Daughter” dance. They will not have the man who helped give them life give them away on their wedding days. Father’s Day will always leave their hearts heavy. They will, one day, know that you didn’t consider living for them, loving them, that they were not enough for you.

“Would I be missed?”

A few days after your death, I had to sit down on the bed and explain to the children that their father would never come back. Ever. The day has not come yet that they haven’t cried for you in some fashion. The oldest has a picture of you in her room on her nightstand. She talks to you when she has something important to say. She tells you about her birthday, her missing tooth, her new puppy, and when Mommy has made her mad. When she is frightened, she screams for you to help her, because Daddies are big and strong.

The man who didn’t feel like he had a choice went into a rage that day. He broke things, he screamed, and he broke down. He walked into the room filled with all the children’s things and did not see any of them. All he saw was that he didn’t have another choice, that he didn’t matter, that he wouldn’t be missed.

In front of a rack of his children’s clothes, ranging from size 18 months to 5T, standing before a toddler bed and dozens of smiling stuffed animals on the floor, he thought that the only thing that mattered was taking himself out of everyone’s life.

Ceasing to exist.

Becoming a memory and nothing more.

Later, I stood in a funeral home to pick out a casket for my husband. I wanted to die. I did not.

I made a choice to live. Sitting in the living room looking at the Christmas tree, stockings lined up bearing the children’s names and a dozen smiling stuffed animals on the floor, I see the only thing that matters: making memories and so much more.

Tomorrow will be a better day because I live.

I make that choice.

Ask The Band: Getting Lost is Easy, But How Do You Get Back?

I spent the last many years married to a woman with fairly severe (clinically diagnosed) Borderline Personality Disorder. I could very easily fill an entire book writing about what that experience was like, so it’s hard to know how to distill it. Here are some things I know-

-Years of being subjected to masterfully performed gaslighting has left me very unsure of all my own judgements and perceptions of reality.
-Years of being degraded and emasculated when I wanted to discuss my thoughts/feelings, being told that it is unattractive for a man to show “weakness” to his wife, has left me uncertain of when its ok to be vulnerable with other people.
-Years of walking on eggshells, trying so hard to do and say everything just right, but knowing that no matter how well I did, the next blow-up/emotional attack was always coming.. has left me perpetually anxious, and steeped so heavily in learned helplessness that I often struggle to even feel that I have any control over what happens in my life. I never used to be that way at all.
-Years of having all my contributions and accomplishments minimized or forgotten, and all my imperfections magnified and carefully score-carded, has left me with close to zero sense of self-efficacy.
-Years of living with someone who is intimacy avoidant and uninterested in sex, but being told the whole time that her disinterest is caused by my shortcomings—because I didn’t last long enough in bed, or because I lasted too long in bed (yes, both of those), or because of the stress I was causing her by me not making us enough money (even when I was bringing in over six figures a year), or because I was paying too much attention to (suffocating) her, or because I was not paying enough attention to (neglecting) her—has left my self confidence so damaged that I almost fear being intimate with someone again.
Probably the worst part, though? During the early “idealization” phase of the relationship, she was incredibly jealous and protective of my attention (which, at the time, I foolishly believed was just because she loved me so much) that, focusing all of my time and attention on her needs, I greatly distanced myself from any male friends I was close to, and completely cut off contact with all of my female friends. So once she flipped me into the devaluation phase, I was left with a partner who had zero interest in me, other than what I could fix or provide for her, and only weak remnants of friendships remained. I was effectively isolated to the point that I spent most of my free time just sitting alone in my basement, wishing things were different.
Isolation is definitely one of my biggest hurdles right now. I’d really like to make some new friends, particularly some female friends since I lost all but one or two, but no clue where to even start. I just really miss having more meaningful conversations and connections with people.
Another hurdle is figuring out how to integrate “what I know to be true” with “what I feel to be true.” For example, I can write down a list of all of my business/financial accomplishments and objectively say I’ve been successful in that area. I know this to be true. But I do not feel that this is true. I can find endless examples of things I’ve done or experiences I’ve had that show most of the negative feelings that I mentioned above are illogical or don’t line up with reality. But again, I still don’t feel that.
I would love any thoughts or advice from anyone who has gone through something similar. What worked? What DIDN’T work? How did you re-connect with yourself? How did you re-connect with other people and build some new meaningful friendships/relationships?

What Might Have Been?

I haven’t told many people about this. Very few know any details. My husband knows the gist of it, but not all of it.

I was around 15 years old and I’d already spent time battling my personal demon. It was named Self-Harm and it came armed with a blade and a lighter.

I swallowed a bottle of… something. I can’t remember what. They had me on so many different medications. They wanted to “fix” me. The mutilation scared my parents. Not, of course, enough to try anything beyond anonymous prayer requests to the church group and a random assortment of pills. That, along with attempts, pleading with me to just stop and shaming me for my behavior, was supposed to be my “miracle cure.”

I don’t remember what finally tripped the trigger and pushed me to that point. Was it an argument? A particularly bad day? I don’t know. I can’t remember.

I remember being rushed to the ER. I remember the staff being unable to get a tube down into my stomach. I remember vomiting, repeatedly, every time they tried. Eventually they stopped trying and handed me a big mug of some charcoal mixture and told me to drink it.

Afterward, I had to stay in the ICU for 24 hours. I should have been sent to the local Psych unit for 72 hours. But I wasn’t. The doctor came in and talked to me.

He made me promise not to do this again, patted me on my head, handed me another prescription, and sent me off.

And that was it.

I went home.

I saw a “Christian Counselor” (despite religion being one of the major things my parents and I fought about) a handful of times over the next six months. My medication was changed a few more times. I can’t even remember everything we tried.

And that was it.

I stopped taking the medication when it was “mutually decided” I should move out.

I struggled with depression and other issues off and on for the next three or four years. It wasn’t until after the birth of my son and my second bout of Paranoid Personality Disorder that I started taking medication regularly or seeing a counselor on a regular basis.

I wonder how things would have turned out if they’d been handled differently way back then?