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Mommy Dearest

I’ve been debating joining Band Back Together since the day it opened. I was leery, because good goodness do I have a lot to say. Sometimes it’s hard to know where to begin. And hard to let yourself. Some things are hard to pull out of the box under the bed. It’s not easy to give them attention or light, even if sometimes that is necessary.

So I’m here. And fuck it all. I’m healing. I’m better. I’m stable and mostly happy. I got shit to say.

My mom once showed me a song by Lucinda Williams called Sweet Side. She said it reminded her of me. Which is sort of bullshit. I’ve been pretty emotionally fucked up but never quite to that extent. In any case, I found it sort of ironic that my mom should point it out to me. She mistakenly believes my internal wounds were created when I was molested.

They weren’t.

They were her made by her alone. I’m honestly not affected by the molestation. I have been, but that pain has long since been banished.

The worst damage is the quietest.

It is the person who should love you unconditionally repeatedly telling you, “I love you, but….” It is being thrown out into the streets at the age of thirteen. It is being told you are insane; a bitch, violent, angry, a failure, unstable, and worthless in words and actions for most of your life. It is trying, with EVERY OUNCE OF LOVE in your child’s body, to gain the affection of your mother by any means necessary. Then, when that fails, to gain -attention- by any means necessary.

And when that fails, shutting off to the world.

It’s being sent away, over and over as a child, on the word’s “I can’t deal with you any more, you are going to your (Aunt’s/Dad’s/Grandma’s) house.”

It’s your insane family hosting an intervention.

To tell you to lock yourself in an insane asylum. For the horrific sin of being angry. When the forty-year old virgin who still hides in her mother’s attic, the woman who had seven kids (five outside of her marriage) lied about the whole thing, watched her husband beat and molest her children and ignored it willfully, and the former heroin addict tell you that you need help, something has gone terribly wrong.

Having one of the most insane stick up for you at the least expected moment. Finding shelter in his rage. Seeing the correlation. Black sheep meet black lamb. Those surreal moments that buffer you from the storm.

It’s moving in with your step-dad when your parents separate. Because he’s the better parent.

It’s being kicked out of your bedroom and moved into the corner of the living room, so your mother’s boyfriend can have an office. Or moving into the spider-infested, insulation-free shed outside. Because they are tired of you inside. Or a 3AM, walk outside to get to the restroom, because you aren’t welcome to live IN the house with the good people.

And finding the front door locked.

It’s a birthday party alone, while your family went on vacation (again) to New Orleans without you. During Mardi Gras. It’s a sweet sixteen where they haul in a musty old pull-behind trailer and tell you, “Happy Birthday, now GTFO” and you find yourself with a ‘birthday’ basket of cleaning supplies and a rank, disgusting trailer parked in the back yard. Your new home. Have a paper umbrella, it’ll make it right.

It’s making the (sane) decision to not speak to your mother, ever again, at seventeen. And being talked out of it. Stupidly.

It’s having the power cord leading to that same trailer be pulled repeatedly in the middle of the night by your mother’s boyfriend. Leading to HOLY FUCK IT’S COLD IN HERE. Leading to ‘Stop lying! He didn’t do it!’

It’s trusting, against your better judgment, to go home when your life collapses and you are sick and losing your mind. And finding yourself taken advantage of, and then thrown out. Again.

Of trying to get your life back together, only to have your money depleted entirely. Of going back to school only to discover that every day seems to result in another, “I TOLD you I couldn’t watch the kids, I have an appointment”

Of visiting a friend in California to get away from the building stress and anxiety, to find yourself homeless and stranded and papers being filed in your absence claiming you abandoned your children. Of having to explain to your children that you didn’t. And that you meant it when you said you’d be gone a week.

Of living in a shitty motel in the middle of the Mojave desert, subsisting on ten dollars a week in food to make it back to get your kids. In waiting a year to see them again because of your mother’s treachery.

Of gearing up for an epic court battle only to have her mysteriously drop them off with ‘a secret, don’t tell your mother’ and have your beautiful, sensitive daughter burst into tears because the pressure is too much. In hearing her, through her sobbing, explain that she’s afraid Grandma would be back to take them again in a month, because that’s what she said.

Holidays are bullshit. They remind me of the family I don’t have.

They remind me of going to Thanksgiving to drop off my kids to spend time with their Uncle, and be entirely ignored by my family. They remind me of being asked how much a vacuum was at Home Depot without a ‘hello’ or a ‘Merry Christmas’ preceding it and without even so much as a ‘have a nice day’ on leaving.

I spent the last two years with just my partner during the holidays. It’s been years since I so much as got a birthday card or a Christmas card. I don’t expect them, and I don’t need them. But I kind of wish I got them. It felt odd. It still feels odd.

This year, I’m going to cook a turkey, we will all will sit down to it and be thankful for what we have. And I will continue to love my children fiercely every day, no matter how angry and hurt they are inside. No matter how long their own healing process takes. No matter what silly, childish things they do. Even if they break something I love, or snark at each other in a hormonal rage, no matter if they make horrible decisions or great ones. I’m going to be there and love them.

The fact is, that no matter how much she’s done to me, no matter how much she has injured my heart, no matter how many times she’s screwed my life through her manipulations, I love her. She’s my mother; I can’t help it. I miss the love a mother is supposed to provide. I miss the safe haven. I miss the support system.

I miss the person you call when you are at your wit’s end and need advice. I have nothing like that. I’m it. I’m my own self-contained support. If a kid does something baffling, I’m on my own. If I’m drying out the turkey, I’m on my own.

I haven’t spoken to my extended family in years. I haven’t spent more than five minutes in conversation with my mother for two. My life has NEVER been better. It’s stable, I’m back in school. My kids are healing, slowly and painfully, but they are healing. We have our finances in order and our life is generally upwardly mobile. But still…

I want a mother so desperately it hurts.

And I can’t make that feeling go away, no matter how much I want to.

The Day My World Crashed

I lost my best friend, my very first true best friend, the one who taught me how to love and how to be loved back, to suicide in July 2015. The following is my thoughts when I found out he had taken his own life…

…4 months after it happened.

You see, we had lost touch and I had made myself invisible to everyone around him. I don’t typically believe in regret – it only leads to negativity – however in this case I truly regret leaving his circle. I’m still not sure why I felt it necessary. I missed his memorial. I missed the late night call. I missed saying goodbye.

Because the brain is a funny thing, I seem to have blocked out most of the hardcore grieving.

So here, from my Facebook and various platforms, the recounting of my thoughts and feelings during that time:

November 11, 2015

The journey of life is such a strange thing. I just learned that the person who was my light when I couldn’t see through the darkness left this life a few months ago.

November 12, 2015

I woke up this morning and he was still gone. It wasn’t all just a horrible nightmare giving me chills while I sleep. It’s real life.

I went to sleep crying and I woke up crying. My 2 year old keeps asking why I’m crying. Mommy’s just sad baby. So very sad.

“There will come a day when the joy runs out. Do not ask “What could I have done?” but instead ask “What will I do now?”  Think of me when you hear music, and laugh at something you remembered me saying. Know that I am silent and still, and believe me when I say that sweet nothingness is preferred to this life of disgrace, heartache, and pain. I will be no longer be a burden. There will come a day when the joy runs out.”

Pat wrote this on his Facebook February 18th, 2012.

I don’t recall what inspired him to write it, but I saved this note because he put his soul into words.

Words that rang true, unfortunately, way too soon.

So tonight, at Pat’s request, I’m asking myself, “What will I do now?” Instead of the “What should I have done? What could have I done?” that has plagued me since I found out what had happened. Months ago. That I did not know had happened.

Months ago.

I lost him through choices that were very much my own. What will I do, now that my heart is incomplete? I will think of him when I hear music. I will laugh when I remember something he said. I will remember that he isn’t here suffering in the prison of his dark thoughts and insecurities. I will continue to love him as if he were still here, because I don’t know how not to.

In a serendipitous way, he’s the reason that my husband and I are together today. I had stopped at Walmart to grab some books because I was preparing for an extended visit with my friend, Pat, who was having a rough night. The (future) husband just happened to be building a feature nearby. We got to talking and planned to hang out soon.

Three days later, we were sure that we’d never be apart again.

Pat officiated our wedding in the rose garden at Gage Park a year later to the day.

We had lost touch the last couple of years. I’d gotten busy raising kids and building our new extended family and Pat had been busy working and playing his beloved music. We met for coffee at Denny’s about two and a half years ago to catch up and share memories. He had changed and so had I and we couldn’t find our common ground anymore. We both just kind of let our relationship slip into fun memories and the occasional longing to be together, where we used to be.

I’m a firm believer that everyone comes into your life to give you a lesson, good or bad. Pat taught me many lessons in our time together; a hug is the best medicine, astrophysics is fascinating, and Neil deGrasse Tyson, Carl Sagan and Alexei Filippenko are awesome to watch in lecture. That music is a piece of my soul and goes deeper than a Top 40 pop radio station. Today Pat is teaching me to not take for granted the people that come into your life unexpectedly and leave the same way.

I love you, Pat. I’ll forever miss your hugs and dumb Assy McGee references.

I’ll never forget your smile.

January 1, 2016

You’re on my mind a lot today, buddy. There was a curious string of songs in my Pandora shuffle and while I know that if you were here you’d tell me how silly I was being and it’s just a coincidence, but I can’t help but think that it’s you giving me a little boost when you know the day is rough.

Miss you, been missing you. Wish I could tell you that.

(To my friend in a private chat) I can’t say this on my picture because it’s too public. But I’m having such a hard time dealing with his loss.

It’s like a shot to the gut. I feel like I failed him. He couldn’t function on a “hey how ya doing” every six months. He was a full-contact, likes-to-hang-out-in real-life type of guy.

I knew that about him and I just, I feel so badly that I let him grow away from me.

That I let myself become a part of his list of “people that don’t give a shit” because I totally gave a shit. I guess I’m really struggling with what I know his last thoughts were before he took his life.

I know he was listing off all the people that had failed him because I talked him down from that thought before. Many times. I have a Facebook messenger full of me talking him down from that. I wasn’t there that time to talk him down from that.

I know that’s not fair of me to put that on myself. I know that intellectually, but it hurts my heart so fucking much.


This. This haunts me so

He was there for me in my bad time. I was there for him in many of his bad times. I wasn’t there in his last bad time. I don’t know.

I feel selfish. For not trying harder to make him a part of my life. I’m struggling in the shoulda coulda woulda. It’s a favorite past time of mine. I keep pep talking myself “You didn’t know, There’s no way you could’ve known, he shut himself off, too”. I’m just really struggling today. I’ve been in tears for hours. I’m just struggling with my choices. I’m hurting.

February 23, 2016

It’s your birthday today. Normally, I’d be constructing some smart assed email joking about getting old and having you sneak goodies in to me at the nursing home. Instead I’ll be heading out to see your headstone in the country, along with the kiddos so I’m not tempted to be out there for too long. Missing you Pat. Today and everyday. Happy Birthday.

July 3, 2016

It’s been a year. I can’t believe it’s been a whole year. What I wouldn’t give for a Pat hug today. Instead, I’m watching astrophysics documentaries, some of your very favorites, Carl Sagan, Neil deGrasse Tyson and of course Alexei Fillipenko. They’re not the same without you here to dumb them down for me, but it feels like the right thing to do.

I’m looking forward to catching up with your family later today and celebrating your life and sharing memories. Until we meet again, I love you and miss you so, so much.

July 3, 2017

It’s been 2 years that you’ve been gone. I still miss you every day. I find myself in tears when I come across random 6 ft tall bald dudes, with sweet beards sporting some chucks. There are more of those than you would expect. It’s never you, if only I could convince my brain to stop looking. What I wouldn’t do for one more Pat hug. Love dove.

February 23, 2018

Happy Birthday dear friend. Watching some Cosmos tonight and thinking of you. Miss you so much, today and every day.

“when you meet that person.. a person. one of your Soulmates. Let the connection, relationship be what it is. It may be five mins, five hours, five days, five months. Five years. A lifetime. Let it manifest itself, the way it is meant to. It has an organic destiny. This way if it stays or if it leaves, you will be softer from having been Loved this authentically. Souls come into, return, open, and sweep through your life for a myriad of reasons, let them be who and what they are meant.”

― Nayyirah Waheed

Lucy Clare

Since 2003, the March of Dimes has led Prematurity Awareness Month activities in November as part of its Prematurity Campaign.

The goals of the campaign are to reduce rates of premature birth in the United States and raise awareness of this very serious problem.

Please, we encourage you to to submit your own stories of prematurity with The Band.

Four years ago I would not have paid attention to an event like Prematurity Awareness Month and I likely would not have even known about the work of the March of Dimes. Today I am proud to be a supporter of the March of Dimes and their important work.

On March 8, 2007, my niece, Lucy Clare entered this world after my brother, Jonathan and sister-in-law, Mary, made the difficult decision to have an emergency c-section at 25 weeks gestation. In the weeks leading up to Lucy’s arrival, Jonathan and Mary knew that there was a chance Lucy would have to arrive early. She wasn’t growing and the doctors said that if she didn’t reach 500 grams (1.1 pounds) there would be very little they could do.

We all held our breath as Mary went to each ultra-sound appointment, hoping that this baby (gender unknown to all but them) would grow – just a little bit more, just a few more grams.  They were briefed by the ob-gyn on what outcomes to expect if she was born at 32, 30 or 28 weeks.

A few weeks prior to Lucy’s birth, they were given a tour of the NICU so that they would be prepared for what they may encounter.  At their last appointment, on March 8, they were told they had to make the difficult decision – wait another week and risk that she wouldn’t survive in utero or deliver that day knowing that the hospital had never had a baby that small survive.

Wanting to just give Lucy a chance, they opted for the c-section.

Lucy was a micro-preemie in every sense of the word. She weighed only 400 grams (14 ounces) and was just 10 inches in length.  At her lowest, she dropped down to 290 grams.  She was given surfactant therapy – its research was funded by the March of Dimes – for her lungs.

She breathed with the help of a ventilator for five weeks before being switched to CPAP for two months and then on nasal cannula until she was discharged.  Lucy’s time in the hospital was filled with ups and downs – it often seemed like one step forward and two steps back.  She faced many of the challenges that preemies in the NICU face: infection, retinopathy, the struggle to breathe on her own, a heart condition and feeding challenges.

Lucy spent 182 days in the hospital – six long months – before she joined her family at home.

Today Lucy is a happy, funny, easy-going 3 ½ year old who adores her big sister Stella and is starting to enjoy her baby sister Mallory. She loves books, colouring, watching Yo Gabba Gabba and dancing. But she still faces many challenges:  she takes medication for pulmonary hypertension, she relies on a feeding tube for 100% of her nutrition and she has deteriorating eyesight.  She has therapy appointments with a feeding specialist, physiotherapist, and attends weekly sensory motor sessions.

The work that the March of Dimes does through education, Prematurity Awareness Month, March for Babies and so much more, is crucial to helping all babies have a healthy start.  Our family considers itself lucky that Lucy is here today and we want to do everything we can do to raise awareness for prematurity-related issues.  It’s our chance to give back just a little bit.

Visit www.marchofdimes.com to find out how you can help!

How Can One Child Have So Much Woe?

Friday’s child is loving and giving.

So why is my Friday child confused and behave as though he’s Wednesday’s child instead?  B doesn’t stick to the old English poem.  He got confused along the way. I know exactly when that was. When he was twelve days old and caught the dreaded meningitis.

That was the worst of times.

We were told he wouldn’t survive the night, but he did.  We were told he would never recognize us or smile or manage any basic functions, but he did.  I won’t bore you all with the setbacks, the heartache every night, the months spent in hospital, how none of our friends visited, the long, drawn-out wait to get home.

Those are for another time. Maybe.

This post is about now, this minute, how I am feeling.  I have never written anything like this down before, but I am an avid follower of Aunt Becky and she told me to, in all her posts about Band Back Together.

I don’t know how to make this a nice flowing post rather than a list of illnesses, surgeries, appointments and setbacks.  I suppose I’m having this issue because that could be how you would sum up B’s life so far.  I know that’s how others see him. When we meet for a Girly Catch-Up date, it’s never, “how are you all?” it’s “what’s B having done now?

My friends are great but I’ve been labeled The Coper; or she who deals with all that life throws at her.  B is labeled as ‘poor thing.’ Not a great label for an intelligent, reasonably active eight-year old. We have settled into this comfortable way of coping that I don’t know how to let people know that sometimes I am not coping very well.

Maybe Band Back Together will be the friend’s ear I can bend.

Anyway, back to my child of woe.

We were lucky to get pregnant with B and we were lucky to have a nice ‘normal’ pregnancy.  B was born on his due date and then things started to go wrong.

B was labelled with Torticollis and Talipes within the first few days of his life.

It threw us but we had just come to terms with all of that when B caught the dreaded Meningitis, caused by late onset Group B Strep.  Again, not to bore you with that hell of a first 6 months, B managed to cling on and then thrive.  He was considered a ‘floppy’ baby due to, what we figured was the brain damage caused by the meningitis, so all his milestones were delayed.  He also couldn’t work his muscles properly, including swallowing, so B was fed through a gastrostomy.

When we thought we were through the worst year of our lives, we were hit with another side swipe, B’s hip was dislocated and deformed, it needed immediate surgery.  That surgery was deemed successful and so we carried on.  We even began to relax a bit and focused on having some more children.  B still had some problems, mainly with his muscles, but we had got him off his gastrostomy and, again, he was thriving.

So, we relaxed and concentrated on other issues, such as my infertility and the long rounds of IVF, but again another story for another time.

During these years we were eventually blessed with twins Z and E.  All seemed well in our household, the girls were healthy and B was doing well.

Then, when B turned 6 we were knocked over again by the diagnosis that his hips weren’t right still.  So major surgery followed, which involved B being in an hip spica for 8weeks (not great for a 6yr old boy and a mum who also has 2yr old twins to look after) and wheelchair bound for many months more.

However, we all survived, well I am a’coper’!

B was just beginning to get mobile again when a doctor noticed his face was looking wonky.

A year of maxillofacial appointments followed which ended with us being knocked over again by the diagnosis of Juvenile arthritis.  The arthritis had been attacking his jaw joints for some time unnoticed and had now deformed them to the point of major facial surgery required.

However, they cannot do this while the Arthritis is active, so cue major arthritis drugs. Now B has to have weekly injections, for years, that are lowering his immunity, great.

However, we are coping!

Now factor in his hips update as well last week and we are cooking!  B’s hips have, again, grown wrong and further major surgery is required, probably in January.  Again my lovely son will be wheelchair bound because of his hips, injecting for his arthritis, struggling to eat because of his jaw deformity and tiring due to his muscle issues.  Again, I have taken on this diagnosis and have dealt with it and I am prepared for it.  What I didn’t expect was for his orthopaedic surgeon to say that things don’t seem quite right with B’s muscles and they seem to be getting worse.

Well, yes, he has hypotonia from the meningitis. obviously his muscles are not right.

That is not what he meant, the surgeon knows of B’s past history and thinks there is something else affecting him.

So that is why my gorgeous, bright, loving son is now being tested for Muscular Dystrophy and the medical view is that he probably does have it.

WHY?? I mean, hasn’t B gone through enough?

Haven’t I gone through enough?  Haven’t all our family gone through enough?

B has, at the moment, hypotonia, hypermobility, hip problems, arthritis, jaw problems and now possible MD.  Any 1 of these diagnoses would upset a parent, my son has all of them.

I am not coping any more, outside it looks like business as usual, but inside I am crumbling.  I look at my friends’ children and, selfishly, wonder if I can pass on just one of B’s problems to them.  Why did he get all of them?  Even the doctors can’t believe how unlucky he has been.  When friends worry about their child’s broken wrist, I think that I wish B could do cartwheels and break his wrist like that as well.

Then I feel bad for not having sympathy for them.  Then, I overcompensate for my guilt by offering help and being the friend they can always turn to.  They take that help because they know that I am a coper whereas they aren’t.  They make half-hearted promises of help in return but, they have their own families to look after and B and I would need too much help.  My hubby is pretty hands-on with the house and the kids but he has never been to a hospital appointment with B, never.

I feel it is B and I against the world sometimes.

So, there you have it, my child of woe.

This has been quite therapeutic, I feel like I can now go out into the world and carry on ‘coping’ again.

Lost: Mental Health Meanderings of a Tired, Ticked Off Thirty-Something Woman

This week has been a struggle.

In brief: I have a chronic mental health condition, and have struggled for years to find mental and emotional stability. I’m also a woman, and am impacted heavily by hormonal fluctuations that occur on a monthly basis.

Anyone who feels that I am just whining can do me a favour and stop reading right now.

Through medication treatment and self-discipline, I have found a level of stability that has been unparalleled in recent years of my existence. All this good goes out the window, however, for a period of a few agonizing days on a monthly basis.

Is it predictable? Yes.

Does that make it any easier? No.

Recently, I’ve been told that I am not a good “fit” for certain mental health services that I feel should apply to me. First example: I finally had an appointment with the Women’s Health Concerns Clinic outpatient services this past Thursday. I spent months looking forward to this appointment, hoping it would provide some relief.

Here’s what I learned:

Don’t put all of your eggs into one basket.

That’s a worn out old adage, but there is much truth behind it. The psychiatrist on staff at the Women’s Health Concerns Clinic felt that, due to the fact that I have depression occurring presently as part and parcel of my chronic mental health woes, I am not a good fit for the clinic’s services.

I do not have “textbook” pre-menstrual dysphoric disorder (PMDD) symptoms. Also, in terms of medications that are usually helpful for PMDD, I am already taking a good selection of those recommended for front-line intervention, including vitamins and minerals such as B6, Calcium, and magnesium. There is potentially some room for dosage adjustment, but in terms of there being a supplementary medication trifecta for PMDD, that is it, and I’m already taking all of them.

I am not currently taking the “recommended” antidepressant of choice for PMDD, but the one I’m on now has done so much good for every other aspect of my life that I am extremely hesitant to swap it out for another medicine that might not work so well. Trintellix has helped me immensely. I don’t cry on a daily basis anymore. I’m more open with everybody: strangers, friends, my husband, you name it. I can actually get to work most days. I feel stable, I feel good… most days. Most days, I am an absolute delight – and I love it!

Obviously, I am hesitant to swap out this medication for one that is more “tried and true” for symptoms of pre-menstrual dysphoric disorder. There is absolutely no guarantee that the antidepressants that have been clinically studied for PMDD effectiveness would work as well. In fact, I’ve tried most of them, with little success. So why swap out something that works well, for 20-ish days out of the month, for something that has been scientifically proven to be more effective for PMDD symptoms, but does not work well with my unique chemical composition? It makes no sense.

I’ve talked a lot about medication and I want to address something that I learned the hard way, ages ago:

In mental health, medication isn’t everything, Especially when it comes to more complex conditions. But my efforts to connect with a therapist or mental health counsellor at present have left me feeling even more lost and alone in my journey.

The Women’s Health Concerns Clinic heard my request to connect with a 1:1 therapist or counsellor in the Hamilton community, but did not offer to connect me with any such services. I was offered a referral to a mindfulness group, something I am not sure I will pursue due to the fact that most publicly operated mental health groups take place during the daytime hours, and I need to go to work during the day so I can support myself financially.

Sure, I could take time off work for the group, but doing so may jeopardize my employment and would be difficult to finance at this point, since any hours of work missed for the mindfulness group would constitute unpaid time off.

Desperate, I decided to look into private therapy options, and sourced out a psychotherapist’s website via the Psychology Today web page. This therapist sounds like a great fit, based on her specialties listed on her online profile page. I contacted this psychotherapist and asked about accessing her services. Obviously, private therapists cost money, something of which I am well aware; however, this therapist recommended that I seek to gain a referral to her through my employer’s Employee Assistance Program, which could, potentially, fund up to four sessions with this therapist to see if that would be beneficial for me, and also so I could establish if I enjoy working with her on a 1:1 basis and wish to pursue services further.

Wonderful!

I called up the EAP and explained the situation. The response I received was absolutely gut-wrenching: Because I have a chronic mental health condition, they are “unable” (or, unwilling) to provide me with a referral due to the fact that my therapy goals may not align with their mandate of connecting individuals in need with short-term counselling services.

It would be amusing, if it wasn’t so sad, to learn that even designated mental health support services stigmatize against people presenting with more severe mental health conditions.

What an eye-opener that was

In light of the recent high-profile suicides of wildly successful fashion designer Kate Spade and world-renowned celebrity chef Anthony Bourdain, I must point out that turning away a person who struggles with mental illness from suitable services because they don’t fit the proclaimed mandate or envisioned purpose of the service is a very, very dangerous practice.

Anyone reaching out for mental health support should at least be connected with suitable services once they make the effort to reach out, even if the initial service with which they’ve made contact might not be the best fit.

It is highly unwise to tell a person struggling with a chronic mental health disorder that they can’t access services because they have the wrong kind of mental illness.

#MeToo: Confusion and Fear

Rape and sexual assault take many forms.

This is her story:

When I was 19 years old, I couldn’t leave the house for anything important. That’s the rub. For anything important. I was still able to go out, and have a beer at the pub, or go shopping, or visit friends, but as soon as it came time to do something official, like pay a bill or get a job, or go to a Centrelink meeting, I’d dissolve into a bubbling pit of terror and tears and hide in the shower for as long as I could without freezing.

The thought of dealing with someone with authority scared me so much – I felt judged before I even got there. Dealing with unsympathetic bitch government workers didn’t help either. They made me feel like because I relied on their help, I was somehow less than a person.

I hid, and cried, and my fiancé at the time worked his arse off to keep us housed and internetted. The more he worked, the guiltier I felt, the more I drank and the worse we got. Eventually he convinced me to try for my security license, and I did. It was a job I could do – sitting on my arse in a car for $20 an hour, not having to talk to anyone. I traveled to Sydney every day for a week to do the course and get my certificate, and on the last day when I graduated I partied with my fellow students and teachers, celebrating that I finally had managed to do something constructive for myself.

He loved me, and was happy for me, and so he came in to Sydney to party with me. To combat his own fear of dealing with people he didn’t know, he drank himself stupid, and caught the train in. I didn’t want to deal with him. I sent him home. I cried. I drank. And instead of going home that night, I stayed at my teacher’s place and slept with him.

I made us break up. He begged me to reconsider but I couldn’t believe what I had done. I couldn’t allow myself to stay with him and infect him with my wrongness, and I didn’t want to have to deal with a rotting relationship while I tried to sort my thousand and one problems out.

So we broke up, and I started working for his boss – a man we had both known for over a year.

The Boss and His Wife knew all about what I had gone through. I told them everything almost straight away, and they professed sympathy and understanding. And then they made their advances. They had given me a job, and an income, and somewhere to live while I got my life back on track, and I was so, so grateful for that, and I can’t help but think that they knew what they were doing the entire time.

I was too scared to tell them “no,” in case I lost it all again, and I was also slightly interested. Never had anyone shown a sexual interest in my before. My fiancé was more of a confused little boy, and The Boss and His Wife were experienced, strong people who thought I was hot and sexy.

But I didn’t want to. I wanted to be alone for a while. I wanted to just be free. I wanted to know why everything about me was so broken. But if I lost my job I would lose my mind, and if I lost my mind I would never get better. So I did what I had to do to keep my sanity. And I would do it again.

After a few months I managed to break away, and sure enough they fired me for some made-up excuse within a week. By that time I had managed to work myself out a little bit more – enough to function as a human being again – and I could handle starting again.

To this day, I feel raped.

I feel like in the most vulnerable moments of my life, someone who I thought was my saviour took advantage of me. The thing is, knowing that I made the choice, and knowing that I did have that little bit of curiosity, and knowing that I would do it all again because I was right when I thought it would destroy my mind if I lost it all again so soon – it makes me feel as though my rape is not as valid as another woman’s. No one held me down, or hit me, or forced me, but I feel violated nonetheless.

I joke about it sometimes – it makes it easier to deal with – but it still makes me fall apart late at night. It still makes me cry like a baby sometimes, and it still ruins my sex life whenever I have bouts of memories. And it’s the conflict of feelings that makes me feel worst – feeling raped, and feeling unworthy of the title of “rape victim.”

And I’m back to not knowing what I am.