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I Just Wish Someone Understood…

A wise woman told me to write up my story and tell the hell out of it.  So, here I am.

Sometimes, I feel like I have the only kid like mine. My son was diagnosed between 3 and 4. He is one of 3 I have, with special needs. For the time being, I’m focusing on my oldest.

We knew something was not right with him. He threw an 80 lb. mattress across the room at me. How does a 3 year old do that? He never slept. He would have meltdowns and throw things at me. I have gotten black eyes from everything from a book to an army boot to the back of the head.

Thankfully, I had a wonderful doctor tell me how to deal with the meltdowns and those came less and less often. However, he would wander. We had two incredibly scary events where he wandered off when he was 5, but he had angels and off duty police officers watching out for him.

When we got the Autism diagnosis, I knew nothing about Autism. Most people equate it to the movie Rain Man. I had never seen the movie so I had no clue. All I knew was Doug Flutie, an NFL football player, had a cereal that’s proceeds went to autism awareness. The only reason I knew that is because I saw the commercial once while my husband was watching a game. That’s all I knew.  Nothing else.

So, the journey was rocky and hard.  The first year my husband was stationed in Korea, so he was not around to learn what I did.

I relied on “friends” I thought that I had to help. Instead, I got investigated by CPS (child protective services) for making everything up. The only thing that was founded was that I was stressed. (Gee no idea why???)

My son’s first year in school was horrible. Open classroom and he would have meltdowns. They did not want to deal with him, so 5 out of 5 days he went to school, he was sent home early. I had no idea what I was supposed to be doing or how the school should have been handling him.

Thankfully, the school he was moved to had a wonderful Spec Ed teacher that knew what she was doing, to this day, I will still kiss the ground that she walks on.

He improved and stayed in school. Had messy moods and lack of sleeping so we had to join the medicine bus. So many doctors and specialists, “you should do this” and “don’t do that and this and that.”

The kid is a loving, sweet amazing kid. He has a hard time showing that. He has many co-morbidities along with his autism. ADHD, ODD, Anxiety, depression, hypermobility, OCD, etc.

In our journey with him, we realized he wasn’t like most kids with autism. So many can use an iPad and it’s nothing. A phone and no problem. With my son, he can not tell the difference between reality and what’s on the iPad or phone. We tried. We tried so many times, so he could be like his friends or brothers. But it ultimately turned out so, so, so, so bad.

When he was 11 a child that bullied him at school told him that triple x rated stuff on the internet was bad and if you looked at it you were super special because not everyone’s computer can look at it. Ever since that day, my son has been fixated on it. At 11 he had no idea what it was, just that it was special and not everyone could see it. As he grew into puberty it got worse and worse. I still don’t think he knows exactly what its supposed to mean to a person, because his thinking age is around 10, but he knows its bad, he’s told his therapist it’s bad. He’s tried to look at it on the internet at school.

We had everything on our cable blocked so that he could not watch it or order it and somehow he got around it and we had a $900 bill.  (I’m still drinking coffee to cope with that one)

Now he’s in a dark, dark place. He’s obsessed with death. He writes and writes and writes about death scenes. Then he tears them up. He talked to his therapist, but he sees no problem. We can not even let this child watch cop TV shows it’s that bad. Nothing to do with magic, or death.

My husband and I have been watching his behavior as of the last 2-3 months and I’m not liking what I see. Neither does my husband.

His moods are very erratic. One minute he’s happy, the next he’s angry and ready to fight. Then he’s happy. (Note: he has not touched a soul, just has gotten angry with words) These mood changes make me think he’s bipolar. We were warned that he probably was a few years ago. We knew it was coming.

Now we’re questioning the doctor, because my husband and I are so completely and mentally drained from dealing with his moods and trying to keep his brothers from upsetting him. The doctor is trying to tell us that he’s making it all up and that we just have to deal with it. My first thought, no lie, was, “The fuck you mean deal with it? I’ve BEEN living with it! We came to you for help on how to KEEP dealing with it, asshole!”  I, of course, did not say that, because I was too tired.

This kid has been in-patient 7, lost count after that, times for being bullied and being suicidal. I’m scared to death something is going to set him off. Granted all sharp instruments are kept under lock and key. We continue to try and understand what is going on, but our son can not tell us because he does not remember the mood swings.

His doctor said, because he does not feel bad for being angry and mean, he is not bipolar. DUDE, he’s autistic, he’s not going to feel bad.

I had 2 major surgeries and he bumped what I had surgery on, I started crying and he didn’t give two craps. That does not mean he’s not bipolar!

It’s hard to keep him busy. He gets bored with puzzles and crosswords and TV, because we have seriously toned down everything that he can watch. I’m just at a loss on where I should go from here. There’s probably a lot I left out of his story, I’m sorry for that.

Here’s another twist on his story. He legit thinks he’s from another dimension. He thinks he is a female from another dimension, that he will leave to find when he is 18 years old. There are artifacts all over the world that he has to collect in order to remain safe in this other dimension. He thinks that the here and now is just temporary. Because of his beliefs with this, he can not watch or read anything that involves fantasy. Because he can not and will not be able to tell the difference between what is real and what is not.

His therapist and I had a long talk today about it. I had to stop from bursting into tears, because I have never heard of another child like mine. I explained that to him and asked what do I do. He said I do what I’m doing… Be mom.

It did not help when he said that in the 13 years that he had been doing what he does, he had never met another kid like my son.

Sometimes, being a mom is rough as hell when it feels like no matter what you do, it’s out of control. You know all those books you read before you have kids?  I never read any chapters on Autism or special needs and I sure as hell never read any on how to deal with this kind of life for your child.

I guess I should add that I am dealing with my own depression and anxiety right now. My anxiety is off the charts and my shrink threw me into counseling. Didn’t even ask just threw me in. I also have a chronic illness and it flares up in the form of pain when I’m extremely stressed out, the last 3 months I’ve gotten little relief.

It’s sad to say at this point, I’ll deal with me as it comes. I just want my son to be okay. I know I need to worry about me, too. If he is okay, then I can be okay.

Basically, I’m writing this because I just need to know I’m not alone. I’m so tired. My gut instinct with this kid is never wrong. My gut says he needs help with this anger thing and his doctor is being stupid.

I Can’t Heal From This

Three years ago, my husband attempted to rape me. I didn’t really think of it that way at the time. I did shove him off me with a hand to his throat, and he was extremely angry. A few months later, he completed the rape.

He’s always been terrible with boundaries and when I would say no to sex, he would keep trying until I gave in. I didn’t like it, but didn’t recognize it as anything more than annoying.

It was a red flag I guess, but didn’t seem like “real abuse” because I wasn’t being harmed.

After he raped me, I slowly spiraled downward.

We did marriage counseling. I did individual counseling. Still, I wound up checking myself into a psych hospital with severe post-traumatic-stress-syndrome, anxiety, and depression.

We have managed to stay together, but, as you’d expect, It hasn’t been easy.

He still struggles with boundaries, which are obviously so important to our relationship. Unfortunately, he will touch me sexually even after I’ve explicitly said that I don’t want to be touched that way (when my anxiety is at a high I do not want to be touched at all; much less sexually).

He’s started having sex with me in his sleep despite me saying no – when he’s aware of what’s going on he stops, thankfully. When he is very much in the mood, he won’t come to bed with me because he’s afraid he can’t control himself. I suppose I should just be grateful that he stays away but I  don’t like hearing him say he can’t control himself. It freaks me out.

He has been (for the most part) patient and understands why I’m like this now. He’d do absolutely anything to make me happy.

I feel guilty because a large part of me hates him. He has told me that he doesn’t think about the rape unless I’m struggling, which is devastating to me. Something that changed me at my core so much. Traumatized me. Destroyed trust, my ability to enjoy intimacy, gave me massive, crippling anxiety and he…?

He doesn’t even think about.

We are in marriage counseling again; but we haven’t yet told the counselor what happened.

We’ve only had two sessions so far, and I haven’t been ready to discuss the rape.

The counselor is giving us all these tools to work on things and I just…I don’t know. I don’t know how to make it work.

I can’t afford to care for my kids alone. I’m a stay-at-home mom, no good work experience, no family to help me out. I MUST make this work.

And my husband really does try to make me happy and I feel so guilty that he can’t.

I will never be the same again.

Part of me wishes to just end it all and escape the constant anxiety and feeling like I will never get better. Don’t worry; I would never do that to my children.

I’m just struggling with so many feelings of anger, sadness, depression, stress, and frustration.

My husband used to be my best friend. We get along pretty well now, but I just can’t see him romantically again.

Can we make this work?

 

Antepartum/Antenatal Depression

The only thing I’d wanted was another baby.

So when, after meeting a good guy, marrying him and buying a house in the suburbs with a yard (like I was Suzie-freaking-Homemaker), I found myself knocked up once again just like I’d wanted, I couldn’t begin to understand why I was so miserable. After living through my first pregnancy — something that can only be described through a particularly bad country song — raising an autistic child, escaping my alcoholic parents and finally having another baby, this time the way I thought it was “supposed to be,” my feelings were beyond bizarre to me.

Certainly, my life was stressful. But my life has always been stressful. I’d had to quit my job and money was tight, something my new husband worried about often and loudly. When we’d moved to the ‘burbs, we’d left behind our friends so my support system of single friends was gone. We’d occasionally talk on the phone but it became more and more obvious that we were no longer on the same page. It stung more than I’d thought it would.

Day after day during this pregnancy I sat alone on the couch, or praying to the porcelain gods, while my husband worked 14-hour days. My distant son, never a source of emotional comfort anyway, was in school all day. These were the days before I’d adopted the internet as Your Aunt Becky, so I was Becky, As Herself. I had no one to confide in, no Band of Merry Pranksters to confess my feelings to, and now neatly severed from all of my support systems, I floundered.

I’d been depressed before, but the feelings I was experiencing were new. I felt like I was mired in quicksand, rooted in one spot, unable to move forward. Always a social beast, I could barely leave my house. A simple phone call became too much to handle. The isolation bred isolation and now a trip to the store exhausted me for days beforehand and afterward.

It was all I could do to get out of bed in the morning.

Sleep was an elusive mistress. Night after night, as my son churned in my belly, I tossed and turned, unable to ever fall into that deep REM sleep that the doctors insist we need to survive. I remembered that sleep deprivation was a technique that soldiers used on POW’s to drive them slowly insane, which was precisely what was happening to me. Each morning, I dragged myself out of bed, unrefreshed and sad, filled with a sense of impending doom.

Finally, untrusting of my OB, I turned to Dr. Google for advice. While I wasn’t yet Your Aunt Becky, I was a blogger and I knew that the beauty (and horror) of the internet is that there’s always one soul that no matter how depraved you’re feeling, can sympathize with you. Setting my search to “antepartum depression,” I was confident that I would find something.

Nothing came up. Well, okay, there were a couple of things, but mostly with “antepartum” and “depression” mentioned in the same article.

Not exactly helpful, Dr. Google.

Fine, I thought. I’m a freak.

Ben, my first, had been born after Andrea Yates had her bout with postpartum psychosis, so I’d had no end of pamphlets shoved at me to help me combat any urges to hurt myself or someone else after he was born. We’d studied the spectrum of postpartum mood disorders in nursing school as well. But antepartum depression was a big question mark.

So what did I do? NOTHING. I wore a groove on the couch where I sat miserable and sad until my second son, Alex, was born squalling and healthy. Almost instantly, my mood improved.

When I got pregnant with my daughter, I expected the antepartum depression to return and it did. By this time, I had become Your Aunt Becky and shared my troubles with my Pranksters. Many stepped up and said that they, too, had experienced the same types of feelings. It was wonderful to feel less alone; less like a circus freak. I went onto an SSRI in my second trimester to try to combat the antepartum depression, but even with that on board I didn’t feel much better. Pregnancy, it seems, doesn’t agree with me.

What shattered me was after I shared my experiences about antepartum depression, the usual search terms that brought people to my blog (boring things, aunt becky sucks, mommy wants a vodka) were replaced by these: “antepartum depression,” “depression during pregnancy,” and “sadness in pregnancy.” Knowing that there were other women sitting on their own couches struggling the way I had broke my tiny black heart into a billion pieces.

The isolation I experienced was devastating and while I ended up walking away from the experience with only a little darkness on my back, I hate to imagine others out there suffering the way that I did. I’m thrilled that postpartum depression has gotten so much support. It should get all that it does and more. Women supporting other women is beautiful. I want antepartum depression, which they now call antenatal depression apparently, to get some of that support, too.

I hope that for the next pregnant woman who sits on her couch, crying and feeling as desperately alone as I did, I hope that she can find the light.

Because there is light. And it is so, so good

The Demons In My Brain

I’m not usually one to do stuff like this. I’m the creeper lurking in the corner wanting to make friends but never approaching anyone.

But I have a story, and I need to let it out.

I was your typical Midwest teen in 2006. I was 15, went to the movies with friends, spent all the time I could in the band room or wandering around the pastures surrounding our house. Life was pretty good. Then came that fateful day in February.

My half-brother got arrested for murder. My dad and I always knew he’d end up in an institution somewhere. He wasn’t raised in a good home like me and he had a hard life; we thought he’d get some time for burglary or car theft.

But never this.

After he was arrested, all these issues from the few years when he lived with us surfaced again, all the abuse he put me through before mom came home from work. My school never did Sex Ed, I didn’t know. For years they were buried…he hadn’t lived with us for awhile, but when he was arrested, the memories came back.

But I never told anyone, until now.

I failed my first class ever that year. I just didn’t see the point in doing any work when spring came around and my brother was in court and here I am in school while the people around me are complaining about how the school food sucks or how some teacher took their cells. On the outside I was the same as always, but inside I didn’t know who I was anymore.

I made it through the year, when my mom yelled at me about my D grade, I thought about ending it that night. Just swallowing a bottle of pills, but I was able to get online and talk over all the stresses with my internet. Life was stabilizing again.

Then came the day I can never forget, and I still have trouble talking about.

June 11th 2006, 8 o’clock on a Saturday morning, I got a phone call from my best friend.

She told me that 3 students from our school and our Spanish teacher were lost in the ocean while swimming on a school trip to Costa Rica. The body of one of the students had been recovered already.

Sunday, they recovered the body of one of my closest friends. The third student was recovered Wednesday. Sr. C wasn’t recovered until Friday.

All I remember for those summer days was sitting in front of the computer refreshing news pages, hoping and praying that maybe Andrew, Jessica, and Sr. C were still alive, then it was Jessica and Sr. C, then just Sr. C. Finally it hit me. Four people I knew, went to school with, acted in plays with, sang in the choir with, played in the band with, learned from.

Dead.

They lived in Kansas and they drowned in the goddamned ocean in Costa Rica.

It was 2 days before my 16th birthday and instead of going to a movie with friends or something on a Friday night I was sitting in a hot crowded auditorium with some friends and Andrew’s brother, crying, wishing it was all just a dream.

Saturday, I didn’t get out of bed. Sunday, my mother prepared all my favorite food for dinner, a beautiful cake, my sister was there, I didn’t eat anything. I got a car. I didn’t care.

Later that week, I was on a bus full of high schoolers heading down to Texas for Andrew’s funeral. Everyone thought I was okay, I acted normal for my friends. But when they played Amazing Grace at his funeral I lost it. Amazing Grace? What’s so amazing about a 17 year old losing his life?

The freshest memory of Andrew is sitting with him on the floor of the band room on the last day of school listening to Good Riddance by Green Day. Any time I hear that song, even now, 4 years later, I cry.

My junior year in high school things were back to a semblance of normal, but band didn’t have Andrew. That spring I started cutting because I was so sick of being numb and the pain let me feel something. It wasn’t deep. There are no physical scars, but it allowed me to feel.

Then I went off to college, started smoking to get away from my crappy roommates, slept any free time I had. I didn’t have a social life outside of band and my dorm room.

Next year in college, I rented a house with a friend of mine, and I started cutting again. One night, I finally left scars. The next morning, I called the schools Mental Health Services, the next day I was talking to a therapist. I told her part of the story, how my brother was a murderer and my best friend drowned in the fucking ocean. How I almost scratched my arm raw on the first day of classes because I’m so nervous in new situations. How I’m always afraid that the worst is going to happen. She didn’t try and give me coping mechanisms or advice, she just gave me pills.

The pills made me feel nothing, I went through that semester feeling like a shadow. I tried to tell her that I didn’t want the pills, she said they were the best option for me. So I stopped. They weren’t helping the depression, the anxiety, or the suicidal thoughts. I was on my own again.

During spring break, my significant other of 4 months cheated on me with another friend. She had the dignity to tell me but it didn’t really help. I started drinking, and picked up smoking again. I failed all my classes.

I am not proud of who I was, or of what I did. I have regrets and I can’t forget those regrets.

But I am stronger now. I switched schools and I’m back to living with my parents. I don’t really see my friends much anymore, but I’m becoming who I need to be. I’m trying to learn to cope with my feelings in a good way instead of just bottling them up inside.

I’m 20 now, an age Andrew will never reach. I haven’t seen my brother in 4 years. I can’t trust anyone farther than I can throw them (read: at all) but I am becoming me. I’m changing the path of my life, some days are bad, some days are good, and some days I wish I could crawl under a rock. I just have to keep telling myself that everyday is worth it, that I am worth it, and that in the end I will be me.

And maybe in years to come when I look back at the last four years of my life I can smile and remember good things that happened instead of seeing this crater left by that summer.

Anxiety Because Reasons

Tonight has been one of those nights…
Where you’ve held it together at work all day.
Didn’t eat a good lunch.
But kept your self-care appointments, involving hours at the doctor’s.
Then you get home…
See a video where children of color are treated poorly by law enforcement, reminding you of the profiling your family has experienced over the years because they look like a gang banger.
So, why not pick a fight over nothing with your ex (who happens to be your roommate), even after he made you dinner & handled the kids.
You scream, and cry, and rage. And he looks at you blankly, trying to understand why. And you respond: “It’s nothing”
Except it isn’t nothing – it’s deep down visceral fear
That POC are getting treated unfairly.
That your white passing children will have even more privilege because of his German last name, light skin, and their anglicized Spanish.
“¿Mamá? Cómo se dice ‘pancake’ en español?”
“Crepé, preciosa or bañuelos, depends on who you’re speaking to” the Spanish words falling freely from your tongue but hearing them say the words reminds you of ‘los gringos’ and secretly you’re thinking ‘good’.
But even with that privilege, school is no longer a safe space for them.
Because moving to rural America, 2000 miles from family, felt right 4 years ago because little Amy was throwing gang signs in every picture at your daughter’s 9th birthday party.
And here in Middle America, a boy in her class, who talks bomb threats and knows every weapon class in both hunting and military capacity, is told “better be careful who hears you talking like that in high school Michael, you could get suspended.” But no one takes him seriously today and you think “thank goodness they’re going to different schools next year” when she tells you about this.
And your heart hurts for the world but most especially for your cousin who lost her dad and stepmom in the Texas shooting last year. Who, at 34, younger than you are, is going to be a grandmother, but she’s so grateful for life in the face of death, she has no anger towards her daughter, only love.
So you apologize for taking your pain out on your ex.
Take your pills and drink some water.
Put a comedy on the TV.
Cuddle your babies close, all of them.
The woman sized one, taller than you but with so much to learn yet. The scrappy ‘baby’, age 8, who thinks she’s also 13, who loves her sister’s hand-me-downs and stuffs her shirt with toilet paper to mimic the breasts she doesn’t yet have. The furry one, and the scalely ones.
And wait for the meds to kick in and shove the fear and worry back into the abyss of your heart.
Hoping that with the morning you’ll put on your crown and press on for the day. Fingers crossed that your coworkers won’t notice that your eyes are puffy again.
Yup, it’s been one of those nights.

#MeToo Many, Many Times

The first time I was molested, I was 6 years old. My step-dad was a controlling, abusive asshole and had been grooming me over the few years he’d been married to my mom. It started as tickling, then moved to a touch here, me touching him there, and everything you can imagine in between.

At 6, I had no idea this wasn’t normal interaction. He was the only dad I knew.

At 8, I knew how to give a blow job, at 10 he was attempting penetration (poorly), at 12 when I got my period, I got worried. A substitute teacher covered a chapter on sexual abuse in health class and I realized that this wasn’t normal at all. I told my mom that afternoon, he moved out that night, I got lots and lots of counseling.

At 14, I was raped by a 21 year old that was my “boyfriend.” We met through a mutual friend, he got me drunk on Everclear and told me if I didn’t let him put it in one hole he was gonna put it in the other, whether I liked it or not.

I thought it was a compelling argument.

I remember he had big speakers under his mattress and he put on something with a shit ton of bass and it made me so nauseous that I spent 20 minutes puking on his back porch. I didn’t tell anyone. In fact, I continued to date him for an additional 6 months.

During that time he fantasized about moving to Alabama (where 14 is the age of consent) getting married and having babies with me. At the end of those 6 months he nearly got arrested for threatening a secretary with bodily harm for not allowing him to bring me flowers to my class… in middle school.

My mom found out and then I spent 4 weeks as an inpatient at a juvenile psychiatric facility. I started my long journey of anti-depressants and self-medicating.

At 15, I walked over to a boy’s house that I had a crush on to “hang out.” We were making out and he got my pants off. I let him know I wasn’t interested in having sex so he decided that putting his belt inside me was a better option? I was known as “belt girl” (probably still am, honestly) for a number of years after that, to our group of mutual friends.

At 31, I got locked into a hotel room with a smooth talker (stalker) who had me convinced we were in love. The next 8 hours were filled with things I never want to remember and that my brain won’t recall. I left sore and mentally broken, but I never told a soul (until now).

These are of course only the major offenses. I’m not including the literal hundreds of unsolicited dick pics, “accidental” gropings, catcalling, and unwanted sexual advances that occur from randoms quite often.

Why didn’t I report it at the time?

Well it depends on the occurrence. The first time I didn’t know any better, the second time I was in love, the third I was embarrassed and ashamed, the fourth I was terrified of ever seeing him again. I definitely didn’t want a court case. I never filed charges on any of them. Even the long-term ones.

I remember vividly talking to a counselor who warned me of the long court process to press charges against my dad, how it was my decision (AT 12), and whether they should file charges with the DA. Seems like something an adult should’ve decided, no? That stayed with me through all of my assaults. I felt powerless and guilty. I blamed myself for my poor decisions. Surely, I mean, it was my fault, right?

So now PTSD is a real thing I live with every day as a survivor of multiple sexual assaults. The triggers are never expected or convenient. Depression and anxiety go hand-in-hand with that. Once, a psychologist mentioned her surprise that I didn’t have a personality disorder, so there’s that, I suppose?

This is why the #MeToo movement is so vitally important.

The shame, the bureaucracy, the headaches, the guilt, it’s not worth reporting. This is what I’ve been told time and again as a victim. Maybe not in those words, but certainly with that intent. Someone didn’t want the paperwork and i didn’t want the trauma of retelling my story time and time again.