Select Page

Cancer: A Love Story

His name is John; hers is Yvonne. He is 76 and she is 74. They dated all through high school. Then they broke up and married other people, had kids and grandkids, and all was well.

Then John’s wife got cancer – ovarian or cervical – either way, doesn’t matter. He took care of her, always believing he could do more. Then she died.

John got on with his life. He was sad, but dealing.

One day, John’s son looked up Yvonne and found out she lived only 30 minutes away. She was married to someone and had kids and grandkids and even a great-grandkid.

Some time later, John’s son showed him the obituaries. Yvonne’s husband had passed. Cancer. John went to pay his respects. After all, he and Yvonne had once dated. They talked a bit and promised to keep in touch.

John and Yvonne were married two years later.

They have been married about six years now.

cancer love story

Two years ago, Yvonne was diagnosed with cancer, cervical or ovarian – doesn’t matter. It was the same cancer that killed John’s first wife.

John said NO!

He wanted to fight the cancer. He wouldn’t let cancer take his wife again.

John goes to every doctor appointment. He keeps track of every medication and dosage and when and how she is supposed to take it. He sat with her while she went through chemo. He shaved her head – and his – when she started to lose her hair. He isn’t letting her go without a fight.

They don’t know what the future holds, or if the cancer has spread.

Cancer sucks…but it also made them stronger.

Cancer brought them together.

I Am Complicated

I am neglected.

I’m the product of parents who didn’t know how to fulfill my emotional needs. I have an eating disorder,

I alternate between believing both that “my parents gave me everything; I had a happy childhood; I don’t have any reason to be this messed up,” and “my parents emotionally neglected me; I had an awful childhood; no wonder I am this messed up.“

I fantasize about being in the hospital because that seems like the ultimate (and only) way that people might finally see me and care about me. Logically, I know that it’s not true, but my emotional brain is convinced that being sick or hurt is the way to get the love, attention, and care that is not present in my daily life.

I am ashamed.

I’m a 22-year old who is still desperately attached to my mangled childhood stuffed animal, Lambie.

I surreptitiously, but uncontrollably, pull out my own hair. I know have trichotillomania (and dermotillomania while we’re at it), but it’s one of my most shameful “secrets.”

I eat spoonful of Nutella straight from the jar, and sometimes that will be the only thing I eat for the majority of the day.

I am depressed.

I am pained getting out of bed in the morning. It’s hard to relate to people who casually say, “Yeah, I didn’t want to get up this morning,” but may not understand the gravity of depression. It hurts to the bone.

I have trouble taking my daily antidepressants because a hidden part of me doesn’t believe I’m worthy of feeling better.

I am obsessed with filling my brain with as much information about mental illness as possible.

And yet, no matter how much I read books, articles, and studies about eating disorders, depression, eating disorders, anxiety, or impulse-control disorders, I struggle to control my own mental health.

I have a hard time with “I’m depressed.” Maybe because I don’t believe that the real me is just buried under mental illness. It’s more like “I’m a person living with depression.” It has taken so much of my personality and soul out of me, but without depression, I am a lively, joyful girl.

I am taking care of myself (or I’m learning to).

I practically begged my parents to see a therapist, nutritionist, and psychiatrist, when I was only 15 years old. It certainly wasn’t easy, especially because we didn’t talk about anything “emotionally charged,” but I knew that it was a step I had to take in order to alleviate my pain.

I reach out to others when I need it most. Even though I isolate, too, I also know that in moments of desperation, I do instinctively ask for help and support from those I trust.

I treat myself to occasional manicures, special purchases (a dress, a pillow, some art supplies), and a lazy Sunday.

As much as my brain tries to trick me into thinking that I am worthless and unlovable, I try to actively do things for myself that remind myself that I deserve care.

I am brave.

I share my story with very few people, but when I do, it is the most rewarding experience. Sharing real experiences and thoughts is how I create deep connections with people.

little ballet dancer

I moved to Denmark for my first job out of college. I don’t speak the language, I’ve never been away from home for more than four months, and I left my entire support network at home.

I am working full-force in therapy at facing the demons and insecurities I have hidden for years. I am taking charge of my life by learning to be vulnerable, accept my flaws, and love myself in spite of them, and find happiness for the first time in my life.

 

A Letter I Can’t Send: Losing A Friend

We all have letters we’d like to send, but know that we can’t. A letter to someone we no longer have a relationship with, a letter to a family member or friend who has died, a letter to reclaim our power or our voice from an abuser.

Letters where actual contact is just not possible.

Do you have a letter you can’t send?

It’s almost a shame that this time of the year brings memories of you. Of losing you.

We were best friends for so long – even our families were intertwined. You, me, my brother, your brother. Our parents. I breathed out, you breathed in.

How many years did we spend on the phone, planning our outfits for the first day of school? The corduroys. The turtlenecks. One of the hottest days of the year, but we had to wear our new clothes.

A right of passage, I suppose.

I had so many hopes that our children would do the same. WE shared those hopes and dreams of our future. Together.

I watched your daughter for you when she was an infant. I didn’t have a job. I was there. I wanted to be a part of her life. Her aunt. I hoped the same would happen when I had a child.

It started off like this, but time changes things, and now there is no “Auntie *you*” for my daughter. I was losing a friend.

There is no older, seasoned best friend for her to call and chat with.

No looking back at ourselves and seeing our life unfold before our eyes with the next generation.

Time changes and does not always heal. Loss is loss and our relationship is lost.

losing a friend

I stumble across pictures and struggle to answer the questions. ‘Who is that, Mommy?’ she asks.

I shake my head, hear myself whisper softly.

“That was mommy’s best friend.”

I won’t cry. I can’t. But it’s sad.

My birthday approaches and I think of what we used to say. The future we used to see. And it’s gone. Disappeared like a puff of smoke. Several years ago we walked through the wrong door and never truly turned back.

I cut my losses. I don’t need a toxic relationship in my life. Despite the love. The memories. There was too much sadness to bear. You broke my heart in many ways, were not there for me the way you were supposed to be. And so, I moved on.

And I continue to. I keep going. Hold onto some friends. Think of you now and then. Sad? Yes. Wistful? Sure. Turning around and going back? No. Unfortunately that isn’t an option.

And still I’ll always remember.

You were my friend

once.

Dear Friend,

This is part of a letter to a friend in response to her mom’s suicide.

Dear Sarah,

It’s been a long time since you’ve asked me to comment on the book you wrote about your mom’s suicide. I think you are amazing to write about it and I’m glad that you did. I don’t enjoy bringing that chapter of life to mind, given the chaos of those years, but I’ve thought about it often. Especially when I think about what it means to be a mother and uncovering fresh layers of fucked up that we both learned from our mothers.

I know it’s not fair of me to judge them now — but it’s hard not to. 

I took your mom’s suicide hard.

Talking about my relationship with your mom is hard for me because I admired her very much — I was flabbergasted by the way that she slipped back into drugs and addiction.

I was shocked that she abandoned you like that. I was just shocked.

I couldn’t believe your mom would die by suicide.

I still can’t.

I remember the first time I met your mom, I was playing in the front yard while she moved in across the street. She introduced herself from over the fence and told me that she had a daughter just my age, with my name: “I have a Sarah too.”

By the time you came to visit for the summer she had already arranged that we would be playmates.  She even arranged a phone call between us before your visit.

When you showed up at my front door, I knew we would be lifelong friends.

mom's suicide

My mom worked a lot and my dad was physically or mentally absent most of the time, so your home was like a second home to me.

During these years, your house felt like a Norman Rockwell to me, though now I see that it was far from it.  

My mom remarried a man who was addicted to heroin, while at your house, your mom packed lunches, set up the tent in the backyard for us to “camp,” and made goody bags filled with candy. She took us to the zoo, the mall, and the flea market. She prescreened movies, took us for mint chocolate chip ice cream cones, and insisted that you wore a bike helmet. I remember going with her to an NA picnic in the park and how proud she was of her sober chips. We’d to admire the shiny metal coins she earned for racking up months and years of sobriety. 

I envied the amount of time and attention that your mom spent with you when she was sober  As a kid, I saw your mom as kind, fair, the type who would take the time to listen.

When your mom died by suicide, I was glad that she had doted on you those years before she started using again.

As my home life became marked by violence and fear, I began that the world was full of bad people. I quickly became withdrawn to protect myself.

Beth was a reminder that there were safe adults in the world.

When my stepfather and my mom first started fighting, I called your house in the middle of the night. I was so scared. I didn’t know what was happening or what to do.

It was very late and your mom answered the phone and insisted that I tell her what was happening. My stepfather hadn’t started hitting my mom yet, but the yelling was really over the top. She gave me a speech about how adults sometimes argue and it can be scary for children to hear and explained that my mom and step dad would never want to do anything to scare me. She told me to go downstairs and tell them that they were scaring me and I couldn’t sleep. They told me to go back up to my room.

mom's suicide

Many nights of fighting followed with growing intensity and I tried to call you but ended up talking to Beth.

Beth eventually called my mom and told her that she was concerned about me – I was in big trouble. I was forbidden to speak about “private family business.” It worked: I didn’t speak of the violence again until after his death.

The violence escalated and my stepfather began beating my mom and my brother when he was angry. We moved on several occasions to get away from him.

The emotional abuse from my stepfather became our new normal and we began spending school nights on random people’s sofas, hiding our car down the street.  

I spent as much time as possible at friend’s houses and took up babysitting to get out of the house on weekends.

Beth was the only person who knew what was happening; I’d assumed that she would be the person to help me out of that situation. I’m no longer sure she understood how bad things had gotten. She provided me a safe place to go whenever I needed one and a reminder that there are kind people in the world. She told me that I should become one of them. She affirmed that there were a lot of fucked-up things in the world and they would probably never make sense.

Honestly, I don’t know how I would have turned out without Beth as a moral reference point during those years.

Beth became addicted to codeine cough syrup and her behavior changed: she didn’t take us on outings she slept all day everyday. One occasion when she woke up, I remember her running down the hallway singing “boo boop be boo.” This is when I learned that there was something wrong. I was pretty sure that people with bronchitis didn’t do that kind of thing normally.

I knew things were coming unhinged for you, but was too young to appreciate the full weight of what was happening.

I lived in Beth’s house twice, once for a short time when I ran away after my stepfather died and for the school term after that.

By the time I officially lived with Beth she was pretty far gone in her addiction. She slept or was gone most of the time. 

It seemed that you were on your own, too.

I still cared what Beth thought of me. She seemed one of the few people who didn’t see me as a lost cause and so I didn’t see myself that way when I was around her.

On Fridays, Beth would take us to the grocery store. She taught us how to grocery shop and some very basic cooking skills.

Things went sour when my mom suspected Beth was using the money she gave her for things other than my upkeep. You and Beth were at odds more often than not. I decided it was best to move back home. Home was a sort of hell, but it was my own hell and I knew how to navigate it. 

I didn’t see much of Beth after that.

I’d spend weekends at her apartment while she agreed to leave us totally unattended. The last time I saw her, she’d picked me up from my house to bring me back to your house for the weekend.  I remember her being warm and chatting with me for the ride, though I can’t remember what about.

I remember her smiling and I remember that she mentioned that you were unhappy with her these days. 

The next time I saw her she was in a coma.

Atrophied hands, hair cut short, dead to the world.

No warm smile, no more sun-kissed freckles, no more frizzy bun atop her head.

She was gone to the world and she couldn’t recover. That’s the last I saw her.

died by suicide

I couldn’t talk about her death with you. It didn’t seem like you wanted to and then you were gone I knew that she let you down and ultimately abandoned you with her suicide. You have every right to be angry with her; hell I was angry on your behalf.

I was just shocked and sad. I think I felt abandoned too.

The next few years were hard for us; the one person I saw as a safe adult had succumbed to drugs and took her own life. It didn’t add up.

Suicide was cruel and yet I remembered her as such a kind person.

There was nothing I could say that would lessen the pain for you so I said nothing.

You remind me of her because you look so much like her now. If you want to talk about what happened, I’d let you start.

What is there to say now, after all of these years?

That was fucked up. There is some fucked up bad shit in the world and it will never make sense, but there is some wonderful stuff too. I think that, despite it all, we both turned out to be people who contribute more to the good than to the uglyl.

I hold you close in my heart, my sister and my dear friend.

With much love,

Sarah 

13 Is My Happy Number

We at The Band do understand that a lot of our subject matter can be very dark and dense. This, however, is not a story of sadness, but of rebirth, finding a place in the world, and knowing just how valuable you are. 
We encourage each of you to tell us one of your stories – happy or not.
This is her incredible journey:

13 has always been my happy number.

Today is no different.

13 years ago today I left my first, abusive marriage. I didn’t know where I was going, what I was doing, or how I was going to survive or take care of my two boys (and their sister who was due in five months. But I did know this: the best place for all of us was NOT with their father.

Leaving was the first hard decision I’ve made as an adult, the first time I felt like an adult, the first time I ever felt like I had the ABILITY to make a decision for myself or my children.

a photo of carnival people on swings

Life after his abuse was not an easy time. it was easily one of the three hardest times I’ve ever experienced in my life.

I am so thankful that a support system came out of the woodwork when I needed it and helped us get through the transition and helped me feel secure enough in my choice to leave that I didn’t end up going back.

I can’t imagine where my children or I would be today if we hadn’t had that.

Mike and I met shortly after that fateful day, in a chatroom. Two years later on August 20th we found out we were having a baby! Baby Eliza blessed us with her presence on April 21st.

I know that it’s no coincidence that today would also have been my father-in-law’s birthday, may he rest in peace. I wish I’d had the chance to meet him.

Today has so many memories, meanings and significance for all of us. This is truly a day we will all cherish forever.

a crowd of people hands shaped into a heart

13 happy years of freedom, 12 years knowing my true love, and so many other memories. Amazing memories.

Before, After, and Between.

Today is a good day every year, and always will be.

How about you? Do YOU have a happy or lucky number or thing?

Remember Your Purpose.

Losing a pet can be as awful as losing another family member.

Please, share your stories of your wonderful animals.

Sebastian was a foster fail. My fiancee and I took in he and his two kitten brothers after they were dumped in box outside our Humane Society. Sebastian and his brothers were tuxedo cats, their black fur so shiny and soft. Sadly we lost one of the brothers, George, early on from a terrible respiratory infection.

The other brother, Bellamy, stole my Love’s heart. Another foster fail.

But Sebastian…Sebastian was mine.

pet loss tuxedo cat

While we were supposed to be fostering them until they were adopted, we just couldn’t let them go. Our family of 4. So 4 became 6 – we’d become a foster-fail family, and we loved it.

Alex and I were outnumbered by cats but we wouldn’t have had it any other way. We got them fixed and they settled right in.

Sebastian became affectionately known as “Bash” or “Limp Noodle”. Whenever you picked him up he went limp and let you hold him however you wanted.

Sebastian wasn’t quite two years old when we first started seeing signs of lethargy. One day, that same lethargy led to a temperature check. While it was supposed to be 99.5-102.5 Fahrenheit.

It was 106.

We raced to the emergency vet only to hear the devastating news of Feline Leukemia. We were distraught. but It was a road we had been down before and understood. We lost my fiancee’s first kitty love to feline leukemia.

The emergency vet suggested that we put him down. We just weren’t there yet.

We felt he still had more time and we wanted to look into to doing something, anything that might help Sebastian. As he was also fighting a secondary infection due to the lowered immune system caused by leukemia we started my sweet foster fail on antibiotics. His regular vet suggested an immuno-reglan booster –  $26 a shot on a strict schedule. Not a problem.

We were willing to go into deep debt for this guy.

The first several shots brought on massive improvement; it was like he was a kitten again, jumping and playing around with everyone. We thought that maybe, just maybe, he could have some quality of life. Then came another secondary infection.

He spent 3 days in the hospital fighting it. Got to come home and continued his shots, but they were no longer working. He was spending his days sleeping and hiding in cabinets.

Not two weeks later, his infection came back and back he went to the hospital.

This time he stopped having any interest in food.

The Thanksgiving holiday was coming up and after three days in the hospital, the vet thought it might be getting close to time. He gave us a choice, put him down or wait through the holidays and see if his appetite returns.

We chose to wait.

I look back on that now and wonder just how selfish I was being. We just kept hoping that our pet wouldn’t die.

The following Monday there was no change. We took some final precious moments with our baby boy. He lay on us and meowed at us when we spoke to him. He was tired and he had fought all he could. He was letting us know it was okay and that he knew it was his time. He went quietly and peacefully.

tuxedo kitten before pet loss

I had been through the loss of fosters before, but never one that became a pet. He was my first foster fail.

I loved him so much; missed him so much, that I cried for three weeks almost every day.

It’s late August and I’m crying as I type this.

Pain can lessen, but it never fully goes away. Not when the loss is so intertwined in your heart.

Recently our Humane Society shut down. We’ve affiliated ourselves with another rescue and have continued to foster cats. We end finding a lot on our own through people who reach out via Facebook saying there’s a kitten here or a litter there. We’ve also started working with a group of people who TNR ( trap/neuter/release) feral cats.

Our city here in Arkansas has a horrible cat overpopulation problem.

One night after doing “surveillance” on an area we are hoping to trap some adult cats to TNR we noticed a tiny little kitten head poking out from behind a bush. We stopped and spoke to the kitten who became very chatty with us. He was not a feral, he was entirely too friendly. Someone had dumped this poor baby.

Alex opened a can of wet food and approached him. He was apprehensive at first but eventually she was able to pick him right up.

Alex came back to the car with him and was nearly in tears. “Look at him,” she said.

It nearly took my breath away.

This four month old baby looked exactly like Sebastian.

He’s been with us for three days now. He’s a goofy thing. And I swear walking through our apartment and running into him I think it’s Sebastian. I don’t know that we will keep Cooper but I will be forever grateful to him, for reminding me of my sweet boy and that I serve a purpose here.

Tuxedo kitty pet loss

Save and fight for those who have no voice. Love the forgotten and uncared for.