someone tries to bullshit me on what repairs my car needs
I’ve just been told “go to Hell” (the implication being, been there done that)
people are having a grand time trying to place my accent — for some reason, no-one has ever guessed right, so I just give up after a while and tell them this is 30 years of living in and around Detroit talking. Thank you for guessing that I’m maybe Irish, but the truth is gonna make you make an “Ugh” face.
Saying “Detroit” makes everybody make the “Ugh” face. If you live there, it’s your resting face: Either you’re constantly consciously aware of how much of a deliberately-constructed torture-machine of poverty and racism and environmental awfulness it is, or you’re unconsciously aware of it and your Ugh face is hiding a half-inch behind a desperate Midwestern smile.
It took two years after I moved away for my face to reconfigure away from the constant pained expression of a person trying to live a life among a seething ruin after rubbing shoulders every day with people on the absolute edge of desperation. And no, I don’t mean the homeless and the addicts. There are far more, and equally desperate, people in southeast Michigan who are still, for now, managing to live indoors. You won’t notice them unless you live there, and they outnumber the ones wandering the street by a wide margin.
Since I was a tiny child, I’ve been trying to say, “Oh my gods y’all — This is where the whole country is headed if we don’t wake up…this right here is industrial capitalism’s next phase! Let’s stop and change while we, while anybody, still can!”
But after you grow up a while, you realize that telling people doesn’t matter: they either know it full well, and think it’s worth it – probably because they’re wealthy, or privileged enough that they think they will be one day – or don’t simply don’t care (because, I’m guessing, it feels inevitable…or maybe I should say “they’ve bought the lie that it’s inevitable”).
I’ve now lived in Boston almost a decade, and while my inner Cassandra will still come out in heated discussions, I’ve mostly given up on sounding the warning-siren of Detroit.
It’s tiring and depressing, and if I’ve ever opened anyone’s eyes to what Detroit’s absurd segregation, its grotesque violation of one of the most gorgeous natural environments in the world, or aggressively anti-human city-planning means to the rest of us, I’m not aware of it.
If you’re not from Detroit, you don’t think it could happen to you, and/or you’re buying the perennial line about how “making a nice expensive spot in the middle of downtown will fix it. And if you are, you’ve probably given up – or will soon.
I’m an expat / refugee of Detroit, and I gave up SO MUCH to get out.
After 30 years I finally realized that if I ever wanted to be mentally “okay” (never-mind healthy, just…okay), I had to get away from the constant background scream of hopelessly-flailing-against-awfulness that is the D.
The biggest thing I gave up was being near my family — my only family in this world; we’re a small handful and we’ve always been very close. I had high hopes that I could “get them out” too, once I was established here, but my older parents and mentally-disabled brother (who, I stressed, could have reasonable health care here — hell, if they were homeless in Boston, their options would be better than in Michigan) just weren’t up for that kind of life-change, and they’ve decided to stay.
I talk to at least one of them every day on the phone. I travel back to D-town four or five times a year (my spending every holiday in Detroit is a fun “you’re so hardcore” joke for my friends here), and every summer they take a vacation (their only one) to come visit me and Boston. The pain of that separation is a little easier now, for the most part, but not really.
I have survivor’s guilt. I miss them like crazy, and I hate that if something bad happened I’d need to make an 800-mile journey to reach them. I struggle with the moral implications pretty much daily: Is it okay for me to have done this, to have found myself a home that makes me incredibly happier and miles healthier, and to have left my loved ones behind in Hell, USA?
I’m not going to talk, here, about the details of growing up in Detroit; about what the background of intense violence, racism and poverty does to a person – though maybe I will later. This one is about getting out, and where that leaves you…partially because I’m sick to death of the sensationalism around it, and can’t quite handle yelling about the realities of it yet.
I hate Detroit, still, the way you hate an ex-lover; instead of Ugh-face I now have Rage-face, but at least it’s not a constant thing.
It’s SO difficult to have your hometown, the place you grew up and will forever know best, be the embodiment of modern evil; to feel like you’re walking into Mordor every time you go back; to have a wonderful family Christmas and then gasp with relief when it’s over and you can leave, even though your chest burns because you won’t see your family again for months.
I left my daughter there too, Band. My only child. I’ve always shared joint custody of her with her (thankfully awesome) dad, and when I left I had to decide if seeing her every holiday and having her live with me here in the summer would be enough for both of us…and that, I think, is probably the worst and hardest decision I’ve ever had to make.
But eight years on, I still feel like I made the best decision I could. Her situation is pretty well-protected from the worst of it: She lives in a rural area safely far outside the city, in a nice house, and goes to a great school with her three half-brothers, and again, we talk almost daily (she’s a teenager now, and getting too busy for daily :P) — and we have a great relationship. She loves Boston, and I’m SO glad she gets to have more and broader experiences than I did…my hope is that she won’t feel trapped in Michigan, and won’t have to make a decision to either stay in shit-town forever, or rip her life in half to get out and have a chance at happiness. Also, she isn’t stuck there with one of her parents being a miserable, grotesquely depressed mess, like she would have been if I’d stayed. That was definitely my experience — my Mom hated Detroit too, with every breath, but she never could stomach the hard change of leaving, so we never did. And now she seems resigned to dying there and just…hating it the whole way.
I guess we all do whatever we can to do better, to provide better for ourselves and our kids, any way we can. Sometimes that means cutting your own roots, and giving yourself a chance, however much a long-shot it is, to grow in better soil, to be nourished instead of constantly poisoned by where you live.
It’s important to say this, before I wrap up this topic (which I’ve needed to get off my chest for so long now; THANK YOU BAND I’M SOOO GLAD YOU’RE BACK) — and that’s that I carry a dark fear with me always, a terrified certainty that at some point, I will likely have to give up my better life here and go back to D-town.
Everyone in that place is precarious, and like I said, my parents are aging and my brother needs pretty constant care and support; and we’re all we’ve got, really. I’ll be in a better place to help them thanks to the good career and vastly better health (physical and mental) I’ve been able to cultivate here in Boston — but I very well might need to give up all my progress here in order to give them that help, and I know that if they really need me to, I will.
So every time I walk back into Detroit, I know that I might get trapped there again someday. If I think about it too long, I’ll start shaking and crying, so I try not to. But that’s another angle that may be helpful to remember for all survivors of nasty situations: A lot of the time, you don’t just get to leave your Hell.
People who got stuck there for a while can get out and never look back, but those of us who were born and raised in Hell can sometimes never get free.
Detroit is a place I’ll live with, even if I don’t live in it, for the rest of my days.
And it’s so hard to write that, because the rage, the ungodly anger at everyone who caused it and is keeping it going and is punishing all of its people with it every day, has never let me go. It’s even somehow scarier, now that I’ve gotten some reprieve from having that rage as my resting-face, to contemplate being immersed in it again…but it’s not a dragon I can slay; it’s too big. It’s my hometown. It’s in my blood and my voice and my life, no matter how hard I work to cut it out of them.
There is a picture of me, somewhere out there, probably still on my dad’s phone unless they’ve turned into Christmas Card people, in which case, the picture is most definitely out there in the world for all to see.
I hope it is not.
I didn’t see the picture until I was 5 months sober, staying in the unfinished basement at my parents house, grateful that I was no longer homeless, while I hunted for a job. Before this, I’d been staying there after a stint at a ramshackle, rundown motel, the kind of place you probably could dismantle a dead body, leave the head on the pillow, and no one would think anything of it. But it was my room, and despite the lice they gifted me, I loved it. Until money dried up and suddenly I was, once again, homeless. I’d moved in there after I was discharged from the inpatient psych ward, in which I was able to successfully detox after a suicide attempt. Got some free ECT to boot.
(WINNING)
Despite what you see on the After School Special’s of our childhood, I didn’t take a single Vicodin, fall into a stupor, and become insta-addict – just add narcotics! No, my entry into addiction was a slow and steady downward spiral of which I am deeply ashamed. It’s left my brain full of wreckage and ruin, fragmented bits of my life that don’t follow a single pattern. Between the opiates, the Ketamine, and the ECT, I cannot even be certain that what I am telling you is the truth; what I’ve gathered are bits and pieces of the addict I so desperately hate from other people who are around, fuzzy recollections, and my own social media posts.
About a year and a half before I moved from my yellow house to the apartments by the river, Dave and I had separated; he’d told me that while he cared for me, he no longer loved me. While we lived in the same house, we’d had completely separate lives for years, so he moved to the basement while I stayed upstairs. I’d been miserable before his confession and after? I was nearly broken. Using the Vicodin, then Norco, I was able to numb my pain and get out of my head, which, while remarkably stupid, was effective. For awhile.
Let me stop you, Dear Reader, and ask you to keep what I am about to say in mind as you read through this massive tome. I’m simply trying to make certain that you understand several key things about my addiction and subsequent recovery. I alone was the one who chose to take the drugs. No one forced me to abuse opiates, and even later, (SPOILER ALERT) Ketamine. This isn’t a post about blaming others for my misdoings, rejecting any accountability, nor making any excuses for the stupid, awful things I’ve done. I alone fucked up. My addiction was my own fault. However, in the same vein, no one “saved” me but myself. There was no cheeky interventionist. No room full of people who loved me weeping stoically, telling me how my addiction hurt them. No letters. Nothing. It was just me. I was alone, and I chose to get – and remain – sober.
The delusions started when I moved out, sitting in my empty apartment alone, paralyzed by the thought of getting off the couch to go to the bathroom. Always a night-owl, I’d wake at some ungodly hour of the morning, shaking. It wasn’t withdrawal, no, it was pure unfettered anxiety.
It was the aftermath of using so many pills, all the fun you think you’re having comes back to bite you with crippling anxiety and depression.
Which is why I’d do more.
Yes, opiates are powerful, and yes, I abused them, but things really didn’t become dire until I added Ketamine to my life.
Ketamine, if you’re unaware, is a club drug, a horse tranquilizer, and a date rape drug. You use too much? You may wake up at some hipster coffee bar, trying to sing “You’re Having My Baby” to the dude in the front row who may or may not actually exist. In other words, it’s the best way to forget how fucked you are.
The delusions worsen as time passed. I could see into the future. I could read your mind. I was going to be famous. I was super fucking rich. In this fucked-up world, I could even forget about me, and the life that I’d so carelessly shattered. I remember sitting in Divorce Class at the courthouse, something required of all divorces in Kane County, weeping at all that I’d thrown away – using a total of three boxes of the low-quality, government tissues. I left with a shiny pink face and completely chapped nose and eyes that appeared to be making a break from their sockets. I went home, took some pills, took some Ketamine, and passed out.
I retreated ever-inward. I didn’t talk to many people. I didn’t share my struggles. I was alone, and it was my fault.
The hallucinations started soon after Divorce Class ended and my ex and I split up. He’d left my house in a rage after a fight and went to live with his sister. I got scared. His temper, magnified by the drugs, the hallucinations, and the delusions, grew increasingly frightening. Once he’d moved out, the attacks began. I’d wake up naked in my bedroom, my body sore and bruised, and my brain put the two unrelated events together as one – he was attacking me. It happened every few days, these “attacks,” until I found myself at the police station, reporting them. I was dangerously sick and I had no idea.
My friends on the Internet (those whom I had left), sent me money for surveillance cameras. I bought them, installed them – trying to capture the culprit – and when I saw what I saw, I immediately called the police and told them the culprit.
The videos in my bedroom captured an incredibly stoned, dead-eyed, version of myself, violently attacking myself, brutally tearing at my flesh. In particular, THAT me liked to beat my face with one of my prized possessions – a candlestick set from our wedding, take another pill or hit up some Ketamine, then violating myself with the candlestick. It lasted hours. I’d wake up with no memory of events, sore and tired and unsure of how I’d gotten there.
I’d never engaged in self-injury before – not once – so the very idea that I’d hurt myself was unbelievable, but right there, on my grainy old laptop, was proof of how unhinged I’d become. Charged with filing a false report, I plead guilty.
In early September of 2015, I decided to get fixed, and made arrangements with work to take a few weeks off to do an inpatient detox, and, for the first time in a long time, I woke up happily, rather than cursing the gods that I was still alive.
It was to be short-lived.
Several days later, sober, I was idly chatting with my neighbor about her upcoming vacation (funny the things your brain remembers and what it does not), standing by my screen door, when karma came calling. It sounded like the shucking noise of an ear of corn, or maybe the sound that a huge thing of broccoli makes when you rip it apart – hard. It felt like a bullet to the femur. I crumpled on top of my neighbor and began screaming wildly about calling an ambulance, yelling over and over like some perverse, yet truthful, Chicken Little: “my leg is broken, my LEG is broken!”
I don’t remember much after that. I woke up in (physical rehab) and learned that my femur (hereafter to be called my “Blasfemur,”) had broken, fairly high up on the bone, where the biggest, strongest bone in your body is at its peak of strength. Whaaaa?
The doctors and nurses shrugged it off my questions, with a flippant “It just happens” and sent me home, armed with a Norco prescription, in November, to heal. I added the Ketamine, just to make sure.
A couple of weeks later at the end of November, I was putting up the Christmas tree with the kids and my mother. It was all merry and fucking bright until I sat down on the couch and felt that familiar crunch. Screams came out of me I didn’t know were possible, but I’d lost my actual words. My mother stood over me yelling “what’s wrong? what’s wrong?” and I couldn’t find the words. I overheard her telling my babies that I was “probably just faking it” as she walked out the door, my screams fading into an ice cold silence. They left me alone in that apartment where I screamed and cried and screamed. Finally, I managed to call 911 and when they asked me questions, all I could scream was my address.
I woke up in January in a nursing home. When I woke up, I found myself sitting at a table in a vast dining room, full of old people. For weeks to come, I thought that I’d died and gone…wherever it is that you go.
This time, I learned, my (blas)femur and it’s associated hardware had become infected after the first surgery, which weakened the bone, causing it to snap like a tree. They put me all back together like the bionic woman, but the surgery had introduced the wee colony of Strep D in the bone into my bloodstream, creating an infection on meth. I’d been in a coma for weeks. Once again, I learned to walk, and once again, I was sent home in late January with another Norco prescription. The nursing home really wanted me to have someone stay with me to help out, but I insisted that I was fine alone. In truth, I had nobody to help me out, but was far too ashamed to tell them.
The picture I referenced above was taken some time in May, as far as my fuzzy memory allows me to remember, after my third femur fracture in March. This time, I’d been so high that I fell asleep on the toilet and rolled off. Glamorous, no? Just like Fat Elvis. Luckily, my eldest son was there and he called 911 and my parents to whisk him away. I remember my father on the phone, telling Ben that I was a liar and I was faking it. I was swept away in the ambulance for even more hardware, and finally? A diagnosis:
HypoPARAthyroidism.
It’s an autoimmune disease that leaches calcium from the bones, resulting in brittle bones. It is managed, not treated. There is no cure.
But, I had the answer. Finally.
After my third fracture, I once again was sent to the nursing home, and quickly discharged with even higher doses of Norco, when my insurance balked, I’d used up all my rehab days for the year. By this time, I’d lost my apartment, my stuff was in storage (except the things that we’re thrown away, which my father gloated about while I was flat on my back) and my parents let me stay with them, which was about the only option I had. They couldn’t really kick me out if my leg was only freshly attached. I feel deeper into a depression, self-loathing, and drug abuse as I realized what a mess I’d made with my life. How many bad choices I’d made. How many people I’d hurt. How much I’d hurt myself. How much I loathed myself. How I once had a life that in no way resembled sleeping in my parents dining room. How I’d been a home owner. How I’d been married. How lucky I’d been. How I threw it all away. My life turned into a series of “once did” and “used to.”
The only one who hated me more was my father.
While we were once close confidants, in the years after my marriage to Dave, his disdain had become palpable. My uncle had to intervene one Christmas, after my father mocked me incessantly for taking a temp job filling out gift cards while I was pregnant with Alex. It may seem normal to some of you, this behavior, but in THEIR house, NO ONE was EVER SAD and NOTHING was EVER WRONG. WASPs to the core, my family is.
When I moved back in, broken, dejected, and high, our fights became epic. For the first time in my life, I stood UP to one of my parents. Then, I was promptly kicked out.
Guess I’m not so WASPy after all.
I want to say that the picture was taken around May of 2016, but my estimate may be thoroughly skewed, so if you’re counting on dates being correct and cohesive, you’ve got the wrong girl.
This is a picture of me, though you probably wouldn’t recognize me. I am wearing the blue scrubs that you associate with a hospital: not exactly sky blue, not teal, not navy, just generic blue hospital scrubs. These are, I remember, the only clothes I have to my name. I was given them in both the hospital and the nursing home, a gift, I suppose, of being a frequent flier, tinged with a bit of pity – this girl has no clothes, we can help. Whomever gave them to me, know that you gave me a bit of dignity, which I will never forget. Thank you.
I am wearing scrubs, the light of the refrigerator is slowly bleaching out half of my now-enormous body, as opposed to the darkness outside. There is a tube of fat around my neck, nearly destroying any evidence of my face, but if you look closely, you can make out my glasses, my nostrils, my hair cascading down. My neck is stretched back at nearly a 90 degree angle from my body, my head listlessly resting on the back of my wheelchair. My mouth gaped wide, which, should I been engaging in fly catching, would have netted far more than the average Venus flytrap. I am clearly, unmistakably, and without a single shred of doubt, passed the fuck out.
It is both me and not me.
High as i was, I don’t remember a thing about the photo being taken. But there I was, in all my pixelated glory.
By the time I saw the photo, I was once again in my “will do” and “can do” space. I’d kicked drugs in September 2016 and had found a job that I enjoyed. I stayed with my parents while I began to sort out my medical debt and save toward a new car and an apartment of my own. My spirits were high, my depression finally abated to the background, and I was tentatively happy. I’d apologized until my throat was sore, but my fragmented memory saved me from the worst of it, but I was not forgiven. I don’t think I ever expected to be. And now, I never will.
It’s okay. I can’t expect this. I know I fucked up.
My father, who’d actually grown increasingly disdainful of me, the more sober and well I became, confronted me when I came home one day after work, preparing to do my AFTER work, work.
My mother shuffled along behind him, Ben, the caboose. All three of them were in hysterics, tears rolling down their cheeks as I sat down in my normal spot on the couch. After showing them a video of two turtles humping a couple of days before, I eagerly waited to see what they were showing me.
What it was was that picture. Of the not me, me.
They could hardly contain their laughter, my father happier than ever, braying, “Isn’t this the best picture of you?” and “You PASSED OUT, (heave, heave) IN FRONT OF THE FRIDGE!” punctuated, with “I’m going to frame this picture!” The tears welled in my eyes while my teeth clenched, they laughed even harder at my reaction.
Like I said, if they’ve become Christmas Card sending people, this will be the picture of me they show, expecting others to laugh uproariously. Before I moved out, in fact, my father made certain to show the picture to anyone who came over. “Wanna see something hilarious?” he’d ask. Expecting memes or a funny cat playing the piano, they’d agree. I could see it when they saw it, my dad chortling with laughter, nearly choking on his giggles, the looks on their faces: a mixture of confusion and pity. Even in my drug-hazed “glory,” I’d never felt so low.
Maybe that picture is splashed all over the internet, in the dark recesses I don’t explore, and maybe it’s not. Maybe it’s hung on their wall, replacing all of the other pictures. Maybe it’s not.
Lyme has done some awful things to me. I think the worst are the feelings of despair, anxiety, loneliness. The physical symptoms are not permanent. And although it is sometimes hard to believe, the emotional and psychiatric symptoms are not going to linger forever either. No one can understand how disabling this can be if they haven’t walked this path. If I said I had cancer or MS, I think people would relate (“oh, so and so has that”). We’ve made those illnesses a part of our vernacular. Chemotherapy is almost universally understood. As a society, we know what to expect when someone gets those diagnoses. We are compassionate, sympathetic. I know when my dad was diagnosed with cancer, people came out of nowhere with cards, meals, time.
Lyme is not yet seen the same.
Late-stage Lyme is debilitating. But it is invisible. There is a great website called “But You Don’t Look Sick” that has some great stories about perseverance through invisible illness. I’ve been called a hypochondriac by people who claim to love me. That’s heart-breaking. I sometimes don’t have enough energy to get out of bed to make dinner. I certainly don’t have the energy to convince someone that my whole body hurts and that I have fatigue that can only be temporarily overcome by several large cups of coffee. I’ve realized that putting on that front though only makes it less obvious that something is wrong.
I don’t want to be a burden to those I care about, so I try to minimize my complaints. But truly, I feel very alone. When my dad was sick, I felt there was no other choice but to move in with him, make sure he was cared for, that healthy food was on the table, that he didn’t have to worry about driving home from chemo. Where is my caregiver? I don’t mean for that to sound desperate or clingy. I guess I just don’t understand. I would do anything for friends and family. Quite frankly, I have, sometimes to a fault to where I haven’t left anything for myself and my family.
I am ready to be healthy again. I want to have non-caffeinated energy. I want to be able to work out without feeling crushingly fatigued from lifting ten pounds. And I want a social life back. I know it takes time to maintain friendships, and I feel like I have lost my ability to do that. Mostly I’m just tired of being alone.
And being sick is just one more reason for me to feel distant from others.
It was a beautiful Memorial Day Weekend a few years ago. I had gone with a good friend to the Indianapolis 500. I was very recently divorced and my son, age 8, was with his dad at an amusement park fairly close to our house. I had just returned to the area when my ex-husband called with a pretty horrifying story. His normally tough-as-nails mother had called him, hysterical, saying something about a pool, but he couldn’t make out anything else she was saying. He was on his way back to town, but in the meantime asked me to look for his mom.
So, I did. I think I knew all along what I would find. I knew my brother and sister-in-law were having a pool installed for my niece and nephew, ages 5 and 8. I stopped at a couple of places where I knew they hung out with no luck, so I headed for the hospital.
I went to the ER desk and told them who I was looking for. Just the last name, mind you. Immediately, the front desk person said I could come in the back. I didn’t know that meant really bad news. I said, “No, I can wait out here, no problem,” but she insisted. Into the back I went, and immediately I was confused. There was my mother-in-law, surprisingly calm, or so it seemed. I went to her, and she said it was my niece, it had been the pool where the football cookout had been held, my niece had been missed but there were too many toys in the pool to see her at the bottom.
A lot of the aftermath is a blur now. I went to my brother and sister-in-law, who were holding my niece’s body. She looked perfect and beautiful, but blue. I remember my sister-in-law looking at her almost reverently. I remember sitting on the curb outside the ER, waiting for my ex-husband to get there so I could tell him. I remember my son’s horrified face as he saw her as it sunk in that he would never argue with her again over who got the middle part of the back seat. And I remember the feeling of absolute hopelessness that I couldn’t protect him from that, or from the other ugly things in life.
That night, something broke inside me. I went to bed that night knowing things would not be better in the morning. My sister-in-law’s wails echoing in my ears.
It’s been years now. My sister and brother-in-law are doing as well as I think anyone could and I was diagnosed with PTSD. I thought I had a good handle on it, but I got a comment from someone that brought it all back. This person told me she hoped someone in my family, like my child, got sick so I could understand why she missed a ton of work.
I am not a “blogger,” even though I have a blog. I am not good at writing.
I have tried. I have written as catharsis. Anything I write eventually ends up used against me. I even used to write poems long ago, but what I got in return for pouring out my heart effectively put a stop to that.
I don’t know where to begin or how to form a coherent compilation of a jumbled life. There is much I will leave unsaid.
I am a child of a mentally ill parent. The woman who gave birth to me, whom I am supposed to call Mother, has schizophrenia. I am sure there are many other diagnosis that could be added to that, but we will keep it simple. As if there is such a thing as simple with schizophrenia.
The shame. The guilt. The fear. The secrecy. Being judged from HER illness.” Crazy by association.” As a result, I think I have been depressed and angry my entire life. I never was able to have a “childhood”. The early years are a blurry nightmare. Memories that are locked away by choice and repression. Sometimes I feel like I am made up of nothing but scar tissue. Who am I? Will I be judged based on her illness forever? How long will I carry her baggage as well as my own?
By some miracle I was given a reprieve. When I was 5 I went to live with an Aunt and Uncle and their two sons. God only knows what they thought of the feral child they received. Merging into a “normal” household was difficult. For all of us, I’m sure. I was a child who fended for herself and had to adjust to a new way of life. At some point I started to call my Aunt & Uncle, Mom & Dad. My cousins were like brothers. Although I was still reserved and doubtful about the security of love, I loved them.
But then like a piece of property, like a borrowed casserole dish, my “owner” demanded around the time I was 10, that I be returned. Returned to hell. I remember having an early birthday party with my friends before I left. I didn’t understand. Why would they send me back? What did I do wrong? Why was I being punished? Part of me still doesn’t understand. Even as an adult who has actually been given some of the information that as a child I was not privy to. Only those that were adults at the time will ever truly know the whys of it all.
I became the caretaker. I felt thrown away. Invisible. Damaged. Unwanted. Unlovable. Once again fending for myself in every way. Any time I made my NEEDS known, I was told I was selfish. Like dinner. How dare I expect dinner. Or school clothes, or to have my laundry done. Or or or… infinity. Any time I tried to speak up to ask questions of my family or tell someone that something wasn’t right or even to break free of the twilight zone I lived in, I was brushed aside and told “we’ll speak with your mother”. Yeah great idea. I was screaming. No one heard me. No one saw me. Or they chose not to. Selective blindness. She was the adult. I was just the child who acted out.
Unheard. Screaming inside. Unheard. Seriously!?!? How could family simply go on living their lives like mine was disposable?
Not ONE person in my family could admit to the secret that was my mother. So I became the problem child. It wasn’t her it was me. It wasn’t HER sick twisted warped behavior, it was somehow MINE. It wasn’t because I didn’t have a functioning parent or that I was subjected to abuse and exposed to things no child should be exposed to. It wasn’t because I was expected to be her caretaker, therapist, mental and physical punching bag and be sucked into her warped reality. No couldn’t possibly be that! According to them, I was a “bad” kid. I was wrong. It was ME. I had problems. I was the cause of the problems. All of the dysfunction was MY fault.
I grew up thinking there was something wrong with me. It has affected every aspect of my life. When I was a teenager, I finally found out what was wrong with her. Not because I was told, but because I wrote down the names and doses of all her medications and a person in my life was able to tell me what they were for. Needless to say confrontations were served all around. I stopped staying at “home” when I was 16, spending as little time there as possible. Still being labeled the problem child, I moved out completely at 17.
I have gotten therapy ad nauseam. I asked that I be given every psychological test known to man to see was I anything like her. Would I turn out like her? Was there something wrong with me? Despite my many flaws and admitted quirks and dysfunctions, I AM SANE.
So I still may not always know who I am, but I AM NOT HER. Nor will I ever be. I am bitter. And yes I am damaged. But I am ME. Whoever that is.
And for all the people telling me I have to forgive. For the so called family who abandoned me and still to this day judge me, shun me, and blame me, instead of facing the reality of HER illness, I give you a ginormous mushroom print. FUCK YOU.
If you said that I was broken when I met him, you’d be right, but there were a few pieces of me still hanging on.
He was sexy and wild and I wanted to be part of that. I was a bad-girl. I was the other woman and played the role well. We did the things we shouldn’t be doing and it was all fun and games. Until we decided to make us a permanent thing.
We married and I settled in. Doing all the things a good mom does. We had a baby together and I got to experience what it felt like to have a partner to help me through it.
I was not alone. But my wild and sexy husband remained wild, and drank and drank and drank. He drank us into debt. He drank away our love. He drank away my life.
Two more babies came and each time I thought it would be better. But it never was. He called me names. He pushed me. He drove drunk. He forgot to pick up our children from school. He ruined birthday parties and anniversaries with his moody, sloppy drunkenness. I tried to leave half a dozen times and every time he said it would be different and so I returned to him. But it was not different. It was worse. It was a game and we were all losing.
One summer day I could not take it anymore and I (stupidly) demanded that it stop. Furniture was thrown at me as my children watched. I pushed him out the door, made him go. My 9 year old son called the police.
He never drank again. He worked hard to be sober, and it’s been 5 years. He is healed, people say. How proud I must be of him.
And I am outwardly pleased, but inside I do not trust. I wait on the edge of my seat for the other shoe to drop.
Will today be the day? Will it all fall to pieces again? I can never be sure. I took my vows, and I stood by him and helped him through his darkest hours.
I suffered through years of agony. I cried along with my babies at night while he was out drinking us away.
I am supposed to forgive and move forward, our lives restored, but I am unable to find this “fresh start” that people tell me I’m so lucky to have. I am not the lucky one.
He is.
I spent too many years fixing him for it all to fall apart now.
But I’m the one with the memories, the nightmares, the emotional scars. All the deeds that he cannot undo, and the behavior that remains the same, whether he is sober or drunk. I am still mother and father and caregiver and nurturer to everyone but myself.
I am tired of doing this alone. I don’t want to be a martyr. I want my life back.
There is a picture of me, somewhere out there, probably still on my dad’s phone unless they’ve turned into Christmas Card people, in which case, the picture is most definitely out there in the world for all to see.
Living with Lyme Disease can be a brutal burden.
