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Infertility Is…

As we have traveled (and travailed) through our journey (ha!) with infertility struggles, I’ve learned a lot from the infertility blogs that I’ve read, and from our family and friends. While I do have to put myself on hiatus from infertility blogs on a regular basis, I am so thankful that we have not been alone through this continuing nightmare.

I had a conversation recently with my mother about my blog, and why I choose to make such a private issue so public by putting it all online. Well, if one person finds the Lord, learns anything about their own infertility and what to expect, or is helped in any way whatsoever, then this has not been in vain. That may mean just helping someone who is not infertile to understand what the people around them are going through.

Or letting someone several years into this roller-coaster know that they are not alone, either.

As others have done for me, I will do for them. This post is in that vein….

Infertility Is…

Depressing. There is no end to the feelings of failure, shame, and envy. Every Mother’s Day, Father’s Day, or any other important holiday that passes without a baby in our lives is a kick in the teeth. Some days simply getting out of bed is too much effort. But we do it, so as to appear normal.

Frustrating. To not be able to do something so simple is incredibly frustrating. We cannot do what our bodies were designed to do, and everyone around us can.

…Humiliating. Everyone has seen parts of me that should be private. Everyone knows intimate details of our sex life and feels that discussing them is totally acceptable. Our pharmacist is nosy. Our doctor asks questions that make me blush, and I am not easily embarrassed. There is no modesty in infertility. Even at our very thoughtful clinic, I am stripped from the waist down and given a sheet roughly a half yard wide to “cover” up with. My bare butt faces the door.

…Learning to laugh. A man who loves you when Clomid makes you grouchy and when you have to prop your hips up afterward will love you through anything. If you can discuss cervical fluid and peeing on a stick, he’s a keeper. If we don’t laugh at the absurd, we will cry over everything.

Isolating. Even though over 10% of all couples in the US experience infertility, you may never meet or talk to another. None of your friends can fully understand, and your family may not try. When your infertility is all you can think about, they may not feel comfortable talking about it at all. Our infertility is never mentioned for the prayer requests at church. It is the elephant in the corner at every baby shower. In the waiting room of our fertility clinic, no patients make eye contact, ever. Infertility is not something you tell folks about unless you know you can trust them with your heart.

…A learning experience. Not many things give you the chance to learn to self-inject medications and learn words like hysterosalpingogram or ovarian drilling.

…Painful. Physical changes make my body hurt. Side effects cause aches, pains, and headaches. Injections and blood draws hurt, internal ultrasounds and hysterosalpingograms are very painful. Childbirth actually sounds like a cakewalk after some of this.

…Strengthening. If I can handle this, I can handle anything. So can my marriage, and my faith. Infertility is not for wussies.

…Taxing. “Trying” or “practicing” sounds fun, right? Try it for about two weeks and see how romantic you feel. Don’t forget to time it just right and to prop your hips up afterward.

…Disappointing. Every holiday without a baby, every month with a period, every new check up at the clinic because last month was a bust is a huge disappointment. Telling my husband we’ve failed again is miserable.

Scary. Words like premature ovarian failure, premature rupture of membranes, incompetent cervix, and intrauterine fetal demise are terrifying for anyone to hear, especially when it’s your ovaries, cervix, or baby.

…Hope. Hope is new again each month, thank God.

…Expensive. Having to give up on your dream to have a baby or having to plan your baby around your credit line is just sad. Especially when you’re paying good money for useless insurance.

…All-consuming. If you don’t learn to stop and find other outlets, infertility will eat you alive.

…Unfair. 14 year old junkies have babies they don’t want. People who lock their kids in closets get pregnant all the time. Why can’t I?

…Eye opening. Many men will leave you when they find out you can’t have babies. The extra-awesome one will stay, look you in the eye and say “That’s okay.”

…Finding a way to trust God and His timing even when I am on the floor, crying and broken.

Psychiatric Hospitalization

In June of 2017 my daughter was diagnosed with leukemia. She passed away in November. My husband and I have custody of our 11 year old granddaughter. Grieving is taking it’s toll. Last month I was admitted to the hospital for being suicidal.

I think about my daughter all the time. I spent every minute in the hospital with her for 5 months. Telling my granddaughter that her mom was dead was the worst thing I’ve ever had to do. Whenever I go outside for a smoke, I think of my daughter. Whenever I drive the car, it reminds me of the drive to the hospital.

My mind won’t stop thinking suicidal thoughts. My brain constantly hammering me with negative thoughts. I’m hopeless, sad and feel out of my body. I don’t recognize my thoughts or myself. I am so lost. The emptiness is everywhere and I don’t know what to do.

I’ve been treated for depression for years and have had suicidal thoughts the entire time. I spent 2 days in the psych ward. I slept most of the time. I attend an outpatient program and went to a new psychiatrist today. He said my bipolar diagnosis was incorrect and adjusted my medications.

Broken

Me. Briefly.

The first time I used, I was 9. I stole some of my mom’s appetite suppressants. For the first time in my short little life, I felt like I could do anything. I forgot that I felt like I didn’t belong. Don’t ask me why I felt that way. I am an adopted child raised by a good family, so I should have felt fine. I truly believe that addiction is genetic. With dope, at long last, I belonged. I wasn’t afraid.

Life went downhill from there. I gradually branched out to other drugs. At 14, I was stealing my parents’ cigarettes and booze and smoking pot. At 18, I got introduced to what would become the great love of my life-meth. I really could do anything on that stuff-no job was too big, and my mind worked like a pinball machine with an electrical short-thoughts careened around so fast I never held one long enough to examine it, so I never really thought about feelings of inadequacy or fear.

Or shame.

At 19, I was tired of trying to make it on my own, so I found myself married to an abusive bastard; anybody who’s ever been through that can understand what I mean when I say that it destroyed any shreds of self-worth I had a chance of having. By then, I knew how to fix that-I used more dope. It didn’t matter what kind as long as it helped me shove those feelings of worthlessness into some dark, forgotten corner of my soul.

After 3 years of being smacked around, I fought back, left, didn’t look back, and didn’t quit fighting for a long time.

I went through a string of failed relationships for a couple of years, until I met “the one.” He actually started to redeem the male of he species for me. For a year and a half, I somehow managed to limit my drinking and drugging. Life was pretty good. I was living the suburban American dream.

In the end, untreated addiction always wins. I got involved in some unsavory business, running drugs up and down the interstate. For each time I got arrested, I made it through at least a few more times. I guess sometimes it really is better to be lucky than good, or I’d still be in prison.

My second husband finally had enough, and I got sentenced to prison knowing that divorce awaited me when I got out. Looking back, I can’t blame him. At the time, I was just enraged.

In prison, in a state far from home, I didn’t have drugs but I still had that fight in me, and the ability to stuff my emotions into some dark corner of myself and forget them. It allowed me to survive in a cold and lonely place. When I got out, I did what I always did. I got high. How else was I supposed to deal with my situation? I was 4 states from all I knew, being held against my will by a parole officer who wouldn’t let me move home.

Fast forward to 2005.

I’m on probation for yet another drug offense, headed for an inpatient drug treatment center at the judge’s (and probation officer’s) suggestion. I had reached that point where I used dope to become that static-y snow on a TV with no reception. I didn’t want to feel. I didn’t want to deal with the mess my life had become and I damn sure didn’t want to deal with the mess that I had become.

I muddled along for a while until I had a using experience so horrific I will never forget it. I had finally used so much dope, trying to kill my feelings, that I had used myself into a corner and it was that dark corner of my soul that I had been avoiding for 27 years.

The dope had led me right into the hell I had been denying from the time I first discovered dope at the tender age of 9.

I got clean, finally. It hurt. Detox can kill, and I guess I considered myself lucky to be alive, considering the way I had used my body for a toxic waste dump.

And I grieved the loss of the drugs. I grieved the loss of the numbness. I was FEELING shit again and it was ookie and I didn’t like it.

The human psyche is an amazing thing, with a remarkable talent for self-preservation. I managed to avoid the real problem: here I was drugless, and the big shitty mess inside was still there. Denial became my best friend. I felt no emotions (or so I told myself.) I damn sure didn’t show them.

For the first two years I was clean, I was involved with another abusive bastard. Got a busted eardrum out of it. During that two years, I did a good job of not allowing myself to feel much of anything, partly out of determination to deprive that bastard of the satisfaction of knowing he had affected me, and mostly because I didn’t want to look at that big shitty fucking mess in my mind and soul.

I did all this while calling myself a member of a twelve step fellowship.

Two years into my abstinence, the pain of my living situation became too much. Denial, toughness, bad attitude-none of it was working anymore. Without the dope to numb my soul, the big shitty mess in the darkest corner of my heart began to fester. So I got honest. Well, a little bit, anyway. Six months later, I was out of the abusive relationship. I was healing.

At least that’s what I told the world.

Until the physical after effects of the corrective surgery on my eardrum became unbearable. They also became a physical representation of all that was wrong with my psyche.

Broken.

I could no longer use those old defense mechanisms. I could no longer be the hardass, the tough girl who didn’t give a fuck. I gave a fuck and I was tired of being broken.

Aunt Becky, I cried. Like I don’t think I have ever cried before.

I cried for all I wasted. I cried over all the wasted potential, the wasted years, the wasted lives I destroyed with my sick spirit.

I cried for a little girl who never felt like she belonged. I cried for my mother who couldn’t fix her child. I cried for what was left of myself and for the parts of me that were lost forever. I screamed. I cried until my throat hurt, my rib cage hurt, my head hurt. I cried until my entire head was so congested I couldn’t breathe. I cried over all the sadness I had never cried over, I cried over all the pain I never cried over, I cried over all the fear I never cried over. I have no idea how long I cried. It seemed like forever.

And then I slept. I slept the sleep of the damned. Because as I cried, screaming about how I was tired of being broken, I realized that nothing could fix me. I was doomed to this existence of knowing I was broken and the only thing that ever made me feel whole was dope and I couldn’t have it anymore. It had been killing me while it killed my feelings, except it wasn’t killing the feelings anymore. I couldn’t stop using once I started, and once I used I became this horrible beast who got arrested and burned bridges with the people in her life. So dope was out.

I was, finally, alone with the truth. I was rotten inside and nothing could fix me.

At 40 years of age, I’m glad I can say that a lot has happened in the 3 years since I cried that night and screamed my frustration at being broken. I started working the 12 steps of recovery from addiction. I have a sponsor. I have 5 years clean. I have a reasonably good relationship with my mother these days. I am now in a very serious and mostly healthy relationship with the man who held me the night I cried-he is truly a good man. I am in my first senior year of college. I have been well trained in the work I do and have been working the same part-time jobs for 5 years now. I’m good at my job. I have a few friends-true friends.

Aunt Becky, I wish I could give you a happy ending. I wish I could say that I have finally progressed through the 5 stages of grief. I think it’s safe to say I have passed through denial.

Yet I still can’t let go of those old defense mechanisms. It is so fucking hard to express emotions. It’s just as hard to live through them. So I shop. I eat chocolate. I find things to distract me. Often, I stick my feelings in that dark corner of my soul. Even the good ones. I still miss the ability to deny their existence. I don’t know what to do with them, so it’s easier to deny them.

I guess it’s progress, being able to admit I have emotions.

Some days, I get so angry. Why the fuck can’t I be normal? Why oh why do I always seem to feel inadequate, less than, afraid? At least the rage can be empowering, motivating me to get up and try one more day to find a way to heal my sick spirit. If nothing else, rage feels good. It’s so primal.

Some days, I’m depressed. The possibility of spending the rest of my life knowing I am irretrievably broken saddens me beyond belief. This is where I am grateful for my adoptive mother-she’s my REAL mother. Nothing ever stopped her, and rarely did anything slow her down. She always kept going. What an amazing example; I believe it’s the only reason I keep going on my depressed days.

Bargaining. Yes. I do that. I make bargains with whatever’s out there-if you would just fix me, God, I would try to touch another life so some other woman doesn’t ever have to live with the pain I lived with for so long. Just please fucking fix me so I am not afraid, ashamed, and insecure. Make me not hurt and I will try to share it with someone who needs to know it is possible to not hurt.

Acceptance. Not so much. Today, I refuse to accept that I am irretrievably broken. Maybe that is where the twelve steps are beginning to work in my life.

And maybe that’s the happy ending after all.

Danceband On The Titanic

There is a picture of me, somewhere out there, probably still on my dad’s phone unless they’ve turned into Christmas Card people, in which case, the picture is most definitely out there in the world for all to see.

I hope it is not.

I didn’t see the picture until I was 5 months sober, staying in the unfinished basement at my parents house, grateful that I was no longer homeless, while I hunted for a job. Before this, I’d been staying there after a stint at a ramshackle, rundown motel, the kind of place you probably could dismantle a dead body, leave the head on the pillow, and no one would think anything of it. But it was my room, and despite the lice they gifted me, I loved it. Until money dried up and suddenly I was, once again, homeless. I’d moved in there after I was discharged from the inpatient psych ward, in which I was able to successfully detox after a suicide attempt. Got some free ECT to boot.

(WINNING)

Despite what you see on the After School Special’s of our childhood, I didn’t take a single Vicodin, fall into a stupor, and become insta-addict – just add narcotics! No, my entry into addiction was a slow and steady downward spiral of which I am deeply ashamed. It’s left my brain full of wreckage and ruin, fragmented bits of my life that don’t follow a single pattern. Between the opiates, the Ketamine, and the ECT, I cannot even be certain that what I am telling you is the truth; what I’ve gathered are bits and pieces of the addict I so desperately hate from other people who are around, fuzzy recollections, and my own social media posts.

About a year and a half before I moved from my yellow house to the apartments by the river, Dave and I had separated; he’d told me that while he cared for me, he no longer loved me. While we lived in the same house, we’d had completely separate lives for years, so he moved to the basement while I stayed upstairs. I’d been miserable before his confession and after? I was nearly broken. Using the Vicodin, then Norco, I was able to numb my pain and get out of my head, which, while remarkably stupid, was effective. For awhile.

Let me stop you, Dear Reader, and ask you to keep what I am about to say in mind as you read through this massive tome. I’m simply trying to make certain that you understand several key things about my addiction and subsequent recovery. I alone was the one who chose to take the drugs. No one forced me to abuse opiates, and even later, (SPOILER ALERT) Ketamine. This isn’t a post about blaming others for my misdoings, rejecting any accountability, nor making any excuses for the stupid, awful things I’ve done. I alone fucked up. My addiction was my own fault. However, in the same vein, no one “saved” me but myself. There was no cheeky interventionist. No room full of people who loved me weeping stoically, telling me how my addiction hurt them. No letters. Nothing. It was just me. I was alone, and I chose to get – and remain – sober.

The delusions started when I moved out, sitting in my empty apartment alone, paralyzed by the thought of getting off the couch to go to the bathroom. Always a night-owl, I’d wake at some ungodly hour of the morning, shaking. It wasn’t withdrawal, no, it was pure unfettered anxiety.

It was the aftermath of using so many pills, all the fun you think you’re having comes back to bite you with crippling anxiety and depression.

Which is why I’d do more.

Yes, opiates are powerful, and yes, I abused them, but things really didn’t become dire until I added Ketamine to my life.

Ketamine, if you’re unaware, is a club drug, a horse tranquilizer, and a date rape drug. You use too much? You may wake up at some hipster coffee bar, trying to sing “You’re Having My Baby” to the dude in the front row who may or may not actually exist. In other words, it’s the best way to forget how fucked you are.

The delusions worsen as time passed. I could see into the future. I could read your mind. I was going to be famous. I was super fucking rich. In this fucked-up world, I could even forget about me, and the life that I’d so carelessly shattered. I remember sitting in Divorce Class at the courthouse, something required of all divorces in Kane County, weeping at all that I’d thrown away – using a total of three boxes of the low-quality, government tissues. I left with a shiny pink face and completely chapped nose and eyes that appeared to be making a break from their sockets. I went home, took some pills, took some Ketamine, and passed out.

I retreated ever-inward. I didn’t talk to many people. I didn’t share my struggles. I was alone, and it was my fault.

The hallucinations started soon after Divorce Class ended and my ex and I split up. He’d left my house in a rage after a fight and went to live with his sister. I got scared. His temper, magnified by the drugs, the hallucinations, and the delusions, grew increasingly frightening. Once he’d moved out, the attacks began. I’d wake up naked in my bedroom, my body sore and bruised, and my brain put the two unrelated events together as one – he was attacking me. It happened every few days, these “attacks,” until I found myself at the police station, reporting them. I was dangerously sick and I had no idea.

My friends on the Internet (those whom I had left), sent me money for surveillance cameras. I bought them, installed them – trying to capture the culprit – and when I saw what I saw, I immediately called the police and told them the culprit.

The videos in my bedroom captured an incredibly stoned, dead-eyed, version of myself, violently attacking myself, brutally tearing at my flesh. In particular, THAT me liked to beat my face with one of my prized possessions – a candlestick set from our wedding, take another pill or hit up some Ketamine, then violating myself with the candlestick. It lasted hours. I’d wake up with no memory of events, sore and tired and unsure of how I’d gotten there.

I’d never engaged in self-injury before – not once – so the very idea that I’d hurt myself was unbelievable, but right there, on my grainy old laptop, was proof of how unhinged I’d become. Charged with filing a false report, I plead guilty.

In early September of 2015, I decided to get fixed, and made arrangements with work to take a few weeks off to do an inpatient detox, and, for the first time in a long time, I woke up happily, rather than cursing the gods that I was still alive.

It was to be short-lived.

Several days later, sober, I was idly chatting with my neighbor about her upcoming vacation (funny the things your brain remembers and what it does not), standing by my screen door, when karma came calling. It sounded like the shucking noise of an ear of corn, or maybe the sound that a huge thing of broccoli makes when you rip it apart – hard. It felt like a bullet to the femur. I crumpled on top of my neighbor and began screaming wildly about calling an ambulance, yelling over and over like some perverse, yet truthful, Chicken Little:  “my leg is broken, my LEG is broken!”

I don’t remember much after that. I woke up in (physical rehab) and learned that my femur (hereafter to be called my “Blasfemur,”) had broken, fairly high up on the bone, where the biggest, strongest bone in your body is at its peak of strength. Whaaaa?

The doctors and nurses shrugged it off my questions, with a flippant “It just happens” and sent me home, armed with a Norco prescription, in November, to heal. I added the Ketamine, just to make sure.

A couple of weeks later at the end of November, I was putting up the Christmas tree with the kids and my mother. It was all merry and fucking bright until I sat down on the couch and felt that familiar crunch. Screams came out of me I didn’t know were possible, but I’d lost my actual words. My mother stood over me yelling “what’s wrong? what’s wrong?” and I couldn’t find the words. I overheard her telling my babies that I was “probably just faking it” as she walked out the door, my screams fading into an ice cold silence. They left me alone in that apartment where I screamed and cried and screamed. Finally, I managed to call 911 and when they asked me questions, all I could scream was my address.

I woke up in January in a nursing home. When I woke up, I found myself sitting at a table in a vast dining room, full of old people. For weeks to come, I thought that I’d died and gone…wherever it is that you go.

This time, I learned, my (blas)femur and it’s associated hardware had become infected after the first surgery, which weakened the bone, causing it to snap like a tree. They put me all back together like the bionic woman, but the surgery had introduced the wee colony of Strep D in the bone into my bloodstream, creating an infection on meth. I’d been in a coma for weeks. Once again, I learned to walk, and once again, I was sent home in late January with another Norco prescription. The nursing home really wanted me to have someone stay with me to help out, but I insisted that I was fine alone. In truth, I had nobody to help me out, but was far too ashamed to tell them.

The picture I referenced above was taken some time in May, as far as my fuzzy memory allows me to remember, after my third femur fracture in March. This time, I’d been so high that I fell asleep on the toilet and rolled off. Glamorous, no? Just like Fat Elvis. Luckily, my eldest son was there and he called 911 and my parents to whisk him away. I remember my father on the phone, telling Ben that I was a liar and I was faking it. I was swept away in the ambulance for even more hardware, and finally? A diagnosis:

HypoPARAthyroidism.

It’s an autoimmune disease that leaches calcium from the bones, resulting in brittle bones. It is managed, not treated. There is no cure.

But, I had the answer. Finally.

After my third fracture, I once again was sent to the nursing home, and quickly discharged with even higher doses of Norco, when my insurance balked, I’d used up all my rehab days for the year. By this time, I’d lost my apartment, my stuff was in storage (except the things that we’re thrown away, which my father gloated about while I was flat on my back) and my parents let me stay with them, which was about the only option I had. They couldn’t really kick me out if my leg was only freshly attached. I feel deeper into a depression, self-loathing, and drug abuse as I realized what a mess I’d made with my life. How many bad choices I’d made. How many people I’d hurt. How much I’d hurt myself. How much I loathed myself. How I once had a life that in no way resembled sleeping in my parents dining room. How I’d been a home owner. How I’d been married. How lucky I’d been. How I threw it all away. My life turned into a series of “once did” and “used to.”

The only one who hated me more was my father.

While we were once close confidants, in the years after my marriage to Dave, his disdain had become palpable. My uncle had to intervene one Christmas, after my father mocked me incessantly for taking a temp job filling out gift cards while I was pregnant with Alex. It may seem normal to some of you, this behavior, but in THEIR house, NO ONE was EVER SAD and NOTHING was EVER WRONG. WASPs to the core, my family is.

When I moved back in, broken, dejected, and high, our fights became epic. For the first time in my life, I stood UP to one of my parents. Then, I was promptly kicked out.

Guess I’m not so WASPy after all.

I want to say that the picture was taken around May of 2016, but my estimate may be thoroughly skewed, so if you’re counting on dates being correct and cohesive, you’ve got the wrong girl.

This is a picture of me, though you probably wouldn’t recognize me. I am wearing the blue scrubs that you associate with a hospital: not exactly sky blue, not teal, not navy, just generic blue hospital scrubs. These are, I remember, the only clothes I have to my name. I was given them in both the hospital and the nursing home, a gift, I suppose, of being a frequent flier, tinged with a bit of pity – this girl has no clothes, we can help. Whomever gave them to me, know that you gave me a bit of dignity, which I will never forget. Thank you.

I am wearing scrubs, the light of the refrigerator is slowly bleaching out half of my now-enormous body, as opposed to the darkness outside. There is a tube of fat around my neck, nearly destroying any evidence of my face, but if you look closely, you can make out my glasses, my nostrils, my hair cascading down. My neck is stretched back at nearly a 90 degree angle from my body, my head listlessly resting on the back of my wheelchair. My mouth gaped wide, which, should I been engaging in fly catching, would have netted far more than the average Venus flytrap. I am clearly, unmistakably, and without a single shred of doubt, passed the fuck out.

It is both me and not me.

High as i was, I don’t remember a thing about the photo being taken. But there I was, in all my pixelated glory.

By the time I saw the photo, I was once again in my “will do” and “can do” space. I’d kicked drugs in September 2016 and had found a job that I enjoyed. I stayed with my parents while I began to sort out my medical debt and save toward a new car and an apartment of my own. My spirits were high, my depression finally abated to the background, and I was tentatively happy. I’d apologized until my throat was sore, but my fragmented memory saved me from the worst of it, but I was not forgiven. I don’t think I ever expected to be. And now, I never will.

It’s okay. I can’t expect this. I know I fucked up.

My father, who’d actually grown increasingly disdainful of me, the more sober and well I became, confronted me when I came home one day after work, preparing to do my AFTER work, work.

My mother shuffled along behind him, Ben, the caboose. All three of them were in hysterics, tears rolling down their cheeks as I sat down in my normal spot on the couch. After showing them a video of two turtles humping a couple of days before, I eagerly waited to see what they were showing me.

What it was was that picture. Of the not me, me.

They could hardly contain their laughter, my father happier than ever, braying, “Isn’t this the best picture of you?” and “You PASSED OUT, (heave, heave) IN FRONT OF THE FRIDGE!” punctuated, with “I’m going to frame this picture!” The tears welled in my eyes while my teeth clenched, they laughed even harder at my reaction.

Like I said, if they’ve become Christmas Card sending people, this will be the picture of me they show, expecting others to laugh uproariously. Before I moved out, in fact, my father made certain to show the picture to anyone who came over. “Wanna see something hilarious?” he’d ask. Expecting memes or a funny cat playing the piano, they’d agree. I could see it when they saw it, my dad chortling with laughter, nearly choking on his giggles, the looks on their faces: a mixture of confusion and pity. Even in my drug-hazed “glory,” I’d never felt so low.

Maybe that picture is splashed all over the internet, in the dark recesses I don’t explore, and maybe it’s not. Maybe it’s hung on their wall, replacing all of the other pictures. Maybe it’s not.

Maybe we’ll meet again.

Maybe not.

Eight Tips For Battling Depression

We’ve all seen the commercials:

“Depression hurts.”

“Do you have trouble concentrating or making decisions? ___ [drug] can help.”

“Depression can make you feel like you have to wind yourself up to get through the day.”

“Depression can take so much out of you.”

I have to say that all of that is true. I hate to use the word depression (I think most people do), but things have been rough since my daughter died. I’ve scraped for words to express the isolation, pain, persistent sadness, discouragement, lethargy, roller coaster days, rage, sullenness, futility… but every time those words fall short.

Over the last few years, I’ve learned  a lot of things not to do, and a few things to try.

Most important is that a quick fix is a myth. So often I’ve woken up feeling OK, moved through the day’s activities relatively well, actually enjoyed some of the day’s moments, and thought to myself, “Hurray! I’m better!” Only I woke up the next day back in the swamp, feeling worse than before because I was wrong. I hadn’t actually left it behind.

Here are a few ways that have helped me, along with a few things I recommend avoiding.

If you are struggling with depression:

1. If you are a spiritual person, pray and tell God about how you feel and ask for help. Don’t shut God off just because you don’t feel God’s presence anymore. Feelings are fickle things, affected by lack of sleep, poor eating habits, hormones, illness, grief, and more.

I found that praying in the shower was a good place because

1) I could usually count on not being interrupted by my children, and

2) if I cried my heart out, the water washed my tears and snot away (I’m not a pretty cryer.)

2. Talk yourself through the day. I don’t mean talk out loud to yourself – that’s the fast-lane to crazytown. What I mean is this: if you catch yourself possibly over-reacting or taking the actions or words of another person personally, try to stop long enough to remind yourself that you are predisposed to assume the worst right now. Tell yourself, “I need to take my own emotional/mental/physical state into account when I’m reading other people and cut everyone, including this jerkwad, some slack.”

When I remind myself of this, I’m more likely to step back and wait to see if what I am jumping to conclusions and being paranoid (and usually I am). This helps preserve those relationships, and heaven knows we need as many healthy relationships as we can get.

3. Talk to someone about your struggle. Be selective. Keep your circle small, at least at first. Look for someone who is strong because they have struggled through some hard things themselves (not because he or she is a know-it-all). Find someone you can trust. Don’t talk to that girl who starts every story with, “Don’t tell anyone else, but so-and-so told me …” If they tell stories about other people, don’t give them any dirt on you. The right person will listen well, try to understand you, and give realistic counsel. They will be flexible but also persistent, drawing you out even when you withdraw or hide what’s inside.

4. Remain engaged with your family and friends. Make yourself go to birthday parties, cook-outs, ball games… whatever it is that you and your friends and family do together. Go even when every cell in your body wants to hole up in bed. We need people, and you have never experienced encouragement quite like spending time with people who care about you and who love to have fun.

I am so thankful for my husband and friends who have dragged me out of the house. No matter how many times it happens, I’m always surprised at how much better I feel when I go, even when it’s The Last Thing I want to do that day.

5. Give yourself time. This one has been hard for me. I want to be done with this depression. I want to move on, move forward, leave it behind, get better. I’m tired of dragging it around every day. But my counsellor keeps reminding me that there is no timetable on grieving. And if I try to stuff it all away and hide it, that actually makes the whole process longer. I need to feel those feelings and work through my grief, not run away from it.

6. Go see your doctor. Ask him or her to check for any physical problems and talk about how you are doing. It is very common for an illness or untreated condition to affect every part of you, including your energy level and outlook on life in general. They will collect some labs to look for things like low iron, an out-of-whack thyroid, or abnormally high white cell count (indicates that your body is fighting an infection somewhere). The doctor should be able to work with you to identify ways for you to improve your physical health, and present some options for improving your emotional and mental health.

7. Do your homework before trying supplements and/or prescription medications. Talk with your doctor about this. They will help you select the best things to try and often have non-prescription options as well. Taking a pill, whether it is an antidepressant or an herbal remedy, is not going to make you happy. These treatments are designed to give enough of a boost to do the hard work of recovery.

Be sure to ask your doctor and pharmacy about how various things interact.
Tell them everything you are taking, including herbals and home remedies, because some things are very dangerous when combined. And if you think you need to change something because it isn’t working, don’t just stop cold-turkey! Call your doctor or pharmacist to see if you need to wean yourself off or if it is safe to just stop.

The best advice I was given about trying meds? Try one thing at a time, and give it at least a month before changing anything. Otherwise you won’t know what helped and what didn’t.

8. Build in some cushion. During the worst of my depression, I realized that my weeks were so tightly-scheduled that I had no slack at all for bad days. You know the kind: it’s all you can do to get the kids fed, dressed, and to school, and when you finish that, you collapse. Forget work, laundry, paying bills, washing dishes, cleaning house, grocery shopping. I got radical, backing out of commitments, canceling activities, and taking a leave of absence from work to build in some slack. It gave me the time I needed to rest and recover.

I hope these tips are helpful. I offer them up as ideas picked up along my own struggle in hopes that they encourage you to keep going, keep trying, and most importantly, get help.

Reflections on Lyme Disease

Living with Lyme Disease can be a brutal burden.

This is her story:

Lyme has done some awful things to me. I think the worst are the feelings of despair, anxiety, loneliness. The physical symptoms are not permanent. And although it is sometimes hard to believe, the emotional and psychiatric symptoms are not going to linger forever either. No one can understand how disabling this can be if they haven’t walked this path. If I said I had cancer or MS, I think people would relate (“oh, so and so has that”). We’ve made those illnesses a part of our vernacular. Chemotherapy is almost universally understood. As a society, we know what to expect when someone gets those diagnoses. We are compassionate, sympathetic. I know when my dad was diagnosed with cancer, people came out of nowhere with cards, meals, time.

Lyme is not yet seen the same.

Late-stage Lyme is debilitating. But it is invisible. There is a great website called “But You Don’t Look Sick” that has some great stories about perseverance through invisible illness. I’ve been called a hypochondriac by people who claim to love me. That’s heart-breaking. I sometimes don’t have enough energy to get out of bed to make dinner. I certainly don’t have the energy to convince someone that my whole body hurts and that I have fatigue that can only be temporarily overcome by several large cups of coffee. I’ve realized that putting on that front though only makes it less obvious that something is wrong.

I don’t want to be a burden to those I care about, so I try to minimize my complaints. But truly, I feel very alone. When my dad was sick, I felt there was no other choice but to move in with him, make sure he was cared for, that healthy food was on the table, that he didn’t have to worry about driving home from chemo. Where is my caregiver? I don’t mean for that to sound desperate or clingy. I guess I just don’t understand. I would do anything for friends and family. Quite frankly, I have, sometimes to a fault to where I haven’t left anything for myself and my family.

I am ready to be healthy again. I want to have non-caffeinated energy. I want to be able to work out without feeling crushingly fatigued from lifting ten pounds. And I want a social life back. I know it takes time to maintain friendships, and I feel like I have lost my ability to do that. Mostly I’m just tired of being alone.

And being sick is just one more reason for me to feel distant from others.