Select Page

Finding My Faith

*I know that not everyone out there is a Christian and I hope that nobody will take offense to this post. My faith is a very personal thing, but it helps me get through so much. My prayer is that everyone dealing with a life crisis will find something that will bring them peace and hope, whether it’s faith in God, faith in humanity, or faith in herself.

When I wrote about my miscarriages and TTC journey, it was the hardest piece I’d ever written. What I left out, though, was the behind the scenes issues. The emotions that I’m still ashamed of feeling. That probably sounds stupid. I mean, you can’t help how you feel about things so why feel shame? Well, it’s been six years and I still do, so I guess I can’t answer that.

When Jordan and I decided to start trying to get pregnant, we didn’t broadcast it, but we also didn’t hide it when people asked. And people did ask. We’d been married over a year at that point, and apparently that’s the time that everyone from your grandma to the cashier at the grocery store deems you ready to have a child. But when we realized we would need a little help expanding our family, we clamped our mouths shut. Our families and closest friends were the only people who knew what we were going through. But when we got that first positive test, we told everyone! I’ve never been the best at keeping my feelings under wraps and we were thrilled.

A few days before I got that positive test, my sister-in-law gave me the news that her sister-in-law was pregnant. I was pretty discouraged at that time thinking that the round of Clomid I had just finished had not worked. But here was this girl (who I love dearly, BTW) who had become pregnant accidentally. It hardly seemed fair.

But then I found out that the Clomid had actually done its job and all was right with the world again. I could be happy for my sister-in-law sister-in-law-in-law sister-in friend, if a little worried for her. After all, my faith had always dictated that “everything happens for a reason.” But then it all changed.

During the few days that encompassed the fateful ultrasound experience and gut-wrenching D&C, I lost more than my baby. I lost my faith.

I left the hospital a bitter, heartbroken person that I no longer recognized. I was angry at the world. I was angry at God. I didn’t go to church. I didn’t pray. I didn’t even sing; something that has always been my solace. For three months I was in this dark pit. Every time someone who didn’t know would ask about the pregnancy and we had to break the news again, I sank further.

At that time, I worked for an agency that provided low-income housing. It seemed like every other day I encountered another woman who was expecting yet another child that she couldn’t afford. All these women around me were getting pregnant so easily, some while actively trying to prevent it, and having the healthy babies that I wanted so badly. I couldn’t understand why I was being treated so unfairly. I couldn’t bring myself to go to the baby shower for my brother-in-law’s sister. Every time I saw a pregnant woman I would cry.

It kills me to finally admit those things. There are very few people in this world that I’ve told about that dark time. I still feel guilty for being so angry. But if my first miscarriage caused me to lose my faith, my second one brought me back.

My second miscarriage happened on a Saturday morning. I was in the ER for a few hours then sent home. The next day at our church was Youth Sunday. I hadn’t been to church in three months at that point, but Jordan’s best friend, David, was delivering the message that day, so I insisted on being there. Not many people at church had known I was pregnant that time, so we didn’t really have to talk about the loss.

Something happened that Sunday morning, though. The youth members all did a great job with their testimonies, prayers, and music. David delivered a beautiful message. And then the youth sang a song to tie it all together – Here I Am Lord. I had heard the song a hundred times before. I had sung it about half that many times. But that day, I actually listened to it. It suddenly spoke to my heart in a way I had never felt before. Thank God we were sitting in the balcony so the whole congregation didn’t see me burst into tears.

I suddenly was at peace. After being angry for so long, it was an incredible feeling to let go of it. In that moment I knew that, like Abraham and Sarah, we would eventually have a child. And that there was a reason for my losses. I knew that it was going to fall to me at some point to support others going through it.

I was able to do just that several months later when my best friend had her first miscarriage. I’ve reached out to others as well – old high school friends on Facebook, a friend at church, etc. It’s what I hope to accomplish by contributing to this site. It also sort of paved the way for me to do the same thing as soon as I was diagnosed with Rheumatoid Arthritis in 2008. Since then I’ve found myself in something of an online support network of people living with chronic illness. Without that moment of clarity, I’m convinced I would still be that bitter person. I’m sure that the RA diagnosis would have been much worse than it was, emotionally speaking. I honestly don’t know how I would have made it through either of my full-term pregnancies, much less through a certainty of life-long pain, had I not had that renewal of faith.

I didn’t tell anyone about what happened to me that day until a few months ago when Jordan and I had the privilege to see David ordained. I figured that was probably the right time to tell him about the impact he had on me that Sunday so long ago. Today, my relationship with God is the most important thing to me. Through Him, I can do anything. There are days when I just need a nudge and there are days when I’m forced to ask Him to carry me. And I’ve come to realize that everything truly does happen for a reason, even if that reason isn’t revealed during this earthly life. But the choices we make when facing hardship will usually go a long way to reaching that revelation.

“But those who trust in the Lord will find new strength. They will soar high on wings like eagles. They will run and not grow weary. They will walk and not faint.” ~ Isaiah 40:31

The Darkness

Sometimes the only monster we see is when we’re looking into a mirror.

This is her story:

I was controlled by a destructive, angry individual who did everything in their power to destroy the very core of my being.

The sad part is that I allowed it, and not only for a little while … oh no … I allowed this person to eat at me every single day … all day … for years, until there was nothing left but a shell of my former existence. They were mean and hurtful, yelled at my children, they could have cared less about my happiness … their main goal was to make me and everyone around me pay for their misery. They let their selfish need for pride crumble the walls of my life … I was sure there was no way to rid myself of this person … I was trapped … the very thought of ending the darkness they brought was unfathomable.

Murder.

I could simply just kill them.

The thought crossed my mind on more than one occasion … but what little common sense I had left stopped whatever notions that crept into my mind.

To escape this person was to escape my very self.

I was her … she was me, and deep down in her head, buried under the anger and depression was a tiny flicker of light that called out to her … “don’t drive your car off the road … you know better than that.”

The problem was that no matter how deep I analyzed myself, I could come up with not one valid reason to feel this way. What was wrong with me? … why was I spiraling into a hole? What was my problem?

Was it a learned behavior? … it was possible.

Was it genetic? … that was quite possible as well.

One morning I woke up and opened the refrigerator … a tub of margarine fell out and you’d think the world had just ended. My ranting and yelling and crying over something so trivial was ridiculous. Kind of like when my Dad didn’t have enough milk for his cereal in the morning … off he’d go to the store … tires screeching down the driveway … he couldn’t just have a piece of toast or something … no that was too easy … he had to upset the entire household.

I know now after seeing the same behavior in myself that it had nothing to do with the milk, just like it had nothing to do with the margarine. It was a sickness … one that I was passing down to my own children … I was well aware, yet I still refused to do anything about it.

Excuses.

I had a reason for everything.

I’m not getting help because I’m not a failure. I’ll be fine … it’ll go away. I’m not going on medication because I don’t need a crutch! And to hell with gaining any ten or twenty pounds by popping the pills either. Ain’t happening. Instead I chose to make my family walk on egg shells. Instead I chose to stop caring about my health … Instead I chose to put myself at the very bottom of the list.

I was and I still am stubborn.

Thankfully, there is a voice of reason in my life. A voice that knew how I felt … someone who had been where I was … someone who had made his way through the darkness … someone who said, “you don’t have to live this way and the only thing on my wish list is for you to get help.”

I felt like I was giving in … succumbing to failure … and making that phone call was one of the most difficult things I’ve ever done.

I thought for sure I was making a huge mistake. The doctor would put me on medication and that would be the end of me. I’d be a fat emotionless entity who drifted through the rest of her life wishing she could just be ‘like everyone else’.

I was given medication … my doctor said, “if you couldn’t see very well, would you not want to wear glasses?” … I filled the prescription … then I made my second mistake and scoured the depression forums like a mad woman trying to find out what was to become of me. The best advice I could ever give a person who’s never taken an SSRI is to stay the hell away from those forums. STAY AWAY. They will scare the living crap out of you.

I took the medication.

Slowly and surely each day was a little brighter. Each day, life became less hectic in my head. I could think … I could breathe and most importantly, I stopped bringing misery to the lives of those nearest and dearest to me.

Today I’m happy … I’m not fat, I didn’t gain the seven thousand pounds I was certain of gaining … I wake up every morning without that nagging rage. If I see a dirty coffee mug sitting on the table, I don’t start the next great war … nor have I lost my ability to emote.

I was wrong about getting help … I couldn’t have been more wrong if I tried.

It hurts me to see people who feel the helplessness that I felt.

You don’t have to live that way

you really don’t.

Surviving Bipolar Disorder

Bipolar Disorder is a tough diagnosis.

This is her story of hope:

Having Bipolar sucks sometimes.

Having bipolar disorder means that there are cycles that the meds will never fully be able to control. It means never being able to fully “let go” because letting go means not checking yourself every five minutes to make sure you’re within the normal range.

It means having people look at you funny and then avoid you altogether once they find out. It means being unable to just “be yourself,” because like it or not, bipolar disorder is like a wild, out-of-control animal. The medication give you reins and a saddle so you can sometimes steer the beast, but the disease has control.

And I’m one of the lucky ones.

I am one of the rare cases who found a medication regime four years after onset and haven’t had to change it since. I’m graduating college with honors and have been accepted to grad schools. I.am.lucky. and yet most days it’s a struggle to fit in with “normals.”

What I’ve found after years of studying other people to try and figure out how they have stability so easily is that most of them have skeletons, they just don’t acknowledge them and take them out to dance.

That’s a terrifying thought, but a relieving one, too. Relief to know I’m not the only one who struggles, frightening to know that everyone goes through their own shitstorm. Their heartbeat puts them on the list and the rest is a matter of which nouns and verbs you use to describe the “w’s” (who, what, when and where).

We all should keep fighting. We keep fighting and pulling ourselves off the ground. The truth of life is that sometimes, well, shit happens.

But I’ll say one thing; I wouldn’t trade having bipolar disorder for anything. Without it, I would be half the person I am today. It’s hard, so hard that some days that I’m afraid to be around myself, but I’m so much stronger with it then I ever would have been otherwise.

Surviving bipolar disorder is an amazing feeling. The enormity of what we go through is huge. We walk through fire every day and while sometimes we scar, there is a section of cool water is on the other side if you allow yourself to feel for it.

Keep fighting.

Exaudi Orationem Meam

Hear my prayer, hear my prayer, hear my prayer, please God, hear my prayer.

I instinctively checked the monitors as I approached my daughter who was sprawled out, getting a sunbath underneath the warmer. Her stats were picture perfect, I noticed, breathing a little more easily, and I made my way slowly to her bedside where she was sleeping peacefully.

I slogged my soggy bottom from the wheelchair onto the rocker that had been shoved into her tiny NICU room; barely even a room, more like a broom closet. She was sandwiched in between two misbehaving (“misbehaving” means that their alarms were constantly blaring) babies who I could hear misbehaving.

Most of the NICU, I noted as I was wheeled past, was full of Feeders and Growers. That’s NICU slang for babies that were, for whatever reason, finishing their gestation outside of the womb. It”s always evoked a pleasant picture of a garden of freshly hatched babies.  A Baby Garden.

Of the other babies that I could see cooking away merrily in their incubators, Amelia was the biggest, fattest, and likely the only full- term baby there.

According to her room placement, though, she was the most ill.

Hear my prayer, hear my prayer, hear my prayer, please God, hear my prayer.

My ass firmly planted now onto the chair (I’d had a traumatic vaginal birth mere hours before), I held Amelia’s lone sock as a talisman, hoping it would ward off the Bad News. I was preparing to nurse my daughter again, just waiting for our nurse to come and help me sort through the tangle of wires my daughter was attached to.

It was hard to believe only thirty or so minutes had passed since we’d heard “there’s something sinister on your daughter’s CT scan.”

Our–Amelia’s–nurse walked in and introduced herself to The Daver and I. I was openly weeping, holding onto Mimi’s sock and my iPhone – where the Pranksters live!- as a life preserver. The Daver was pale(r) and stalwart.

I handed off the box of Kleenex that had been pressed onto my lap as we left Mother/Baby and my daughter was brought back to me, hooked up to so many wires that she looked like an electrical outlet. The nurse stood there, kindly talking to us, but not revealing anything.

We still had no idea what was wrong with our daughter. A diagnosis would take weeks. Her life, as far as we knew, hung in the balance.

I begged the nurse to have the house neonatologist visit my daughter as the pediatric neurosurgeon was busily operating on someone’s head somewhere other than the NICU. It’s probably good I didn’t know where he was or I’d have stalked him down and dragged him to my daughter for a diagnosis.

The neonatologist – the one I’d met a lifetime ago in the delivery room, the guy who was always drinking a bottle of something – he came over to Amelia’s “room” and he told us that there was a “bright spot” on Amelia’s CT Scan. He didn’t mean diamonds.

I had no fucking clue what that meant and he didn’t follow it up with much, although I did see his lips move, I couldn’t understand his words.

Guess that’s panic for you.

After the doctor left, the nurse came back in to ask if we’d wanted to see the chaplain; rather to have Amelia meet the chaplain. A thousand times yes.

She was amazing. Just. Incredible. For the next year, it was her words, her warmth and compassion that I kept coming back to. She blessed my daughter. My daughter was blessed.

And she is so, so blessed.

We sat there in the NICU; just the three of us. I couldn’t tell you how long we just sat. Time in the ICU is timeless. 4 AM and 4PM are the same.

Soon enough, I had to go upstairs to change my undergarments and ready myself to see my boys. My sister-in-law was bringing my sons to visit, and I had to put on my Poker Face. Given the raw, chapped and bleeding state of my cheeks, was going to be damn near impossible.

Back in my room, I saw that I’d gotten some flowers and a basket from two of my Pranksters and it made me cry. Then again, I think the package of Saltines that had been ruthlessly thrown on the floor the night before might have made me cry. I wasn’t in a Good Place.

Alex and Ben came in a bit after I’d gotten cleaned up. I held Alex very, very close as Ben showed me some pictures he’d colored of Amelia. Ben knew his sister was sick but Alex (only 22 months old) had no idea what a “sister” was, let alone what being “sick” meant. I held them and faked normal until I got the call from the NICU. Time to nurse the baby.

Talk about being torn.

I cried as I said goodbye to my youngest son–my eldest just wanted to get home and I couldn’t find fault with that–and he cried and yowled “Mooommmmyyy” as he was led away to the elevators that would dump him back into the outside world.

By myself for the first time, I tearfully found my way back to the Secret Place, The Land of  Tears. Never have I felt so sick to my stomach in my life. People stared sympathetically as I wept in the elevator, leaning against the walls for support.

I begged God to let her live, even if she was retarded and her IQ was 43 and had to live at home for the rest of her life, just please let my baby girl live. I didn’t care what was wrong with her so long as she made it out alive. I begged God to take me instead. I’d had 28 wonderful years on the planet already, and she was less than 24 hours old. Certainly, I’d give my life to save her in a moment.

Hear my prayer, hear my prayer, hear my prayer. Please God, hear my prayer.

After scrubbing the top 50 layers of skin from my arm and signing a reasonable facsimile of my name, I wobbled to her bedside. There she was, my girl. Perfect stats, thrashing about her isolette, pissed as hell and looking for something to eat.

In the brief time I’d been gone we’d gotten a new nurse.

When she came in to assess my daughter and saw me crying as I nursed my girl, for the first time in a day, someone asked me what was wrong. I explained that I didn’t know if my daughter would live or die. I told her that no one had told us what could be wrong with her, what that bump COULD be, why she was in the NICU, nothing.

She looked pretty aghast that we’d been told nothing, and for the first time, someone tried to reassure us. I remember leaving the NICU several hours later slightly less burdened.

That night, we ordered a pizza and tried to relax in my somber room. We tried to let go of some of The Fear. I didn’t feel much like celebrating anything, so no balloons, no stuffed animals, no signs that I had just given birth decorated my room. I could have been on any floor, in any room in the hospital.

The nurse brought me my Ambien and the NICU called to tell me that they would bring my daughter up  to nurse every 2 hours (the NICU runs like clockwork. It’s no wonder that new parents struggle to care for their NICU graduate when they get home). I turned on the sound machine to blast white noise over The Daver’s snores, and waited, trying to fall asleep.

Unsurprisingly to no one, I couldn’t get anywhere close to sleep that night. This made the tally of nights without sleep 3.

I was about to lose it.

Somewhere around 4 AM, after someone had barged into my room to empty the wastebasket, waking me from the lightest of light sleep, I panicked. I’d sent Dave down to the NICU to sit with our daughter in the vain hope that having him at her side would set my mind free.

I was alone. The panic that had been a constant dull buzzing had morphed into something much more sinister and I knew what was about to happen.

Frantically, I paged the nurses station because I knew I needed help. I explained as carefully as I could that I was about to have a panic attack and that I needed my nurse NOW. My nurse came in, I don’t remember what she did, but she didn’t want to call my doctors because they would be rounding in a couple of hours and I could ask for something for my anxiety then.

Fucking bitch.

She told me to “relax” and then left.

I tried to “relax” which was as useful as punching myself in the face with a hammer. It didn’t work. I put a call back into the nurses station, begging; pleading with them to call my doctor. I begged for help.

My last rational thought was to quickly inventory anything in the room with any sort of calming properties. The best I could come up with was a bottle of Scope.

I didn’t end up drinking it, but I did call the NICU and beg Dave to come back up. A nurse passing by my room took pity on me and called my doctor, who prescribed me an Ativan. A swarm of people all happened to come into my room at the same time: a partner in my OB practice who looked terrified by me but discharged me anyway, a nurse with that beautiful pill, a tech to get my vitals, and my husband.

It sounds, in retelling this, that they were all there to help, but it wasn’t really like that. Dave and the nurse were trying to calm me down, but the tech, the doctor and whomever was washing the floor were doing their jobs. With spectacularly bad timing.

Ativan on board now, I was trying to gulp some calming breaths and stave off the panic. They’d turned off the lights, and covered my still-swollen body with fresh sheets, cleaned off the bedside table and turned on the white noise machine.

Finally, I began to relax and beat the panic away, if only slightly. Dave held my hand and told me over and over and over again that my daughter was just fine, she was perfect, she was wonderful, she’d done great overnight, she was beautiful, she was going to be just fine. It was soothing to hear, but what would have been MORE soothing? Having her bassinet next to my bed where it belonged instead of three floors below.

Then (dun, dun, DUN), the absolute worst person to show up did.

Lactation services.

Lactation Services showed up, because they say they’ll come by every day you’re in the hospital with a new baby, and they do. It’s awesome for people who need help because breastfeeding is nowhere NEAR as easy as it looks on those weird Lamaze videos.

(also: why are people in the Lamaze videos always naked?)

But I didn’t need help. And when she showed up and saw me shaking in bed, being held by my husband while the nurse clucked around me like a mother hen, lights off, white noise blaring, she should have excused herself. This is not a debate about breast and bottle feeding, this is about decency. But no, she didn’t get the hint.

No.

She introduced herself perkily and asked me how breastfeeding was going, and through clenched teeth, I answered that it was fine. Kinder than the situation warranted.

I expected this to be enough for her, but no, she followed that up with, “Do you have any concerns about breastfeeding?” Wrong question, dipshit. Time, place, all that.

“You know what?” I snarled, “I’m MUCH MORE concerned that my baby is going to die than if I have proper latch, okay?”

Again, she could have gracefully bid be farewell. But no. She kept on keeping on.

“Well, what about your concerns with BREASTFEEDING?” She asked, just not getting it.

I responded with, “Look, if she’s dead, I’m not going to give a FUCK about colostrum, okay? Please!”

I began to sob heavily again. It was the very real truth that my daughter could die. We all knew it. Nursing her wasn’t going to help an encephalocele.

Dave told her to get the fuck out of our room.

Finally, with a DO NOT DISTURB sign on my door, I slept for a few hours.

I awoke when The Daver bounded in and announced, “the neurosurgeon ordered an MRI! And he’s really nice! And not concerned! He thinks it’s an encephalocele! It’s a piece of brain or something that’s herniated out! We can go home after the MRI! And follow up with the results next week! Oh, I wish you’d met him. He was so, so nice.”

And just like that, we went from critical to discharged in less than 36 hours.

This Too Shall Pass…

Today is Day 1.

The first day of this deployment. Familiar in a sort of comforting way, but also strange and surreal.

You see, this deployment is my husband’s choice. It is a civilian deployment for his everyday job- an electrical engineer at a company that makes military radios. He is installing them in vehicles in Afghanistan.  He didn’t have to go.

He chose to go so that we have a chance to get ahead financially. A choice that he felt he couldn’t say no to. I feel awful that soldiers who are putting their lives in more danger are making so much less money. It just doesn’t seem right. My husband says, “hey I served, I don’t feel bad that I am taking this opportunity.” But still somehow it bothers me.

He is not responsible for the lives of 100 people this time, only his own. Later in the day I realized that I feel like this is cheating. Last time I felt guilty that he spent most of his time on base and rarely had to go outside the line. When meeting other wives, whose husbands were in further outposts and doing more dangerous jobs, I never told them how lucky I felt that most of the time, I was pretty sure my husband was sitting at a desk, a desk in Afghanistan, but still a desk and not kicking down doors or looking for IED’s.

If I felt guilty last time when he was serving as a soldier, its no wonder I feel so strongly like we are cheating now. I will be surprised if I don’t get into some sort of fight with my mother-in-law this year. She loves to get on her podium and proclaim to the world how hard she has it because her son is gone. Sorry, not my style. even more so this time.  She was just posting some crap on Facebook (a picture of my kid wearing an Army hat) and commenting that my husband was leaving Sunday; to remember the sacrifices soldiers make.

Sorry lady (and I use that term loosely), I don’t even know where to start. I’m not usually a freak about letting people know he is out of town, but I haven’t put it all over Facebook yet. Its really my business to share that my husband is leaving for a year. Thanks for putting that out there. If they are our friends/family that matter, they already know. After reading that, I sent her a brochure about Operational Security (OPSEC) and the things that are appropriate to post online. I think she was pissed, but I don’t care.

And that reminder about the sacrifices that soldiers make?

Again, he is not going as a soldier.

I feel it is disrespectful to those service members over there to put them in the same sentence.

Last time I had ways to show I was proud of him – blue star flag, wearing his unit pin, etc. this time I feel as if I have none of that. Luckily, I have my battle buddies, the wives who banded together with me the last time when our husbands were all deployed. But still, it’s weird because people realize that he must be getting paid a lot. It makes me feel greedy and ungrateful for all that we do have. It makes me feel guilty that I am excited we will be able to pay off the house.

I have been trying to hold it together for a few months now. When I do this, I give the impression to people that I am a cold-hearted bitch. Because I usually am very practical and pragmatic about deployments. What good does crying all the time do? Do they just expect me to fall apart because he is leaving or gone?

The first time, I said to myself and them “Someone has to go. When some guys have to go 3-4 times, who am I to think my husband deserves not to go at all?” and we were both okay with that deployment.

We were tired of waiting for the Army to pick a time to send him. And at least he was going with his own unit. This time, we are both okay with the sacrifice because we are hoping to pay off the house. Both times, it feels like people didn’t understand how we could be okay with this. Sure, we will miss each other, sure it will be hard. (I think it is hardest on the kids) but I am proud to be an independent wife and I want to teach my girls self reliance too. We never have been the type of couple that has to go everywhere together.

Since the Army has been a part of our relationship since I met him, we are pretty used to the short-term separations. Cell phones and email has made it easier. When I first met him, he didn’t have a cell phone and had to wait in line to use a pay phone. So I got pretty used to not hearing from him. Also, as an only child, sometimes I relish my time that I get to myself. My new job is great for that as it allows me to help other military families, yet get some alone time in the car traveling.

i don’t usually get upset about deployment in public, and I don’t usually get upset about it at home, because you see, with two kids, two dogs and a house to take care of, I have more things to do than wallow in self pity. So usually the magnitude of it all doesn’t really hit me until the night before he leaves.

Yesterday, I had to drive him to the airport in the late afternoon and it was my day that I allowed myself to be sad. I let the girls have cookies for dinner, eat in the living room and watch a movie while I laid in bed and watched my own TV shows.

This morning I had to move past that and get my daughter on the bus. Somehow I was reminded of the song “This Too Shall Pass” by Ok Go. I couldn’t stop listening to it today.

Somehow it made things better.

Sweet Baby, Hold Back Your Tears Now

The first night after my breast cancer chemo treatment was awful.  Nugget sobbed hysterically in my arms, giving way to heavy sighs between her defeated attempts for true comfort until she finally fell asleep.  I cried, and cried, and cried.  Between the tears i apologized over and over to my sweet baby girl for being sick.

Last night was thankfully less painful.  She fell asleep with my mother and only had to be quietly lulled back down once.  Thank god for small miracles.

As for me, I felt pretty nauseated yesterday and today, and the meds to combat that make me tired.  Today, I really started to feel exhausted.  We went out for some quick errands this morning, but I’ve since spent the remainder of the day in bed.