I have to say that all of that is true. I hate to use the word depression (I think most people do), but things have been rough since my daughter died. I’ve scraped for words to express the isolation, pain, persistent sadness, discouragement, lethargy, roller coaster days, rage, sullenness, futility… but every time those words fall short.
Over the last few years, I’ve learned a lot of things not to do, and a few things to try.
Most important is that a quick fix is a myth. So often I’ve woken up feeling OK, moved through the day’s activities relatively well, actually enjoyed some of the day’s moments, and thought to myself, “Hurray! I’m better!” Only I woke up the next day back in the swamp, feeling worse than before because I was wrong. I hadn’t actually left it behind.
Here are a few ways that have helped me, along with a few things I recommend avoiding.
If you are struggling with depression:
1. If you are a spiritual person, pray and tell God about how you feel and ask for help. Don’t shut God off just because you don’t feel God’s presence anymore. Feelings are fickle things, affected by lack of sleep, poor eating habits, hormones, illness, grief, and more.
I found that praying in the shower was a good place because
1) I could usually count on not being interrupted by my children, and
2) if I cried my heart out, the water washed my tears and snot away (I’m not a pretty cryer.)
2. Talk yourself through the day. I don’t mean talk out loud to yourself – that’s the fast-lane to crazytown. What I mean is this: if you catch yourself possibly over-reacting or taking the actions or words of another person personally, try to stop long enough to remind yourself that you are predisposed to assume the worst right now. Tell yourself, “I need to take my own emotional/mental/physical state into account when I’m reading other people and cut everyone, including this jerkwad, some slack.”
When I remind myself of this, I’m more likely to step back and wait to see if what I am jumping to conclusions and being paranoid (and usually I am). This helps preserve those relationships, and heaven knows we need as many healthy relationships as we can get.
3. Talk to someone about your struggle. Be selective. Keep your circle small, at least at first. Look for someone who is strong because they have struggled through some hard things themselves (not because he or she is a know-it-all). Find someone you can trust. Don’t talk to that girl who starts every story with, “Don’t tell anyone else, but so-and-so told me …” If they tell stories about other people, don’t give them any dirt on you. The right person will listen well, try to understand you, and give realistic counsel. They will be flexible but also persistent, drawing you out even when you withdraw or hide what’s inside.
4. Remain engaged with your family and friends. Make yourself go to birthday parties, cook-outs, ball games… whatever it is that you and your friends and family do together. Go even when every cell in your body wants to hole up in bed. We need people, and you have never experienced encouragement quite like spending time with people who care about you and who love to have fun.
I am so thankful for my husband and friends who have dragged me out of the house. No matter how many times it happens, I’m always surprised at how much better I feel when I go, even when it’s The Last Thing I want to do that day.
5. Give yourself time. This one has been hard for me. I want to be done with this depression. I want to move on, move forward, leave it behind, get better. I’m tired of dragging it around every day. But my counsellor keeps reminding me that there is no timetable on grieving. And if I try to stuff it all away and hide it, that actually makes the whole process longer. I need to feel those feelings and work through my grief, not run away from it.
6. Go see your doctor. Ask him or her to check for any physical problems and talk about how you are doing. It is very common for an illness or untreated condition to affect every part of you, including your energy level and outlook on life in general. They will collect some labs to look for things like low iron, an out-of-whack thyroid, or abnormally high white cell count (indicates that your body is fighting an infection somewhere). The doctor should be able to work with you to identify ways for you to improve your physical health, and present some options for improving your emotional and mental health.
7. Do your homework before trying supplements and/or prescription medications. Talk with your doctor about this. They will help you select the best things to try and often have non-prescription options as well. Taking a pill, whether it is an antidepressant or an herbal remedy, is not going to make you happy. These treatments are designed to give enough of a boost to do the hard work of recovery.
Be sure to ask your doctor and pharmacy about how various things interact. Tell them everything you are taking, including herbals and home remedies, because some things are very dangerous when combined. And if you think you need to change something because it isn’t working, don’t just stop cold-turkey! Call your doctor or pharmacist to see if you need to wean yourself off or if it is safe to just stop.
The best advice I was given about trying meds? Try one thing at a time, and give it at least a month before changing anything. Otherwise you won’t know what helped and what didn’t.
8. Build in some cushion. During the worst of my depression, I realized that my weeks were so tightly-scheduled that I had no slack at all for bad days. You know the kind: it’s all you can do to get the kids fed, dressed, and to school, and when you finish that, you collapse. Forget work, laundry, paying bills, washing dishes, cleaning house, grocery shopping. I got radical, backing out of commitments, canceling activities, and taking a leave of absence from work to build in some slack. It gave me the time I needed to rest and recover.
I hope these tips are helpful. I offer them up as ideas picked up along my own struggle in hopes that they encourage you to keep going, keep trying, and most importantly, get help.
I guess I met Stef when I was thirteen or so, which would have made her twelve, but really, I felt like I’d known her forever. She was one of those people that the moment we met, it’s like we bonded instantly on some molecular level; like we were made of the very same stuff at the core. It’s rare that it happens, two people who simply know each other like that, two magnets pulling toward each other, instantly attached, but when it does, you can’t forget it.
And I didn’t.
Everyone loved Stef. She had this shine about her, something rare in a teenager, that made you want to be near her; like if you stood close enough, some of that sparkle, that inherent goodness that radiated from her would rub off on you, and for awhile you would be better for knowing her.
I am better for knowing her.
Stef was one of the first people I knew that loved me for who I was, warts and all, and even now, seventeen years later, I think she may be one of the only people who genuinely will ever love me. Maybe it’s because she understood me in a way that most people don’t. Maybe it’s because she was my first real friend. Maybe it’s because that was her gift; her shine. I don’t know.
She walked tall, confident in her shoes, while the rest of us awkward teenagers struggled to figure out who we were, Stef always knew who she was. I learned that from her.
When my boyfriend slept with my friend, she was the only one who chewed him a new asshole. In a world where I had never had a soul on my side before, Stef was always firmly there, Team Becky all the way. She would have cut a bitch for me, no questions asked, because she was my friend and she loved me. Maybe other people had families that would do that for them, but I never had that. It had always been me against the world. I learned how to be a friend from Stef, too.
She was there when I’d gotten pregnant with my first son, holding my hand when his father, too, cheated on me. Again, she was the only one who stood up for me. I never told her how much that meant to me.
Shortly after my son was born, she got pregnant, too. Excited, we planned for this baby, a boy. When her son was born, the sparkle she’d had went out and was replaced by a sadness I couldn’t touch. Always a party girl, she took it to new levels, trying to drink away her pain.
No one knew what to do.
We tried to reach her, but nothing seemed to get through. She tried rehab, three times. She was hospitalized. Tried medication. In the end, she kept returning to the bottle, drowning her sorrows in a fifth of vodka. The only friends she had left were the late-night sort, the ones who didn’t care about the Stef I loved so dearly, the ones who didn’t know my friend as she had been.
She left me a message at the end of December from a pay phone, having no phone of her own, just out rehab again. Stef sounded good, optimistic, even, offering to get together for some coffee and a playdate with her two boys and mine, sometime in the near future.
That message came too late.
I got that message two days after I buried my first real friend. One of the only people who may ever really love me.
February 10, 2008, I got a call from Stef’s mom, telling me that Stef had died the night before, in her sleep. Liver failure, cirrhosis.
Stef was 26 years old and left behind two young sons.
I’ve never been able to write about her, although I’ve tried hundreds of times. I’ve deleted thousands of words because they were simply not enough. There are no words eloquent enough, true enough, real enough to express the kind of person she was. And getting her wrong is not an option.
I loved her. I love her.
I miss her so much that my heart hurts some days. I’ll probably always feel like there’s a part of myself missing now that she’s gone. That magnet, the part of me that was connected to her, that’s still looking for that other half and it’s gone forever. I’m lucky to have found someone like that in the first place.
Sometimes, in pictures captured when I am truly happy, I can see a certain expression on my own face that is pure Stef, and it makes me smile and laugh a little, because it reminds me of the e.e. cummings poem: i carry your heart(i carry it in my heart)
This site is dedicated to you, Steffie. When we meet again, and I know we will, I can’t wait to tell you all the things I never told you when I should have. For knowing you, I am better.
May your shine always be warm, like Stef; like the evening sun.
Lyme has done some awful things to me. I think the worst are the feelings of despair, anxiety, loneliness. The physical symptoms are not permanent. And although it is sometimes hard to believe, the emotional and psychiatric symptoms are not going to linger forever either. No one can understand how disabling this can be if they haven’t walked this path. If I said I had cancer or MS, I think people would relate (“oh, so and so has that”). We’ve made those illnesses a part of our vernacular. Chemotherapy is almost universally understood. As a society, we know what to expect when someone gets those diagnoses. We are compassionate, sympathetic. I know when my dad was diagnosed with cancer, people came out of nowhere with cards, meals, time.
Lyme is not yet seen the same.
Late-stage Lyme is debilitating. But it is invisible. There is a great website called “But You Don’t Look Sick” that has some great stories about perseverance through invisible illness. I’ve been called a hypochondriac by people who claim to love me. That’s heart-breaking. I sometimes don’t have enough energy to get out of bed to make dinner. I certainly don’t have the energy to convince someone that my whole body hurts and that I have fatigue that can only be temporarily overcome by several large cups of coffee. I’ve realized that putting on that front though only makes it less obvious that something is wrong.
I don’t want to be a burden to those I care about, so I try to minimize my complaints. But truly, I feel very alone. When my dad was sick, I felt there was no other choice but to move in with him, make sure he was cared for, that healthy food was on the table, that he didn’t have to worry about driving home from chemo. Where is my caregiver? I don’t mean for that to sound desperate or clingy. I guess I just don’t understand. I would do anything for friends and family. Quite frankly, I have, sometimes to a fault to where I haven’t left anything for myself and my family.
I am ready to be healthy again. I want to have non-caffeinated energy. I want to be able to work out without feeling crushingly fatigued from lifting ten pounds. And I want a social life back. I know it takes time to maintain friendships, and I feel like I have lost my ability to do that. Mostly I’m just tired of being alone.
And being sick is just one more reason for me to feel distant from others.
Being a caregiver to a loved one is one of the most gut-wrenching things a person has to do.
This is her story:
I’ve been contemplating blogging for quite sometime. I’ve been afraid to for several reasons, but to rattle off a few: anonymity, vulnerability, and pure avoidance. I have a fear that if I actually put the feelings/circumstances/questions out there, it means I actually have to deal with them. Thank you Aunt Becky for starting this blog…so I can get my toes wet.
From what I can tell of this space, many are dealing with loss, mostly stemming from the unfathomable experiences associated with childbearing/loss/postpartum/depression and the host of other issues those of us who are now “adults” face. I would like to add another sad layer to party – dealing with caring for someone whose mind and spirit are being slowly ripped away through Alzheimer’s Disease.
My mother, the beautiful, talented, smart, amazing hero of my world, is slipping away. I cannot say things like…she has had a full life, this is part of getting older etc. You see, she’s only 61 years old. We are at least 5 years into this battle (it took most of those 5 years just to get a diagnosis) and it feels like this freight train is traveling full force. Every day, for my mom, is the best it will ever be. Tomorrow, some different aspect of the person she is today will be gone. For now, she knows me, she knows my kids, she know she is my mom. She doesn’t remember where she lives, when the last time she talked to me was, whether or not she fed the dog (yes, at least 5 times now) or how old the kids are, let alone that she just told me the same story for the tenth time in a single conversation. It can be so frustrating, but I have to constantly remind myself…today is as good as it gets.
I need an outlet…and hope this can be one. Caregiving, whether its for an infant, child, spouse, sibling or parent, means giving more of ourselves than we ever thought we could give.
And that comes at a price. I look to you, fellow fighters, for insight, laughs and support. I promise to give it all back.
It was a beautiful Memorial Day Weekend a few years ago. I had gone with a good friend to the Indianapolis 500. I was very recently divorced and my son, age 8, was with his dad at an amusement park fairly close to our house. I had just returned to the area when my ex-husband called with a pretty horrifying story. His normally tough-as-nails mother had called him, hysterical, saying something about a pool, but he couldn’t make out anything else she was saying. He was on his way back to town, but in the meantime asked me to look for his mom.
So, I did. I think I knew all along what I would find. I knew my brother and sister-in-law were having a pool installed for my niece and nephew, ages 5 and 8. I stopped at a couple of places where I knew they hung out with no luck, so I headed for the hospital.
I went to the ER desk and told them who I was looking for. Just the last name, mind you. Immediately, the front desk person said I could come in the back. I didn’t know that meant really bad news. I said, “No, I can wait out here, no problem,” but she insisted. Into the back I went, and immediately I was confused. There was my mother-in-law, surprisingly calm, or so it seemed. I went to her, and she said it was my niece, it had been the pool where the football cookout had been held, my niece had been missed but there were too many toys in the pool to see her at the bottom.
A lot of the aftermath is a blur now. I went to my brother and sister-in-law, who were holding my niece’s body. She looked perfect and beautiful, but blue. I remember my sister-in-law looking at her almost reverently. I remember sitting on the curb outside the ER, waiting for my ex-husband to get there so I could tell him. I remember my son’s horrified face as he saw her as it sunk in that he would never argue with her again over who got the middle part of the back seat. And I remember the feeling of absolute hopelessness that I couldn’t protect him from that, or from the other ugly things in life.
That night, something broke inside me. I went to bed that night knowing things would not be better in the morning. My sister-in-law’s wails echoing in my ears.
It’s been years now. My sister and brother-in-law are doing as well as I think anyone could and I was diagnosed with PTSD. I thought I had a good handle on it, but I got a comment from someone that brought it all back. This person told me she hoped someone in my family, like my child, got sick so I could understand why she missed a ton of work.
For the last five years, I’ve been lying to everyone; my parents, my children, social services, but most of all, myself.
My “courtship” with my husband lasted just three months before we became engaged. A year and a month after we met, I married him. I blindly ignored the warnings from my parents, my loved ones, and my own eyes. I thought I could change him. He would be better after the wedding, when all the stress was gone.
How wrong was I?
Within months of our marriage, what I saw scared me, but I decided to stay, thinking, “I can still change him. I can make him better!” I was so arrogant!
We had just conceived our first child when he sprained my arm. I told myself that it was an accident and justified it to everyone else.
His sister assaulted me when I was pregnant. He put me down in front of his parents. His mother assaulted me many times. They told me it was my fault. It was all my fault. Everything was always my fault.
What’s worse is that I genuinely believed them!
They threatened to take my baby away from me if I left. I was so scared of them, I stayed.
Now that WAS my fault! I should have left, but I didn’t!
He raped me the first time when our daughter was just five days old. I can still remember the searing agony that tore through my whole body as he did it! The tears and cuts burning with fire, my screams mingling with those of our daughter who was in the same room as us! That was my fault too apparently. After that, I had to have treatment for an erosion in the womb. That was also entirely my fault.
He was diagnosed with Borderline Personality Disorder. Now he had something else to justify his treatment of me. He “needed” round the clock care, an excuse to stop me from working.
He moved me away from my parents to an isolated town and wouldn’t let me visit them. My parents still blame me for that, as if I had a choice!
After our second child was born, the abuse got worse and worse. I confided in my midwife about him raping me when our daughter was five days old. She and all the other midwives we saw made a point of reminding him that sex wasn’t allowed before my six week check. Normally a woman is signed off by the midwife within days of giving birth. They visited me for over a month to protect me. As soon as my six week check was over, the rape began again. This time almost every night and sometimes while I was asleep.
I haven’t slept for almost two years! I began to crave the oblivion of deep sleep, but I couldn’t because of the fear of what he would do to me while I slept. Twice he raped me anally because I had a period. If he wasn’t doing that, he would say things like, “I was hoping to have sex with you, but I can’t because you’re bleeding,” as if it were somehow my fault for being a woman.
That wasn’t the end of the emotional abuse. There was always shouting and yelling. The police were called. Social services were called twice. He isolated me more and more from our friends and would only let me go out with one of the children at a time.
He’d lock me in the house and “forget” to leave my key behind. Sometimes, he would move my keys, and when I wasn’t looking, would put them somewhere I’d already looked. I thought I was going mad!
When our son was five months old, we went on holiday with his family. While we were there, he dragged me out of the room by my legs in front of our daughter and threw me out into the rain with no shoes and no coat. When he finally let me in half an hour later, I had to sit in my wet clothes feeding our son, while his mother lectured me on how the whole thing was my fault.
A week later, I was rushed into hospital with chest pains. Everyone noticed the bruises and three people made separate calls to social services on my behalf. They sent two police officers out that night to check on the children and me. It was so humiliating! He would never let me speak to men because as far as he was concerned, I was cheating on him with every single man I spoke to.
While I was visiting my parents, he kissed another woman. I wish I’d left him then! But I listened to his sob story about how he was really going to change this time! He did change …for the worse.
In November 2012, his brother assaulted me. I had to go to hospital and was on crutches for six weeks because my sciatic nerve had gone into spasm. I lied in the hospital and said that I’d fallen in the kitchen. I was so scared that my children would be taken from me this time.Do you know how much sex hurts when you have sciatica? Especially when it’s rape.
In May 2013, I was diagnosed with Fibromyalgia. The doctor believes there is a link between Fibromyalgia and Post Traumatic Stress Disorder. That was another excuse to isolate me further from everyone. I wasn’t allowed to do housework because I was “too ill.” I’d given up fighting him. I was so far into my shell, I couldn’t even care for our children.
He slowly crushed me to the point that I didn’t know any different.
We had a visit from our new health visitor. He told her that he was afraid of bathing our daughter because he was afraid of having sexual feelings for her. I was shocked and scared, but I didn’t know what to do! I should have left him there and then, but I couldn’t! I was paralyzed by five years of emotional, financial, and sexual abuse. He’d groomed me for this very eventuality so that I wouldn’t leave him!
The next day a social worker turned up with two police officers who seized all of our computer equipment. They told me that I needed to get the children out of the house. I replied that if they were going, I would be going too. They agreed.
My children have been protected by social services for three months now. I’ve ended the relationship and am seeking help for the abuse. Social services are being as helpful as they can be, but the health visitor thinks I should have left and should not have my children back. She thinks I’m a failure as a mother.
Maybe I am. I should have left. I should have sought help sooner. I have to live with that for the rest of my life. I obviously don’t deserve my children. Obviously love isn’t enough!
I guess I met Stef when I was thirteen or so, which would have made her twelve, but really, I felt like I’d known her forever. She was one of those people that the moment we met, it’s like we bonded instantly on some molecular level; like we were made of the very same stuff at the core. It’s rare that it happens, two people who simply know each other like that, two magnets pulling toward each other, instantly attached, but when it does, you can’t forget it.
