Please share this around – we are none of us alone; we are all connected. You never know who’s lives you’ll change with your words.
I’m stressed. There is a lot going on out there, it feels like the information changes every day. My kids are home all day, every day. They don’t get to run around with their friends, even if we do see them while we are out for a walk. The news coming out of Italy gets more bleak by the minute, and I wonder if we are doing enough to stop this before it hits us like a runaway truck.
I worry about being able to feed my family long term, assuming this continues, which doesn’t feel like a stretch. I worry about my family, all of whom live at least 175 miles away. I worry the grocery stores will have to close because all their employees get sick. I worry that all medical personnel are burning themselves out and will suffer tremendously for it. I worry about the scientists working day and night to give us concrete answers.
This novel coronavirus has kicked my anxiety into full gear. I spend my days and nights imagining all the worst case scenarios. Sleep is not relief from this. The tension in my shoulders, jaw, whole body never releases. Taking a complete, deep breath seems impossible. My brain is a squirrel on meth stuck on a hamster wheel.
I talk to others online about their concerns, and I find all of them relatable. Maybe not in a specific detail kind of way, but in a general kind of way. I’m not a single mom struggling to care for her special needs child with no extra cash to even start to stock up on basics I may need. I’m not a new mom feeling isolated after building my routine around meeting up with friendly faces three times a week. I’m not the mom of a medically fragile child, panicked because people just can’t take this seriously.
I’m not these specific people. But I understand their struggles. Yesterday, I wrote a little post full of sass about how to survive. The sass hid the truth. This is not normal. It is not sustainable for our mental health. I need my friends and support system as much as anyone. And I need to support people just as much.
If you read this far, thank you. If you find that you just need to vent your fears, write them out here. You can post it anonymously, even we won’t be able to identify you. If you have some kind of resource I can link to that would help some of the people I listed above, shout them out. We will link anything that will help.
High school was… not good to me. I dealt with bullying and loneliness.
I was the girl people didn’t want to be around. I was too “weird” for the goth crew, but too “goth” for everyone else. I had the dyed black hair and dark clothing, but I stuck to mostly satin, lace, and velvet skirts and long dresses. I was “Romanti-Goth” where the rest of the goth crew was “Manson-Goth,” and the rest of the school wasn’t either.
The Columbine Massacre had just happened and was fresh on everyone’s mind. Your average goth kid in my school was popular enough to get through, and they had each other.
I vividly remember the day someone spit at my feet while I was walking through the halls.
Yeah, it was like that.
It didn’t help that I didn’t have the high school mentality. I wouldn’t say I was above it, I just wasn’t into it. I was a mentally-ill loner who enjoyed role-play games and people older than me. I wasn’t into dating around, parties, or the latest group of girly giggles.
Even my boyfriend was eight years older. My husband, who was my next boyfriend, is six years older. Your average teenager repulsed me, so high school was hell. It wasn’t something I enjoyed; it was something I struggled to survive.
My mental health issues became obvious in high school. Most of that time is a blur, but I do remember going and seeing my guidance counselor looking for a push in the right direction.
Luckily, a licensed therapist was in the school every Thursday for cases like mine. I only saw her seven times at school before I had to start therapy at her office, but that was enough to know she was the one. She was the one I could spill my guts to, the one who would be there for me. She gave me her cell phone number in case of emergencies.
She saw in me what no one else at the time saw – I was special and in need of help.
At the time, diagnoses like “bipolar” were thrown around, but they never fit. The only thing she knew for sure was that I was getting lost inside my head, and our sessions were my only chance to get help.
There was one other key figure in my high school survival. We’ll call her Mrs. M.
She was my 9th grade English teacher (and then later 10th grade Journalism 1 and 12th grade Brit. Lit.). Right away, we clicked.
She was the type of teacher to give me a passing grade when I accidentally answered the quiz question with the key event in Chapter 4 and not Chapter 3, when the whole point of the quiz was to determine whether I’d read up to Chapter 3 or not. I had, in fact, finished the book. Yeah, I was one of those English students. And she was one of those teachers. She spent the four years of my high school life doing her damnedest to make sure I made it through and survived. She was always there for me, no matter the problem.
When I was in 9th grade, I made my first website – it was filled with my dark, depressive poetry and even darker thoughts. My mom somehow came across it and had a cow.
She immediately sent the link to Mrs. M for her thoughts on it. In true Mrs. M fashion, she informed me and my mom that it was very well-written. The fact that it showed how much I needed help was obvious without the site.
Why did it surprise my mom?
I’ll always wonder.
Shortly after starting my blog, I went back to the school to visit with Mrs. M I wanted to fill her in on my life and my family.
I was also excited to say the words that burst out of me. “I’m writing!” I knew she, of all people, would be proud of me.
I knew she, of all people, would look past the darker times and see the beauty of my written word.
My therapist has asked me to write down a list of my emotional traumas.
A list of all the emotionally and physically traumatic experiences that have happened to me in my life, that have contributed to my Bipolar Disorder and PTSD.
Right now, my therapist doesn’t feel as though I’m ready for the therapy called Eye Movement Desensitization and Reprocessing (EMDR). As far as I understand, I have to relive physical and emotional traumatic experiences, have the proper emotional response, get over it, then have Cognitive Behavioral Therapy (CBT) so I can develop some sort of coping mechanism for the future.
But until my medications are adjusted and I’m in a better place, I have to wait.
So, here is my list:
Sexual abuse around age 3 by a family member. I repressed this memory until it slapped me in the face at age 12, causing an intense anxiety attack.
Constant arguing between my parents, thanks to my father’s alcoholism, gambling and pain issues due to needing a hip replacement. The pain issue turned into an anger issue; turned into a power tool being thrown at my mother, missing, and going through the window and landing at my feet; followed by an argument on a holiday with my father resulting in me taking a heavy duty power torch to the head.
As a “gifted child,” I was bullied a lot in primary school and high school. I still carry some of those emotional scars with me.
Funnily enough, my brain is currently trying to stop me from accessing more memories. Suck it, brain; stop being a whiny bitch and let me write this shit out.
When I was 16, my mother – being severely depressed – attempted suicide several times. The last time she tried, she had an argument with my father (now a better man, nothing like his days in my earlier life), and downed a ton of pills. I found her and her suicide note. I actively suppress the things written on that note thanks to the emotional trauma but I know how it began.
That sentence haunts me in my dreams. She is fine now, thankfully, but I refused to talk about it with anyone and pretended it never happened.
I was diagnosed with severe anxiety disorder when I had a panic attack at high school so bad my heart rate was 180, and I had to be rushed to hospital for fear of doing damage to my heart.
Since that day, I regularly have heart palpitations.
I had a psychotic episode at 17, when voices told me to stab my mother. I became paralyzed in my own bed while lights shone down from the ceiling, and I was convinced aliens were coming for me, despite my logical brain telling me I was being stupid.
I was diagnosed with endometriosis and told I should probably have children before 25. I’m currently a week away from my 24th birthday. Talk about another emotional trauma.
I dated a Muslim man for eight months. Toward the end of the relationship, I was emotionally abused, when he called me a dog. I went running into the arms of a male friend.
I decided I was the worst person in the world and went off screwing any guy who looked my way, drinking myself into oblivion, and eating pills like candy, just to numb the pain. I wanted to be used. I asked my male friend – now my fuck buddy – if he was using me for sex. He replied yes. I cried and said, “good.
” Turned out he wasn’t using me: he was in love with me; as a result of my promiscuity, and his inability to tell me how he felt, he quit university, broken-hearted.
I started dating my current partner, whom I have been with for five years now. We lived with his sister, her fiancé, and their daughter. His sister is a lazy bully who cannot look after herself, let alone children (currently a total of three). Her fiancé is a violent, alcoholic gambler. After being made a prisoner in my own bedroom, we got our own place.
My diagnosis of fibromyalgia explained my constant pain and tiredness. Yay for inheriting every single shitty illness my parents have.
Recently, I have started to have feelings for a close friend, who also has a partner. While drunk, we have made twice. I have feelings for him, but he is just attracted to me. I have immense guilt over betraying my partner, who is emotionally stunted. I think I’m just attracted to my friend because he has the social and emotional skills my partner lacks.
I was severely bullied at my last job until I began having daily panic attacks and getting into a screaming matches with a higher-up and former friend.
I decided to self-harm and contemplated suicide when the medication I was taking for five years stopped working. Unfortunately, while the medication stopped working, my now non-existant libido did not return.
Have also suffered dermatillomania (chronic skin-picking) for most of my life, particularly my feet. It is disgusting.
Currently, I am plagued by insomnia, headaches, anxiety, shame, severe depression, guilt, and every other horrible feeling imaginable. According to my therapist, I have feelings of low self-worth. According to my friends, I have a much lower opinion of myself than everyone else does of me.
I am both numb and emotionally unstable. I can’t cry, even though I really want to let it out. I think of myself as selfish and horrible, a terrible person who doesn’t deserve what I have. I theorize that I have some subconscious need to sabotage myself. Every time something is going well, just to add some drama in my life. Why I do this, I don’t know. And as I have written this list in such a cold, emotionless manner, I find it odd that I can be so numb and feel so many negative emotions at the same time. I feel like a robot.
I don’t want sympathy. At least, I don’t think I do. I am just tired. Tired of struggling through every day with these issues. I want the problems to just magically disappear because I’m tired of fighting.
I know it’s a long road ahead to my recovery. And as much as I don’t want to relive the aforementioned memories, I am also excited for the first time in ages because maybe, finally, with proper therapy…
It feels like everyone around me is sinking further and further down this whirlpool of insanity. Meanwhile, I’m floating on some shitty piece of driftwood yards away. I’m holding on for dear life, eyes closed, hoping i don’t get sucked back in to that hole. I’m sick of that feeling. it’s almost worse than drowning in the whirlpool itself.
t’s hard to come to grips with the fact that no matter how well I’m doing, I’m probably gonna end up feeling like complete shit again, because that’s just the way my brain cookie crumbles.
In my sixteen years, I’ve never had to deal with the problem of bullying from others. However, for as long as I can remember, I have been a big bully to myself.
“Why are you alone on a Friday night? On a Saturday night? On any night? Because NO ONE wants to hang out with you! No one likes you!”
“You aren’t really asexual! You’re just deluding yourself!”
“You think you’re life’s bad? You don’t even have a reason for being depressed!”
“Why the fuck are you getting a second helping? You don’t do anything to burn it!”
“The reason you’re doing badly in school isn’t because you don’t function well in school, it’s because you’re dumb as a post! You don’t deserve to be in your classes, you’re not that smart!”
“You’ll never make it as a writer!”
“Of course your sisters don’t want to talk to you. They have better friends than you in college!”
I try not to listen to these things I say to myself and keep them shut out. But I can count on one hand the people who really know me and who care about me. I’m so alone.
I won’t crack. Won’t let me get to me. I’ll keep smiling for my family and keep telling my friends that I’m ‘just tired.’ I’ll just keep it all inside, keep it all behind my wall.
It’s been a long time since I thought about those first few days with my daughter. Actually, that’s a lie. There’s not a day that goes by that I don’t think about the encephalocele, that pesky bit of brain matter growing out of the back of her head. The still-growing scar on her misshapen skull makes damn sure of that.
It’s always peeking out, just below her curls.
I wonder what she’ll think of that, someday, when she realizes that she’s not quite like the other kids. I know there will come a day when she hates it, another when she accepts it, and another when she realizes just how grave a situation it was… and what a miracle it is that she is still around today.
I know enough, thanks to my nursing background, to know what an absolute miracle it is that she’s walking around, talking, and demanding that I paint her bedroom pink. Not a day goes by that I don’t thank her for showing me the way, for helping me find my light, and for using that light to help others.
She’s the reason we, this Motley Band, are here. She’s the sole reason that this site, which has helped so many, exists. Without her, I’d just be some blogger with a blog that I use to pontificate about the underrepresentation of kumquats in today’s media. I’d still be Your Aunt Becky, but I wouldn’t have done this. Any of this.
In her short life, she has altered the path of so many. In her three small years, she has done so much more than I ever will.
While I could sit here, raging against her birth defect – which has given me a wicked case of PTSD – I don’t. I celebrate it. I celebrate that one tiny bit of brain that has changed the course of my life forever.
Today, I ask you to share your stories of birth defects, birth trauma and birth injury. There are so many of us out there in the shadows, waiting to share how their lives have been changed with a few small words, a diagnosis.
The greatest stories remain untold, of course, not from a desire to tell them, but from a lack of an understanding ear.
In here, in this cozy library, fire crackling in the background, as we sit on overstuffed leather chairs, we are ready to lend you our ears.
