In June of 2017 my daughter was diagnosed with leukemia. She passed away in November. My husband and I have custody of our 11 year old granddaughter. Grieving is taking it’s toll. Last month I was admitted to the hospital for being suicidal.
I think about my daughter all the time. I spent every minute in the hospital with her for 5 months. Telling my granddaughter that her mom was dead was the worst thing I’ve ever had to do. Whenever I go outside for a smoke, I think of my daughter. Whenever I drive the car, it reminds me of the drive to the hospital.
My mind won’t stop thinking suicidal thoughts. My brain constantly hammering me with negative thoughts. I’m hopeless, sad and feel out of my body. I don’t recognize my thoughts or myself. I am so lost. The emptiness is everywhere and I don’t know what to do.
I’ve been treated for depression for years and have had suicidal thoughts the entire time. I spent 2 days in the psych ward. I slept most of the time. I attend an outpatient program and went to a new psychiatrist today. He said my bipolar diagnosis was incorrect and adjusted my medications.
I have to say that all of that is true. I hate to use the word depression (I think most people do), but things have been rough since my daughter died. I’ve scraped for words to express the isolation, pain, persistent sadness, discouragement, lethargy, roller coaster days, rage, sullenness, futility… but every time those words fall short.
Over the last few years, I’ve learned a lot of things not to do, and a few things to try.
Most important is that a quick fix is a myth. So often I’ve woken up feeling OK, moved through the day’s activities relatively well, actually enjoyed some of the day’s moments, and thought to myself, “Hurray! I’m better!” Only I woke up the next day back in the swamp, feeling worse than before because I was wrong. I hadn’t actually left it behind.
Here are a few ways that have helped me, along with a few things I recommend avoiding.
If you are struggling with depression:
1. If you are a spiritual person, pray and tell God about how you feel and ask for help. Don’t shut God off just because you don’t feel God’s presence anymore. Feelings are fickle things, affected by lack of sleep, poor eating habits, hormones, illness, grief, and more.
I found that praying in the shower was a good place because
1) I could usually count on not being interrupted by my children, and
2) if I cried my heart out, the water washed my tears and snot away (I’m not a pretty cryer.)
2. Talk yourself through the day. I don’t mean talk out loud to yourself – that’s the fast-lane to crazytown. What I mean is this: if you catch yourself possibly over-reacting or taking the actions or words of another person personally, try to stop long enough to remind yourself that you are predisposed to assume the worst right now. Tell yourself, “I need to take my own emotional/mental/physical state into account when I’m reading other people and cut everyone, including this jerkwad, some slack.”
When I remind myself of this, I’m more likely to step back and wait to see if what I am jumping to conclusions and being paranoid (and usually I am). This helps preserve those relationships, and heaven knows we need as many healthy relationships as we can get.
3. Talk to someone about your struggle. Be selective. Keep your circle small, at least at first. Look for someone who is strong because they have struggled through some hard things themselves (not because he or she is a know-it-all). Find someone you can trust. Don’t talk to that girl who starts every story with, “Don’t tell anyone else, but so-and-so told me …” If they tell stories about other people, don’t give them any dirt on you. The right person will listen well, try to understand you, and give realistic counsel. They will be flexible but also persistent, drawing you out even when you withdraw or hide what’s inside.
4. Remain engaged with your family and friends. Make yourself go to birthday parties, cook-outs, ball games… whatever it is that you and your friends and family do together. Go even when every cell in your body wants to hole up in bed. We need people, and you have never experienced encouragement quite like spending time with people who care about you and who love to have fun.
I am so thankful for my husband and friends who have dragged me out of the house. No matter how many times it happens, I’m always surprised at how much better I feel when I go, even when it’s The Last Thing I want to do that day.
5. Give yourself time. This one has been hard for me. I want to be done with this depression. I want to move on, move forward, leave it behind, get better. I’m tired of dragging it around every day. But my counsellor keeps reminding me that there is no timetable on grieving. And if I try to stuff it all away and hide it, that actually makes the whole process longer. I need to feel those feelings and work through my grief, not run away from it.
6. Go see your doctor. Ask him or her to check for any physical problems and talk about how you are doing. It is very common for an illness or untreated condition to affect every part of you, including your energy level and outlook on life in general. They will collect some labs to look for things like low iron, an out-of-whack thyroid, or abnormally high white cell count (indicates that your body is fighting an infection somewhere). The doctor should be able to work with you to identify ways for you to improve your physical health, and present some options for improving your emotional and mental health.
7. Do your homework before trying supplements and/or prescription medications. Talk with your doctor about this. They will help you select the best things to try and often have non-prescription options as well. Taking a pill, whether it is an antidepressant or an herbal remedy, is not going to make you happy. These treatments are designed to give enough of a boost to do the hard work of recovery.
Be sure to ask your doctor and pharmacy about how various things interact. Tell them everything you are taking, including herbals and home remedies, because some things are very dangerous when combined. And if you think you need to change something because it isn’t working, don’t just stop cold-turkey! Call your doctor or pharmacist to see if you need to wean yourself off or if it is safe to just stop.
The best advice I was given about trying meds? Try one thing at a time, and give it at least a month before changing anything. Otherwise you won’t know what helped and what didn’t.
8. Build in some cushion. During the worst of my depression, I realized that my weeks were so tightly-scheduled that I had no slack at all for bad days. You know the kind: it’s all you can do to get the kids fed, dressed, and to school, and when you finish that, you collapse. Forget work, laundry, paying bills, washing dishes, cleaning house, grocery shopping. I got radical, backing out of commitments, canceling activities, and taking a leave of absence from work to build in some slack. It gave me the time I needed to rest and recover.
I hope these tips are helpful. I offer them up as ideas picked up along my own struggle in hopes that they encourage you to keep going, keep trying, and most importantly, get help.
I guess I met Stef when I was thirteen or so, which would have made her twelve, but really, I felt like I’d known her forever. She was one of those people that the moment we met, it’s like we bonded instantly on some molecular level; like we were made of the very same stuff at the core. It’s rare that it happens, two people who simply know each other like that, two magnets pulling toward each other, instantly attached, but when it does, you can’t forget it.
And I didn’t.
Everyone loved Stef. She had this shine about her, something rare in a teenager, that made you want to be near her; like if you stood close enough, some of that sparkle, that inherent goodness that radiated from her would rub off on you, and for awhile you would be better for knowing her.
I am better for knowing her.
Stef was one of the first people I knew that loved me for who I was, warts and all, and even now, seventeen years later, I think she may be one of the only people who genuinely will ever love me. Maybe it’s because she understood me in a way that most people don’t. Maybe it’s because she was my first real friend. Maybe it’s because that was her gift; her shine. I don’t know.
She walked tall, confident in her shoes, while the rest of us awkward teenagers struggled to figure out who we were, Stef always knew who she was. I learned that from her.
When my boyfriend slept with my friend, she was the only one who chewed him a new asshole. In a world where I had never had a soul on my side before, Stef was always firmly there, Team Becky all the way. She would have cut a bitch for me, no questions asked, because she was my friend and she loved me. Maybe other people had families that would do that for them, but I never had that. It had always been me against the world. I learned how to be a friend from Stef, too.
She was there when I’d gotten pregnant with my first son, holding my hand when his father, too, cheated on me. Again, she was the only one who stood up for me. I never told her how much that meant to me.
Shortly after my son was born, she got pregnant, too. Excited, we planned for this baby, a boy. When her son was born, the sparkle she’d had went out and was replaced by a sadness I couldn’t touch. Always a party girl, she took it to new levels, trying to drink away her pain.
No one knew what to do.
We tried to reach her, but nothing seemed to get through. She tried rehab, three times. She was hospitalized. Tried medication. In the end, she kept returning to the bottle, drowning her sorrows in a fifth of vodka. The only friends she had left were the late-night sort, the ones who didn’t care about the Stef I loved so dearly, the ones who didn’t know my friend as she had been.
She left me a message at the end of December from a pay phone, having no phone of her own, just out rehab again. Stef sounded good, optimistic, even, offering to get together for some coffee and a playdate with her two boys and mine, sometime in the near future.
That message came too late.
I got that message two days after I buried my first real friend. One of the only people who may ever really love me.
February 10, 2008, I got a call from Stef’s mom, telling me that Stef had died the night before, in her sleep. Liver failure, cirrhosis.
Stef was 26 years old and left behind two young sons.
I’ve never been able to write about her, although I’ve tried hundreds of times. I’ve deleted thousands of words because they were simply not enough. There are no words eloquent enough, true enough, real enough to express the kind of person she was. And getting her wrong is not an option.
I loved her. I love her.
I miss her so much that my heart hurts some days. I’ll probably always feel like there’s a part of myself missing now that she’s gone. That magnet, the part of me that was connected to her, that’s still looking for that other half and it’s gone forever. I’m lucky to have found someone like that in the first place.
Sometimes, in pictures captured when I am truly happy, I can see a certain expression on my own face that is pure Stef, and it makes me smile and laugh a little, because it reminds me of the e.e. cummings poem: i carry your heart(i carry it in my heart)
This site is dedicated to you, Steffie. When we meet again, and I know we will, I can’t wait to tell you all the things I never told you when I should have. For knowing you, I am better.
May your shine always be warm, like Stef; like the evening sun.
It was a beautiful Memorial Day Weekend a few years ago. I had gone with a good friend to the Indianapolis 500. I was very recently divorced and my son, age 8, was with his dad at an amusement park fairly close to our house. I had just returned to the area when my ex-husband called with a pretty horrifying story. His normally tough-as-nails mother had called him, hysterical, saying something about a pool, but he couldn’t make out anything else she was saying. He was on his way back to town, but in the meantime asked me to look for his mom.
So, I did. I think I knew all along what I would find. I knew my brother and sister-in-law were having a pool installed for my niece and nephew, ages 5 and 8. I stopped at a couple of places where I knew they hung out with no luck, so I headed for the hospital.
I went to the ER desk and told them who I was looking for. Just the last name, mind you. Immediately, the front desk person said I could come in the back. I didn’t know that meant really bad news. I said, “No, I can wait out here, no problem,” but she insisted. Into the back I went, and immediately I was confused. There was my mother-in-law, surprisingly calm, or so it seemed. I went to her, and she said it was my niece, it had been the pool where the football cookout had been held, my niece had been missed but there were too many toys in the pool to see her at the bottom.
A lot of the aftermath is a blur now. I went to my brother and sister-in-law, who were holding my niece’s body. She looked perfect and beautiful, but blue. I remember my sister-in-law looking at her almost reverently. I remember sitting on the curb outside the ER, waiting for my ex-husband to get there so I could tell him. I remember my son’s horrified face as he saw her as it sunk in that he would never argue with her again over who got the middle part of the back seat. And I remember the feeling of absolute hopelessness that I couldn’t protect him from that, or from the other ugly things in life.
That night, something broke inside me. I went to bed that night knowing things would not be better in the morning. My sister-in-law’s wails echoing in my ears.
It’s been years now. My sister and brother-in-law are doing as well as I think anyone could and I was diagnosed with PTSD. I thought I had a good handle on it, but I got a comment from someone that brought it all back. This person told me she hoped someone in my family, like my child, got sick so I could understand why she missed a ton of work.
Growing old is optional, growing old gracefully even more so.
My mom did not have it easy in the last 5 years of her life. Her first problem was with her sciatic nerve, which first caused pain then weakness in her legs and eventually left her dependence on a wheelchair. I tried to keep in mind that she was in pain, scared and unsure during the times when she seemed to be going the extra mile to be as difficult as possible, but I wasn’t always successful.
After my father passed (Mom went just 4 yrs later), my mother became a shut-in. This was pretty much by choice. We lived 4.5 hrs apart, I’m an only child and we have no relatives who still speak to us living nearby. She refused to consider moving and her house looked liked something you’d see on “Hoarders,” but that’s yet another story. She wanted to live completely independent of help, especially mine, because this was the first time in her life that she was on her own, so I think she wanted to prove to herself that she could.
Did I mention “shut-in?”
She was defiant, she was determined to be independent and she was lying…I had a 74-year old teenager on my hands.
She ordered food through Amway. She bought her clothes via catalogs. She banked via the mail. She had a few friends who would come over and check on her most days, but the situation was far from ideal. Her mind was not the best, but she was sharp enough to lie to me about anything that didn’t show her situation in the best of lights.
For instance, she never told me about the time she fell and had to call the neighbors to help her up. She never told me about the time, in a very confused state, she called 911 in the middle of the night because -best I can piece together- she had a dirty diaper and was having trouble changing it herself. The cops busted the front door open and were not at all pleased to find her in no actual danger.
She did tell me about the time she called 911 for a ride to her doctor’s appointment, only because she felt a grave injustice was being done. Something had happened with her scheduled special needs ride, and she reasoned that if the doctor needed to see her then she needed to take an ambulance. She had received a bill for $700 for that non-emergency ride and didn’t think she should have to pay it. I did talk her into paying the bill, hoping she’d learn her lesson.
I tried mentioning the idea of assisted living, but she wouldn’t hear it.
“They beat you and lock you in your room!” she screamed. Eventually, I convinced her to get some in-home elder care and a woman would come by three times a week for three hours at a time to cook, clean, and run errands for her. Finally, I could get the low-down on her condition from someone who would be honest with me.
This started out well, as Mom enjoyed having someone to talk to and she was now getting fresh, home-cooked meals instead of the packaged crap she ordered via the mail. But, it didn’t last. I got a call from the coordinator to tell me my mom was hitting the workers. She was also being verbally abusive. At one point, Mom chased a worker out of the house, screaming at her from the front door.
I got emails from a friend of Mom’s who had visited her, only to find her crying hysterically, saying “I hate my life!” and hitting herself in the head. When asked about it the next day, Mom acted surprised and said nothing like that had happened.
Then, Mom came down with a bad cold that required someone to stay with her while she was ill. The elder care folks were great and worked out schedules so that she was tended 24/7 until she got better. Problem was, despite appearing to hate these helpers, once Mom got better, she didn’t want the 24/7 visitation to end. In fact, now she was refusing to let them leave. I’d have been fine with the additional help, but we could not afford the $10,000 per month for very long.
I had to talk with Mom and tell her it had to stop. This did not go well, and there were tears, but in the end, she cut back to 1 visitation, 5 days per week.
The pain and weakness in her leg was getting worse, and it was spreading to the other leg. We talked to a number of doctors, but she didn’t like most of them and liked even less what they had to say. Finally, after yet another fall that she still would not admit to, she was in the hospital again. Her doctor convinced her to have back surgery, and at last she agreed. She was hell on wheels both pre- and post-surgery. She had a fear of falling that was off the charts.
When the nurses tried to move her in the bed, or, heaven forbid, try to get her to stand up, she’d scream. I’m talking hear-her-down-the-hallway screaming. I’d leave the room and stand outside biting back tears whenever anyone tried to work with her.
When she was well enough to leave the hospital, she went to a rehab facility to help her get back on her feet as much as possible. It was there that some medical genius, who I’d kiss on the lips today, put her on anti-depressants (yeah, I know, “what took so freakin’ long?!” – she refused them before because she didn’t want to “take dope”). Mom became a bit more reasonable and a little easier to deal with. More like heck-on-wheels. When I asked her why they put her on the happy pills, she said “so I’d stop screaming.”
Hallelujah!
During rehab, her doctor spoke with me, informing me that she could not live on her own. Preaching to the choir, sir. So, through hook, crook and threats of Adult Protective services, I got her to agree to move “temporarily” to an Assisted Living facility near me. I found a really nice place a mile from my home and they assured me that the beatings would be kept to a minimum. (Joke!)
We moved some of her favorite things up and set up her two-room apartment to look really nice and homey. When she got out of the hospital we drove her straight to her new home. Despite hearing how horrible it was, we watched her start to enjoy life again. She was making friends and playing Bingo every day. God forbid you came by during Bingo hours, only did THAT once.
Mom *loved* the call buzzer and actually wore the one by her bed out, because she used it so much. She still managed to keep things lively. I got a call from her one Easter morning, telling me she couldn’t move her leg and perhaps she had had a stroke. “Should I go to the hospital?” Well, the normal answer would be “Hell YES!” but I had learned to ask. “Why didn’t the nurse call the ambulance for you?” I ask. Mom said that they wanted her to check with me first. None of this was adding up, so I told her I’d be right over. When I got there she was wheeling around her room, fully dressed and looking fine. I asked which leg it was that she could not move. “This one!” she said, bouncing the leg up and down.
Her behavior continued to become more erratic, and I got a call that I never thought I’d get. Mom was flashing her boobs at the male help and at some poor, unsuspecting wheelchair repairman. Oy. A doctor was brought in and a diagnosis of dementia was made. This only pissed her off. She accused the facility and the doctor of telling horrible lies about her. “I’d never do that!” she yelled.
In the end it really was a stroke that took her. The weekend of Thanksgiving she had a massive stroke affecting half of her brain. She had her 78th birthday in the hospital, but was not aware enough to know it and she passed just a few days before Christmas.
I’m still working on cleaning out the house, but it is getting close to being done. I avoid driving by the assisted living place, still too many bad memories. I can laugh about Mom flashing the help. It’s two years later and I’m finally getting to the point that I don’t jump when the phone rings.
I lost my job in October. My job, you know, the one that I hated but worked my ass off for. The job where I worked 50+ hours, made me miss time with my kids, and was so stressful that I often cried myself to sleep. The job that I had to cling to when my husband decided that he wanted to sleep on his cousin’s couch and smoke pot all day and night. And when he wanted to come back, the job that paid for his plane ticket.
We lost our house… My gorgeous 2,100 square foot house that I spent hours painting and sanding and cleaning. Gone. Now we are living in an extended stay motel, which is a fancy term for crack house.
My kids are back with my mom because it’s all I can do to scrape together enough money to feed them right now, and my company is fighting me for unemployment. South Carolina is an at-will state after all. At least I know that they are fed and warm, and safe.
My husband does nothing but bitch about me not having a job.
‘Scuse me?! Aren’t I the same woman who worked two jobs for over a year, while trying to finish my degree and raise three kids, because every job you found “sucked” and you usually quit around the time you got your first check? Aren’t I the same woman who supported you, through EVERY shithead thing you decided to do to me? Didn’t I take you back; PAY for you to come back when you left me for her. Twice?
He doesn’t look at me or touch me or tell me he loves me. He comes “home” and plays on Facebook before passing out. And so I sit, in this single room, every day and every night.
I lost most of my friends when I took him back this last time. They were tired of watching me go through this. So alone I stay.
And every night, while I sit here awake I think about how much better it would be if it all just went away. I no longer look at myself and see the slightly chubby woman who is raising three amazing kids and kicking ass at everything.
I see nothing but this horrible beast of depression. If my husband doesn’t want me, who would? If I can’t raise my kids, what’s the point? If I can’t work, what can I do? I am nothing. A void. Useless.
There aren’t any words anymore, and all I want to do is go to sleep, and not wake up. It seems that I’ve stumbled into this place and I don’t know how to get out.
My husband is against antidepressants. He says that they are a crutch. That I have to get through this on my own, because that’s what people are supposed to do.
I have nothing and I can’t do anything.
And every night I dream that I don’t wake up.
(ed note: Prankster, you are not alone. And you are loved. I’m not going to presume to tell you what to do, but you do know that you are depressed and you do need help You don’t have to do it all alone.I hope that you are able to find the help that you need.
We are none of us alone. You are so, so loved. Please remember that.)
I guess I met Stef when I was thirteen or so, which would have made her twelve, but really, I felt like I’d known her forever. She was one of those people that the moment we met, it’s like we bonded instantly on some molecular level; like we were made of the very same stuff at the core. It’s rare that it happens, two people who simply know each other like that, two magnets pulling toward each other, instantly attached, but when it does, you can’t forget it.
