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Cancer: A Love Story

His name is John; hers is Yvonne. He is 76 and she is 74. They dated all through high school. Then they broke up and married other people, had kids and grandkids, and all was well.

Then John’s wife got cancer – ovarian or cervical – either way, doesn’t matter. He took care of her, always believing he could do more. Then she died.

John got on with his life. He was sad, but dealing.

One day, John’s son looked up Yvonne and found out she lived only 30 minutes away. She was married to someone and had kids and grandkids and even a great-grandkid.

Some time later, John’s son showed him the obituaries. Yvonne’s husband had passed. Cancer. John went to pay his respects. After all, he and Yvonne had once dated. They talked a bit and promised to keep in touch.

John and Yvonne were married two years later.

They have been married about six years now.

cancer love story

Two years ago, Yvonne was diagnosed with cancer, cervical or ovarian – doesn’t matter. It was the same cancer that killed John’s first wife.

John said NO!

He wanted to fight the cancer. He wouldn’t let cancer take his wife again.

John goes to every doctor appointment. He keeps track of every medication and dosage and when and how she is supposed to take it. He sat with her while she went through chemo. He shaved her head – and his – when she started to lose her hair. He isn’t letting her go without a fight.

They don’t know what the future holds, or if the cancer has spread.

Cancer sucks…but it also made them stronger.

Cancer brought them together.

What I Know. What I Don’t Know.

I don’t know if I’ll ever have babies.

Let me tell you what I do know:

I know that I’ll never birth a baby.

I know that my husband doesn’t create sperm.

I know that he’s ashamed of it and that makes me ashamed of him. He should advocate for all men out there who suffer silently through infertility, but he won’t, and I won’t “should” on him.

I know that I’ll NEVER do another round of infertility treatments because they make me crazy and hurt like hell.

I’m a wreck while on the drugs and a wreck when they don’t work.

I know I had at least one egg welcome donor sperm into her secret chamber and try to dig into my lining and hold on.

I know that the drugs made my lining extra thin so that her little grippers might as well have been coated in oil.

I know that the first pregnancy test came back MAYBE, as did the second.

I know that the day I went in for the REAL TEST, I started to bleed.

I know that people expect me to move on.

talk about suicide

I know that the only way I will get a child is if I adopt.

I know my husband is worried about adoption.

I know we can’t afford adoption.

I know that I will find a way to do it.

I know that there are days that infertility defines me, and I can’t help but wonder if it is because God is punishing me.

I would give anything to have a child and can’t stand to be around people who suck as parents. Yeah – I’m judgmental of your parenting.

I know I can do it better.

Don’t Ask Anymore

We are enjoying a day off. It’s Easter weekend. Reflecting Christ’s sacrifice on the cross. He is cutting up vegetables. He cuts himself and is bleeding everywhere.

He can’t even let Jesus Christ take center stage.

He needs all the damn attention!

Why does he think his needs are more important than mine?

Now, I need to help him feel more comfortable.

Constantly complying. I am not a part of the equation. I have been SPEAKING for years, repeating myself constantly. I don’t ask anymore. I don’t ask for things. I don’t ask for affection. I am living in limbo. Boundless. Floating.

I am invisible.

don't ask abuse marriage

I need to be released from this responsibility that I’ve been carrying for too long.

For the last eight years we’ve drifted apart, each of our roles were extremely different from the others.

I was primary care taker of the baby, he just worked to not be in pain. He was in and out of doctor’s offices, and in bed most of the time he was home.

He was cold to me. He couldn’t help it. I know.

To me, he had it easy: just relax, lay in bed, watch TV, take medicine, have another useless steroid injection.

Umm… when do I get the debilitating disease so I can sit on my ass all fucking day?  I feel trapped, imprisoned.

I had grand expectations that he would complete me, complete my life and it would be this grand ball with dances and tea parties. Our roles are still tragically different, neither supporting one another, neither of us need each other. We are in different places, both have different goals.

We are in the same room, breathe the same air but we’re worlds apart.

The lack of trust and respect – it’s killing us. I cannot trust that he’ll be there. That he’s ALL IN. We’ve been having some good months lately… but soon, that chronic pain will take him and paralyze him again.

That anxiety keeps me in the crazy.

And… so here’s the state of our union. I’ve become accustomed to not including him in my day. He’s had so many limitations, so many special needs. He’s never been able to engage, so I forget that he’s there sometimes.

Somewhere between the chronic pain, taking days off for doctor appointments, disappointments, missed opportunities, we disappeared. I stopped trying to make the structure we live in a home. He was too busy or too sick to care. He didn’t want me. I got used to that.

I became hard, and cold. I worked so hard to leave my father’s house only to end up exactly where I started. I try. He tries. We both feel the unbecoming of us though. It was a slow fade to black.

I’ve veered on a divergent path and, if I’m being honest, I don’t care if he follows or goes in the opposite direction.

How the fuck did I get here?!

I didn’t say no when I was victimized as a child. It happened on more than one occasion. He made me feel special and important.

Years later, I realized I was just his prey among many.

My brain started to split. There was the good me and the bad me.

Then I started cutting to feel something. ANYTHING. Then I would only feel anger, resentment, bitterness, shame.

Then I would drink myself to oblivion to be numb again.

And round and round we go….

I watched my father beat up my mother countless times. I was powerless. The only thing I could do was disconnect. Detach from the situation, go off in my imaginary world.

These days, the only real way I can relate to men is if they are anonymous, objectified, and made common.

Maybe if (they or) I become more anonymous, objectified, common, I don’t have to engage. I can pay to play. I can pay to heal in a way. I can acquit myself of the emotional debt.

I would have room for… selfishness.

I Am Complicated

I am neglected.

I’m the product of parents who didn’t know how to fulfill my emotional needs. I have an eating disorder,

I alternate between believing both that “my parents gave me everything; I had a happy childhood; I don’t have any reason to be this messed up,” and “my parents emotionally neglected me; I had an awful childhood; no wonder I am this messed up.“

I fantasize about being in the hospital because that seems like the ultimate (and only) way that people might finally see me and care about me. Logically, I know that it’s not true, but my emotional brain is convinced that being sick or hurt is the way to get the love, attention, and care that is not present in my daily life.

I am ashamed.

I’m a 22-year old who is still desperately attached to my mangled childhood stuffed animal, Lambie.

I surreptitiously, but uncontrollably, pull out my own hair. I know have trichotillomania (and dermotillomania while we’re at it), but it’s one of my most shameful “secrets.”

I eat spoonful of Nutella straight from the jar, and sometimes that will be the only thing I eat for the majority of the day.

I am depressed.

I am pained getting out of bed in the morning. It’s hard to relate to people who casually say, “Yeah, I didn’t want to get up this morning,” but may not understand the gravity of depression. It hurts to the bone.

I have trouble taking my daily antidepressants because a hidden part of me doesn’t believe I’m worthy of feeling better.

I am obsessed with filling my brain with as much information about mental illness as possible.

And yet, no matter how much I read books, articles, and studies about eating disorders, depression, eating disorders, anxiety, or impulse-control disorders, I struggle to control my own mental health.

I have a hard time with “I’m depressed.” Maybe because I don’t believe that the real me is just buried under mental illness. It’s more like “I’m a person living with depression.” It has taken so much of my personality and soul out of me, but without depression, I am a lively, joyful girl.

I am taking care of myself (or I’m learning to).

I practically begged my parents to see a therapist, nutritionist, and psychiatrist, when I was only 15 years old. It certainly wasn’t easy, especially because we didn’t talk about anything “emotionally charged,” but I knew that it was a step I had to take in order to alleviate my pain.

I reach out to others when I need it most. Even though I isolate, too, I also know that in moments of desperation, I do instinctively ask for help and support from those I trust.

I treat myself to occasional manicures, special purchases (a dress, a pillow, some art supplies), and a lazy Sunday.

As much as my brain tries to trick me into thinking that I am worthless and unlovable, I try to actively do things for myself that remind myself that I deserve care.

I am brave.

I share my story with very few people, but when I do, it is the most rewarding experience. Sharing real experiences and thoughts is how I create deep connections with people.

little ballet dancer

I moved to Denmark for my first job out of college. I don’t speak the language, I’ve never been away from home for more than four months, and I left my entire support network at home.

I am working full-force in therapy at facing the demons and insecurities I have hidden for years. I am taking charge of my life by learning to be vulnerable, accept my flaws, and love myself in spite of them, and find happiness for the first time in my life.

 

Breastfeeding Woes and Postpartum Depression

I breastfed my first child.

She was a freaking PRO at latching-on, and breastfeeding went spectacularly. My recently-born third child is also proving himself to be quite the little breastfeeding champ.

My second child? Not so much. He couldn’t get the hang of latching-on, even with special equipment, like those freaky-looking nipple shields.

postpartum depression

The stress of a cross-country move three weeks postpartum, moving in with my in-laws, while my husband had to take an extended job out-of-state (he spent eight months of my son’s first year out-of-state), my supply of breastmilk steadily decreased.

I was too poor to get a decent breast pump, we were in-between insurance, which meant that pumping my breasts to keep up my breastmilk supply was not an option.

Multiple lactation consultants and doctors were seen – no success. We began supplementing with formula, and while he was still a colicky baby, he was a little happier as he wasn’t hungry anymore.

I went on medication for postpartum depression when he was a few months old. That officially brought an end to our breastfeeding journey.

I spent several years working through the guilt of being unable to continue with breastfeeding. Every asthma attack he had triggered that guilt. When he developed speech problems, I worried that his difficulty speaking was related to not bonding through breastfeeding, or because I had postpartum depression.

Fast-forward to this past February as my four-year old climbed into the dentist’s chair for his first visit to the dentist.

As she was checking out his teeth, the dentist asked, “Does he ever have trouble with his speech?”

Startled, I told her, “Not really. He had a little trouble when he first started, but his last evaluation was good.”

While poking around in his mouth, she said, “Oh, good. I see that he’s tongue-tied. Not badly, borderline even, but sometimes makes it hard for children to learn to speak.”

I’m not sure what I said in return, because my mind was already jumping – tongue-tied. His frenulum is short, so his tongue’s movement is restricted. Not only can it cause problems with speech, having a tongue-tie can make breastfeeding and latching on difficult.

And just like that, all those feelings of guilt rushed back.

All the doctors and consultants that we had seen – not one had caught that he’d been tongue-tied. A tongue-tie is easily correctable. The frenulum is clipped and, tada, the tongue can move more freely.

Logically, I know that we’d still have had other hurdles to overcome to be able to breastfeed successfully. I know that he’s a smart, (more-or-less) healthy little boy, who wasn’t negatively impacted by being formula fed. I know that, given all the circumstances, formula was the best option for ALL of us. I know that he and I are no less bonded together because his food came from a silicone nipple instead of my own.

But my heart is less practical.

My heart is grieving that loss; that missed opportunity all over again.

The Squirt Bottle

Unable to have children of our own, my then-husband and I had the opportunity to have a foster-to-adopt situation with a precious little girl.

Just before her adoption, we were asked to also foster her little sister, who was about to be born.

I was hesitant. I didn’t want to take on a child who had a high chance of returning to her birth parents. But I couldn’t let my little girl’s sister go to strangers, so we said yes.

As time passed, the birth parents weren’t doing their part, and I felt more and more like she was my baby, and I would have her forever.

I should have been happy. I had everything I’d ever wanted!

The money the state paid us to take care of foster children made it possible for me to be home with those two pretty little girls all day. I had always wanted to be a stay-at-home-mom. And now I had not one, but two children to take care of! The girls were happy, and the best sound in the world was their laughter as they played together.

glitter on woman eye mommy wants vodka

I wish I could say my husband felt the same way.

He was resentful of that baby as soon as she entered our home.

He hated all the time I was spending with her, instead of him.

He was jealous.

Of an infant.

This one particular night breaks my heart. I wish I could go back and change things, but he had trained me for years not to question him. Fear of his anger kept me frozen.

The baby had learned to stand. She was so proud of herself! There was no stopping her now!

From the time she was a newborn, she had always hated going to sleep, and getting her to settle down for bed was a long, drawn-out process. But with her newly developed skill of standing, it became much worse. I would lay her down, she would stand up. I would put her down again, she would stand right back up.

One night, he had enough. “I”ll make her learn she has to lay down when it’s bedtime,” he said.

He came into the girls’ bedroom with me when I put her to bed.

I laid her down in her crib, telling her goodnight, same as I always did. She stood up, and he sprayed her right in the face with the water bottle we used on the cats when they were doing something wrong. I was horrified!

But what was I supposed to do? He was my husband, and I was afraid to question him.

The battle of wills between a man in his 40’s and a less-than-year-old baby went on for a while. I would lay her down, she would stand up, he would spray her in the face.

Finally, he pushed me too far. She was soaking wet, dripping on her sheets. I knew even if she did go to sleep, she would end up getting sick from trying to sleep in her wet clothes and bed. I took a chance and said, “That’s enough!”

Amazingly, he walked out the door without saying a word.

I took her out of her bed, pulled her wet clothes off of her, dried her with her little hooded towel, then put clean, dry pajamas on her. Then I changed the bedding in her crib and started the bedtime process again.

When I walked out of the bedroom, she was back to standing in the crib. I walked out to the living room where he was watching TV. I looked him dead in the eye and said, “Your way didn’t work, and you’re never doing that again.”

He didn’t argue, and he never tried that stunt again.

I think he figured out that there was only so far he could push me when it came to the children.

He could belittle me and mistreat me all he wanted, but don’t mess with the Mama Grizzly Bear.