by Band Back Together | Sep 7, 2018 | A Letter I Can't Send, Addiction, Anger, Cognitive Distortions, Delusional Disorder, Estrangement, Family, Feelings, Homelessness, Mental Health, Passive/Aggressive Behavior, Poverty, Economic Struggles and Hardship, Sadness, Shame, Stress, Trauma, Trust |
Dear Bro,
The last time we talked, you had so much blame. So much disdain for my decisions and actions. You had guessed my motives from the biased stories told to you from people who were angry with me at the time.
At no point did anyone say to me, “Katie, these things we’ve tolerated from you are no longer acceptable to us. It needs to stop or you need to leave.”
I respected the boundaries Casey gave me without any realization that my behavior was triggering Hali. Why would I think that Billy’s appearance would trigger her into a panic?
After several weeks of living peacefully – with both Lee & Hali’s permission to live in their backyard, coming inside only to shower and heat up microwave meals… suddenly, I received notice that I’d violated their boundaries.
I’d been coming by to shower in the dark of night, and I always announced myself when I arrived during the day. Rationally, I explained the reason for each person that I’d invited in. You thought that I didn’t deserve the opportunity to fix it so that I could ease Hali’s mind. I did not even garner enough of his respect to let me know by text, call, or taking a moment to walk into the backyard to tell me to my face that my presence was creating panic in his mom. He acted without taking into account my feelings, situation, or ability to show respect WHEN ASKED TO.
He says I disrespected him and his parent’s house. Did I? Partially, yes.
I acknowledge that I did not understand that my actions within my surroundings (and the authority to bring guests (even short-term ones) in) were triggering others, but I was NOT incapable of rational understanding. My behavior was deemed unacceptable by Casey who never told me.
I am deeply hurt that everyone around me was so offended, angry, and unable to deal with my choices, yet too afraid for my sanity (or lack thereof) to confront me from a place of care, love, concern, and protection.
I am hurt by your actions and inactions as well, Sir.
You talked to people who knew me without explaining my version of those events and should have told them that my motives shouldn’t be impugned, as I wasn’t being malicious.
And when you diagnosed my “irrationality” to Casey, you didn’t tell him that we had had a conversation a while later (after my rational ability to understand had been restored by the State) when I explained my ACTUAL intentions and acknowledged that I could see now that people did not trust my ability to make sense at all.
I was hurt that you made no effort to tell Casey that I had given reasons/excuses as my actions were based on a skewed and warped sense of reality at the time.
EVERY ONE IS THE PROTAGONIST OF THEIR OWN STORY AND HAS A BIASED PERSPECTIVE.
I cannot accept that you understand me “better than anyone” because NOT A SINGLE SOURCE OF INFORMATION YOU SOUGHT HAD ANY CONTACT WITH ME AND AT NO TIME DID ANY OF THESE *IRREFUTABLE* SOURCES actually understand my motivations.
They cast me into a pile that they deemed “unacceptable to have any contact with” and I was left even more alone.
You resent that I – from your perspective – manipulated Mom & Dad into giving me money that I should have been ashamed to ask for?
You actually have the nerve to tell me that you love me and care about me SO much that you MUST protect yourself from any contact with me. Those two statements are BOTH true I understand that, and I’ve respected that – you’ll notice that I haven’t asked for anything from you since.
You are NOT a professional psychologist trained to diagnose whether or not I was, at the time, able to understand reality. You said that your experience shook you so badly and made you believe that I cannot appreciate any viewpoint but my own. This is not true.
What I find ironic is that you actually believe that you have SUCH a powerful brain that you – taking Casey’s word for what happened – are the SOLE AUTHORITY of your Sister. That is SICK AND OFFENSIVE.
You have no understanding of any person’s story but your own. This summer, I tried to understand the motivations of people around me and compare motives with actions.
Was I naive and taken advantage of?
Yes, however, I learn from my mistakes.
Unlike the people I was hanging out with, I had no problem acknowledging my mistake, explaining the reason for it, and promising that would not do so again. I truly believed that ALL people have dignity and value in this world and I believed that everyone’s decisions MAKE SENSE TO THEM at that moment.
I’m able to see others’ actions, disagree with them, but acknowledge that their perspective makes sense to them, even if I find their logic or assumptions wrong. Validating their actions were reasonable to them and then offering a minor change of perspective or asking a question to clarify their motivations and feelings at the time. Unfortunately, people began to think I was manipulating them. They distrusted who I was; they began to treat me as a a threat to their understanding of the universe.
I was very much hurt that my *only* natural sibling was incapable of contacting me for the 18+ months that I found myself homeless.
You offered no indication of care – or acknowledgement of gratitude – that you’d lived with me for 2 years without any income, you understood and appreciated my explanation for wanting you to stay – that I couldn’t live with my only brother homeless – while it was in my power to prevent it. I’ve strived to make you feel as though you were family and I’d always do all I could to ensure that you were safe and loved. You threw my generosity into my face. When I expressed ANY expectation that you contribute to the well-being of the household, in the form of dishes, other cleaning, money (when you had it), or an indication that you had any interest in adding to the comfort and happiness of the people around you, all I got was silence.
How did your sense of “honor” survive when presented with the *exact same* circumstances, but reversed? When I became homeless, you found yourself incapable of allowing me anywhere near you for longer than a few minutes at a time; you insisted upon resenting me for my inability to take responsibility for my life.
Throughout, you happily took Matt’s side. Your sister’s understanding of reality was so far removed from any you could comprehend based upon your limited experience and NO training or treatment experience. You disregard any external wisdom I have learned from talking to others about their experience.
You are so terrified of mental illness that you hide in your monastery of ceramic and Sony PlayStation and justify that being without any responsibilities to anyone – not even those (you say) you love and value – somehow makes you a superior judge of the human condition and supremely qualified to pass judgement upon those who fail to meet your standards.
I accept that my actions have landed me in this situation, and I am aware that your response to stress and drama is escapism and distress-avoidance. You run the fuck away from a situation you cannot fit into the neat little compartments that you believe all humans should conform to. Any deviation from those neat little boxes you quickly label, categorize, then promptly disregard terrifies you. You become a shadow of who you want to be, and my insanity terrifies your sense of the destiny you believe you control.
You are disappointed in me; that I did not meet your expectations for what you “expected” from me. It’s as if you felt no guilt about fucking off all of the family because Mom & Dad could fall back on me – a child they could be proud of.
Somehow you believe that I’d had some kind of idyllic life for a small moment. This meant that you were absolved of any guilt for your own lack of ambition and sloth, because you avoided confrontation and uncomfortable emotions your entire life, and sunk into early drug use to escape your feelings.
You don’t understand my life and my choices. You’ve never asked me (without accusations) about my life.
The only real message I got last month is that you do love me and were aware of my existence and the lifestyle I had fallen into. You had so much anger and disappointment in me, but honestly, you weren’t acting like caring family member reaching out to see if he could help, without approving of my choices I’d made, but that my behavior was so frightening that you avoided me. You wanted an acknowledgement that I hadn’t made good choices and an apology for the pain you’d been through because of it.
You take my choices very personally, Mike, though I’ve never held you responsible for my fuckups. I have respected your desire for distance and no contact. I had no desire to make you uncomfortable. I’ve only experienced your encouragement and care after I’ve made a mistake and you believed it wasn’t your place to say so, though your mindset is truly remarkable. It’s too bad you’re a coward for not speaking up.
You’re a smart person, Brother, but you don’t show respect to me.
Respect is believing what I tell you – or at least giving me the benefit of the doubt that I am not lying. Your experience of living through my mania is valuable to me, especially. However, you expect me to understand events EXACTLY the way you do.
I don’t.
I had my reasons and I went through enough hell – without any indication that you cared. You took over ten years to find a full-time job and never asked for anything that would inconvenience anyone else. That is your code. But you have NEVER even ASKED me how I define right and wrong – because your understanding of the world is rigid, all or nothing, black and white, and while you understand that other people have different needs and desires, you have no respect for my choices because I don’t adhere to your rigid belief system.
You have no interest in understanding me or my story, Mike. You’ve never asked me for my motivation behind a choice you didn’t like, you only told me I was wrong after I’d done it. Life isn’t easy and I don’t have all of the answers.
You say I destroyed you. If this is true, I sincerely apologize that my crazy was so traumatic that you feel I have irreparably damaged you.
What I don’t understand is how you continue to internalize and make my choices ALL ABOUT YOURSELF.
Do you understand that my choices were made without you?
You are not my victim, Brother. And I am not yours. People do change over time – we heal and grow or we stagnate and stop learning because we are comfortable and complacent. I don’t know at what point you stopped believing that you were capable of change, growth, or positive change for yourself.
i don’t know when you decided that YOUR experience was the only one with meaning or value. I don’t know when you decided that you were too far removed to add any perspective or for your insight and opinion BEFORE I made decisions. We are evolutionary ultra-social creatures designed to live in community with one another. But researchers are wrong, in your opinion, because the fittest survive what?
Hell. And come out stronger.
The strongest people I have come across over my plethora of identities and lifestyles, the strongest are those who’ve been through the kind of hell that I put myself through. But they made a choice not to be victimized by their life story. They found the lessons and found ways to contribute – I have struggled with this.
Leslie asked me on the phone in January, which was “what does Brody (my boyfriend) give you, Katie?”
I paused briefly and answered: he gives me an interest in the future and a vision for what kind of life I want. He gives me a reason for the struggle and value for the journey that brought us together. He’s the smartest man I have ever known and the only man whose perspective I use; his viewpoint is a barometer of my ability to interpret reality.
He gives me safety and respects my viewpoint. He’s the only man who’s EVER told that me I was wrong and why. He cares about me and loves me – not in spite of my crazy, but BECAUSE of it. He has no reservations or “despites” in his love for me. I love, accept, and understand him in of fundamental way that NO ONE has ever done.
But you don’t care about that.
You believe that you’re “destroyed,” but that was not my doing, Little Brother.
The only control we have is in our response to the things we perceive. You’ve never had an interest in anyone else’s perspective. You don’t care what anyone thinks. You don’t get value from painful reflection.
Fine.
You are dead.
Because you don’t value any other person’s existence, and because you have declared yourself the sole arbiter of Morality and Honor without any interest in what others might think, you are, indeed a God to yourself.
And I have my own understanding of how the Universe operates. You have no use for my concept of God and your memory of me is not what you heard or were told about.
Sorry to disappoint you.
I’ve learned and grown and changed and I have more understanding than you EVER will of the way people DESERVE to be treated. I find value for their experiences and perspectives. You aren’t interested in my experiences and I think you’re terrified that the role you’ve put me into isn’t accurate, that you cling the me that you valued but never treated with any dignity.
Goodbye, Brother
I will always hope and pray that you find some growth, happiness and/or reason for your existence beyond your pain and escape from it. I will always hope that any report I get of you will be positive. You don’t believe in Luck either, so I hope you find what has eluded you.
–Your “Big” Sister
by Band Back Together | Sep 6, 2018 | Abuse, Addiction, Addiction Recovery, Adoption, Anger, Anxiety, Cocaine Addiction, Compassion, Coping With Domestic Abuse, Denial, Domestic Abuse, Family, Fear, Feelings, Forgiveness, Guilt, Happiness, Helping Someone In An Abusive Relationship, How To Help With Low Self-Esteem, Jealousy, Loneliness, Loving An Addict, Self Loathing, Self-Esteem, Shame, Stress, Trauma, Trust |
Me. Briefly.
The first time I used, I was 9. I stole some of my mom’s appetite suppressants. For the first time in my short little life, I felt like I could do anything. I forgot that I felt like I didn’t belong. Don’t ask me why I felt that way. I am an adopted child raised by a good family, so I should have felt fine. I truly believe that addiction is genetic. With dope, at long last, I belonged. I wasn’t afraid.
Life went downhill from there. I gradually branched out to other drugs. At 14, I was stealing my parents’ cigarettes and booze and smoking pot. At 18, I got introduced to what would become the great love of my life-meth. I really could do anything on that stuff-no job was too big, and my mind worked like a pinball machine with an electrical short-thoughts careened around so fast I never held one long enough to examine it, so I never really thought about feelings of inadequacy or fear.
Or shame.
At 19, I was tired of trying to make it on my own, so I found myself married to an abusive bastard; anybody who’s ever been through that can understand what I mean when I say that it destroyed any shreds of self-worth I had a chance of having. By then, I knew how to fix that-I used more dope. It didn’t matter what kind as long as it helped me shove those feelings of worthlessness into some dark, forgotten corner of my soul.
After 3 years of being smacked around, I fought back, left, didn’t look back, and didn’t quit fighting for a long time.
I went through a string of failed relationships for a couple of years, until I met “the one.” He actually started to redeem the male of he species for me. For a year and a half, I somehow managed to limit my drinking and drugging. Life was pretty good. I was living the suburban American dream.
In the end, untreated addiction always wins. I got involved in some unsavory business, running drugs up and down the interstate. For each time I got arrested, I made it through at least a few more times. I guess sometimes it really is better to be lucky than good, or I’d still be in prison.
My second husband finally had enough, and I got sentenced to prison knowing that divorce awaited me when I got out. Looking back, I can’t blame him. At the time, I was just enraged.
In prison, in a state far from home, I didn’t have drugs but I still had that fight in me, and the ability to stuff my emotions into some dark corner of myself and forget them. It allowed me to survive in a cold and lonely place. When I got out, I did what I always did. I got high. How else was I supposed to deal with my situation? I was 4 states from all I knew, being held against my will by a parole officer who wouldn’t let me move home.
Fast forward to 2005.
I’m on probation for yet another drug offense, headed for an inpatient drug treatment center at the judge’s (and probation officer’s) suggestion. I had reached that point where I used dope to become that static-y snow on a TV with no reception. I didn’t want to feel. I didn’t want to deal with the mess my life had become and I damn sure didn’t want to deal with the mess that I had become.
I muddled along for a while until I had a using experience so horrific I will never forget it. I had finally used so much dope, trying to kill my feelings, that I had used myself into a corner and it was that dark corner of my soul that I had been avoiding for 27 years.
The dope had led me right into the hell I had been denying from the time I first discovered dope at the tender age of 9.
I got clean, finally. It hurt. Detox can kill, and I guess I considered myself lucky to be alive, considering the way I had used my body for a toxic waste dump.
And I grieved the loss of the drugs. I grieved the loss of the numbness. I was FEELING shit again and it was ookie and I didn’t like it.
The human psyche is an amazing thing, with a remarkable talent for self-preservation. I managed to avoid the real problem: here I was drugless, and the big shitty mess inside was still there. Denial became my best friend. I felt no emotions (or so I told myself.) I damn sure didn’t show them.
For the first two years I was clean, I was involved with another abusive bastard. Got a busted eardrum out of it. During that two years, I did a good job of not allowing myself to feel much of anything, partly out of determination to deprive that bastard of the satisfaction of knowing he had affected me, and mostly because I didn’t want to look at that big shitty fucking mess in my mind and soul.
I did all this while calling myself a member of a twelve step fellowship.
Two years into my abstinence, the pain of my living situation became too much. Denial, toughness, bad attitude-none of it was working anymore. Without the dope to numb my soul, the big shitty mess in the darkest corner of my heart began to fester. So I got honest. Well, a little bit, anyway. Six months later, I was out of the abusive relationship. I was healing.
At least that’s what I told the world.
Until the physical after effects of the corrective surgery on my eardrum became unbearable. They also became a physical representation of all that was wrong with my psyche.
Broken.
I could no longer use those old defense mechanisms. I could no longer be the hardass, the tough girl who didn’t give a fuck. I gave a fuck and I was tired of being broken.
Aunt Becky, I cried. Like I don’t think I have ever cried before.
I cried for all I wasted. I cried over all the wasted potential, the wasted years, the wasted lives I destroyed with my sick spirit.
I cried for a little girl who never felt like she belonged. I cried for my mother who couldn’t fix her child. I cried for what was left of myself and for the parts of me that were lost forever. I screamed. I cried until my throat hurt, my rib cage hurt, my head hurt. I cried until my entire head was so congested I couldn’t breathe. I cried over all the sadness I had never cried over, I cried over all the pain I never cried over, I cried over all the fear I never cried over. I have no idea how long I cried. It seemed like forever.
And then I slept. I slept the sleep of the damned. Because as I cried, screaming about how I was tired of being broken, I realized that nothing could fix me. I was doomed to this existence of knowing I was broken and the only thing that ever made me feel whole was dope and I couldn’t have it anymore. It had been killing me while it killed my feelings, except it wasn’t killing the feelings anymore. I couldn’t stop using once I started, and once I used I became this horrible beast who got arrested and burned bridges with the people in her life. So dope was out.
I was, finally, alone with the truth. I was rotten inside and nothing could fix me.
At 40 years of age, I’m glad I can say that a lot has happened in the 3 years since I cried that night and screamed my frustration at being broken. I started working the 12 steps of recovery from addiction. I have a sponsor. I have 5 years clean. I have a reasonably good relationship with my mother these days. I am now in a very serious and mostly healthy relationship with the man who held me the night I cried-he is truly a good man. I am in my first senior year of college. I have been well trained in the work I do and have been working the same part-time jobs for 5 years now. I’m good at my job. I have a few friends-true friends.
Aunt Becky, I wish I could give you a happy ending. I wish I could say that I have finally progressed through the 5 stages of grief. I think it’s safe to say I have passed through denial.
Yet I still can’t let go of those old defense mechanisms. It is so fucking hard to express emotions. It’s just as hard to live through them. So I shop. I eat chocolate. I find things to distract me. Often, I stick my feelings in that dark corner of my soul. Even the good ones. I still miss the ability to deny their existence. I don’t know what to do with them, so it’s easier to deny them.
I guess it’s progress, being able to admit I have emotions.
Some days, I get so angry. Why the fuck can’t I be normal? Why oh why do I always seem to feel inadequate, less than, afraid? At least the rage can be empowering, motivating me to get up and try one more day to find a way to heal my sick spirit. If nothing else, rage feels good. It’s so primal.
Some days, I’m depressed. The possibility of spending the rest of my life knowing I am irretrievably broken saddens me beyond belief. This is where I am grateful for my adoptive mother-she’s my REAL mother. Nothing ever stopped her, and rarely did anything slow her down. She always kept going. What an amazing example; I believe it’s the only reason I keep going on my depressed days.
Bargaining. Yes. I do that. I make bargains with whatever’s out there-if you would just fix me, God, I would try to touch another life so some other woman doesn’t ever have to live with the pain I lived with for so long. Just please fucking fix me so I am not afraid, ashamed, and insecure. Make me not hurt and I will try to share it with someone who needs to know it is possible to not hurt.
Acceptance. Not so much. Today, I refuse to accept that I am irretrievably broken. Maybe that is where the twelve steps are beginning to work in my life.
And maybe that’s the happy ending after all.
by Band Back Together | Sep 4, 2018 | Addiction, Addiction Recovery, Adult Bullying, Adult Children of Addicts, Agoraphobia, Anger, Anxiety, Anxiety Disorders, Bacterial Infectious Diseases, Child Neglect, Cognitive Distortions, Coping With Depression, Coping With Divorce, Denial, Depression, Dissociative Amnesia, Divorce, Emotional Boundaries, Emotional Regulation, Estrangement, Fear, Guilt, How To Help With Low Self-Esteem, Hypoparathyroidism, Infectious Diseases, Invisible Illness, Jealousy, Loneliness, Major Depressive Disorder, Marriage Problems, Medical Mystery Tour, Mental Illness Stigma, Pain And Pain Disorders, Poverty, Economic Struggles and Hardship, Sadness, Self-Esteem, Shame, Stress, Substance Abuse, Substance Abuse Relapse, Trauma, Trust |
There is a picture of me, somewhere out there, probably still on my dad’s phone unless they’ve turned into Christmas Card people, in which case, the picture is most definitely out there in the world for all to see.
I hope it is not.
I didn’t see the picture until I was 5 months sober, staying in the unfinished basement at my parents house, grateful that I was no longer homeless, while I hunted for a job. Before this, I’d been staying there after a stint at a ramshackle, rundown motel, the kind of place you probably could dismantle a dead body, leave the head on the pillow, and no one would think anything of it. But it was my room, and despite the lice they gifted me, I loved it. Until money dried up and suddenly I was, once again, homeless. I’d moved in there after I was discharged from the inpatient psych ward, in which I was able to successfully detox after a suicide attempt. Got some free ECT to boot.
(WINNING)
Despite what you see on the After School Special’s of our childhood, I didn’t take a single Vicodin, fall into a stupor, and become insta-addict – just add narcotics! No, my entry into addiction was a slow and steady downward spiral of which I am deeply ashamed. It’s left my brain full of wreckage and ruin, fragmented bits of my life that don’t follow a single pattern. Between the opiates, the Ketamine, and the ECT, I cannot even be certain that what I am telling you is the truth; what I’ve gathered are bits and pieces of the addict I so desperately hate from other people who are around, fuzzy recollections, and my own social media posts.
About a year and a half before I moved from my yellow house to the apartments by the river, Dave and I had separated; he’d told me that while he cared for me, he no longer loved me. While we lived in the same house, we’d had completely separate lives for years, so he moved to the basement while I stayed upstairs. I’d been miserable before his confession and after? I was nearly broken. Using the Vicodin, then Norco, I was able to numb my pain and get out of my head, which, while remarkably stupid, was effective. For awhile.
Let me stop you, Dear Reader, and ask you to keep what I am about to say in mind as you read through this massive tome. I’m simply trying to make certain that you understand several key things about my addiction and subsequent recovery. I alone was the one who chose to take the drugs. No one forced me to abuse opiates, and even later, (SPOILER ALERT) Ketamine. This isn’t a post about blaming others for my misdoings, rejecting any accountability, nor making any excuses for the stupid, awful things I’ve done. I alone fucked up. My addiction was my own fault. However, in the same vein, no one “saved” me but myself. There was no cheeky interventionist. No room full of people who loved me weeping stoically, telling me how my addiction hurt them. No letters. Nothing. It was just me. I was alone, and I chose to get – and remain – sober.
The delusions started when I moved out, sitting in my empty apartment alone, paralyzed by the thought of getting off the couch to go to the bathroom. Always a night-owl, I’d wake at some ungodly hour of the morning, shaking. It wasn’t withdrawal, no, it was pure unfettered anxiety.
It was the aftermath of using so many pills, all the fun you think you’re having comes back to bite you with crippling anxiety and depression.
Which is why I’d do more.
Yes, opiates are powerful, and yes, I abused them, but things really didn’t become dire until I added Ketamine to my life.
Ketamine, if you’re unaware, is a club drug, a horse tranquilizer, and a date rape drug. You use too much? You may wake up at some hipster coffee bar, trying to sing “You’re Having My Baby” to the dude in the front row who may or may not actually exist. In other words, it’s the best way to forget how fucked you are.
The delusions worsen as time passed. I could see into the future. I could read your mind. I was going to be famous. I was super fucking rich. In this fucked-up world, I could even forget about me, and the life that I’d so carelessly shattered. I remember sitting in Divorce Class at the courthouse, something required of all divorces in Kane County, weeping at all that I’d thrown away – using a total of three boxes of the low-quality, government tissues. I left with a shiny pink face and completely chapped nose and eyes that appeared to be making a break from their sockets. I went home, took some pills, took some Ketamine, and passed out.
I retreated ever-inward. I didn’t talk to many people. I didn’t share my struggles. I was alone, and it was my fault.
The hallucinations started soon after Divorce Class ended and my ex and I split up. He’d left my house in a rage after a fight and went to live with his sister. I got scared. His temper, magnified by the drugs, the hallucinations, and the delusions, grew increasingly frightening. Once he’d moved out, the attacks began. I’d wake up naked in my bedroom, my body sore and bruised, and my brain put the two unrelated events together as one – he was attacking me. It happened every few days, these “attacks,” until I found myself at the police station, reporting them. I was dangerously sick and I had no idea.
My friends on the Internet (those whom I had left), sent me money for surveillance cameras. I bought them, installed them – trying to capture the culprit – and when I saw what I saw, I immediately called the police and told them the culprit.
The videos in my bedroom captured an incredibly stoned, dead-eyed, version of myself, violently attacking myself, brutally tearing at my flesh. In particular, THAT me liked to beat my face with one of my prized possessions – a candlestick set from our wedding, take another pill or hit up some Ketamine, then violating myself with the candlestick. It lasted hours. I’d wake up with no memory of events, sore and tired and unsure of how I’d gotten there.
I’d never engaged in self-injury before – not once – so the very idea that I’d hurt myself was unbelievable, but right there, on my grainy old laptop, was proof of how unhinged I’d become. Charged with filing a false report, I plead guilty.
In early September of 2015, I decided to get fixed, and made arrangements with work to take a few weeks off to do an inpatient detox, and, for the first time in a long time, I woke up happily, rather than cursing the gods that I was still alive.
It was to be short-lived.
Several days later, sober, I was idly chatting with my neighbor about her upcoming vacation (funny the things your brain remembers and what it does not), standing by my screen door, when karma came calling. It sounded like the shucking noise of an ear of corn, or maybe the sound that a huge thing of broccoli makes when you rip it apart – hard. It felt like a bullet to the femur. I crumpled on top of my neighbor and began screaming wildly about calling an ambulance, yelling over and over like some perverse, yet truthful, Chicken Little: “my leg is broken, my LEG is broken!”
I don’t remember much after that. I woke up in (physical rehab) and learned that my femur (hereafter to be called my “Blasfemur,”) had broken, fairly high up on the bone, where the biggest, strongest bone in your body is at its peak of strength. Whaaaa?
The doctors and nurses shrugged it off my questions, with a flippant “It just happens” and sent me home, armed with a Norco prescription, in November, to heal. I added the Ketamine, just to make sure.
A couple of weeks later at the end of November, I was putting up the Christmas tree with the kids and my mother. It was all merry and fucking bright until I sat down on the couch and felt that familiar crunch. Screams came out of me I didn’t know were possible, but I’d lost my actual words. My mother stood over me yelling “what’s wrong? what’s wrong?” and I couldn’t find the words. I overheard her telling my babies that I was “probably just faking it” as she walked out the door, my screams fading into an ice cold silence. They left me alone in that apartment where I screamed and cried and screamed. Finally, I managed to call 911 and when they asked me questions, all I could scream was my address.
I woke up in January in a nursing home. When I woke up, I found myself sitting at a table in a vast dining room, full of old people. For weeks to come, I thought that I’d died and gone…wherever it is that you go.
This time, I learned, my (blas)femur and it’s associated hardware had become infected after the first surgery, which weakened the bone, causing it to snap like a tree. They put me all back together like the bionic woman, but the surgery had introduced the wee colony of Strep D in the bone into my bloodstream, creating an infection on meth. I’d been in a coma for weeks. Once again, I learned to walk, and once again, I was sent home in late January with another Norco prescription. The nursing home really wanted me to have someone stay with me to help out, but I insisted that I was fine alone. In truth, I had nobody to help me out, but was far too ashamed to tell them.
The picture I referenced above was taken some time in May, as far as my fuzzy memory allows me to remember, after my third femur fracture in March. This time, I’d been so high that I fell asleep on the toilet and rolled off. Glamorous, no? Just like Fat Elvis. Luckily, my eldest son was there and he called 911 and my parents to whisk him away. I remember my father on the phone, telling Ben that I was a liar and I was faking it. I was swept away in the ambulance for even more hardware, and finally? A diagnosis:
HypoPARAthyroidism.
It’s an autoimmune disease that leaches calcium from the bones, resulting in brittle bones. It is managed, not treated. There is no cure.
But, I had the answer. Finally.
After my third fracture, I once again was sent to the nursing home, and quickly discharged with even higher doses of Norco, when my insurance balked, I’d used up all my rehab days for the year. By this time, I’d lost my apartment, my stuff was in storage (except the things that we’re thrown away, which my father gloated about while I was flat on my back) and my parents let me stay with them, which was about the only option I had. They couldn’t really kick me out if my leg was only freshly attached. I feel deeper into a depression, self-loathing, and drug abuse as I realized what a mess I’d made with my life. How many bad choices I’d made. How many people I’d hurt. How much I’d hurt myself. How much I loathed myself. How I once had a life that in no way resembled sleeping in my parents dining room. How I’d been a home owner. How I’d been married. How lucky I’d been. How I threw it all away. My life turned into a series of “once did” and “used to.”
The only one who hated me more was my father.
While we were once close confidants, in the years after my marriage to Dave, his disdain had become palpable. My uncle had to intervene one Christmas, after my father mocked me incessantly for taking a temp job filling out gift cards while I was pregnant with Alex. It may seem normal to some of you, this behavior, but in THEIR house, NO ONE was EVER SAD and NOTHING was EVER WRONG. WASPs to the core, my family is.
When I moved back in, broken, dejected, and high, our fights became epic. For the first time in my life, I stood UP to one of my parents. Then, I was promptly kicked out.
Guess I’m not so WASPy after all.
I want to say that the picture was taken around May of 2016, but my estimate may be thoroughly skewed, so if you’re counting on dates being correct and cohesive, you’ve got the wrong girl.
This is a picture of me, though you probably wouldn’t recognize me. I am wearing the blue scrubs that you associate with a hospital: not exactly sky blue, not teal, not navy, just generic blue hospital scrubs. These are, I remember, the only clothes I have to my name. I was given them in both the hospital and the nursing home, a gift, I suppose, of being a frequent flier, tinged with a bit of pity – this girl has no clothes, we can help. Whomever gave them to me, know that you gave me a bit of dignity, which I will never forget. Thank you.
I am wearing scrubs, the light of the refrigerator is slowly bleaching out half of my now-enormous body, as opposed to the darkness outside. There is a tube of fat around my neck, nearly destroying any evidence of my face, but if you look closely, you can make out my glasses, my nostrils, my hair cascading down. My neck is stretched back at nearly a 90 degree angle from my body, my head listlessly resting on the back of my wheelchair. My mouth gaped wide, which, should I been engaging in fly catching, would have netted far more than the average Venus flytrap. I am clearly, unmistakably, and without a single shred of doubt, passed the fuck out.
It is both me and not me.
High as i was, I don’t remember a thing about the photo being taken. But there I was, in all my pixelated glory.
By the time I saw the photo, I was once again in my “will do” and “can do” space. I’d kicked drugs in September 2016 and had found a job that I enjoyed. I stayed with my parents while I began to sort out my medical debt and save toward a new car and an apartment of my own. My spirits were high, my depression finally abated to the background, and I was tentatively happy. I’d apologized until my throat was sore, but my fragmented memory saved me from the worst of it, but I was not forgiven. I don’t think I ever expected to be. And now, I never will.
It’s okay. I can’t expect this. I know I fucked up.
My father, who’d actually grown increasingly disdainful of me, the more sober and well I became, confronted me when I came home one day after work, preparing to do my AFTER work, work.
My mother shuffled along behind him, Ben, the caboose. All three of them were in hysterics, tears rolling down their cheeks as I sat down in my normal spot on the couch. After showing them a video of two turtles humping a couple of days before, I eagerly waited to see what they were showing me.
What it was was that picture. Of the not me, me.
They could hardly contain their laughter, my father happier than ever, braying, “Isn’t this the best picture of you?” and “You PASSED OUT, (heave, heave) IN FRONT OF THE FRIDGE!” punctuated, with “I’m going to frame this picture!” The tears welled in my eyes while my teeth clenched, they laughed even harder at my reaction.
Like I said, if they’ve become Christmas Card sending people, this will be the picture of me they show, expecting others to laugh uproariously. Before I moved out, in fact, my father made certain to show the picture to anyone who came over. “Wanna see something hilarious?” he’d ask. Expecting memes or a funny cat playing the piano, they’d agree. I could see it when they saw it, my dad chortling with laughter, nearly choking on his giggles, the looks on their faces: a mixture of confusion and pity. Even in my drug-hazed “glory,” I’d never felt so low.
Maybe that picture is splashed all over the internet, in the dark recesses I don’t explore, and maybe it’s not. Maybe it’s hung on their wall, replacing all of the other pictures. Maybe it’s not.
Maybe we’ll meet again.
Maybe not.
by Band Back Together | Aug 31, 2018 | Anger, Anxiety, Baby Loss, Coping With Baby Loss, Coping With Depression, Faith, Fear, Forgiveness, Grief, Guilt, Help For Grief And Grieving, Hope, Loneliness, Loss, Love, Major Depressive Disorder, Mental Illness Stigma, Mood Disorder, Sadness, Self Loathing, Shame, Stress, Trauma |
We’ve all seen the commercials:
“Depression hurts.”
“Do you have trouble concentrating or making decisions? ___ [drug] can help.”
“Depression can make you feel like you have to wind yourself up to get through the day.”
“Depression can take so much out of you.”
I have to say that all of that is true. I hate to use the word depression (I think most people do), but things have been rough since my daughter died. I’ve scraped for words to express the isolation, pain, persistent sadness, discouragement, lethargy, roller coaster days, rage, sullenness, futility… but every time those words fall short.
Over the last few years, I’ve learned a lot of things not to do, and a few things to try.
Most important is that a quick fix is a myth. So often I’ve woken up feeling OK, moved through the day’s activities relatively well, actually enjoyed some of the day’s moments, and thought to myself, “Hurray! I’m better!” Only I woke up the next day back in the swamp, feeling worse than before because I was wrong. I hadn’t actually left it behind.
Here are a few ways that have helped me, along with a few things I recommend avoiding.
If you are struggling with depression:
1. If you are a spiritual person, pray and tell God about how you feel and ask for help. Don’t shut God off just because you don’t feel God’s presence anymore. Feelings are fickle things, affected by lack of sleep, poor eating habits, hormones, illness, grief, and more.
I found that praying in the shower was a good place because
1) I could usually count on not being interrupted by my children, and
2) if I cried my heart out, the water washed my tears and snot away (I’m not a pretty cryer.)
2. Talk yourself through the day. I don’t mean talk out loud to yourself – that’s the fast-lane to crazytown. What I mean is this: if you catch yourself possibly over-reacting or taking the actions or words of another person personally, try to stop long enough to remind yourself that you are predisposed to assume the worst right now. Tell yourself, “I need to take my own emotional/mental/physical state into account when I’m reading other people and cut everyone, including this jerkwad, some slack.”
When I remind myself of this, I’m more likely to step back and wait to see if what I am jumping to conclusions and being paranoid (and usually I am). This helps preserve those relationships, and heaven knows we need as many healthy relationships as we can get.
3. Talk to someone about your struggle. Be selective. Keep your circle small, at least at first. Look for someone who is strong because they have struggled through some hard things themselves (not because he or she is a know-it-all). Find someone you can trust. Don’t talk to that girl who starts every story with, “Don’t tell anyone else, but so-and-so told me …” If they tell stories about other people, don’t give them any dirt on you. The right person will listen well, try to understand you, and give realistic counsel. They will be flexible but also persistent, drawing you out even when you withdraw or hide what’s inside.
4. Remain engaged with your family and friends. Make yourself go to birthday parties, cook-outs, ball games… whatever it is that you and your friends and family do together. Go even when every cell in your body wants to hole up in bed. We need people, and you have never experienced encouragement quite like spending time with people who care about you and who love to have fun.
I am so thankful for my husband and friends who have dragged me out of the house. No matter how many times it happens, I’m always surprised at how much better I feel when I go, even when it’s The Last Thing I want to do that day.
5. Give yourself time. This one has been hard for me. I want to be done with this depression. I want to move on, move forward, leave it behind, get better. I’m tired of dragging it around every day. But my counsellor keeps reminding me that there is no timetable on grieving. And if I try to stuff it all away and hide it, that actually makes the whole process longer. I need to feel those feelings and work through my grief, not run away from it.
6. Go see your doctor. Ask him or her to check for any physical problems and talk about how you are doing. It is very common for an illness or untreated condition to affect every part of you, including your energy level and outlook on life in general. They will collect some labs to look for things like low iron, an out-of-whack thyroid, or abnormally high white cell count (indicates that your body is fighting an infection somewhere). The doctor should be able to work with you to identify ways for you to improve your physical health, and present some options for improving your emotional and mental health.
7. Do your homework before trying supplements and/or prescription medications. Talk with your doctor about this. They will help you select the best things to try and often have non-prescription options as well. Taking a pill, whether it is an antidepressant or an herbal remedy, is not going to make you happy. These treatments are designed to give enough of a boost to do the hard work of recovery.
Be sure to ask your doctor and pharmacy about how various things interact. Tell them everything you are taking, including herbals and home remedies, because some things are very dangerous when combined. And if you think you need to change something because it isn’t working, don’t just stop cold-turkey! Call your doctor or pharmacist to see if you need to wean yourself off or if it is safe to just stop.
The best advice I was given about trying meds? Try one thing at a time, and give it at least a month before changing anything. Otherwise you won’t know what helped and what didn’t.
8. Build in some cushion. During the worst of my depression, I realized that my weeks were so tightly-scheduled that I had no slack at all for bad days. You know the kind: it’s all you can do to get the kids fed, dressed, and to school, and when you finish that, you collapse. Forget work, laundry, paying bills, washing dishes, cleaning house, grocery shopping. I got radical, backing out of commitments, canceling activities, and taking a leave of absence from work to build in some slack. It gave me the time I needed to rest and recover.
I hope these tips are helpful. I offer them up as ideas picked up along my own struggle in hopes that they encourage you to keep going, keep trying, and most importantly, get help.
by Band Back Together | Aug 21, 2018 | Abuse, Anger, Borderline Personality Disorder, Child Pornography, Coping With Domestic Abuse, Denial, Domestic Abuse, Economic Abuse, Emotional Abuse, Fear, Fibromyalgia, Guilt, Helping Someone In An Abusive Relationship, How To Cope With Post-Traumatic Stress Disorder, Intimate Partner Rape, Loneliness, Post-Traumatic Stress Disorder, Rape/Sexual Assault, Sadness, Shame, Trauma, Violence |
For the last five years, I’ve been lying to everyone; my parents, my children, social services, but most of all, myself.
My “courtship” with my husband lasted just three months before we became engaged. A year and a month after we met, I married him. I blindly ignored the warnings from my parents, my loved ones, and my own eyes. I thought I could change him. He would be better after the wedding, when all the stress was gone.
How wrong was I?
Within months of our marriage, what I saw scared me, but I decided to stay, thinking, “I can still change him. I can make him better!” I was so arrogant!
We had just conceived our first child when he sprained my arm. I told myself that it was an accident and justified it to everyone else.
His sister assaulted me when I was pregnant. He put me down in front of his parents. His mother assaulted me many times. They told me it was my fault. It was all my fault. Everything was always my fault.
What’s worse is that I genuinely believed them!
They threatened to take my baby away from me if I left. I was so scared of them, I stayed.
Now that WAS my fault! I should have left, but I didn’t!
He raped me the first time when our daughter was just five days old. I can still remember the searing agony that tore through my whole body as he did it! The tears and cuts burning with fire, my screams mingling with those of our daughter who was in the same room as us! That was my fault too apparently. After that, I had to have treatment for an erosion in the womb. That was also entirely my fault.
He was diagnosed with Borderline Personality Disorder. Now he had something else to justify his treatment of me. He “needed” round the clock care, an excuse to stop me from working.
He moved me away from my parents to an isolated town and wouldn’t let me visit them. My parents still blame me for that, as if I had a choice!
After our second child was born, the abuse got worse and worse. I confided in my midwife about him raping me when our daughter was five days old. She and all the other midwives we saw made a point of reminding him that sex wasn’t allowed before my six week check. Normally a woman is signed off by the midwife within days of giving birth. They visited me for over a month to protect me. As soon as my six week check was over, the rape began again. This time almost every night and sometimes while I was asleep.
I haven’t slept for almost two years! I began to crave the oblivion of deep sleep, but I couldn’t because of the fear of what he would do to me while I slept. Twice he raped me anally because I had a period. If he wasn’t doing that, he would say things like, “I was hoping to have sex with you, but I can’t because you’re bleeding,” as if it were somehow my fault for being a woman.
That wasn’t the end of the emotional abuse. There was always shouting and yelling. The police were called. Social services were called twice. He isolated me more and more from our friends and would only let me go out with one of the children at a time.
He’d lock me in the house and “forget” to leave my key behind. Sometimes, he would move my keys, and when I wasn’t looking, would put them somewhere I’d already looked. I thought I was going mad!
When our son was five months old, we went on holiday with his family. While we were there, he dragged me out of the room by my legs in front of our daughter and threw me out into the rain with no shoes and no coat. When he finally let me in half an hour later, I had to sit in my wet clothes feeding our son, while his mother lectured me on how the whole thing was my fault.
A week later, I was rushed into hospital with chest pains. Everyone noticed the bruises and three people made separate calls to social services on my behalf. They sent two police officers out that night to check on the children and me. It was so humiliating! He would never let me speak to men because as far as he was concerned, I was cheating on him with every single man I spoke to.
While I was visiting my parents, he kissed another woman. I wish I’d left him then! But I listened to his sob story about how he was really going to change this time! He did change …for the worse.
In November 2012, his brother assaulted me. I had to go to hospital and was on crutches for six weeks because my sciatic nerve had gone into spasm. I lied in the hospital and said that I’d fallen in the kitchen. I was so scared that my children would be taken from me this time.Do you know how much sex hurts when you have sciatica? Especially when it’s rape.
In May 2013, I was diagnosed with Fibromyalgia. The doctor believes there is a link between Fibromyalgia and Post Traumatic Stress Disorder. That was another excuse to isolate me further from everyone. I wasn’t allowed to do housework because I was “too ill.” I’d given up fighting him. I was so far into my shell, I couldn’t even care for our children.
He slowly crushed me to the point that I didn’t know any different.
We had a visit from our new health visitor. He told her that he was afraid of bathing our daughter because he was afraid of having sexual feelings for her. I was shocked and scared, but I didn’t know what to do! I should have left him there and then, but I couldn’t! I was paralyzed by five years of emotional, financial, and sexual abuse. He’d groomed me for this very eventuality so that I wouldn’t leave him!
The next day a social worker turned up with two police officers who seized all of our computer equipment. They told me that I needed to get the children out of the house. I replied that if they were going, I would be going too. They agreed.
My children have been protected by social services for three months now. I’ve ended the relationship and am seeking help for the abuse. Social services are being as helpful as they can be, but the health visitor thinks I should have left and should not have my children back. She thinks I’m a failure as a mother.
Maybe I am. I should have left. I should have sought help sooner. I have to live with that for the rest of my life. I obviously don’t deserve my children. Obviously love isn’t enough!
by Band Back Together | Aug 20, 2018 | Anger, Anxiety, Caregiver, Child Abuse, Child Neglect, Depression, Emotional Boundaries, Guilt, Loneliness, Major Depressive Disorder, Mental Illness Stigma, Parentification, Psychological Manipulation, Sadness, Schizophrenia, Self Loathing, Shame, Trauma |
I am not a “blogger,” even though I have a blog. I am not good at writing.
I have tried. I have written as catharsis. Anything I write eventually ends up used against me. I even used to write poems long ago, but what I got in return for pouring out my heart effectively put a stop to that.
I don’t know where to begin or how to form a coherent compilation of a jumbled life. There is much I will leave unsaid.
I didn’t know where I began and my mother stopped.
I am a child of a mentally ill parent. The woman who gave birth to me, whom I am supposed to call Mother, has schizophrenia. I am sure there are many other diagnosis that could be added to that, but we will keep it simple. As if there is such a thing as simple with schizophrenia.
I could write endlessly about the trauma, dysfunction, neglect, and abuse of my childhood.
The shame. The guilt. The fear. The secrecy. Being judged from HER illness.” Crazy by association.” As a result, I think I have been depressed and angry my entire life. I never was able to have a “childhood”. The early years are a blurry nightmare. Memories that are locked away by choice and repression. Sometimes I feel like I am made up of nothing but scar tissue. Who am I? Will I be judged based on her illness forever? How long will I carry her baggage as well as my own?
By some miracle I was given a reprieve. When I was 5 I went to live with an Aunt and Uncle and their two sons. God only knows what they thought of the feral child they received. Merging into a “normal” household was difficult. For all of us, I’m sure. I was a child who fended for herself and had to adjust to a new way of life. At some point I started to call my Aunt & Uncle, Mom & Dad. My cousins were like brothers. Although I was still reserved and doubtful about the security of love, I loved them.
But then like a piece of property, like a borrowed casserole dish, my “owner” demanded around the time I was 10, that I be returned. Returned to hell. I remember having an early birthday party with my friends before I left. I didn’t understand. Why would they send me back? What did I do wrong? Why was I being punished? Part of me still doesn’t understand. Even as an adult who has actually been given some of the information that as a child I was not privy to. Only those that were adults at the time will ever truly know the whys of it all.
I became the caretaker. I felt thrown away. Invisible. Damaged. Unwanted. Unlovable. Once again fending for myself in every way. Any time I made my NEEDS known, I was told I was selfish. Like dinner. How dare I expect dinner. Or school clothes, or to have my laundry done. Or or or… infinity. Any time I tried to speak up to ask questions of my family or tell someone that something wasn’t right or even to break free of the twilight zone I lived in, I was brushed aside and told “we’ll speak with your mother”. Yeah great idea. I was screaming. No one heard me. No one saw me. Or they chose not to. Selective blindness. She was the adult. I was just the child who acted out.
Unheard. Screaming inside. Unheard. Seriously!?!? How could family simply go on living their lives like mine was disposable?
Not ONE person in my family could admit to the secret that was my mother. So I became the problem child. It wasn’t her it was me. It wasn’t HER sick twisted warped behavior, it was somehow MINE. It wasn’t because I didn’t have a functioning parent or that I was subjected to abuse and exposed to things no child should be exposed to. It wasn’t because I was expected to be her caretaker, therapist, mental and physical punching bag and be sucked into her warped reality. No couldn’t possibly be that! According to them, I was a “bad” kid. I was wrong. It was ME. I had problems. I was the cause of the problems. All of the dysfunction was MY fault.
I grew up thinking there was something wrong with me. It has affected every aspect of my life. When I was a teenager, I finally found out what was wrong with her. Not because I was told, but because I wrote down the names and doses of all her medications and a person in my life was able to tell me what they were for. Needless to say confrontations were served all around. I stopped staying at “home” when I was 16, spending as little time there as possible. Still being labeled the problem child, I moved out completely at 17.
I have gotten therapy ad nauseam. I asked that I be given every psychological test known to man to see was I anything like her. Would I turn out like her? Was there something wrong with me? Despite my many flaws and admitted quirks and dysfunctions, I AM SANE.
So I still may not always know who I am, but I AM NOT HER. Nor will I ever be. I am bitter. And yes I am damaged. But I am ME. Whoever that is.
And for all the people telling me I have to forgive. For the so called family who abandoned me and still to this day judge me, shun me, and blame me, instead of facing the reality of HER illness, I give you a ginormous mushroom print. FUCK YOU.
I am me. Someone you do not know.