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Living Life on Life’s Terms Isn’t for Pansies

On January 4th of 2020, I picked up my One Year Chip. How awesome that was. And in a stretch of ego, how proud I was of myself. Yes, I know I didn’t do it alone, but I was still proud of myself for not giving into the craving, especially early on.

So, I picked up my chip and all was so good in my world. February came and I was still on that pink cloud, vowing to never step off of it – hell, my sponsor said I never had to if I didn’t want to, so why would I?

Then came March, and we all know what March brought. For me, it brought a little more unknown than I was ready for. But I have a program and a higher power, and I was going to be okay. My meetings shut down, but we all found Zoom and again I knew it would be okay.

April got a little harder. I was diagnosed with Covid on April 9th. I was lucky and able to manage my symptoms at home. One thing that was becoming more and more evident, though, was that I was starting to miss my fellowship – the Zoom meetings weren’t quite filling the void anymore. Plus, I had been laid off on March 16th, so I was living in an isolation I knew would be NO good for me. But I was still okay. I leaned on my higher power hard, but He’s got broad shoulders. Then came May.

May was gonna be good. We got back to work on the 13th and although it wasn’t as busy as it needed to be, it would pick up. I just knew it would. And although Covid was ripping through the world, I could stay busy with work and feel some normalcy.

Side Note: I live in South Carolina and masks weren’t much of a thing here until quite recently. So we eventually became a “hot spot”, made the national news – the works. And as Bill would say when sharing his story… “And then it got worse.”

My mom had always lived independently. At 77 she was the neighbor who took all her neighbors to doctor appointments, the pharmacy, grocery store; whatever they needed. On May 20th mom was doing what she does – taking a neighbor to a doctor appointment. Except that after dropping off her friend, she disappeared. Just like that. We searched and searched, checked parking lots of nearby doctor offices, hospital parking lots, made all the phone calls, and yielded nothing. We checked her apartment for clues, and that’s where we found that her wallet with all her money, credit cards, and license were still there. As was her cell phone. Mom disappeared and had no money or ID or way to call or be called. That’s when I started to feel a serious WTF feeling.

In the meantime, I had filed a missing person report here with the police department. Besides walking in the rooms of A.A., that was the smartest thing I’ve done.  All told my mom was missing a total of 26 hours. She was found at about 1:30 on the 21st, in Virginia. I may have forgotten to mention my mom lives here in SC too. She was pulled over by a police officer for driving with her hazards on. The officer here in SC who filed the missing persons immediately put mom on the NCIC, so her license plate dinged as soon as the officer in Virginia ran it. Maybe that’s procedure, I don’t know, but I’m grateful he did that. Beyond grateful.

**At this point I’d like to point out again that mom had no ID or money. I have no idea where she spent that 26 hours because the trip to Virginia from here is 4, maybe 5 hours. This troubled me for weeks, but she doesn’t remember any of it, so that right there is some Grace of God stuff, and I chose to let that go**

Mom had no idea where she was, how she’d gotten there, or why she’d gone there. She was belligerent with the officer and he brought her to the hospital for evaluation. That hospital was less than helpful. As a matter of fact, for a minute I thought about legal charges against them, but knew I could not afford to pursue litigation against them. So, I let it go. Mom wasn’t hurt by them; she just wasn’t helped.

That Thursday we were ready to head back to South Carolina, but it was too much to drive so we decided to get a room. I had to stay up all night long at that hotel because mom kept trying to leave the room… that was a long night. We came back home the next morning and I will spare too much of that story; let’s just say that immediately upon returning home I brought mom to the hospital here, where she was admitted and stayed for what ended up being a week. There I found out mom had developed a bad UTI which brought on an early onset of dementia. That explained her previously inexplicable trip to Virginia and her subsequent behaviors.

About the 4th day in the hospital, it became obvious that once the UTI had cleared up mom wasn’t much better. That dementia wasn’t just going to go away. What was worse though was because she wasn’t “medically” in need any longer, the hospital wanted her gone. Every day they would tell me she needed to be released. I had no idea what the hell I was supposed to do with her! She certainly couldn’t live alone anymore and if she stayed with me, I’d have to quit my job and probably never sleep again for fear she’d sneak out of my house. None of those were viable option, I was so lost. Suddenly I’m the caregiver with absolutely no clue what my next steps were. Medicare, Medicaid – I knew nothing, but I was about to get a crash course.

Again, I’ll spare you all the details, but I found a place for mom to be transferred to while I tried to figure the Medicaid/Medicare piece out. It’s a lovely assisted living that is costing me $2000 a month. I cannot sustain that for much longer before I bankrupt myself. To make matters worse, this assisted living facility (I have very recently learned) doesn’t accept Medicaid payments. As a matter of fact, there’s one place that covers most of the eastern seaboard of South Carolina for Medicaid assisted living residents. It’s an hour away and NO ONE is taking what they refer to as “community transfers” due to Covid. So, for now, mom has to stay there while I try to figure out how old is too old to become a prostitute…

Kidding, of course.

So, for now, mom is where she is and she’s safe. She’s as mean as a rattlesnake every time I see her, she even told me she wished she had killed me when she had the chance. Yes, I know she has a disease and doesn’t always know what she saying, but I can promise you that doesn’t make it hurt any less. But I’m all she’s got and I don’t get another mom, so it is what it is.

My sobriety has taken quite a hit, but it’s still intact. Year 2 of sobriety has thrown a shit ton of curve balls at me and I’m trying to learn when to swing and when to let em go by. I’m getting better at it. I got to go to an in-person meeting last night – first one since early March. It was glorious. I have been missing my “people” so much. Way more than I realized.

I’m sure there’s a lot I left out, maybe forgot, but I’m finally beginning to realize what some of our slogans mean. Living Life on Life’s Terms isn’t for pansies. One Day at A Time is something I’m having trouble with these days, but my people smack me in the back of the head with it when I need it. Also when I need it, they’re here for me. You’re here for me. That’s amazing and I hope to never take that for granted.

Back to my journey. Thanks for listening 😊

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The Great Pandemic: The The ‘VID/The Flu & My Kid

We at The Band Back Together Project are looking for your stories of what you’re going through in the time of the great pandemic. Please share your stories with us. You can use this to login, or you can send your story to becky@bandbacktogether.com or stacey@bandbacktogether.com.

Please share this around – we are none of us alone; we are all connected. You never know who’s lives you’ll change with your words.

Last week (or was it 2 weeks ago – I’m not being coy – I honestly don’t remember) my dad called me, which is about as rare as me saying “I heart mayo” because I loathe mayo with the energy of a thousand suns. It’s not that we’re “not okay” or something, we just don’t have much to say to each other – he’s in California, I’m not. But, being alive in the Great Pandemic means you’re generally reaching out to people who you don’t normally talk to.

I’d expected him to say that either he or my mom had gotten The ‘VID because they’re old and they have multiple comorbidities.

I didn’t expect the words that spilled out of his mouth next: “we think Ben either has The Flu or CoVID-19.” I got the details, sparse as they were from them and tried, again, to reach my kid, but because he is a teenager, his phone is often off, which actually makes zero sense now that I’m typing it out, but that’s just the way it is.

ANYWAY.

That made his phone being off all the more concerning. But, I’m a good (wo)man in a storm and I’m all about fact-gathering rather than fear mongering or falling prostrate at someone’s… feet? Prostate? I’m not sure where I was going with that.

He’s in the same state, but not the same county, so I called that county’s health department and after I got through about 46 minute message telling me all the shit I already knew about The ‘VID (and pathogens in general), I was asked to leave a message. My guess is that that recorded seminar makes most people hang up, but I was in the car and had literally nothing else whatsoever to do.

I left my message and expected a return call about… let’s say NEVER? I figured they’d be hammered by everyone in the county to dispel some of the more outlandish things that Trump has said, so imagine my surprise when I got a callback.

Without having spoken with The Kid, I couldn’t really speak to what the symptoms he was facing were. His fever. His cough. But I did explain that he was safe and self-quarantined, and being a hermit and a teenager, had no thermometer OR desire to leave his hidey-hole. She sounded relieved.

When she was asked when he should get tested (this was when we all believed that we’d be able to get tested), she informed me – not unkindly – that “they’re not doing tests for “normal” people.”

Which is, I guess how another – WAY WAY WAY QUEEN OF BLOGS – blogger got herself tested twice (because two is better than one!!) and every asymptomatic celebrity who wants one can be tested in multiples. Me? I’m an OG blogger who’s been radio silent for years now – and my spawn aren’t special enough for a test.

But whatever. Only mildly bitter.

(lies)

The other nurse confirmed what I’d thought: stay in quarantine for 3 days after the fever broke (he doesn’t have a thermometer, I was thinking, but okay). Don’t go out until the cough is gone. All the other infection control protocols were in place, so yay. Oh, and the county hadn’t had a SINGLE confirmed case yet.

I wanted to yell “BECAUSE THERE ARE NO CELEBS AROUND THERE, ASSHOLE,” but it’s not her fault so I kept my grousing to myself. And, I guess, now to you.

Because I was unable to access The Kid for a couple of more days, my dad and I spoke daily – The Kid was on an upswing, then downswing, then up, then down. Finally, The Kid, Himself, called me. I told him what I’d learned from the health department (nothing I didn’t know EXCEPT that you have to have a platinum vagina to get tested). He said he’d called the hospital at one point a couple of days before, because he was coughing so hard he’d pass out.

Awesome.

The gist of it was “suck it up buttercup, you can’t come to the hospital with a cough,” which threw me through a loop.

AWEsome.

I’ve been texting with The Kid and he’s still got the cough and is doing a sleep-eat-play (video games before he passes out again) – cycle, which I’d been doing the week before. Whelp, without the video games.

He has his piano keyboard so he’s keeping busy, but he’s now, like the rest of us, falling pretty depressed. Like him (and I’d be guessing a good number of you as well), I’ve been struggling to even get off the couch. Today marks my first day back on the computer doing something other than watching the dwindling amount of traffic on the road and all of the incantations of My 90 Day Fiance – FOR THE SECOND TIME – which is just absurd enough to keep me from becoming a total slug.

(most days)

TL;DR

My kid sounds like he had CoVID-19 but was to normal, per the health department (who also stated that there were no confirmed cases in that county) he was too normal to be tested.

The hospital told him that if he had a cough – one of the dangerous-this-may-kill-you hallmarks of CoVID-19 – he couldn’t come into the hospital.

So my kid likely had CoVID-19, but it’s unlikely we’ll ever know,

He’s depressed now, I’m depressed, hell, everyone I know is depressed.

But, I dragged my ass to the computer to give you a taste of what it’s like in my world.

Now we need to hear yours: we are none of us alone; we are all connected.

Please, login here, or send an email to becky@bandbacktogether.com or stacey@bandbacktogether.com to let us know what life is like in YOUR world.

My List Of My Physical, Psychological, And Emotional Traumas – Bipolar Disorder, PTSD, Abuse, and Pain

My therapist has asked me to write down a list of my emotional traumas.

A list of all the emotionally and physically traumatic experiences that have happened to me in my life, that have contributed to my Bipolar Disorder and PTSD.

Right now, my therapist doesn’t feel as though I’m ready for the therapy called Eye Movement Desensitization and Reprocessing (EMDR). As far as I understand, I have to relive physical and emotional traumatic experiences, have the proper emotional response, get over it, then have Cognitive Behavioral Therapy (CBT) so I can develop some sort of coping mechanism for the future.

But until my medications are adjusted and I’m in a better place, I have to wait.

So, here is my list:

Sexual abuse around age 3 by a family member. I repressed this memory until it slapped me in the face at age 12, causing an intense anxiety attack.

Constant arguing between my parents, thanks to my father’s alcoholism, gambling and pain issues due to needing a hip replacement. The pain issue turned into an anger issue; turned into a power tool being thrown at my mother, missing, and going through the window and landing at my feet; followed by an argument on a holiday with my father resulting in me taking a heavy duty power torch to the head.

As a “gifted child,” I was bullied a lot in primary school and high school. I still carry some of those emotional scars with me.

Funnily enough, my brain is currently trying to stop me from accessing more memories. Suck it, brain; stop being a whiny bitch and let me write this shit out.

When I was 16, my mother – being severely depressed – attempted suicide several times. The last time she tried, she had an argument with my father (now a better man, nothing like his days in my earlier life), and downed a ton of pills. I found her and her suicide note. I actively suppress the things written on that note thanks to the emotional trauma but I know how it began.

That sentence haunts me in my dreams. She is fine now, thankfully, but I refused to talk about it with anyone and pretended it never happened.

I was diagnosed with severe anxiety disorder when I had a panic attack at high school so bad my heart rate was 180, and I had to be rushed to hospital for fear of doing damage to my heart.

Since that day, I regularly have heart palpitations.

I had a psychotic episode at 17, when voices told me to stab my mother. I became paralyzed in my own bed while lights shone down from the ceiling, and I was convinced aliens were coming for me, despite my logical brain telling me I was being stupid.

I was diagnosed with endometriosis and told I should probably have children before 25. I’m currently a week away from my 24th birthday. Talk about another emotional trauma.

I moved out of my family home to the capital of my state to attend university. I was diagnosed with Bipolar Disorder at this stage, and promiscuity, sleepless nights, shopping sprees, and severe irritability kicked in.

I dated a Muslim man for eight months. Toward the end of the relationship, I was emotionally abused, when he called me a dog. I went running into the arms of a male friend.

I decided I was the worst person in the world and went off screwing any guy who looked my way, drinking myself into oblivion, and eating pills like candy, just to numb the pain. I wanted to be used. I asked my male friend – now my fuck buddy – if he was using me for sex. He replied yes. I cried and said, “good.

” Turned out he wasn’t using me: he was in love with me; as a result of my promiscuity, and his inability to tell me how he felt, he quit university, broken-hearted.

I started dating my current partner, whom I have been with for five years now. We lived with his sister, her fiancé, and their daughter. His sister is a lazy bully who cannot look after herself, let alone children (currently a total of three). Her fiancé is a violent, alcoholic gambler. After being made a prisoner in my own bedroom, we got our own place.

My diagnosis of fibromyalgia explained my constant pain and tiredness. Yay for inheriting every single shitty illness my parents have.

Recently, I have started to have feelings for a close friend, who also has a partner. While drunk, we have made twice. I have feelings for him, but he is just attracted to me. I have immense guilt over betraying my partner, who is emotionally stunted. I think I’m just attracted to my friend because he has the social and emotional skills my partner lacks.

I was severely bullied at my last job until I began having daily panic attacks and getting into a screaming matches with a higher-up and former friend.

I decided to self-harm and contemplated suicide when the medication I was taking for five years stopped working. Unfortunately, while the medication stopped working, my now non-existant libido did not return.

Have also suffered dermatillomania (chronic skin-picking) for most of my life, particularly my feet. It is disgusting.

Currently, I am plagued by insomnia, headaches, anxiety, shame, severe depression, guilt, and every other horrible feeling imaginable. According to my therapist, I have feelings of low self-worth. According to my friends, I have a much lower opinion of myself than everyone else does of me.

I am both numb and emotionally unstable. I can’t cry, even though I really want to let it out. I think of myself as selfish and horrible, a terrible person who doesn’t deserve what I have. I theorize that I have some subconscious need to sabotage myself.  Every time something is going well, just to add some drama in my life. Why I do this, I don’t know. And as I have written this list in such a cold, emotionless manner, I find it odd that I can be so numb and feel so many negative emotions at the same time. I feel like a robot.

I don’t want sympathy. At least, I don’t think I do. I am just tired. Tired of struggling through every day with these issues. I want the problems to just magically disappear because I’m tired of fighting.

I know it’s a long road ahead to my recovery. And as much as I don’t want to relive the aforementioned memories, I am also excited for the first time in ages because maybe, finally, with proper therapy…

…maybe I’ll finally get some peace and closure.

Dose of Happy: Latest Victory

I’m not sure if I deserve a pat on the back or a really good nap, but either way I’m proud of me.

Since last Thursday, things seem to have just started to topple over completely within my family, and I’ve managed to keep it together and make sure that not only are those who need to be ok are ok, but that I am, too.

Yes, this is going to take a hot minute or months to take care of, but I didn’t lose it and I didn’t break!

I’m proud of that.

Now if I could only sleep 🤷‍♀️

Chrissy

Wrath And Ruin

In my sixteen years, I’ve never had to deal with the problem of bullying from others. However, for as long as I can remember, I have been a big bully to myself.

“Why are you alone on a Friday night? On a Saturday night? On any night? Because NO ONE wants to hang out with you! No one likes you!”

“You aren’t really asexual! You’re just deluding yourself!”

“You think you’re life’s bad? You don’t even have a reason for being depressed!”

“Why the fuck are you getting a second helping? You don’t do anything to burn it!”

“The reason you’re doing badly in school isn’t because you don’t function well in school, it’s because you’re dumb as a post! You don’t deserve to be in your classes, you’re not that smart!”

“You’ll never make it as a writer!”

“Of course your sisters don’t want to talk to you. They have better friends than you in college!”

I try not to listen to these things I say to myself and keep them shut out. But I can count on one hand the people who really know me and who care about me. I’m so alone.

I won’t crack. Won’t let me get to me. I’ll keep smiling for my family and keep telling my friends that I’m ‘just tired.’ I’ll just keep it all inside, keep it all behind my wall.

 

Ask The Band: This Is A Shit Day

Here at The Band, we believe in kicking stigmas to the curb, flinging glitter, and shining a light into the dark. And now?

Your bandmate needs a sounding board.

It’s time to Ask The Band!

My five-year old son punched me in the nose this morning.

He was tired and frustrated and I was trying to rush him out the door. He gets his temper from me. None of this excuses what he did, but at least I can understand.

I thought, Wow, being punched in the face is a great way to start the day. This will obviously be a shit day.

I had no idea.

That afternoon, I got a call from the doctor’s office. My culture came back.

Two weeks ago I had sex for the first time in years, since getting divorced from my son’s father.

We’ve been seeing each other ever since. We’ve been an official couple for a week.

After the sex, I got a Urinary Tract Infection. I was uncomfortable, in pain, and I couldn’t sleep. It’s been two weeks, and I still haven’t slept much.

Now I get a call from the doctor’s office, and it turns out I have herpes.

I want to die.

Instead, I am sitting at work in tears.

He says he didn’t know he had it. We used a condom, but he performed oral sex on me. That’s the only way this could have happened.

I like him. At least, I think I do. He’s sweet and nice and he’s been treating me the way I wish my ex-husband had.

Do I still?

I don’t know. I feel like I can’t know.

Tears are rolling down my cheeks.

He’s out of the state for work for the next week. He sent me a text message a bit ago. I told him to fuck off. He called me. I told him the culture came back positive, but I couldn’t say what it was positive for out loud. I’m at work. I’m embarrassed.

I feel dirty, worthless, and disgusting.

Do I stay with him? Do I forgive him for something he didn’t know about?

Help me, The Band.

I need to know that I’m not alone, that I’m not dirty, and that there is a chance for me to still find happiness.