by Band Back Together | Nov 12, 2018 | Anger, Attention-Deficit Hyperactivity Disorder, Feelings, Mental Health |
What am I supposed to do about an extremely angry child who has ADHD?
We’re in counseling but it’s not helping; the shrink can’t even figure out what to do with him.
Where do we go from here? Should we send him to an inpatient psychiatric unit to deal with rage problems? Or try outpatient anger management?
He’s punched walls and made his brothers cry; they would not tell us because they are scared of him.
What should I do?
by Band Back Together | Nov 8, 2018 | Abandonment, Abuse, Adult Children of Narcissistic Parents, Anxiety Disorders, Blended Families, Child Abuse, Child Sexual Abuse, Coping With Anxiety Disorders, Emotional Abuse, Estrangement, Family, Feelings, Loss, Mental Health, Narcissistic Personality Disorder, Stress |
I’ve been debating joining Band Back Together since the day it opened. I was leery, because good goodness do I have a lot to say. Sometimes it’s hard to know where to begin. And hard to let yourself. Some things are hard to pull out of the box under the bed. It’s not easy to give them attention or light, even if sometimes that is necessary.
So I’m here. And fuck it all. I’m healing. I’m better. I’m stable and mostly happy. I got shit to say.
My mom once showed me a song by Lucinda Williams called Sweet Side. She said it reminded her of me. Which is sort of bullshit. I’ve been pretty emotionally fucked up but never quite to that extent. In any case, I found it sort of ironic that my mom should point it out to me. She mistakenly believes my internal wounds were created when I was molested.
They weren’t.
They were her made by her alone. I’m honestly not affected by the molestation. I have been, but that pain has long since been banished.
The worst damage is the quietest.
It is the person who should love you unconditionally repeatedly telling you, “I love you, but….” It is being thrown out into the streets at the age of thirteen. It is being told you are insane; a bitch, violent, angry, a failure, unstable, and worthless in words and actions for most of your life. It is trying, with EVERY OUNCE OF LOVE in your child’s body, to gain the affection of your mother by any means necessary. Then, when that fails, to gain -attention- by any means necessary.
And when that fails, shutting off to the world.
It’s being sent away, over and over as a child, on the word’s “I can’t deal with you any more, you are going to your (Aunt’s/Dad’s/Grandma’s) house.”
It’s your insane family hosting an intervention.
To tell you to lock yourself in an insane asylum. For the horrific sin of being angry. When the forty-year old virgin who still hides in her mother’s attic, the woman who had seven kids (five outside of her marriage) lied about the whole thing, watched her husband beat and molest her children and ignored it willfully, and the former heroin addict tell you that you need help, something has gone terribly wrong.
Having one of the most insane stick up for you at the least expected moment. Finding shelter in his rage. Seeing the correlation. Black sheep meet black lamb. Those surreal moments that buffer you from the storm.
It’s moving in with your step-dad when your parents separate. Because he’s the better parent.
It’s being kicked out of your bedroom and moved into the corner of the living room, so your mother’s boyfriend can have an office. Or moving into the spider-infested, insulation-free shed outside. Because they are tired of you inside. Or a 3AM, walk outside to get to the restroom, because you aren’t welcome to live IN the house with the good people.
And finding the front door locked.
It’s a birthday party alone, while your family went on vacation (again) to New Orleans without you. During Mardi Gras. It’s a sweet sixteen where they haul in a musty old pull-behind trailer and tell you, “Happy Birthday, now GTFO” and you find yourself with a ‘birthday’ basket of cleaning supplies and a rank, disgusting trailer parked in the back yard. Your new home. Have a paper umbrella, it’ll make it right.
It’s making the (sane) decision to not speak to your mother, ever again, at seventeen. And being talked out of it. Stupidly.
It’s having the power cord leading to that same trailer be pulled repeatedly in the middle of the night by your mother’s boyfriend. Leading to HOLY FUCK IT’S COLD IN HERE. Leading to ‘Stop lying! He didn’t do it!’
It’s trusting, against your better judgment, to go home when your life collapses and you are sick and losing your mind. And finding yourself taken advantage of, and then thrown out. Again.
Of trying to get your life back together, only to have your money depleted entirely. Of going back to school only to discover that every day seems to result in another, “I TOLD you I couldn’t watch the kids, I have an appointment”
Of visiting a friend in California to get away from the building stress and anxiety, to find yourself homeless and stranded and papers being filed in your absence claiming you abandoned your children. Of having to explain to your children that you didn’t. And that you meant it when you said you’d be gone a week.
Of living in a shitty motel in the middle of the Mojave desert, subsisting on ten dollars a week in food to make it back to get your kids. In waiting a year to see them again because of your mother’s treachery.
Of gearing up for an epic court battle only to have her mysteriously drop them off with ‘a secret, don’t tell your mother’ and have your beautiful, sensitive daughter burst into tears because the pressure is too much. In hearing her, through her sobbing, explain that she’s afraid Grandma would be back to take them again in a month, because that’s what she said.
Holidays are bullshit. They remind me of the family I don’t have.
They remind me of going to Thanksgiving to drop off my kids to spend time with their Uncle, and be entirely ignored by my family. They remind me of being asked how much a vacuum was at Home Depot without a ‘hello’ or a ‘Merry Christmas’ preceding it and without even so much as a ‘have a nice day’ on leaving.
I spent the last two years with just my partner during the holidays. It’s been years since I so much as got a birthday card or a Christmas card. I don’t expect them, and I don’t need them. But I kind of wish I got them. It felt odd. It still feels odd.
This year, I’m going to cook a turkey, we will all will sit down to it and be thankful for what we have. And I will continue to love my children fiercely every day, no matter how angry and hurt they are inside. No matter how long their own healing process takes. No matter what silly, childish things they do. Even if they break something I love, or snark at each other in a hormonal rage, no matter if they make horrible decisions or great ones. I’m going to be there and love them.
The fact is, that no matter how much she’s done to me, no matter how much she has injured my heart, no matter how many times she’s screwed my life through her manipulations, I love her. She’s my mother; I can’t help it. I miss the love a mother is supposed to provide. I miss the safe haven. I miss the support system.
I miss the person you call when you are at your wit’s end and need advice. I have nothing like that. I’m it. I’m my own self-contained support. If a kid does something baffling, I’m on my own. If I’m drying out the turkey, I’m on my own.
I haven’t spoken to my extended family in years. I haven’t spent more than five minutes in conversation with my mother for two. My life has NEVER been better. It’s stable, I’m back in school. My kids are healing, slowly and painfully, but they are healing. We have our finances in order and our life is generally upwardly mobile. But still…
I want a mother so desperately it hurts.
And I can’t make that feeling go away, no matter how much I want to.
by Band Back Together | Nov 5, 2018 | Feelings, Friend Loss, Grief, Guilt, Help For Grief And Grieving, How To Cope With A Suicide, Loss, Mental Health, Suicide, Survivor Guilt |
I lost my best friend, my very first true best friend, the one who taught me how to love and how to be loved back, to suicide in July 2015. The following is my thoughts when I found out he had taken his own life…
…4 months after it happened.
You see, we had lost touch and I had made myself invisible to everyone around him. I don’t typically believe in regret – it only leads to negativity – however in this case I truly regret leaving his circle. I’m still not sure why I felt it necessary. I missed his memorial. I missed the late night call. I missed saying goodbye.
Because the brain is a funny thing, I seem to have blocked out most of the hardcore grieving.
So here, from my Facebook and various platforms, the recounting of my thoughts and feelings during that time:
November 11, 2015
The journey of life is such a strange thing. I just learned that the person who was my light when I couldn’t see through the darkness left this life a few months ago.
November 12, 2015
I woke up this morning and he was still gone. It wasn’t all just a horrible nightmare giving me chills while I sleep. It’s real life.
I went to sleep crying and I woke up crying. My 2 year old keeps asking why I’m crying. Mommy’s just sad baby. So very sad.
“There will come a day when the joy runs out. Do not ask “What could I have done?” but instead ask “What will I do now?” Think of me when you hear music, and laugh at something you remembered me saying. Know that I am silent and still, and believe me when I say that sweet nothingness is preferred to this life of disgrace, heartache, and pain. I will be no longer be a burden. There will come a day when the joy runs out.”
Pat wrote this on his Facebook February 18th, 2012.
I don’t recall what inspired him to write it, but I saved this note because he put his soul into words.
Words that rang true, unfortunately, way too soon.
So tonight, at Pat’s request, I’m asking myself, “What will I do now?” Instead of the “What should I have done? What could have I done?” that has plagued me since I found out what had happened. Months ago. That I did not know had happened.
Months ago.
I lost him through choices that were very much my own. What will I do, now that my heart is incomplete? I will think of him when I hear music. I will laugh when I remember something he said. I will remember that he isn’t here suffering in the prison of his dark thoughts and insecurities. I will continue to love him as if he were still here, because I don’t know how not to.
In a serendipitous way, he’s the reason that my husband and I are together today. I had stopped at Walmart to grab some books because I was preparing for an extended visit with my friend, Pat, who was having a rough night. The (future) husband just happened to be building a feature nearby. We got to talking and planned to hang out soon.
Three days later, we were sure that we’d never be apart again.
Pat officiated our wedding in the rose garden at Gage Park a year later to the day.
We had lost touch the last couple of years. I’d gotten busy raising kids and building our new extended family and Pat had been busy working and playing his beloved music. We met for coffee at Denny’s about two and a half years ago to catch up and share memories. He had changed and so had I and we couldn’t find our common ground anymore. We both just kind of let our relationship slip into fun memories and the occasional longing to be together, where we used to be.
I’m a firm believer that everyone comes into your life to give you a lesson, good or bad. Pat taught me many lessons in our time together; a hug is the best medicine, astrophysics is fascinating, and Neil deGrasse Tyson, Carl Sagan and Alexei Filippenko are awesome to watch in lecture. That music is a piece of my soul and goes deeper than a Top 40 pop radio station. Today Pat is teaching me to not take for granted the people that come into your life unexpectedly and leave the same way.
I love you, Pat. I’ll forever miss your hugs and dumb Assy McGee references.
I’ll never forget your smile.
January 1, 2016
You’re on my mind a lot today, buddy. There was a curious string of songs in my Pandora shuffle and while I know that if you were here you’d tell me how silly I was being and it’s just a coincidence, but I can’t help but think that it’s you giving me a little boost when you know the day is rough.
Miss you, been missing you. Wish I could tell you that.
(To my friend in a private chat) I can’t say this on my picture because it’s too public. But I’m having such a hard time dealing with his loss.
It’s like a shot to the gut. I feel like I failed him. He couldn’t function on a “hey how ya doing” every six months. He was a full-contact, likes-to-hang-out-in real-life type of guy.
I knew that about him and I just, I feel so badly that I let him grow away from me.
That I let myself become a part of his list of “people that don’t give a shit” because I totally gave a shit. I guess I’m really struggling with what I know his last thoughts were before he took his life.
I know he was listing off all the people that had failed him because I talked him down from that thought before. Many times. I have a Facebook messenger full of me talking him down from that. I wasn’t there that time to talk him down from that.
I know that’s not fair of me to put that on myself. I know that intellectually, but it hurts my heart so fucking much.
This. This haunts me so
He was there for me in my bad time. I was there for him in many of his bad times. I wasn’t there in his last bad time. I don’t know.
I feel selfish. For not trying harder to make him a part of my life. I’m struggling in the shoulda coulda woulda. It’s a favorite past time of mine. I keep pep talking myself “You didn’t know, There’s no way you could’ve known, he shut himself off, too”. I’m just really struggling today. I’ve been in tears for hours. I’m just struggling with my choices. I’m hurting.
February 23, 2016
It’s your birthday today. Normally, I’d be constructing some smart assed email joking about getting old and having you sneak goodies in to me at the nursing home. Instead I’ll be heading out to see your headstone in the country, along with the kiddos so I’m not tempted to be out there for too long. Missing you Pat. Today and everyday. Happy Birthday.
July 3, 2016
It’s been a year. I can’t believe it’s been a whole year. What I wouldn’t give for a Pat hug today. Instead, I’m watching astrophysics documentaries, some of your very favorites, Carl Sagan, Neil deGrasse Tyson and of course Alexei Fillipenko. They’re not the same without you here to dumb them down for me, but it feels like the right thing to do.
I’m looking forward to catching up with your family later today and celebrating your life and sharing memories. Until we meet again, I love you and miss you so, so much.
July 3, 2017
It’s been 2 years that you’ve been gone. I still miss you every day. I find myself in tears when I come across random 6 ft tall bald dudes, with sweet beards sporting some chucks. There are more of those than you would expect. It’s never you, if only I could convince my brain to stop looking. What I wouldn’t do for one more Pat hug. Love dove.
February 23, 2018
Happy Birthday dear friend. Watching some Cosmos tonight and thinking of you. Miss you so much, today and every day.
“when you meet that person.. a person. one of your Soulmates. Let the connection, relationship be what it is. It may be five mins, five hours, five days, five months. Five years. A lifetime. Let it manifest itself, the way it is meant to. It has an organic destiny. This way if it stays or if it leaves, you will be softer from having been Loved this authentically. Souls come into, return, open, and sweep through your life for a myriad of reasons, let them be who and what they are meant.”
― Nayyirah Waheed
by Band Back Together | Oct 29, 2018 | Coping With Depression, Depression, How To Cope With A Suicide, Loss, Major Depressive Disorder, Mental Health, Mental Illness Stigma, Premenstrual Dysphoric Disorder, Suicide, Therapy |
This week has been a struggle.
In brief: I have a chronic mental health condition, and have struggled for years to find mental and emotional stability. I’m also a woman, and am impacted heavily by hormonal fluctuations that occur on a monthly basis.
Anyone who feels that I am just whining can do me a favour and stop reading right now.
Through medication treatment and self-discipline, I have found a level of stability that has been unparalleled in recent years of my existence. All this good goes out the window, however, for a period of a few agonizing days on a monthly basis.
Is it predictable? Yes.
Does that make it any easier? No.
Recently, I’ve been told that I am not a good “fit” for certain mental health services that I feel should apply to me. First example: I finally had an appointment with the Women’s Health Concerns Clinic outpatient services this past Thursday. I spent months looking forward to this appointment, hoping it would provide some relief.
Here’s what I learned:
Don’t put all of your eggs into one basket.
That’s a worn out old adage, but there is much truth behind it. The psychiatrist on staff at the Women’s Health Concerns Clinic felt that, due to the fact that I have depression occurring presently as part and parcel of my chronic mental health woes, I am not a good fit for the clinic’s services.
I do not have “textbook” pre-menstrual dysphoric disorder (PMDD) symptoms. Also, in terms of medications that are usually helpful for PMDD, I am already taking a good selection of those recommended for front-line intervention, including vitamins and minerals such as B6, Calcium, and magnesium. There is potentially some room for dosage adjustment, but in terms of there being a supplementary medication trifecta for PMDD, that is it, and I’m already taking all of them.
I am not currently taking the “recommended” antidepressant of choice for PMDD, but the one I’m on now has done so much good for every other aspect of my life that I am extremely hesitant to swap it out for another medicine that might not work so well. Trintellix has helped me immensely. I don’t cry on a daily basis anymore. I’m more open with everybody: strangers, friends, my husband, you name it. I can actually get to work most days. I feel stable, I feel good… most days. Most days, I am an absolute delight – and I love it!
Obviously, I am hesitant to swap out this medication for one that is more “tried and true” for symptoms of pre-menstrual dysphoric disorder. There is absolutely no guarantee that the antidepressants that have been clinically studied for PMDD effectiveness would work as well. In fact, I’ve tried most of them, with little success. So why swap out something that works well, for 20-ish days out of the month, for something that has been scientifically proven to be more effective for PMDD symptoms, but does not work well with my unique chemical composition? It makes no sense.
I’ve talked a lot about medication and I want to address something that I learned the hard way, ages ago:
In mental health, medication isn’t everything, Especially when it comes to more complex conditions. But my efforts to connect with a therapist or mental health counsellor at present have left me feeling even more lost and alone in my journey.
The Women’s Health Concerns Clinic heard my request to connect with a 1:1 therapist or counsellor in the Hamilton community, but did not offer to connect me with any such services. I was offered a referral to a mindfulness group, something I am not sure I will pursue due to the fact that most publicly operated mental health groups take place during the daytime hours, and I need to go to work during the day so I can support myself financially.
Sure, I could take time off work for the group, but doing so may jeopardize my employment and would be difficult to finance at this point, since any hours of work missed for the mindfulness group would constitute unpaid time off.
Desperate, I decided to look into private therapy options, and sourced out a psychotherapist’s website via the Psychology Today web page. This therapist sounds like a great fit, based on her specialties listed on her online profile page. I contacted this psychotherapist and asked about accessing her services. Obviously, private therapists cost money, something of which I am well aware; however, this therapist recommended that I seek to gain a referral to her through my employer’s Employee Assistance Program, which could, potentially, fund up to four sessions with this therapist to see if that would be beneficial for me, and also so I could establish if I enjoy working with her on a 1:1 basis and wish to pursue services further.
Wonderful!
I called up the EAP and explained the situation. The response I received was absolutely gut-wrenching: Because I have a chronic mental health condition, they are “unable” (or, unwilling) to provide me with a referral due to the fact that my therapy goals may not align with their mandate of connecting individuals in need with short-term counselling services.
It would be amusing, if it wasn’t so sad, to learn that even designated mental health support services stigmatize against people presenting with more severe mental health conditions.
What an eye-opener that was
In light of the recent high-profile suicides of wildly successful fashion designer Kate Spade and world-renowned celebrity chef Anthony Bourdain, I must point out that turning away a person who struggles with mental illness from suitable services because they don’t fit the proclaimed mandate or envisioned purpose of the service is a very, very dangerous practice.
Anyone reaching out for mental health support should at least be connected with suitable services once they make the effort to reach out, even if the initial service with which they’ve made contact might not be the best fit.
It is highly unwise to tell a person struggling with a chronic mental health disorder that they can’t access services because they have the wrong kind of mental illness.
by Band Back Together | Oct 22, 2018 | A Letter I Can't Send, Domestic Abuse, Emotional Abuse, Feelings, Helping Someone In An Abusive Relationship, How To Deal With A Self-Destructive Friend, How To Help A Loved One Who Self-Injures, Psychological Manipulation, Self Injury, Self Loathing, Self-Destructive Behavior, Teen Self-Loathing |
In my teens, I was toxic to everything I touched.
I didn’t mean to be – I just had a lot of pain inside and was too young to understand the connection between that and the reckless behavior I exhibited. You understood it and prayed for me, always hoping I would see the light.
It wasn’t that I was a trouble-maker as so many claimed. Yes, I vandalized an elementary school in my home town, thoughtlessly claiming the rooftop with my giant ‘My Name Was Here.’ Yes, I ran away once, all the way to Tennessee, and yes, I became a teenage mother at the age of sixteen.
Maybe I was a trouble maker.
And then into my twenties, the bad choices and reckless behavior chose to continue itself. I’m sure you remember the destruction I left in my own life after post-partum depression led to the loss of my two children.
Years 23-29 are a blur – six years in a hellish nightmare that I had convinced myself I deserved. You screamed at me that I deserved better, that my children deserved better. I assured you that I believed you – and stayed in the nightmare anyway, because that’s what I deserved.
I lied to my friends and my family. I became a stranger even to myself.
The worst part was marrying my abuser on your birthday as if to honor you in some sort of way. ‘Look Mama. I did it. I married what I earned.’ I spent my entire twenties hating myself for my teen years – and so another decade was lost to my toxicity.
I didn’t mean to lose those years with myself and my children.
It wasn’t until my thirties that I started to feel like you know – maybe I gotta start forgiving myself in order to act right. I read all the mushy quotes, convinced myself I was beautiful inside and out, walked away from everything that caused me harm and for a while I was so happy.
I was so brilliantly happy and dazed by how very blessed my life was – I even found myself being loved by someone who never raised his voice or hands to me.
But here I go again – unable to forgive myself and unable to stop the path of destruction. I can see it happening. I know I should stop it. But I can’t. Not until it’s all burned to the ground.
Because I’m toxic.
And I don’t know that I ever won’t be..
by Band Back Together | Oct 19, 2018 | Anger, Anxiety, Anxiety Disorders, Attention-Deficit Hyperactivity Disorder, Autism, Bipolar Disorder, Bullying, Child Protective Services, Childhood Bullying, Coping With Bullying, Depression, Family, Feelings, Guilt, Impulse Control Disorders, Loneliness, Major Depressive Disorder, Military Deployment And Family, Obsessive-Compulsive Disorder, Oppositional Defiant Disorder, Pediatric Caregiver, Sadness, Uncategorized |
A wise woman told me to write up my story and tell the hell out of it. So, here I am.
Sometimes, I feel like I have the only kid like mine. My son was diagnosed between 3 and 4. He is one of 3 I have, with special needs. For the time being, I’m focusing on my oldest.
We knew something was not right with him. He threw an 80 lb. mattress across the room at me. How does a 3 year old do that? He never slept. He would have meltdowns and throw things at me. I have gotten black eyes from everything from a book to an army boot to the back of the head.
Thankfully, I had a wonderful doctor tell me how to deal with the meltdowns and those came less and less often. However, he would wander. We had two incredibly scary events where he wandered off when he was 5, but he had angels and off duty police officers watching out for him.
When we got the Autism diagnosis, I knew nothing about Autism. Most people equate it to the movie Rain Man. I had never seen the movie so I had no clue. All I knew was Doug Flutie, an NFL football player, had a cereal that’s proceeds went to autism awareness. The only reason I knew that is because I saw the commercial once while my husband was watching a game. That’s all I knew. Nothing else.
So, the journey was rocky and hard. The first year my husband was stationed in Korea, so he was not around to learn what I did.
I relied on “friends” I thought that I had to help. Instead, I got investigated by CPS (child protective services) for making everything up. The only thing that was founded was that I was stressed. (Gee no idea why???)
My son’s first year in school was horrible. Open classroom and he would have meltdowns. They did not want to deal with him, so 5 out of 5 days he went to school, he was sent home early. I had no idea what I was supposed to be doing or how the school should have been handling him.
Thankfully, the school he was moved to had a wonderful Spec Ed teacher that knew what she was doing, to this day, I will still kiss the ground that she walks on.
He improved and stayed in school. Had messy moods and lack of sleeping so we had to join the medicine bus. So many doctors and specialists, “you should do this” and “don’t do that and this and that.”
The kid is a loving, sweet amazing kid. He has a hard time showing that. He has many co-morbidities along with his autism. ADHD, ODD, Anxiety, depression, hypermobility, OCD, etc.
In our journey with him, we realized he wasn’t like most kids with autism. So many can use an iPad and it’s nothing. A phone and no problem. With my son, he can not tell the difference between reality and what’s on the iPad or phone. We tried. We tried so many times, so he could be like his friends or brothers. But it ultimately turned out so, so, so, so bad.
When he was 11 a child that bullied him at school told him that triple x rated stuff on the internet was bad and if you looked at it you were super special because not everyone’s computer can look at it. Ever since that day, my son has been fixated on it. At 11 he had no idea what it was, just that it was special and not everyone could see it. As he grew into puberty it got worse and worse. I still don’t think he knows exactly what its supposed to mean to a person, because his thinking age is around 10, but he knows its bad, he’s told his therapist it’s bad. He’s tried to look at it on the internet at school.
We had everything on our cable blocked so that he could not watch it or order it and somehow he got around it and we had a $900 bill. (I’m still drinking coffee to cope with that one)
Now he’s in a dark, dark place. He’s obsessed with death. He writes and writes and writes about death scenes. Then he tears them up. He talked to his therapist, but he sees no problem. We can not even let this child watch cop TV shows it’s that bad. Nothing to do with magic, or death.
My husband and I have been watching his behavior as of the last 2-3 months and I’m not liking what I see. Neither does my husband.
His moods are very erratic. One minute he’s happy, the next he’s angry and ready to fight. Then he’s happy. (Note: he has not touched a soul, just has gotten angry with words) These mood changes make me think he’s bipolar. We were warned that he probably was a few years ago. We knew it was coming.
Now we’re questioning the doctor, because my husband and I are so completely and mentally drained from dealing with his moods and trying to keep his brothers from upsetting him. The doctor is trying to tell us that he’s making it all up and that we just have to deal with it. My first thought, no lie, was, “The fuck you mean deal with it? I’ve BEEN living with it! We came to you for help on how to KEEP dealing with it, asshole!” I, of course, did not say that, because I was too tired.
This kid has been in-patient 7, lost count after that, times for being bullied and being suicidal. I’m scared to death something is going to set him off. Granted all sharp instruments are kept under lock and key. We continue to try and understand what is going on, but our son can not tell us because he does not remember the mood swings.
His doctor said, because he does not feel bad for being angry and mean, he is not bipolar. DUDE, he’s autistic, he’s not going to feel bad.
I had 2 major surgeries and he bumped what I had surgery on, I started crying and he didn’t give two craps. That does not mean he’s not bipolar!
It’s hard to keep him busy. He gets bored with puzzles and crosswords and TV, because we have seriously toned down everything that he can watch. I’m just at a loss on where I should go from here. There’s probably a lot I left out of his story, I’m sorry for that.
Here’s another twist on his story. He legit thinks he’s from another dimension. He thinks he is a female from another dimension, that he will leave to find when he is 18 years old. There are artifacts all over the world that he has to collect in order to remain safe in this other dimension. He thinks that the here and now is just temporary. Because of his beliefs with this, he can not watch or read anything that involves fantasy. Because he can not and will not be able to tell the difference between what is real and what is not.
His therapist and I had a long talk today about it. I had to stop from bursting into tears, because I have never heard of another child like mine. I explained that to him and asked what do I do. He said I do what I’m doing… Be mom.
It did not help when he said that in the 13 years that he had been doing what he does, he had never met another kid like my son.
Sometimes, being a mom is rough as hell when it feels like no matter what you do, it’s out of control. You know all those books you read before you have kids? I never read any chapters on Autism or special needs and I sure as hell never read any on how to deal with this kind of life for your child.
I guess I should add that I am dealing with my own depression and anxiety right now. My anxiety is off the charts and my shrink threw me into counseling. Didn’t even ask just threw me in. I also have a chronic illness and it flares up in the form of pain when I’m extremely stressed out, the last 3 months I’ve gotten little relief.
It’s sad to say at this point, I’ll deal with me as it comes. I just want my son to be okay. I know I need to worry about me, too. If he is okay, then I can be okay.
Basically, I’m writing this because I just need to know I’m not alone. I’m so tired. My gut instinct with this kid is never wrong. My gut says he needs help with this anger thing and his doctor is being stupid.